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My Husband, My Life, My Love, My Family, My Cancer

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  • wren44
    wren44 Posts: 8,123

    Three tree, I worked in a mental health clinic that a large deaf program. The alarm was so loud it was painful. Everyone went outside to get away from it.

  • elainetherese
    elainetherese Posts: 1,641

    Irishlove,

    Blood in the urine is a symptom for many, many conditions — some worse than others. For example, blood in the urine was a symptom that my father had colon cancer and my father-in-law had stomach cancer. But, it could mean so many other things. Definitely see a urologist!

  • cookie54
    cookie54 Posts: 1,387

    @irishlove Sheesh you absolutely can’t catch a break! I’m sorry you had such an awful experience with trying to get pain relief at the hospital. I would definitely want to know what they gave me. I wouldn’t want that again.! Hope you get in with urologist quickly 🤞🏻Continued prayers and big hugs your way🤗

    @mara51506 Glad herceptin went smoothly and your heart checked out just fine! Sounds like a good day😊

  • chicagoan
    chicagoan Posts: 1,508

    @tanya_djamila I don't know how I missed that your DH has liver cancer. So sorry to hear that. I hope that his treatment is very effective and gives him many more years. He seems like such a lovely man the way you describe him comforting you during scans, etc. Glad you have had your mother visiting but hope it is not all too much for you.

    I have been sick four out of the last six weeks-both respiratory/flu bugs. Was finally allowed to have anti-biotics today. Hope they will do the trick on this sore throat.

  • irishlove
    irishlove Posts: 794

    Good evening sweet ladies. This forum truly is loving, supportive and informative. @tanya_djamila May I join in wishing you strength and peace with your families medical challenges. How lovely you have your Mama to comfort you and you her. I saw your GD also has a serious surgery coming up, too. Love and prayers for healing for her, too.

    I can not locate a dentist willing to take me on. The dentist that had done the root canal retired. The other local ones do not want the liability of working on this tooth. Guess they heard about osteonecroses. I have heard about the chamber of healing. It's widely used in European countries with excellent results for healing.

    @chicagoan that's a long time to be suffering from respiratory/bug. I'm betting amoxicillin will clear it up. I knew I was sick and had to take a break from systemic treatment but I was able to start appoints to clear some of these annoying medical things up. Lung Dr. tomorrow. Haven't seen one since diagnosis 3 years ago. Waiting on insurance approval for a urologist. Had one in Boone but not her in Palm Coast.

    @mara51506 You make me feel guilty that I do not have the cooking skills like you do. You sure hit the protein, etc. elements needed .

    In pockets for scans and all your needs.

    Irishlove

  • shanagirl
    shanagirl Posts: 661

    good morning Everyone, I’mreding thru and getting the gist of what tou are all going thru

    . @irishlove i totally empathize with you and many of or days are hard to deal with. My DH has dealt with kidney stones, He had 12 and had lithotripsy done to zap them away. After all those lithotripsies he had online mor big one that he would never pass anyway, the the asshole urologist kept pressuring him for surgery, After the last lithotripsy never broke up the stone.I did damage a blood vessel that was veery painful Andi several weeks recovery. So his Cardiologist recommended he see a Nephrologist in stead of that greedy urologist, who always pushes surgeries an “rororooter “ work The Nephrologist is wonderful.he sees him one every 6 months.. He told my DH no mor lithotripsies for you and now, every time that urologist sends DH for scan he alwas lies and ells him the ston grew an a new one is there too. But DH is wis to this jerk uro guy., because the Nephrologist told him his blood work first came back “kidney failure”, which he said this was only the damaged blood vessel from the lithotripsy.. He also put DH on a medication that blocks any new formation of stones.. It’s expensive but it’s called Potassium Citrate which is an enzyme my DH dowsn’t prodduce. Which causes new stones to form. Once he went a whole month without filling the Script and a new ones started forming that the Nephrologist said don’t worry. It’s so small you’ll pass it.. so now DH takes that script religiously and knows from his Nephrologists scans there are no new ones.. Unlike what the asshole urologist is always pushing🙄

    @tanya_djamila I’m thinking of you and your DH deaaly wigh his liver cancer. I’m so sorry to read this Peayers gpong out for you sweet girl.

    @chicagoan , I empaathie with you. I’ve been dealing with ll this too and it’s exhausting.

    🥰@mara51506 I love the pic of your super kitty with the towel around his shoulders🩵🐱

    saying Hi to everyone else. I’ve been feeling like crap all week with lung pain & coughing. I went for NM Bone scan & CT on Tuesday. A long day when you don’t feel well.. Sunday I’m going for an MRI, Of spine & pelvis. I’m so frustrated because the results have not shown up ye on My Chart Ugghh😫

  • cookie54
    cookie54 Posts: 1,387

    @tanya_djamila Sorry to hear you and your family are all dealing with major health issues. I can’t imagine how frustrating it is to still be dealing with Osteonecrosis also! I remember when you first posted about it and it’s been way to long.. I’m sorry.Sending strength and healing vibes to all, continued prayers..

    @mara51506 @shanagirl in your pockets for MRI’s tomorrow , fingers crossed for stable 🤞🏻🙏🏻

    @intolight Ugh sorry to hear about the new incontinence issue ,how incredibly frustrating all this has been for you.!Hope you get answers as to what us happening with your urinary issues soon❤️Agree outsiders have no idea on the daily struggles that cone along with this beast!

    @chicagoan Healing thoughts your way also with your respiratory issues ❤️

    @irishlove Continued prayers for your daily struggles , may you find a dentist this week to work on you.🤞🏻❌⭕️

    @candy-678 hey there checking in on you, treatment going ok?

    Hope there is a ray of sunshine for everyone between all this gloominess that’s plaguing many here❌⭕️

  • cookie54
    cookie54 Posts: 1,387

    @candy-678 ugh i’m so sorry to hear that you haven’t seen any response from Enhertu.. I can only imagine how disappointing that is. Well we will hold onto faith that there are great minds coming together at the tumor board meeting to come with another plan for you… sending big hugs your way💕

    @goldensrbest sorry you’re still struggling with the back issues. I hope the facet joint injections do the truck. I understand how debilitating back issues can be go through with my husband all the time.🤞🏻❌⭕️

  • cookie54
    cookie54 Posts: 1,387

    @chicagoan Glad you're feeling better😊

    @mara51506 Ugh yep the same oppressive heat is coming down to us also. I will be limiting my out activities also, may take a ride to the beach to get relief in the ocean. Glad MR went well, hope you're feeling less fatigued this week.

    @irishlove The dental procedures are sooo expensive, nobody has decent dental insurance anymore. By any chance do you have a dental university nearby? We have Unn. of Penn and they give a very steep discount, just a thought if that can be an affordable option perhaps. Glad you are finding joy in your garden, it sounds lovely.

    In all pockets here for appointments and improving health issues this week🤞💕

  • threetree
    threetree Posts: 2,686

    Good morning to all, and sending especially good wishes to those who are in the range of that heat dome. Stay cool (you all already are way cool 😉), and know that I am in pockets for all. (I've just been kind of wiped out lately and not able to post to as many individually as I would like, hence this collective hello and hope you are doing as well as possible.) I think of and appreciate everyone on this thread so very much!

  • mara51506
    mara51506 Posts: 7,509
    edited July 1

    @cookie54 less fatigue, today am booking last appointment of the week. Got an echo. Was a busy week, Sunday MRI, Monday booking RO appointments, those results arrive Thursday so Paratransit booked Monday. Now booking for a Friday MRI, get a week off so that is good. Yes it will be hot for Canada Day on wednesday.

    Yes, same heat and humidity here, will feel 115 here. Staying home and avoiding all that nonsense. I do not wait outside for the Paratransit, stay in apartment til it arrives and stay inside at the hospital til it arrives so really not much heat for me. Window in living room shut for now and got fan throwing out air from the bedroom, it does a really good job bringing it to the living room. One thing I want to save for is to have a window fan for the bedroom because it is actually warmer in the winter months than summer, no plans to keep the AC in window, may keep it in one of my pink large containers to keep dust out. No point DB taking it anywhere else. Still using my powerful little blower, like a leaf blower except small, blow out the dust on a regular basis. Have not found anything on the lint filter which is impressive, giving a good blow is good as well.

    Made the booking for Friday appointment which is good. Need laundry, little bit of floors to be done get the big box of cat litter and food for cats as well. No shopping needed for me except shredded cheese and garlic spread which is a nice mild flavour and 4 more cans of lentils. I may stop with the beans as canned lentils are perfect. 30 bucks for the delivery and tip but it would be 60 if I tried to meet the 35 dollar minimum and decided that just does not make sense. Already set the payments for this order at the bank. Works well for me and the cost to meet the minimum is double the amount I just spent to get what I actually need. I still budget boost as well, I mostly watch ads on an app called just play and play at a game and trigger those ads. Easy, no million dollars but more money than I had before. I have also realized I save no money on the litter and food for cats on Amazon because although it is free delivery, they make me double up like have to buy 2 litters and 2 foods, does not make much sense to me, better to get on delivery from Walmart. Stick with my TV channels on primevideo.

    My first meal will include rice, will make that up first, probably 1/3 to 1/2 cup white rice, add seasoning to it, probably some taco and garlic butter type. Make it up separate, once cooled put into a bowl, add 1/3 to 1/2 cup of canned lentils and same amount of beefless ground and some cheese, put the precooked rice, lentils, beefless ground and cheese in the microwave for maybe three minutes, add binders later. Still working through condiments from Mc D, got a fair amount of condiments to go through so might add some mac sauce to give a zip flavour through the primarily queso and spice, very small amounts of each. I will post on the meal.

    EDIT 1 Meal 1 included the 1/2 cups of rice, added garlic and taco seasoning to the water rice was prepared in. Once that was done, added to the large bowl, ate up rest of canned turkey, 1/2 cup canned lentils and dumped the rice in. Added shred cheese, just a handful and mixed that in. Queso and garlic spread added to top, heated for 4 mins in microwave. Took out and simply mixed together. It was super creamy and delicious. Fairly nutritious, decent protein too between shredded cheese and lentils. I had one of my many peanut butter granola bars for dessert. It was DELICIOUS.

    MEAL 2 Just a bigger beef meat pie, has beef cubes, gravy, potato, carrot and peas. Heated in the microwave and added caesar with bacon dressing, not too much since there is gravy with a bit of salt. It was really good too.

    Anyway, stay cool if you can and are hot and have a great day, in pockets for everyone as well. My order of the 2 cheeses, garlic spread and 4 cans of lentils will arrive between 2 and 4 so that will be good.

  • chicagoan
    chicagoan Posts: 1,508

    @mara51506 and any other Canadians out there-Happy Canada Day!

  • cookie54
    cookie54 Posts: 1,387

    @mara51506 Great news on the stable MRI! Also glad that you are still able to use the toilet until it's fixed..phew! Hot as ever here today over 100 and humid. I was in and out in the yard with Buster and that's about it. Happy belated Canada Day.

  • goldensrbest
    goldensrbest Posts: 874

    Mara - Yippee on MRI results. Happy belated Canada Day as well!. Heat finally broke here in Wisconsin with some much needed rain. Hope everyone is surviving in this heat wave.