Lita57
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I was actually on Xeloda for a little over a year. I guess it didn't work that well for my brain mets. Two of them are over 4 cm.
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My Christmas gift of Walking Dead SHITTIN' PANTS arrived. My daughter thought it would be some sort of gag gift....just an empty box, but NO, there are REAL disposable pull-up diapers in the box.
It's not fun when you can't feel anything down there or back there anymore. As I posted days ago, this is MY LIFE now. I still have to wait for my plastic pants to arrive to help with oozing, leakage issues as pull-ups aren't a perfect solution, especially when dealing with diarrhea from weekly Taxol Tx.
No word from the MO on the MRI yet. I hope I hear something after the 1st. Maybe they can do some radiation to bring some of the feeling back, but my fear is once the nerves are damaged, that's that; they won't come back to normal and I'll have to wear depends and plastic pants for the rest of my life. But maybe radiation will keep me from losing all my bladder control (I still have a little control of that left, but for how long I don't know).
So, it's happy shittin' for me.
L
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Lita. I love how you find the humor in every situation!
Babs
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That is funny and brave at the same time. Go Lita.
>Z<
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Ha, me too babs, love your sense of humor Lita! Also LOVE the pic of Sophia!
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Thoseare side splitting funny & I believe our ability to laugh is extremely healing. Besides cancer I've had MS for many years. I belong to an MS gym where many of us need Depends due to nerve damage issues. One thing about sharing a common disease is that you meet the most honest, open, loving people you can imagine. Knowing these people as I do I know should I place a box like this on a table in the gym it would give so many people a needed chuckle!! Lita, if you still have the info & wouldn't mind sharing, could you send it to me so I can order? I promise I will never tell who gave me the idea!! Happy New Year all. I hope that 2018 gives us some measure of serenity, acceptance, motivation and that needed giggle wherever we can find it. Love you all
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In the waiting area at Kaiser....up for mt qrtrly PET scan in 20 mins.
Hope the Taxol is keeping things stable.
No news about last week's spinal mri yet.
L
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Wishing you good scan results, Lita
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Lita
Hoping for only good results!
Babs
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fingers crossed for great results.
Z
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Fingers and toes are crossed for good results Lita.
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Hi Lita,
Sending warm blessings and prayers that you are getting some more promising news today!!
Kimberly
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Lita, sending prayers and many gentle hugs to you today.
Maire
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Hi Lita,
Thinking of you and hoping you receive some good news from the scans!!
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Sending lots of gentle hugs, kind thoughts and prayers your way!
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Lita,
As I’m going through the various BCO threads tonight, I’m catching up on this one and truly just seeing your name makes me smile. Your posts are so truthful and your sense of humor just comes off the page. I find myself laughing out loud, which I don’t do too often these days.
Thanks for keeping us updated and know you are in my daily prayers, dear one. Wishing and praying for the best scan results.
❤️ Southern
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MO got back to me re: MRI and today's PET scan. The good news: abdominal mets stable. The bad news: lumbar mets have gotten WAY WORSE.
Duh! Why do you think I'm wearing Depends? The growing tumors are compressing the nerves and causing myelopathy so I can't feel anything down there anymore.
The RO is out of town, but the MO will contact him when he returns and see if we can radiate again. I hope we can, but I had rads to that area last April, so we shall see.
Thanks for all the positive thoughts.
L
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Lita so hoping they can do more Rads for you.
Babs
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Praying more RADs can happen to lessen discomfort... MJH
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MO arranged for a consult with RO this am. I will start a series of 5 sessions to the sacral spine tomorrow to help with fecal incontinence.
RO isn't making any promises as there are no guarantees. He said once the nerves are damaged, often times they do NOT come back. But at least, we can hopefully keep it from getting worse and not causing full bladder incontinence as well. I'm still okay on the bladder front...but I've had a couple of close calls.
I have to have imodium and lomotil on stand by because the additional rads could cause diarrhea. There might be some painful urination, too, he said, but we'll see.
L
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Lita - I'm sending you gentle hugs! I don't want to hug you too hard, something bad might pop out😄. I'm hoping those rads will do the job! You are in my thoughts and prayers everyday.
Claudia
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Lita - I hope some good comes from the effort. Xeloda was mentioned a page back. I remember when we were sure that Xeloda crossed the blood brain barrier. You got it in the brain. I got it in the liver. Lesions growing despite Xeloda and what is was doing for rest of cancer. A complicated mess. Always thinking of you.
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Lita. Glad the RO is trying rads. Hopefully it will help!
Babs
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Lita - I found a trial at UCSF that may be of interest to you.
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Lita- praying RADS improve everything for you.... MJH
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Thinking of you Lita, hoping for good results from the rads.
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Lita,
I don't post much, but you are always in my thoughts and prayers. I hope the rads help, with little or no SE's.
Sending love, hugs and prayers for healing your way.
Amy
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Lita - you are amazing. I am humbled by your fortitude and sense of humor.
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Lita how are you doing? I sure hope something is working big hug dear lady.
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Not doing real well, sad to say. Rads to sacrum didn't do anything except make my right leg more numb.
Still battling fecal/anal incontinence. Haven’t given up the Depends and plastic pants. Have added North Shore Supply's large absorbent pads to my mattress. I was using the blue pads, but they're too small.
Brain mets coming back. Very dizzy, daily headaches, and i can't read or wrote for more,than 2 mins at a time. Everything gets REALLY blurry, and with an already sizeable blind spot, i can hardly see.
L
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