INSOMNIACS place to talk in the wee hours
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Just woke up and got my coffee!
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Jazz, how does lasix help. I have swelling too. Wondering if I missed something out there that would help.
Get to see Elena tomorrow
first shoes ! She loves sucking her bottom lip right now.0 -
Elena is getting cuter everyday! Adorable!
Jazzy, my A/C guys are busy today but I found someone to help with your patio furniture!
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a little birdy said it was Sass' birthday.
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Teka, that's awful. What a face!
I like this better.
Left message for Saasy, haven't heard back.
Going out to dinner tonight at our favorite Mexican restaurant with some friends to celebrate our 29th anniversary (which is tomorrow). Maria is making her super sized heart shaped flan for us.
I'm scheduled to have a PET scan Tuesday to get a baseline for faslodex tx. Last scan was April. Then CT in 2 months to see if it's working. If yes then continue indefinitely.
My niece is flying in from NYC this week. She's going to be hopping around to see her cousins and high school buddies but will stay here a few days later this week. Then in 2 weeks my oldest sister and her hubby are coming for a week. I haven't seen my niece or sister in 5 years, so pre-BC. Not sure what they expect. Oh well.
I find these days that I just don't want to think. I don't want to think about my life and whether it has had any meaning. Don't want to think about what I need to do. Don't want to think, or feel, anything. People expect me to be all emotional and teary but I'm not. Nothing has really changed. And yet everything has
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Mags.... It's okay.... Just don't do whatever you don't want to do..... and don't let anyone talk you into anything that you don't feel like doing. We all go through those days... weeks..... even months.
Wish I could give you a big hug.... Is that your kitten? So sweet.... You take care of yourself, and have fun tonight... We are thinking of you...... Okay? xoxo
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Mags- I am sorry to hear about your progression. I remember being with you on the Hermits thread when you were in treatment. You don't need to put your energy into others and what they think you should be feeling or doing.
Enjoy your dinner at your favorite Mexican place, your evening out, and your company this week.
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Mags....
Just put your fingers in your ears.
Eat some flan for me. Have a blessed night out.
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Beautiful kitten Mags. X
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have fun mags
Happy birthday sas !!!
I am suppose to be getting a bone scan...dragging my feet....I don't wanna, I don't wanna, I don't wanna. As I am stomping my feet !!
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Susan, Elena has her daddy's look. She is adorable! Ugh, the anxiety that comes with scans. Hope you get the puppy from your brother. The poor thing needs love.
JunieB, thank you for the info on the Biofrreze. I see methylparabene which is not good for us human. And thank you for responding to my question regarding MacBook. I have decided to exchange the laptop for my daughter to the one with Retina display. She will be doing a lot of reading on the laptop, so I figured the Retina display will help prevent strained eyes. Textbooks might become obsolete soon. I was wondering about your echocardiogram result too. So no enlarged heart or bad ejection fraction huh? Don't you hate it when your body is trying to tell you something is wrong and they can't find what's wrong? I'm glad test is normal though.
Sensi, I am sorry you couldn't join us. I told Ms. S you probably had a lot on your plate. No worries, next time. I can be your back up chauffeur to the infusion center or doc visit. Just holler and don't be shy about it. Mitzy would have love to have a visit with you. She balked at Ms. S for a little bit, but warmed up really quickly to her. I was so happy she felt comfortable enough to fall asleep right next to her.
Here is a picture of her politely greet our guest.
ShepK, I need to write a different post for the movie. Gosh, it will take me a few hours. This is one of the moments when I wish words could flow out easily from my mind.
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Mags ~ Jazzy and Chevy are sooo right! Do what is best for you, don't worry about letting anyone down. The most important thing for your visiting family will be just to be with you - to see you, to hug you. The visits I've had with my friends and family who have come to visit since my DX have been the best. No pressures to rush and do things, no feelings of trying to keep each other constantly entertained. We just take things as they come, no grand plans, doing whatever we feel up to. My Bestie still refers to our naptime on my back patio a few years ago as the best day ever 🙂
Cancer sucks. Stage IV sucks......so not thinking is okay, not feeling is okay.....take a break when you need too. Just don't break away too long. There are still things to make you laugh, warm your heart, fill you with hope, inspire you.....lots and lots of good stuff is still all around you.
Have a wonderful dinner tonight! Happy Anniversary 🥂
(((hugs))) ❤
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Susan3: stomp away. It's all weight-bearing exercise--good for bones.
And happy birthday, Sas, wherever you are.
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Susan ~ I actually kinda look forward to my bone scans. My tech has her machine in a corner office with big windows overlooking a salt-marsh. The room is soft white and the only sounds are from the gentle whirring of the fan in the corner or sometimes some peaceful low music. The "bed" is comfy and I am swaddled in a cozy blanket to keep me comfy and still while being scanned. Very peaceful and relaxing. Lovely napping.......
Elena looks to have some mischief in those pretty eyes 😊
Smaarty & Mitzy! Awwweee....
Loverly ~ curious as to what you will write? Wish I could type as fast as I think too.
Teka ~ That kitty is so sad 😿
Mags ~ We need more pics of your happy kitty!
Wenchie ~ OMD.......I need to move. Right now. Something. Anything. Right Now!
Feline ~ My cousin-in-law and his family just returned from the wedding of his wife's brother in Dublin. He was telling me how wonderful Ireland was. I asked him if they went anywhere beyond Dublin. His reply? "Oh yes! We visited this really beautiful little seaside town called Wicklow!" They really enjoyed their time there. I'm hoping they will share some photos!
JunieB ~ I surely will call you crazy! All that walking and PT and working......slow down girl! Is the Lasix helping at all? My go-to list includes cranberry juice, sweet tea, hot tea, mint tea and Simply Juice Raspberry Lemonade. Hope the doctor will have some re-assuring news for you. I got tangled up in a kitty-doggie wrastling match last night. Luckily I was already sitting on the floor. Pris fights dirty! She was nipping at Marti's back feet and almost made her tumble....on me! Those two play like they are both puppies!
M0mmy ~ keeping cool today?
Lookie ~ Where is the wedding? Hope you're having a fun time!
Hey to everyone!
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Dear Sassy ~
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sheps, I don't like any tests anymore. With refractory stage IV, I get about 4 months from each chemo. That's protocol. Cancer has mutated to much. Right now I should be done with chemo and waiting till the end. Buttttttt with this chemo I am on 16 months!!!!! They have no idea why. This should be my last year, technically. So I just want to live in la la land for a few extra weeks before any test. It has been such a blessing to have more time...I used to just be sooooooo great full, now I am getting greedy. Want more time with Elena.
And yes, mischievous eyes. I need to get a pic of when we change her diaper at 5 am.......ohhhhh the smirk she has on her face. Kinda happy to see you and kinda ha ha, I got you up. Pretty cute. She is getting a darling personality now. Just a bit over 3 months. Can't wait till tomorrow :
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Ta da!
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yaaaaa. Love it !!!
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How is it that you all knew today is Sassy's birthday. If not for your posts, I wouldn't have known. How do I keep up in the future?
Wenchie - Now that some kinda moving guy! How are you feeling?
Jazzygirl - The patio set is so beautiful. So worth the wait. Hope you get to have that party soon.
Loverly - Yea the methylparaben is a concern, but for the relief of the itching from the mosquito's I'm willing to use it. For soreness in general Arnica is a good choice. Smaarty is privileged to have met Ms. Mitzy.
Mags - Hope you enjoy your Anniversary Dinner & company tonight. Yes, life is too short to let others who don't have a clue to put unreasonable expectations on you. Especially considering we are already doing our best each day depending on how our health is doing.
Shep - Playing with Marti & Pris sounds like fun. I'm envious. And yes it was crazy to walk in that heat, but I do need to work on strengthening my leg muscles. I've pretty much stayed inside today doing little chores like cleaning, dusting and repotting a plant. I even posted something for sale on Facebook for the first time. Lets see how that goes.
Susan - Help me to understand your post. Is your cancer aggressive? Progressed significantly? I hope I'm not being too forward. If you don't care to expound, I'll understand. Enjoy your time with Elena tomorrow. (((((HUGS))))) Hope your scans go well. Hopefully show stability.
Queenie - How's it going? We don't get to hear from you too much.
Sensi - I have not had to experience chemo infusion yet, so I don't know how to encourage you, but I will definitely keep you in prayer.
BBL
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I also wanted to say how much I enjoy the cute baby pictures here! Keep em coming and enjoy your little people my people.
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Jazzy ~ Ohhhhh.....is that a rocker I see? Sooo prettty! Love the blue. Is the table top stone?
Susan ~ Tests stress me, but I really like naps! My bone scans are always scheduled at the end of a long day, after all my CTs and bloodwork, so it is a nice break before going on to meet with the MO after. It's a tough schedule, but I get all my results in one day. I do get soo anxious the days before and worry what the scans and tests might show. You've been through so many chemos......maybe it was so you would be led to this one that works? Prayers for your continued success and well being. You've been blessed with your darlin' grandbaby and maybe a puppy too....The Lord has plans for you - here!
Hey Queenie!
MammaRay ~ Thinking of you and sending prayers for comfort and healing to you ✝
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Dear Ms. Sassypants!
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WHEN HELL FREEZES OVER
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Jazz, never to forward...no worriers . My cancer biologically changed and mutated. Many mutations. " selvage" chemo is what they call that I can go on. I am ER+ but can't take those drugs, they act like food for my cancer, found that out the hard way. Chemo keeps things stable for about 4 months , than we move to another one. Got 2 more left on table. So because I got 16 months on this one, it's been golden. But always in the back of our minds our time table. If test results come back active again, I could just have 8 months left with treatment. We all got our own personal journey with cancer. I can't complain, been a 16 year journey. Unfortunately my cancer got smarter than the treatments, it will be 6 years this September for stage IV, They gave me 2years.So I am beating their guidelines and I have see no ya aught era arrived Ndola ya rands hild Birmin. Ok. I had to leave that. What is my spell check doing!!,!lol. Suppose to say, saw my daughter get married, and Elena born. I have been blessed.
Night night
Computer needs rest too lol.
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I was first drawn to this thread by the beautiful spirit of camaraderie and friendship. This was a group of people who truly cared about one another. I lurked for so long, gaining my courage to hopefully become one of the Owlettes. Joining this group has been a tremendously wonderful experience. We are all from different parts of the world, with different life experiences and sometimes different opinions. We are all bound together by this damned disease. We have laughed and cried together. We have learned from each other, shared hopes, dreams and fears. We prayed and fretted over the births of "our" grandbabies and now ooh and awe at every glimpse we get of them. We are ready to support one another in any way possible, whether in person, phone calls, emails or messages here. This is a true sisterhood. What a blessing it is to have this family of the heart.
One of the most special things here was watching the growing friendship between Spookie and Sas. They were the meet and greet team for any of our sisters passing through Florida. Spookie and Sas visited each other, checked up on each other and delighted us all with their humor and wit. They were the cool big sisters we all wished we had growing up.
Spookie, I don't know if your post was a silly response or a pissy one. I am hoping you were joking about something. We lose too many of our sisters for real, forever. None of us knows how long we have on this earth. Life is a precious gift. Friendship is a special gift. Friends we love, who love us...... that is a rare gift to treasure always.
We can disagree about things. That is okay. We are each individuals - how boring life would be if we were all the same. Let us cherish this sisterhood, tolerate our differences and just be good to each other.
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ladies, just popped in to say hello, and sending you all my best. Hoping everyone is doing OK, I have not read the thread to get caught up, thinking of you all.
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you are special sheps:)
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ShepKi : Thank you!
BTW, I like Huskies but won't subject them to the Texas heat. My heart really melts for Corgi, Cardigan Corgi
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Yes, still very much following this thread, among others, but tranquilly receding into non-cancerness. With occasional forays into 'smoke coming out of my ears' frustration resulting from visiting family. (Never make the mistake of confusing correlation with causation. AKA the 'post hoc, ergo propter hoc' fallacy. NOT wearing a seat belt doesn't cause head injury any more than being overweight or alcohol consumption does breast cancer. There's an intermediate step in there. Fume.)
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