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Anxiety about coming off Tamoxifen

megan_c Member Posts: 5


I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that coming off means I’m still doing well, but the thought of seeing my oncologist yearly is also a really scary thought. I’ve also read a few horror stories about side effects of coming off and I’m freaking out there too! I was diagnosed with stage 2 er/pr+ her 2 negative when I was 31 years old, so I will be coming off Tamoxifen at 37. Can anyone share positive experiences?😁



  • moderators
    moderators Posts: 7,691

    Hi @megan_c,

    We just wanted to pop in and give you a virtual hug! We can certainly understand the anxiety of coming off a medication that's meant to reduce your recurrence risk. We're sure others will be by shortly to weigh in with their experiences soon!

    —The Mods

  • prahan
    prahan Member Posts: 58

    Hello Megan,

    We both are sailing in the same boat.

    Myself coming off Tamoxifen by May 2024. Myself too anxious. Keep posting. was diagnosed with stage 1 , er/pr + her2 negative.