My Husband, My Life, My Love, My Family, My Cancer
Comments
-
@threetree everything you said to @irishlove ….SAME.
I also need to try Save Draft. Maybe easier then hitting Select -All at the cursor than Copy, and the whole of what I typed so far is copied😉
By the way not to change the subject but I read my CT chest results from yesterday on MY CHART, and so far my airways are clear and no sign of infection or inflammation. Ha this a relief because I will go back on the Verzenio, that I have been off for almost 3 months during this whole lung nightmare. I asked my Pulmonologist how long it takes to recover from severe Hemorragic bacterial lung pneumonia and he said 6 weeks after treatment I should start felling better, 6 months or more, residual,fatique, coughing and weakness. But I have been slowly feeling better and walking more and up and down stairs with less breathlessness. I still have the swallowing issues, but that’s most likely attributed to the Paratrachial nod in my esophogus, and I don’t know how long that will last🙄
5 -
@shanagirl Hooray for good CT results! It sounds like you still have a long ways to go before you feel better but at least things are going in the right direction.
@mara51506 I didn't mean to leave you off my last post. You inspire me to try new seasonings. Lately everything tastes off and it is difficult to want to eat. I hope your kitties tummies can feel better soon. It is difficult to have to keep cleaning up after them. My last cat was throwing up everyday and I struggled to keep up with her. I just wanted to hold her all day and soothe her but I was still working and couldn't tend to her like I wanted. We didn't get another cat after she passed—it was just too hard. I am content with my DD's dog since they live with us. She knows when I need my snuggles.
3 -
@shanagirl I am very sorry you came home with hemoraghic pneumonia, that just takes so much out of you I must imagine.
@intolight I am sorry about the broken leg but glad you have a boot that is helping you stay mobile.
2 -
@irishlove poor Minnie. You must be so sad. Get lots of snuggles.
well this morning my daughter invited me to go on a short walk. The sign read 1 mile. I chose the trail bc I figured I could make it slowly. I didn’t realize halfway through it got very swampy and then underwater.We got through it without upending. A lot of fun 🤩. I gave my cane to a friend to be able to hold on to a branch. Reminded me of childhood adventures in the woods.
Have a good day ladies.
Tanya
4 -
@tanya_djamila - Tanya, just love this story. What a wonderful day to have; especially remembering exploring as a child. I just love those kinds of days and memories!
1 -
@irishlove Echoing everyone’s thoughts on Minnie mouse, so sad to see a momma grieving. I hope she finds true comfort in all you extra cuddles and bounces back over time. Glad to hear your weather broke and you are able to get outside a bit more and garden.
@tanya_djamila great to hear you were able to hike and create fum memories!
@shanagirl So happy scans show improvement ,may each day bring you more energy!
@threetree I understand your concerns over dose reduction as I went through the same over the past couple years. I agree it’s a scary territory for sure. You would never be the blame in any of this! I feel if your MO wasn’t fond of the idea it wouldn’t be offered. There’s no rush to change if you feel you can hang in and feel a little more ready mentally.
@mara51506 I love to hear your able to share your love of creating low cost meals with others! You’re a great source of info for creative ideas for less… post away👍🏻
@intolight Hope cooler weather finds its way to you as the heat can be so oppressive. Glad to hear the leg is still doing well mending nicely and you’re able to get out and shop with your daughter..best wishes for your granddaughter to have a fabulous start to middle school.
I totally agree and save draft is my best friend on here as it is still frustrating when your post disappears.The brain fog and keeping all the details in our lives can definitely be challenging, but I love my ladies here🥰always in my prayers and wishing everyone a better day than yesterday❌⭕️
4 -
Irish - give that dear Minnie lots of cuddles from all of us. So hard to watch your pets suffer.
Shana - 🎉🎉 on scan results. Our bodies take so long to heal.
We got a bonus grandson this week. Our local daughter and family now have an exchange student from Germany, which is great because both GSs are studying German! She is having a family get together today so we can all meet him. What a great year they will have together. They are taking him to Disney World right after Christmas!
Here for pocket duty for all in need. Hope everyone’s week is peaceful.
4 -
@goldensrbest Hope you enjoyed your get together and meeting with the exchange student. Sounds like a good time.
Nothing happening here, laundry, floors, cat care etc. Nothing major. I am thinking of booking a trip to the No Frills store, still got 20 bucks of bonus points and have not figured out to use them online on instacart when stuff is delivered. They have canned lentils which is good, though I do have the dried red lentils too.
Not sure about meals but decided two meals at once should be done, I do alright for the morning meal but get lazy on the final meal. Post any really good meals later.
EDIT 1 Decided to use part of a pack of KNORR fettucine alfredo. Put in 1/2 cup water. 1/4 cup of the knorr pack, it already has flavour with it, added dried red lentils and added cheese to melt down in. I am unsure if need a binder, I will see. Not an overly large meal but really do not care at this point. It will be cheesy and good I think. I also used some garlic spread in place of butter.
UPDATE on the meal, small, used all above measurements, red lentils lend themselves to stuff like this for sure, kept the stirring up so nothing leftover on bottom of pan.
Hope everyone has a good day, in pockets for everyone.
4 -
@cookie54 - Thanks for the support re the dose reduction idea. How long was it for you, before you took a reduction? I think I want to talk to the MO again about it at the end of the month when I see him. I'd also like to see the study he mentioned about the lower dose being just as good as the 3000 mg. I'm especially curious about how long the study followed the participants, and the progression statistics that resulted. I mentioned this over on the Xeloda thread, but I will mention it here too, that I think you may well have been the person who told me about "save draft". I've just never been able to remember exactly, but my bets are now on you. It was such a helpful suggestion, and "save draft" has worked like a charm for me ever since. Hope you are doing well, and wishing you a good week.
@goldensrbest - How nice to have the exchange student! I had always wanted to host an exchange student, but never could actually do it. Never felt like I had enough room, there were sometimes family issues, etc., so it never happened. I did however get to substitute teach for a few years here at a bilingual school in the district where a lot of kids from all over the world come, and I enjoyed that immensely - felt like I got some of that same nice experience that I always though an exchange student would bring - maybe more. Hoping you have a nice peaceful week too. How's Buster?
2 -
@threetree So my reduction from 3,000 to 2,500 was pretty quick. I think it was at least a couple months .The reduction from 2,500 to 2,000 was probably 2 years. MO waited until I had several stable scans and I was very apprehensive also. Like you was concerned about progression but she reassured we would monitor scans and just increase if necessary.
@goldensrbest Hey its good to see ya was thinking about you lately hoping your back has been behaving 🤞🏻 How nice to be involved with exchange student and quite a bonus for your grandkids to help with their German. Enjoy !
3 -
@threetree yes dose reduction is scary. My onc reduced my Verenio last year or so ago, and it worked out t well. I’ve been a little nervous lately because I’ve been totally off it since May 3, and they didn’t want to put me back on it, because of my recent hospitaltion for Hemorrhagic pneumonia and afterwards during my recovery. They want my scans to show lung improvement before putting me back on it and mentioned that 2 weeks I can go back on it, but I’m afraid because I’m still coughing a lot when I try to eat, I’m now a little worried he’s going to change me to something else. we’ll see. I had my injections last week for Falsodex and Xgeva and I’m always good afterward, but by the 2nd day I have a lot of fatique Bone pain and head aches and weakness. Yesterday I felt wiped out, and could even eat I was so nauseous. The SE’s seemed worse in the days following the treatment. I’m wondering if it has anything to do with my recent pulmonary problems and the medications I’m on with steroids inhalers and cough suppressant gel pills. So just giving in to it and not doing anything. It’s too hot to go out, so staying in and resting, watching TV, and doing laundry during the day.. oh and @norah2024 thank you for your kind words.! Just a quick update on my asetabulum and labrum issues I went for radiation palliative treatment last November Thanksgiving time for 10 days. So far so good, no more pain issues., my labrum was just “frayed” but not torn like yours was. Have a great day ladies all here🩵🌷
4 -
@cookie54 - Thanks very much for the info re the time frame of your reductions. It's really helpful. My tumor markers plunged almost immediately after starting the drug, so my onc said that if the scans I got in April (first ones for Xeloda) also looked good, he'd consider a dose reduction. Well the scans looked really good, but we just never discussed a reduction. Now the last scans in July also looked good and he brought all this up. I just can't decide. Maybe I should wait to see the scans I'm supposed to get in October. I thought you were just on the 2500. I didn't realize you'd gone down to 2000.
@shanagirl - I can totally understand you being quite concerned about being off the Verzenio for about 3 months. I'd be worried too. All these issues are so scary, as you say, sometimes. It just seems to be part of what we have to go through with all of this. I was on the higher dose of Verzenio for about 5 months, and then he lowered it and I stayed on that until last December. Even in that situation I couldn't help wondering if I wouldn't have progressed if I'd stayed on the higher dose. You just never know, and it can really eat at you. I suspect you will be OK, because you are still getting the Faslodex and Xgeva, so that should help. Shana, I just feel so badly for you and what you have been through these past few months, especially. This pneumonia thing you have going on was really something, and I can understand how it is taking such a long time to clear up, but I've got my fingers crossed that it will. Sounds like you've got some uncomfortable heat too - that doesn't help at all. Well, as always, I'm really pulling for you and I like to think that you will meet this challenge like you have all those others you've had over the years, and pull through with flying colors. You are a real trooper if there ever was one!
3
