No treatments for me.

well said Carp!!!

ali...What are your SE'S on Tamoxifen, I have pain in my left hip and thigh that is pretty bad most of the time.

Hello Dear Friends,

All's well on our homefront =0)   I talked with Cindy for a little while today and she says she's "alright." She was really groggy and sounded like she was in a good deal of pain & pretty out of it. She says she had her operation either Monday or Tuesday this week and still had the stiches around a tube for draining the abscess. The doctor apparently took some liberty while removing the infection and took most of the tumor out, as well. I don't know really how to feel about that & I'm not sure how Cindy feels about it. She says he took about 75% of the tumor out, and some tissue around it both alive and also necrotic -it's pathology report was the same kind of cancer elsewhere ... really rare & really aggressive. She said she somehow pulled about a centimeter of the tubing out, but the wound is still draining -she veto-ed the trip to the doctor's office today to have it re-inserted, saying that it can wait until she goes in to have the stitches removed ... She also said she's got another infection in her leg from rubbing against the side of the wheelchair. 

I asked what made her decide to have the operation and she said she'd been in Hospice, waking up every 2hrs crying in pain. They told her the operation would relieve some of the pain & she said ok.

She is able to get around minimally -she says it's really hard having 1 arm and 1 leg. The recovery is supposed to be a couple weeks.

Now, Grandma Cindy Rose ... that's such happiness! She got special permission from the doctor to be in the delivery room for the birth of baby Aleeyah Rose!!! Oh my goodness, she sounded sooo happy! She and her DS held the baby while Mom was getting cleaned up -she says DS was all over the place excited to finally meet his daughter.   Since then, DH and Cindy were able to briefly "kidnap" Aleeyah and jokingly threatened to not give her back They spoiled her for a few hours and she was back in the loving care of her parents ... both Cindy and her DH are enamoured with the tiny bundle of joy ...

There was one thing Cindy said today that completely caught me off-guard. She asked me how much money it would cost for me to come back out for a few days. She's not once asked me to come back out -she's said thank you & she missed me repeatedly, but not to come back out. I told her I didn't know, why? She said she misses me.  Can you almost feel my heart fill with so much love then fall down cuz she's on the other side of the blasted country!!??? Ugghhh!   Back at Christmas, we really didn't anticipate her living too much longer, let alone until Aleeyah was born ... now she'd like me to pop in for a couple of days LOL

As for me, I "unplugged" for a while ... and have been working in the yard -creating for the first time ever -transplanting healthy, hardy plants from a friend's yard to mine. I started with about 10 plants, that I put in the middle of my 2 Bradford Pear trees. Then got red mulch to put around the trees -then put white concrete pavers around them, and another circle of the white pavers around the plants in between the trees.  I really liked how that looked. Then my friend said I need to take some more plants, I said sure, no problem! So, I staggered the plants in between the trees and decided to just make a big long oval across my front yard with the plants inside with mulch and have the pavers enclose it all .... now there are about a hundred!!! plants in my yard ... including a young lilac tree, a young rose bush that will hopefully thrive and produce yellow roses, lots of purple irises, lots of buttercups, variated hosta, sebum, and some other stuff I've forgotten the names of.   Planning more outdoor work, improving the curb appeal LOL while getting some exercise and fresh air and enjoying the peacefulness; work at the spa is picking up with Mother's Day ... I have 2 new personal clients, and 5 potential from a "Spa-rty" (spa party .... when I go and tell a group of people about massage, reflexology and aromatherapy, the benefits & answer questions, etc) and the big thing they're amazed with is that I am completely mobile -no office for them to come to, I go to them!

Lots going on -spring has sprung!  Please know I think of you all often, what you're going through, and send lots of love and positive thoughts out multiple time each day -so, I may not post, but I'm still thinking about you. Your caring and sharing with each of us is truly priceless -you all matter so much, don't ever doubt that!

Lots of Love, Hugs & Peace, Elaine

Ali...coincidentially I saw my BS today for a mammogram..all is well. Prayers were answered and I go back on the yearly schedule. I am 2 1/2 years out from my DX. Anyway I was complaining to him about Tamoxifen. I have yet to talk to any woman who is taking it who doesnt have complaints. Okay we all know we would have SEs but when those side effects totally disrupt your life than what? My BS told me to talk to my ONC(seeing her next week) because there are meds(of course there are) that can help with the hot flashes, lack of concentration, etc...just what I need more meds. Trying not to whine but I know several people who quit taking tamoxifen and are okay. Finally, my BS told me if he had to chose chemo or Tamoxifen for me it would be Tamoxifen. I frankly am afraid not to take it. According to my Oncotype report I have an 8% chance of recurrent WITH Tamoxifen. I just dont want to take that chance so I will probably continue on and complain.

You're all welcome for the update 

Just a thought to those having hot flashes & depression as SEs ... I've started studying aroma-therapy and --though I do not begin to suggest I know about contraindications with medications you may/not be taking ... there are some inexpensive natural essential oils that may be beneficial ... peppermint & lemongrass essential oils *not fragrances* are known to help reduce/eliminate hot flashes & depression due to hormonal fluctuations .... clary sage and Geranium for mood swings ... these are not the only ones =0) Cynthia Loving is a caring & dedicated woman whose experience is amazing -known world wide, too!  She does personalized consultations by phone ... if you'd like to explore this avenue her info is below

www.lovingscents.com

Cynthia J. Loving is owner of LovingScents, an international instructor in Clinical Aromatherapy and a Licensed Massage & Bodywork Therapist

Hugs, Health & Happiness

Sticking my head up out of the parapet....having my own medical dramas. Hope you are able to get together, Elaine and Cindy!

Love to all.

thanks so much Elaine for letting us know, what are you going to do....about Cin and her request....

HAPPY MOTHER'S DAY WEEKEND.....LUV TO YOU ALL!!!

So happy to hear from you Cindy. I've been on Swedish Fish lately. I hope you have a wonderful day tomorrow, Happy Mother's Day Cindy.

Love Ginger

CIN thanks so much for checking in and so happy that the baby is making you happy.....we are with you in our pocket all the time!!

Great to hear from you Cindy !!! Enjoy the baby- and the gardening.

Cin, so glad to see you checking in! Am glad you are enjoying the new grandbaby.



Glad to see all you other wonderful women checking in, too. Sorry to hear of issues for several of you, happy we are all keeping each other in heart and prayer. I, too, am having issues, was just hoping for 4-6 months of minimal appointments, but that seems to be not in my future. I developed either LE or vascular blockage from axillary tumor, or both. Going to LE therapy 2-3 times a week, have seen rads onc who wants to do MAJOR treatment - didn't seem to understand I am just wanting palliation, not cure, have been referred to neurovasc surgeon to see if that is an option, MO thinks chemo might help tumor shrink a bit for comfort but not cure - at least she readily admits that there is no way to go for a "cure" at this point, but does want to keep me functional. So more appointments, and need to start checking out hospice options. Just wanted some time to do some art without having to interrupt to take care of this defective body for a just a little while. And that would have been possible if my dominant arm had not swollen up so much.



Gratitude: DH is putting in a beautiful garden for me (I am like Cin, would rather be out there pulling weeds, digging in the dirt, trimming bushes myself, but delegating and supervising is better than nothing!), my mom has been a tremendous help the last couple of weeks, andI feel loved by many.

I'm going to copy/paste my post from the high prolactin levels thread.....



28 minutes ago MarilynL577 wrote:



I found out on May 6th that I have breast cancer. I do think the psychotropic drugs I've been on since age 12 caused it by increasing prolactin levels. I was on Lamictal & Celexa for MANY years, until almost 2 years ago when I went cold turkey off that crap. My mental state has improved since. I'm happier than I've ever been. Got cancer though. Things are moving so fast.... I go in on the 25th to see if it needs shrinking before the lumpectomy that's scheduled for the 29th as of now. I guess that may change if I need treatments beforehand. I'm kinda P.O.'d that they've known about psychotropics link to prolactin dependent cancer since at least 1999/2000 and fed them to me, free of charge, to treat mental illnesses that weren't even really there until they gave me drugs that cause actual mental problems (it was like a step ladder... Hereditary depression, manic-depressive, bipolar disorder, PTSD, borderline personality disorder with overlapping rapid cycling bipolar mania...) and gave me breast cancer! No wonder it's "so common" now when every little shift in a woman's mood, they're shoving a bottle of Effexor, Abilify, Zyprexa, Lamictal, Celexa, etc. down her throat, and saying you have to stay medicated the rest of your life, otherwise you'll kill yourself or someone else. I believed them! But how can that be true and at the same time it be true that I quit going to get their free death-pills and I have felt better than ever these last 2 years? I walked right into the mental-machine and jumped out of it with cancer. I don't trust the health care industry or the "harmaceuticals" and I think once I let them start "treatments" that I believe cause cancer, I'm walking into the cancer-machine and I will be walking *back* into it a few years from now to deal with the cancer I'll get from cancer treatment!



Okay, so there it is. I'm on the fence now about how to proceed. I mean, I don't trust 'em. Some of these doctors probably believe what they are saying, because that's what they were taught, most of them probably think they are telling you the truth...that *these* things must be done for your survival. In the back of my mind I don't believe them. I believe almost everyone has a little cancer somewhere and that the medical, pharm, FDA, CDC, politicos, scienctists, and all the elite-owned corporations and industries are well aware of the fact that they are killing us, but they are big and rich and powerful and they can hide things, pay ppl, falsify studies, etc., and do it so thoroughly that a lot of what scientists and doctors are taught is lies. They graduate and start regurgitating falsified statistics that they read in a government regulated text book and practicing these things on patients blindly believing that if some big important famous doctor said it and the government let it in the text book it *must* be true. Smh. Does anyone else here think like me? I'm sorry. I didn't read all 800-something comments before jumping in here. I believe they put carcinogenic stuff in our water, our meds, our food supply (restaurant & grocery), and are even trying to put it in our home gardens by genetically modifying produce. There *is* a depopulation agenda. They sterilize ppl with vaccines. They screen teens for mental illness at school so they can get them on a psych med. They make a fortune every hour by doing something to kill us off because "there isn't enough resources and room on Earth for all these useless ppl." Ask somebody in Montana if there's room for more ppl there and let's see what they say. Bill gates mentioned depopulation by vaccines and planned parenthood, the Georgia Guidestones says clearly, carved in stone, that the population needs to be culled to about 500,000,000 and says to leave room for nature and "be not a cancer on the Earth." I know some ppl don't want to hear it but Satan hates man, because man is allowed in heaven, but he isn't. The world belongs to him and there is evil and deception all around, the ultimate goal is for souls to be funneled into hell by deception if temptation doesn't work. You know some ppl who get cancer give up and get mad at God for letting them get cancer and Lucifer loves it because he's pulling them toward hell. It makes some ppl decide that they don't think there's a God at all. So that is why it is logical to me to believe that Satan has got his hands all over the cancer-machine. I know, I know. I just went off the deep end. I'll shut up now. I just don't know if I want to let them chemo and radiate me into more cancer or try something else... Either die happy or live life feeling weak and sick? Are those my choices?

Marilyn, There's an alternative treatment thread where you can learn what some people are doing rather than the recommended treatments.

Folks, what is the latest word on Cindy?  There haven't been posts from her family for some time.

Just checking in today to send loving thoughts to all of you. Prayers especially for Cin and Elaine.



I am hanging in there, sometimes an hour at a time, sometimes a day at a time. But I continue to try to live in the moment of NOW, and found moments of joy yesterday despite my issues. We have frogs living in our pool - it hasn't been opened yet and is the most disgusting mess I have ever seen it in - lots of life evident in the green slime - and there are frogs that hop in and out of the water - last night we discovered they can actually climb up high on buildings - one was extremely loud right behind us, turns out it was tucked up on top of an outdoor speaker, hiding. There were at least 4 or 5 frogs talking back and forth, and boy, are they LOUD!!!!! I have always enjoyed frogs in ponds from a distance, but this racket less than 3 feet from me is incredible! I laughed out loud - DH has hated frogs for years, and I think he is taking secret joy in seeing even me, a frog-lover, get slightly exasperated at the noise!



Cin, if you are reading, I want to let you know I am planning a new garden. I am not able to do ANY of the work due to this miserable LE, but my 3 sisters and DH are helping next week to put in the plants I want. I have asked that it look good THIS year, don't want to put things in that will look good in a year or two as I may not see it then. So for now, plans are progressing, I am looking forward to it, and will be dedicating it to Cin and all of you on this thread. Peace.