Starting Chemo September 2019
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Brilee - my wig was so hot that so abandoned it for scarves and beanies. I’ll keep it in case I need it for special occasions.
My next treatment is tomorrow. I’m actually looking forward to is to get the ball rolling further down the line.
I hope everyone is having a great Monday!!
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Hey all
That's how I feel Angie, my next is Thursday, I'm ready also, it will be ball caps and beanies for me. The weather here finally broke from the 100 degrees for a month, down into the mid 70s, nice weather with slow and steady rain which we need desperately. Hope everyone has a nice evening.
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Hi all! Had my first round of TCHP on 9/20 and I'm so glad I discovered this forum. I don't personally know anyone else who has gone through this (I'm 26) and from what I've seen so far, this is exactly the kind of insight I was looking for. I work full-time and can already tell it's going to be extremely difficult for me to maintain any semblance of productivity. Honestly, having a hard time coping.
Any of you ladies also doing Dignicap?
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Hi Jacqs
I'm not, but I think a couple of ladies are
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Welcome Jacqs,
I'm not cold capping, but we do have a few ladies that are who will chime in soon I'm sure.
Tracy
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I'm only wearing my wig at work now. I have officially ditched it for everything else, its too hot and itchy. I'm going for comfort....
I was mostly worried about my oldest sons reaction since I chaperone all of his band activities. But he's been very supportive, and the kids in the band have been great along with the other band parents.
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Maggie
Thanks for the input on the hair stubble. I figured it was just the roots of what was left, but it was nice for a minute to think my hair was already re-growing LOL.
Tracy
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Gamb
So glad you got time with your grandbabies!
When I first shaved my head my youngest son told me I looked like a boy now... gee, thanks LOL. He's 11, and has aspergers. He has no filter at all. He loves his mama though, and is always checking to see if I'm all right.
Tracy
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a few days out from AC #3. Pretty tired and a little achy. Had my follow up with my onco and I have one more AC on 10/18 before we do an ultrasound to see if the tumor is responding. If so, it will be on to 12 weeks of Taxol.
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Jacqs - I am cold capping with Paxman. I'm halfway through 4 TC infusions. I have not have great success with the cold cap, which has been very disappointing for me because I was so hopeful I could keep some hair. I've probably lost 80% of my hair, but I'm still getting by day to day with a baseball cap. I have purchased a wig, though and will be wearing it.
Others have had much better success. My oncologist has a great deal of experience with cold capping and has done studies on paxman, but there isn't always a great way to tell who will be successful and why, so it is definitely worth a try. I wish you the best luck with cold capping!
Maggie (or anyone) - do you have any experience with hair extensions? I’m wondering how long hair has to be before you can get extensions. I have always had long hair, and I would like something to look forward to to make me feel more whole as summer approaches.
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Truly depends on how and what they use to put in the extensions, also experience, I’m hate this for you, you’re hair will grow back,until it does they do have wigs now that are hairline which means the actual top and crown have no hair, they come in long, short, all color shades, a great possibility if you like to wear hats, hugs
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Wednesday is my 4th and last AC treatment!!! I don’t think we are doing anything to monitor as I have no tumor in my breast only lymph node involvement. I do know the lymph node in my armpit is no longer palpable. So chemo is working!
It’s just the usual 2 weeks until my 1st of 12 weekly treatments with Taxol. I haven’t counted out the weeks till I’m done. I just know it goes past Christmas. I just try to take things day to day. I’ve broken out with a few skin sores. One on my face. But mostly my arms. It’s chemo! I’m sure this is related.
My husband and I actually went out to dinner with friends tonight. It was nice to do something normal. But, it wore me out too. Tomorrow is labs. Wednesday chemo day. Thursday Fulphila shot. I know I’ll feel pretty good until Friday. The weekend will be tough. But, I’m doing it! I am kicking cancer’s butt
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Snaffle - That's awesome! 😊
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Hi Jacqs, I am using Dignicap. I'm doing weekly treatments, have done four already, have number five tomorrow. I haven't seen any hair loss so far. The nurses at the infusion center are really good with fitting the cap.
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Welcome, Jacqs! We're glad you've joined us here, and hope you find this community to be a source of support. As you can already see from the responses here, you are not alone!
The Mods
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Hi all, you all can do this. Im dropping in from April 2018 group. Theres many of us here to support you.. Sending good vibes & cyber hugs
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Hi
LMS looks like your hair is hanging on. On AC they told me I would loose mine. Came out by the handfuls by second treatment. Shaved mine Sunday then Monday my son 18 took us to lunch I wore a beanie froze to death in the air conditioning with no hair. I guess next time I have to wear the wig in the air condition or hat. Hope you are doing good for chemo week.
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Hi
Snaffle53. Congratulations on last AC.!! Counting down helps me. Number 2 last week doing good. Thanks for posting helps me see what to expect. Glad you got to go enjoy a dinner out. I think we are all on the holiday chemo round. Maybe I will decorate early but my son born on thanksgiving wants no part of his Bd and Christmas together. Nov 23 is a week early this year. So I can decorate a week early. The news now says you can decorate for Christmas at Halloween. That seems early.
Looking forward to everyone’s progress.
Prayers to all keep kicking cancer butt!!!
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Hi cat
You got this !!! hang in there rest and be good to yourself.
Prayers for strength and healing.
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Hi Tracy
Your son is funny!! I have an 18 year old son with aspergers and he doesn’t want to see my head without a beanie. How do you have the energy for band activities? You amaze me.
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Floridaliving
I usually spend the next day in bed napping LOL
I’m trying my best to keep things as normal as possible for my kids when I can. It’s not always possible, but I’m trying. I make up for it with a day in bed usually.
Tracy
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Thanks for popping over urdrago!
Congratulations on getting to your final treatment Snaffle!!
Today is the first day I'll be wearing a wig all day. I brought a hat to work with me just in case it gets to uncomfortable. Here is a pic of me before chemo and a couple in two of my wigs.
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Brilee,,,,,,I love it!! Looking great!! You definitely wiggin it down girl
Also your eyes are beautiful
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Brilee - looking good rocking those wigs.
Snaffle - Yay for last treatment of AC tomorrow!!
Jacq - welcome to our group!!
I’m currently sitting in a chair at the infusion clinic. I’ve already had Perjeta and now I’m getting Herceptin. Taxotere is next Then Carboplatin.
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Looking great Angie, I’m thinking we have the same chemo cocktail!!! Hugs!!!
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Angie - Your brows look amazing! I gotta learn to do that!
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We are, Maggie and it’s completely doable!!
Brilee - thanks! It’s a regular Cover Girl eyebrow pencil. Steady hands are the key - usually when I’ve had 1/2 of a cup of coffee! 😂
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wow, you ladies are gorgeous !!!!
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stencils are great to use, Angie you the best, eyebrows are perfect girl!! I’m lucky if I can get my lips lined straight I have purchased the stencils, also if my oncologist approves, I have a friend that can do henna brows for me,
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