Ringworm drug for dogs (Fenbendazole) might also cure cancer
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I take 20 mg ( when I can be bothered, I kind of run out of steam with all the pills...and I guess chemo is kicking my ass ..) and no drowsiness or side effects wherever I wake up , even if in the middle of the night.
Thank you for the article, Mystical !
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I take 20 mg ( when I can be bothered, I kind of run out of steam with all the pills...and I guess chemo is kicking my ass ..) and no drowsiness or side effects wherever I wake up , even if in the middle of the night.
Thank you for the article, Mystical !
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Thanks all for the input! I really like using the melatonin as opposed to other things I've tried - 5-HTP, Kava, Valerian, all tend to have some residual effects. And if melatonin also has anti-cancer action, I am going to stick with it. Mystical, yes I like the idea of trying to up the dose slowly. I think I will start on a weekend that I don't have much going on and see how it goes.
At one point, I thought the melatonin might be giving me bone pain, but now I realize and my doc confirmed that the stiff thumb joint is a common symptom of anastrozole. So I went back to the melatonin.
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Stiff joints definitely caused by anastrazole!
I haven’t received my COC prescriptions yet after a week and a half. I looked back through the most recent email from the COC and noticed there was a link to a consent buried in the long email. Consent must be e-signed before prescriptions will be called in. I did not hear back from the COC yesterday after reaching out to the patient coordinator to confirm they would call in the prescriptions but called the specialty pharmacy myself today and was able to get my prescriptions paid for and released. Plan to start them ASAP. My liver enzymes and tumor markers are a bit on the rise which is never good news. I may be switching treatment in the near future if I am starting to progress. However, I would feel better on the protocol to help slow down the pace of whatever is going on. I personally don’t expect the protocol to stop the BC in its tracks for m but if it extends treatment times, then I am good with that. However, I have heard it can take months to start working. 😒😪
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I take 20 mg melatonin, plus ashwaghanda 600mg, and Magnesium citrate 500 mg. I fall off a cliff of sleep about 30 mins later...
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Thanks santab., I have to start taking my magnesium again. I have magnesium taurate from Cardiac Research Ltd, I stopped when I started chemo because doc wanted NO supplements but chemo has been over more than a year. I think it may help my BP among other things. And I just bought some Ashwaganda...does it have any anti-cancer effect?
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I do 20mg a night, it's a slow release one. I have a horrible time falling asleep. Even if I get up to use the bathroom at night, it might take me at least another hour to fall back asleep. I do not feel drowsy in the morning.
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yes ashwaganda has anti cancer effects
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Santa, can you please tell me if you know how to time exercise with chemo for the best effect ?
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Dear All, thank you for all your beautiful photos:> Really really pleased to see you all. I was off these forums a bit, just to step aside and clear my mind. Now back to business:> You all probably know this clinical trial by Minerva Biotechnologies (https://clinicaltrials.gov/ct2/show/NCT04020575) but I'd say it is one of the most promising ones. What draws my attention is "Secondary outcome measures: Antitumor Activity [ Time Frame: Up to 15 years ]". There are just a few (I think I know 2 other ones so far for metastatic C but they are not for all tumors, i.e. one is just for brain tumors) trials where they still hope there will be "activity" after 15 years, i.e. they believe there will be "cures". If I am wrong, please correct me. Remember MUC1* (not MUC1) is expressed in 90 % of mBCs. Let's pray this trial and others like this one are start sooner, maybe some of us even could qualify for it. Sorry if you already know this info, as I found people discussing it in other thread some time ago... just wanted to inform those who did not know it. Saulius
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saulius, how do you find contact details of investigators in trials ? The one which you posted chloroquine seems to be directed by Jenny C. Chang hut I could not find her contact details. Besides what do you think would one ask - I noticed they are using 250 mg of chloroquine daily which is lots more than usual anti malarial dosage I was prescribed- would I just ask her, " hey , do you think 1-2 tablets a week is going to work" or "do you think my liver will cope with your dosage?"?
PS. I have not seen Yndorian for ages..
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anotherone -- the program I was recommended to do was interval training -- short intense bursts w rests, a 20 min program-- to give my heart a message of "build strength" to counteract the chemo's damage.. I was told to do on morning of chemo day + 2 more times per week, plus 2 x pilates or yoga or other stretching. I normally did one interval, 2-3 vertical one hour hikes (similar to interval in varying intensity) + 2 pilates each week other than late in chemo I stuck to that. I had good friends for hiking buddies who were cool with me resting a lot and kept me on task. At the end (last 2 chemos) I was severely anemic and had to slow down but the first 4 chemos I bounced back well.
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Anotherone, with exercise, it depends on what your goals are and what treatment you are on. For some for those who have active, Stage 4 disease and are on chemo indefinitely rather than for a set course, timing can be tricky based on when one feels well enough, how often the chemo is administered and what side effects it causes. For example, for Doxil, one should avoid friction on feet the day before treatment through 5-6 Days after. The HFS does not show up until day 10-14 of the 28-day cycle but the damage will be done in the time the medicine is circulating in the body. For other chemos, the time period may be shorter (a few days). When I was on Abraxane every 3 weeks, I would avoid working out a day before treatment - 2-3 days after in an attempt to minimize neuropathy. (If icing feet and hands during therapy lessens taxane-induced neuropathy, increasing blood flow to the hands and feet while the chemo is circulating, may increase it). I am currently on Navelbine and although it causes neuropathy, because it is administered weekly, it is hard to build in time to not workout. It is hard enough to get any workouts in to begin with. Due to that, I just exercise when I feel like it. If side effects are not your concern and you are looking for exercise to have a direct, immediate impact on treatment, the strategy may be completely different. Zarovka used to exercise (run, usually) while she was receiving her low dose weekly Abraxane infusion based on some research she had done.
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At Amazon when I went to reorder:
"We don't know when or if this item will be back in stock."
The thing is business profits, like nature doesn't like a vacuum. FenBen's patent has long ago run out so anyone, any drug manufacturer, can make and sell it.
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Dear Anotherone, I could not find her contacts too (already some time ago) but at the end of one article I found "To speak with ... Jenny Chang, M.D., contact Gale Smith, Houston Methodist, at 281.627.0439 or gsmith@houstonmethodist.org.". I'd ask about clinical trial preliminary results. If they are positive, you could direct your MO to this trial, that is the idea. I once wrote to one and was very surprised to get all the detailed information and recommendations how to use the simple drug to inhibit metastases. The investigator was crazily friendly and gave me all the info. Maybe your MO knows something about this too? Saulius
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Another hint for those looking for contact information for researchers -- often, when the authors of articles are listed at the beginning of an article, there will be footnotes with their affiliations listed -- sometimes those have email addresses attached.
As for clinicaltrials.gov, if you scroll down on the pages of each trial, there is usually a contact person listed there. It's often not the principal researcher but a staff contact, but it's a way to try and find the principal researcher.
Like Saulius, I've had some luck with contacting researchers, although not always getting much information from them, especially if a study report is not yet ready (even if the study has closed).
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amazing, thank you saulius !
You people are so proactive - thank you for giving others like me the idea of how one can be.
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I am concerned about Sonya. She has not been on in awhile and looks as though she changed her name and a lot of her posts here are gone, back to June.
Sonya, please check in and let us know how you are, praying you are ok. We love and miss your sweet face!
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Goldie....we've been trying to reach her but she has not responded...she did communicate a while back that she was going to stop participating because of a number of health issues she was coping with.
many offered support, but it seems she's decided to move on.
I wish her well, and hope she's found another support group. It's hard to face this disease without it.
but, I don't understand the change of handle that worries me....yet it’s a symbol of love, so maybe she’s communicating that she loves us too.
Sonia, if you're reading this, please know that you're loved and your voice is sorely missed on this thread, please continue to partecipate, no questions asked....
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Hmm... Maybe she is having troubles with her user again (was it her)? Sonia, we'd for sure like to have you back. Big hugs to you from all of us, Saulius
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Sonya,
We miss your sweet face, please come back.
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Nicole,
When do you get your biopsy results?
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Sonia, I agree with everything the rest of the group have said. You are sorely missed here. We care about you. I wish you answer my PM's, just say "I'm ok". I pray for you nighty, It breaks my heart thinking you're going thru troubles. You are the sweetest most loving person and whatever you're going thru I pray to God that he gives you strength and peace.
But do know that we are always here for you. Much love, xxxxxxxxxx
Remember St Theresa.
You're in my heart, Sue
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Simone ... I get them on Wednesday.
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This has nothing to do with Joe's protocol, but it seems that we talk a lot about different approaches to treatment here, so I'm posting this for anyone who might be interested. If you live in the Baltimore/Washington area and have any interest in immunotherapy, you might want to look into this free immunotherapy information session on Nov. 16th in Baltimore. The main speaker is Dr. Elizabeth Jaffee, who is the codirector of the Kimmel Cancer Institute at Hopkins (she's done a ton of research on immunotherapy).
https://www.cancerresearch.org/events/patient-summ...
Bev
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On way for CT scan...to check for bleeding...been having pain and its in my back now too... Please pray for me
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Oh no, Nicole. I pray that its something not serious, something they can help you with.
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Oh gosh Nicole, as if you haven't been through enough. Sending prayers and healing light for you. I'm so sorry!
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Nichole, I'm so sorry. I'm praying for you. Sending you a big hug
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Nicole, I hope the scan will show there's nothing wrong and your pains are only part of natural healing...please keep us posted.
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