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More Tips (and a Shopping List) for Getting Through Chemo

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Comments

  • minustwo
    minustwo Posts: 13,925
    edited January 2022

    Bumping again for a 'nail' question

  • minustwo
    minustwo Posts: 13,925
    edited February 2022

    Since someone ask about the surgery thread today, thought I'd go ahead & bump the chemo thread too.

  • sarahmaude
    sarahmaude Posts: 349
    edited May 2022

    This is a great list! I used it heavily to fpget ready for my first session today.

  • minustwo
    minustwo Posts: 13,925
    edited May 2022

    Glad you found it SarahMaude. Several of us used to try to bump both this and the surgery thread on a regular basis. Unfortunately with the BCO platform changes, it's too difficult & too takes too long to find & participate in many of the valuable threads.

  • moderators
    moderators Posts: 10,330
    edited May 2022

    We are glad you found it too, SarahMaude. Hope your session went well today. Please keep us posted. Medicating

  • sarahmaude
    sarahmaude Posts: 349
    edited May 2022

    It went well yesterday! I'm so glad that I was prepared, both mentally and supply wise

    I had all my cold capping kit ready, and that was great. At home, I have Biotene mouthwash and spray which has been amazing for dry mouth (likely from steroids this soon).

    Here are some of the other items I've already used:

    Miralax
    Colace stool softener
    Satin pillowcase
    Queasy drops (like the pops, but hard candy sized)
    Utter cream (it is really great and the price can't be beat)
    OPI Nail Envy Nail Strengthener treatment clear nail polish
    Onsen cuticle cream
    Nateen toothpaste (no irritating chemicals, all natural)
    Toothbrush sterilizer (UV light, charges by USB), I got the Wagner and Stern brand recommended here
    And these comfy Kubua slipper shoes in hot pink, because why not? https://www.amazon.com/dp/B08KJ6XVRQ?ref=ppx_yo2ov...

  • laback31
    laback31 Posts: 6
    edited May 2022

    WOW! Getting ready for this next step in my journey: 1st chemo treatment on Wednesday! I am scared. But hope to find some comfort and strength in your stories shared here. You all seem to be very strong women!

  • moderators
    moderators Posts: 10,330
    edited May 2022

    Dear laback31,

    Welcome to the BCO community. We are so glad that you joined us. We hope that you find support and information here that will help and guide you along the way. Good luck with your first chemotherapy on Wednesday. Let us know how it goes. Send us a private message if we can be a help to you here as you navigate your way around the discussion boards.

    The Mods

  • minustwo
    minustwo Posts: 13,925
    edited May 2022

    laback - glad the tips helped. What chemo will you be doing? I had four different drugs and my infusion day was usually at least 8 hours. Yes, I lost my hair & yes I was tired - but fortunately I was not nauseated. Still - I was able to drive to every one of my infusion sessions by myself & drive myself back home. I did start icing my fingers the very first day, but neglected to ice my toes on day one so my big toe nails detached. But I didn't lose them entirely. Good luck. Please do check back in.

  • sarahmaude
    sarahmaude Posts: 349
    edited June 2022

    I’m commenting here to bump this thread higher in the active list.

  • minustwo
    minustwo Posts: 13,925
    edited June 2022

    Good SarahMaude - I used to do that when I could more easily see 'my favorites', but it's a real pain with this 'new' design.

  • sarahmaude
    sarahmaude Posts: 349
    edited June 2022

    Sigh. The new design makes me sad. But the people here, like you 😘, make me feel better, so I’m doing what I do with all the inconveniences I encounter…compensate.

  • minustwo
    minustwo Posts: 13,925
    edited June 2022

    SarahMaude - so you started chemo on 5/4? I guess you've likely had two sessions? Hope everything is going OK and your side effect are minimal.

  • sarahmaude
    sarahmaude Posts: 349
    edited June 2022

    Minustwo, I’m doing well, relatively. My biggest challenge so far has been neutropenia both cycles. Lots of fatigue this time. I’m feeling well today, and have nine days until my next treatment. I’m hopeful these will be good days. Knowing I’m halfway through is a motivation for sure! Last treatment is 7/6.(Rads to follow, of course).

  • laback31
    laback31 Posts: 6
    edited June 2022

    @ Minustwo; You are amazing, especially to drive! My 1st treatment was last wednesday. I am taking cytoxan & taxotere. I used the penguin cold cap also- I am not for certain, but during that day, my eyes were a little woozy from the flourescent lighting in the room, the meds (& nerves of it all), or the tight frozen caps on my head. After a few hours it felt good to to shut my eyes and listen to music. It subsided later that night, so i assume it was the cold. As for this past week, I challenge with the mental game: is something happening? when will it happen? am i okay? Actual symptoms were constipation, cotton/chemo tongue, and a higher pulse. I go in thursday for a blood draw check. Next treatment is in 2 weeks.

  • minustwo
    minustwo Posts: 13,925
    edited June 2022

    Oh constipation... I had the opposite - "Big D". The was a very informative thread about bowel issues by SAS, but it's gone inactive. Hang in there ladies!!!

  • minustwo
    minustwo Posts: 13,925
    edited August 2022

    bumping for new members

  • windwalker27
    windwalker27 Posts: 54
    edited August 2022

    thank you.

  • birddr
    birddr Posts: 2
    edited August 2022

    hi. My first post. I had my first chemo treatment on Monday (AC) and now have severe constipation. I just ate some dried apricots and dates. Husband is getting me prune juice and stool softener but that won’t be here for a little while. Any immediate suggestions? So far this is my first side effect. And I’m always regular with vowel movements. Thanks

  • birddr
    birddr Posts: 2
    edited August 2022

    and that should have been bowel, not vowel

  • moderators
    moderators Posts: 10,330
    edited August 2022

    Hi chickadee, and welcome to Breastcancer.org! We're so sorry to hear of your troubles with treatment, but we're glad you've found us and decided to post. You're sure to find our Community a wonderful source of advice, information, encouragement, and support -- we're all here for you!

    While you wait for the always helpful tips from others here, we wanted to share with you a couple of pages from Breastcancer.org that you may find helpful:

    Also, we'd suggest if you don't get many responses here, try starting a new thread here in the Chemotherapy forum so others can respond specifically to your questions.

    We hope this helps and that you feel better soon. Please keep us posted with how you're doing!

    --The Mods

  • minustwo
    minustwo Posts: 13,925
    edited August 2022

    chikadee - Be prepared because nothing will be like it used to be - so "regular" will be off the table for awhile and you'll find new patterns. Actually two days shouldn't be critical. You should check with your doc first because we're all different - Your oncologist probably has a nurse navigator or PA that can take these kind of calls. Or hopefully you have access on line to something like My Chart.

    My doc had me take Senacot S regularly during treatment. Some docs recommend Metamucil for extra fiber. Some recommend Miralax. If you are in serious discomfort - ask your doc about using a one time saline enema (like Fleet). Good luck.

  • kaynotrealname
    kaynotrealname Posts: 456
    edited September 2022

    That caught me my first time around also. Lasted about four days along with what felt like a brick in my stomach. I assume because nothing is moving quickly. Anyway miralax once or two a day and a stool softener every meal. Should take you about two to three days and then you'll notice things moving pretty regularly. If you want to head it off next time start miralax with first meal after chemo and then once a day after that. A stool softener two or three times a day, also. That seems to be helping me this time around. Still got that damn brick but it's not quite as heavy in here :)

  • ericjo
    ericjo Posts: 3
    edited January 2023

    Has anyone had bloating lower abdomen later in treatment

  • minustwo
    minustwo Posts: 13,925
    edited January 2023

    ericjo - I don't remember that, but it's been a long time. Hopefully you'll get some more current answers.

  • kotchaj
    kotchaj Posts: 231
    edited March 2023

    Bumping for those getting ready to start. I finished chemo on November 17th of 2021.

    Sending out some good vibes to all of you that are starting or getting ready to start. You CAN do this. And this thread was so helpful to me when I went through it.

  • minustwo
    minustwo Posts: 13,925

    Not sure how the new system is going to work, but this is such a valuable thread it should go to the top regularly. What we used to call a "bump"

  • moderators
    moderators Posts: 10,330

    We can mark this thread as an announcement in the Chemo forum so it stays at the top of the threads! Great feedback, MinusTwo, thank you!

  • minustwo
    minustwo Posts: 13,925

    Mods -wish I could figure out how to find the private message feature…..

  • moderators
    moderators Posts: 10,330
    edited May 2023

    @minustwo You can find your own inbox in the Quick Links section (same place you'll find your Bookmarks, your pm's are under Inbox). If you'd like to pm another member, click on their username in any thread, and a profile window will pop up with the message option.

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