INSOMNIACS place to talk in the wee hours

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  • WenchLori
    WenchLori Posts: 1,027

    Elena is getting cuter everyday! Adorable!

    Jazzy, my A/C guys are busy today but I found someone to help with your patio furniture!

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  • Loveroflife
    Loveroflife Posts: 4,243

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  • Smaarty
    Smaarty Posts: 2,615

    a little birdy said it was Sass' birthday.

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  • magdalene51
    magdalene51 Posts: 2,062

    Teka, that's awful. What a face!

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    I like this better.

    Left message for Saasy, haven't heard back.

    Going out to dinner tonight at our favorite Mexican restaurant with some friends to celebrate our 29th anniversary (which is tomorrow). Maria is making her super sized heart shaped flan for us.

    I'm scheduled to have a PET scan Tuesday to get a baseline for faslodex tx. Last scan was April. Then CT in 2 months to see if it's working. If yes then continue indefinitely.

    My niece is flying in from NYC this week. She's going to be hopping around to see her cousins and high school buddies but will stay here a few days later this week. Then in 2 weeks my oldest sister and her hubby are coming for a week. I haven't seen my niece or sister in 5 years, so pre-BC. Not sure what they expect. Oh well.

    I find these days that I just don't want to think. I don't want to think about my life and whether it has had any meaning. Don't want to think about what I need to do. Don't want to think, or feel, anything. People expect me to be all emotional and teary but I'm not. Nothing has really changed. And yet everything has

  • Chevyboy
    Chevyboy Posts: 10,258

    Mags.... It's okay.... Just don't do whatever you don't want to do..... and don't let anyone talk you into anything that you don't feel like doing. We all go through those days... weeks..... even months.

    Wish I could give you a big hug.... Is that your kitten? So sweet.... You take care of yourself, and have fun tonight... We are thinking of you...... Okay? xoxo

  • jazzygirl
    jazzygirl Posts: 12,049

    Mags- I am sorry to hear about your progression. I remember being with you on the Hermits thread when you were in treatment. You don't need to put your energy into others and what they think you should be feeling or doing.

    Enjoy your dinner at your favorite Mexican place, your evening out, and your company this week.

  • Loveroflife
    Loveroflife Posts: 4,243

    Mags....

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    Just put your fingers in your ears.

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    Eat some flan for me. Have a blessed night out.

  • feelingfeline
    feelingfeline Posts: 5,143

    Beautiful kitten Mags. X

  • susan3
    susan3 Posts: 2,631

    have fun mags

    Happy birthday sas !!!

    I am suppose to be getting a bone scan...dragging my feet....I don't wanna, I don't wanna, I don't wanna. As I am stomping my feet !!


  • Loveroflife
    Loveroflife Posts: 4,243

    Susan, Elena has her daddy's look. She is adorable! Ugh, the anxiety that comes with scans. Hope you get the puppy from your brother. The poor thing needs love.

    JunieB, thank you for the info on the Biofrreze. I see methylparabene which is not good for us human. And thank you for responding to my question regarding MacBook. I have decided to exchange the laptop for my daughter to the one with Retina display. She will be doing a lot of reading on the laptop, so I figured the Retina display will help prevent strained eyes. Textbooks might become obsolete soon. I was wondering about your echocardiogram result too. So no enlarged heart or bad ejection fraction huh? Don't you hate it when your body is trying to tell you something is wrong and they can't find what's wrong? I'm glad test is normal though.

    Sensi, I am sorry you couldn't join us. I told Ms. S you probably had a lot on your plate. No worries, next time. I can be your back up chauffeur to the infusion center or doc visit. Just holler and don't be shy about it. Mitzy would have love to have a visit with you. She balked at Ms. S for a little bit, but warmed up really quickly to her. I was so happy she felt comfortable enough to fall asleep right next to her.

    Here is a picture of her politely greet our guest. image

    ShepK, I need to write a different post for the movie. Gosh, it will take me a few hours. This is one of the moments when I wish words could flow out easily from my mind.


  • shepkitty
    shepkitty Posts: 878

    Mags ~ Jazzy and Chevy are sooo right! Do what is best for you, don't worry about letting anyone down. The most important thing for your visiting family will be just to be with you - to see you, to hug you. The visits I've had with my friends and family who have come to visit since my DX have been the best. No pressures to rush and do things, no feelings of trying to keep each other constantly entertained. We just take things as they come, no grand plans, doing whatever we feel up to. My Bestie still refers to our naptime on my back patio a few years ago as the best day ever 🙂

    Cancer sucks. Stage IV sucks......so not thinking is okay, not feeling is okay.....take a break when you need too. Just don't break away too long. There are still things to make you laugh, warm your heart, fill you with hope, inspire you.....lots and lots of good stuff is still all around you.

    Have a wonderful dinner tonight! Happy Anniversary 🥂

    (((hugs))) ❤

  • queenmomcat
    queenmomcat Posts: 2,020

    Susan3: stomp away. It's all weight-bearing exercise--good for bones.

    And happy birthday, Sas, wherever you are.

  • shepkitty
    shepkitty Posts: 878

    Susan ~ I actually kinda look forward to my bone scans. My tech has her machine in a corner office with big windows overlooking a salt-marsh. The room is soft white and the only sounds are from the gentle whirring of the fan in the corner or sometimes some peaceful low music. The "bed" is comfy and I am swaddled in a cozy blanket to keep me comfy and still while being scanned. Very peaceful and relaxing. Lovely napping.......

    Elena looks to have some mischief in those pretty eyes 😊

    Smaarty & Mitzy! Awwweee....

    Loverly ~ curious as to what you will write? Wish I could type as fast as I think too.

    Teka ~ That kitty is so sad 😿

    Mags ~ We need more pics of your happy kitty!

    Wenchie ~ OMD.......I need to move. Right now. Something. Anything. Right Now!

    Feline ~ My cousin-in-law and his family just returned from the wedding of his wife's brother in Dublin. He was telling me how wonderful Ireland was. I asked him if they went anywhere beyond Dublin. His reply? "Oh yes! We visited this really beautiful little seaside town called Wicklow!" They really enjoyed their time there. I'm hoping they will share some photos!

    JunieB ~ I surely will call you crazy! All that walking and PT and working......slow down girl! Is the Lasix helping at all? My go-to list includes cranberry juice, sweet tea, hot tea, mint tea and Simply Juice Raspberry Lemonade. Hope the doctor will have some re-assuring news for you. I got tangled up in a kitty-doggie wrastling match last night. Luckily I was already sitting on the floor. Pris fights dirty! She was nipping at Marti's back feet and almost made her tumble....on me! Those two play like they are both puppies!

    M0mmy ~ keeping cool today?

    Lookie ~ Where is the wedding? Hope you're having a fun time!

    Hey to everyone!

  • shepkitty
    shepkitty Posts: 878

    Dear Sassy ~

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  • susan3
    susan3 Posts: 2,631

    sheps, I don't like any tests anymore. With refractory stage IV, I get about 4 months from each chemo. That's protocol. Cancer has mutated to much. Right now I should be done with chemo and waiting till the end. Buttttttt with this chemo I am on 16 months!!!!! They have no idea why. This should be my last year, technically. So I just want to live in la la land for a few extra weeks before any test. It has been such a blessing to have more time...I used to just be sooooooo great full, now I am getting greedy. Want more time with Elena.

    And yes, mischievous eyes. I need to get a pic of when we change her diaper at 5 am.......ohhhhh the smirk she has on her face. Kinda happy to see you and kinda ha ha, I got you up. Pretty cute. She is getting a darling personality now. Just a bit over 3 months. Can't wait till tomorrow :

  • jazzygirl
    jazzygirl Posts: 12,049

    Ta da!

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  • susan3
    susan3 Posts: 2,631

    yaaaaa. Love it !!!

  • junieb
    junieb Posts: 945

    How is it that you all knew today is Sassy's birthday. If not for your posts, I wouldn't have known. How do I keep up in the future?

    Wenchie - Now that some kinda moving guy! How are you feeling?

    Jazzygirl - The patio set is so beautiful. So worth the wait. Hope you get to have that party soon.

    Loverly - Yea the methylparaben is a concern, but for the relief of the itching from the mosquito's I'm willing to use it. For soreness in general Arnica is a good choice. Smaarty is privileged to have met Ms. Mitzy.

    Mags - Hope you enjoy your Anniversary Dinner & company tonight. Yes, life is too short to let others who don't have a clue to put unreasonable expectations on you. Especially considering we are already doing our best each day depending on how our health is doing.

    Shep - Playing with Marti & Pris sounds like fun. I'm envious. And yes it was crazy to walk in that heat, but I do need to work on strengthening my leg muscles. I've pretty much stayed inside today doing little chores like cleaning, dusting and repotting a plant. I even posted something for sale on Facebook for the first time. Lets see how that goes.

    Susan - Help me to understand your post. Is your cancer aggressive? Progressed significantly? I hope I'm not being too forward. If you don't care to expound, I'll understand. Enjoy your time with Elena tomorrow. (((((HUGS))))) Hope your scans go well. Hopefully show stability.

    Queenie - How's it going? We don't get to hear from you too much.

    Sensi - I have not had to experience chemo infusion yet, so I don't know how to encourage you, but I will definitely keep you in prayer.

    BBL



  • jazzygirl
    jazzygirl Posts: 12,049

    I also wanted to say how much I enjoy the cute baby pictures here! Keep em coming and enjoy your little people my people.

  • shepkitty
    shepkitty Posts: 878

    Jazzy ~ Ohhhhh.....is that a rocker I see? Sooo prettty! Love the blue. Is the table top stone?

    Susan ~ Tests stress me, but I really like naps! My bone scans are always scheduled at the end of a long day, after all my CTs and bloodwork, so it is a nice break before going on to meet with the MO after. It's a tough schedule, but I get all my results in one day. I do get soo anxious the days before and worry what the scans and tests might show. You've been through so many chemos......maybe it was so you would be led to this one that works? Prayers for your continued success and well being. You've been blessed with your darlin' grandbaby and maybe a puppy too....The Lord has plans for you - here!

    Hey Queenie!

    MammaRay ~ Thinking of you and sending prayers for comfort and healing to you ✝

  • junieb
    junieb Posts: 945

    Dear Ms. Sassypants!

  • spookiesmom
    spookiesmom Posts: 8,178

    WHEN HELL FREEZES OVER

  • susan3
    susan3 Posts: 2,631

    Jazz, never to forward...no worriers . My cancer biologically changed and mutated. Many mutations. " selvage" chemo is what they call that I can go on. I am ER+ but can't take those drugs, they act like food for my cancer, found that out the hard way. Chemo keeps things stable for about 4 months , than we move to another one. Got 2 more left on table. So because I got 16 months on this one, it's been golden. But always in the back of our minds our time table. If test results come back active again, I could just have 8 months left with treatment. We all got our own personal journey with cancer. I can't complain, been a 16 year journey. Unfortunately my cancer got smarter than the treatments, it will be 6 years this September for stage IV, They gave me 2years.So I am beating their guidelines and I have see no ya aught era arrived Ndola ya rands hild Birmin. Ok. I had to leave that. What is my spell check doing!!,!lol. Suppose to say, saw my daughter get married, and Elena born. I have been blessed.

    Night night

    Computer needs rest too lol.

  • shepkitty
    shepkitty Posts: 878

    I was first drawn to this thread by the beautiful spirit of camaraderie and friendship. This was a group of people who truly cared about one another. I lurked for so long, gaining my courage to hopefully become one of the Owlettes. Joining this group has been a tremendously wonderful experience. We are all from different parts of the world, with different life experiences and sometimes different opinions. We are all bound together by this damned disease. We have laughed and cried together. We have learned from each other, shared hopes, dreams and fears. We prayed and fretted over the births of "our" grandbabies and now ooh and awe at every glimpse we get of them. We are ready to support one another in any way possible, whether in person, phone calls, emails or messages here. This is a true sisterhood. What a blessing it is to have this family of the heart.

    One of the most special things here was watching the growing friendship between Spookie and Sas. They were the meet and greet team for any of our sisters passing through Florida. Spookie and Sas visited each other, checked up on each other and delighted us all with their humor and wit. They were the cool big sisters we all wished we had growing up.

    Spookie, I don't know if your post was a silly response or a pissy one. I am hoping you were joking about something. We lose too many of our sisters for real, forever. None of us knows how long we have on this earth. Life is a precious gift. Friendship is a special gift. Friends we love, who love us...... that is a rare gift to treasure always.

    We can disagree about things. That is okay. We are each individuals - how boring life would be if we were all the same. Let us cherish this sisterhood, tolerate our differences and just be good to each other.

  • meadow
    meadow Posts: 998

    ladies, just popped in to say hello, and sending you all my best. Hoping everyone is doing OK, I have not read the thread to get caught up, thinking of you all.

  • susan3
    susan3 Posts: 2,631

    you are special sheps:)

  • Eeyore07
    Eeyore07 Posts: 106

    ShepKi : Thank you!

    BTW, I like Huskies but won't subject them to the Texas heat. My heart really melts for Corgi, Cardigan Corgi

  • queenmomcat
    queenmomcat Posts: 2,020

    Yes, still very much following this thread, among others, but tranquilly receding into non-cancerness. With occasional forays into 'smoke coming out of my ears' frustration resulting from visiting family. (Never make the mistake of confusing correlation with causation. AKA the 'post hoc, ergo propter hoc' fallacy. NOT wearing a seat belt doesn't cause head injury any more than being overweight or alcohol consumption does breast cancer. There's an intermediate step in there. Fume.)

  • kathindc
    kathindc Posts: 1,667

    Oops, I'm late with my

    Happy Anniversary Mags. Hope you had a great time at dinner. So sorry to hear about you being stage IV.

    Happy Birthday Sas. Hope you did something fun today. You've been very quite. Not like you at all.

    Keep the pics of Evie and Elena coming. They have changed sooo much. Two cuties.

    JuneBug, my husband has chronic kidney disease. His last round of medicine was lasix 40mg. His legs started swelling really bad, right more than the left. So much fluid built up on the right leg that he developed blisters. Long story short a second diuretic was added. His legs are just about back to normal. Something to talk to your doc about adding a second med.

    Amazon has Biofreeze.

    Jazzy, love your patio furniture.

    Lover, is your hubby back home yet? How is/was his trip? I apologize if you have mentioned this. I have a nine year old MacBook Pro and one that is a year old. Big difference in reading the screen. If I have to work on my old computer for any length of time, I start getting a headache.

    Chevy, so glad you're back. I really missed your wisdom and humor. I try not to talk or do things around my hubby that irritate him but it's hard when we would share so much. We will be married 44 years this month. His health isn't the greatest any more and I think he has trouble accepting that. He was under a lot of pressure at work (retired once from the government) and finally retired from this job. Hopefully, that will help his moodiness.

    Patty, I'm glad you've been popping in. I worry when we don't hear from you.

    Hi to everyone else.

  • lookforward
    lookforward Posts: 372

    Shep that was a eloquent post written from the heart.

    THe wedding is in Regina . it was a beautiful sunny day with a temp of 30C.