My Husband, My Life, My Love, My Family, My Cancer

Hi and good morning. Girls. Looks like coffee time in the living room. @intolight i’m glad you and DH are enjoying your new deck with that delicious breakfast. Nothing like good ol American breakfast bacon 🥓 n ‘ eggs.🍳

@mkestrel thank you girl. I hope you feel better too. Rads make you feel very tired. try and take a relaxing bath with epsom salts to draw out the radiation before you go to bed.. this way is doesn’t linger in your body after being zapped.

@threetree yes that. Fasoldex is a beaut. When I get the swelled lump, it not only hurts but is so itchy. I spray Bactine on it and works lik a charm. Also I. Went out and bought a soft leather One Minute Daily Devotional book. I’ve been reading it each day and it really helps keep my mood up and push through any side effects… very upbuilding thoughts to dwell on🥰

OOOOh @micmel I love to shop for myself😊

@illimae Hey there girl. Glad to see you. I also go thru periods of not checking in. Sometimes we need to isolate or take a break.🩵you’re here now🩵

@sondraf I have thought briefly about Pallative care but I’m afraid all I will be offered are things I can’t take anyway….opiods make me sick and headachy and. Itchy….radiation…nope, don’t feel like dealing with more waiting. For appt for another procedure. I can’t take anymore. NSAIDS…….or more meds…Tomorrow I go for my monthly Fasoldex and Xgeva injections and follow-up with Onc. So I’ll mention the bone pain an aske questions.

So I’m very tired of typing right now… Saying hi to everyone else……love you all

MyDaily one minute devotional with the pretty little Rose Quartz crystal book mark…..my personal pallative care to push through SE’s

I have read over the posts but missed too many to comment on each one, rethought the food thing as well since others have enjoyed it but might condense it down some to be easier to read should people want to,

Today is mostly housework and paying bills, laundry is finally looking to be finished today. Doing some budget boosting TV ads and mobile games. Got almost half a Walmart grocery paid for. Will play the mobile game for 10.00 to get free cat food. My vileda spray mop is not longer spraying so I will just spray the floor ahead of it run the mop over and use foot mops in behind, they work well, just have to insert a broom or or mop between stuff.

Food is half cup beans, 1/4 cup beefless grounds, couple slices of the cheese and croutons, make some sort of a hamburger vibe on the plate by topping with mayo and ketchup. Should be nutritious and filling. Am also looking up a flatbread thing made from canned chicken, parm cheese and couple of eggs seasoned and flattened on baking pan, can add whatever you want. Some sort of keto dish though it sounds good to me.

In pockets as needed and love to you all, I will continue my work around the house as well.

@intolight Oh I am so darn sorry that your scan results weren't the best. I guess I don't understand how the systemic treatment works so well in one are, or many areas and not a certain area. May the very near future crush those buggers in your liver and we will really celebrate. Saying prayers and sending hugs and love.

Waving hello all. It's 3 a.m. and I really need to sleep. In pockets for scans, loved the gobbler pictures and truly do enjoy short devotionals. Although I love Chicken Soup for the Soul books.

Have a blast @illimae! Mel, sounds like you really did have a grand birthday. She will always be with you. I'll need to catch up a bit later. Can't keep my eyes open, finally. Night sweet friends……….

intolight Sorry to hear the results aren’t what we all hoped for.I too am going to remain optimistic that the next treatment will squash the liver mets. Wrapping you in a big hug and continued prays for strength and healing ❌⭕️

Intolight - so sorry your MRI was not what you had hoped it to be. I pray that your new treatment will take care of those spots🙏🏻🙏🏻. We’re all here for you……HUGS.

@candy-678 Thanks for asking thoughtful questions. No, liver mets are not new for me. I had several with my first denovo diagnosis, but they have been "quiet" for many years with only a minor speck here and there over my past eight years of treatment. I had numerous bone lesions originally too. What is a shock for me is that the rest of my body is NEAD so right now I have liver only mets. Yes, I will ask my onc about possible changes in estrogen status and whether a biopsy is warranted. I have never had my liver biopsied as the lesions were always too small before. The tech said I have "at least ten" lesions now spread all over the liver including both lobes. The picture that I can see shows spots everywhere. My tumor markers have never been reliable for me and they still register very low—like 8 and 10. I have an onc appt scheduled in two weeks but I know my onc will call me soon and either move it up or start the change discussion now. She is good about that.

@intolight I am sorry as well to hear about the progression, in your pocket always, hoping that the next stage will involve getting rid of the liver mets surgically or with ablation if possible so it can grow back clean or drugs that will destroy those nasty cancer cells.

This must be the week for liver lesions. I got my bone scan results back yesterday evening and all is stable there. Still waiting for the chest CT results. However, yesterday afternoon, I got the abdomen and pelvis CT results back that said, "Slight increase in size of multiple liver metastases." Needless to say, I was stunned and still am. They have considered me "bone only" with some "uncharacterized" liver lesions ever since I became stage 4. Prior to that they had seen what they said was a cyst on my liver, and then also a couple of small lesions that they said were too small to characterize. More recently, they have noted the cyst, claimed that one of the other lesions looked to be a hemangioma, and that the other one or two were "neither here nor there" according to what one ER dr told me. The onc agreed. No radiologist to date had ever seen anything that would have definitively called cancer or metastases. That were all as of about 3 months ago. Yesterday was the first time anyone said that any of those lesions was "metastases", much less all of them! I see my onc on Thursday and will see what he has to say. I don't know if he will get in touch any sooner.

I looked this radiologist up, as I sometimes do, when I get weird results, because sometimes they turn out to be a resident or something. Well, not in this case. This guy is in his late 50's and liver imaging seems to be his thing. Not sure just why he was the one who read the scan, but I think it's actually random. His "home base" here is at the "Liver Tumor Clinic" at the medical facility I go to. Usually it's just a random scan reading radiologist who reads and writes the report. I figure this guy either really knows what he's talking about, because it's his area of expertise, or he just sees liver tumor everywhere, due to his routine job (this is probably wishful thinking on my part). This report also seemed to have been written more bluntly and hurriedly than ones in the past. It came through fairly quickly to MyChart, so I wonder about that too. There's just something that seems odd about all this, unless it's just me not wanting to accept what could be reality. I got a bad/erroneous scan report last winter, so I'm now on the lookout for what could be possible errors in these things. I guess I'll just have to wait until Thursday when I see the oncologist. He usually has something positive and not as "awful" to say about what gets reported compared to what the radiologists usually write. There may also be other indicators (blood work, etc.) that I wouldn't know about, that might suggest this isn't as bad as it looks right now? Trying to hold onto some hope here …

Intolight - I completely understand not wanting to go on IV chemo. My previous oncologist was ready to do that after Id been on Faslodex and Verzenio for barely 3 mos., as that scan showed a very small bone progression. I pleaded for more time and she reluctantly agreed to a month, then she went on maternity leave. The onc who covered for her had a different take and said I was fine to continue with the same drugs. He's now my regular onc, thank goodness. Sure enough, the small progression spot went away, and I've been fine with the same drugs for about a year now, until this liver possibility popped up. I dread the idea of a med change and especially one to IV chemo. Maybe you should not only get your onc's take on your MRI, but maybe look for some second any/or third opinions. Making a med switch is a big deal, and maybe the report has some anomalies also.

@threetree Maybe your liver met reading is similar in that they are not new or pronounced enough to warrant a change. I will pray you can stay on the same regimen.

Sfcakes - Very interesting and helpful to read about your experiences with these scans. I completely agree that having to get the scans is anxiety inducing enough, and then even worse when there are errors or possible errors to worry about. I'm hoping that as happened with both you and Intolight, my oncologist will be able to offer some sort of mitigating commentary when I see him on Thursday. He seems to be real good at that. That's one of the great things about the doctors. They can know enough additional information to make a positive difference, but when I, as a layperson read the scan reports, I only have what the report says there at hand, with no other meaningful facts at my disposal.