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All TopicsForum: Member Matchup & Local Support Groups → Topic: Any Texas Hill Country BC Warriors?

Topic: Any Texas Hill Country BC Warriors?

Forum: Member Matchup & Local Support Groups —
A place for members to request and respond to requests from women looking for a one-on-one mentor, or to connect with others living in similar geographic areas.

Posted on: Jun 25, 2013 08:20AM - edited Jun 25, 2013 08:36AM by RMlulu

RMlulu wrote:

Just reaching out to any and all Texas Hill Country BC Warriors?
Where are you on this BC journey...newly diagnosis, in treatment, finishing treatment.

Thought it might we might be surprised to find somebody right in our own backyard who can come alongside and offer encouragement, support, tears, laughter, just be there.

Everything is Bigger in TX...so Hill Country, Piney Woods, Big Valley, West TX, Panhandle, Big D, Gulf Coast...lets help each other on this journey! So hop on and share about yourself...hopefully we can connect and meet in the future.

Cindy

Dx 12/18/2012, IDC, <1cm, Stage IB, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 1/22/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 3/13/2013 Hormonal Therapy 5/31/2013 Aromasin (exemestane)
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May 18, 2017 07:01AM Sjsparks wrote:

Hi Ladies!!

I am in the Round Rock/ Cedar Park area. I am 35 and was diagnosed October 2016. I had my bilateral mastectomy March 30, 2017. I went yesterday for my exchange pre-op and got bummer news. I am not looking for a second opinion on my exchange options. I am just not happy with what I am being told my final end result appearance will be. My TE are filled with 365cc right now and I don't really want to go any bigger.

I'm so glad I found this thread topic.



Dx 10/17/2016, IDC, Left, 2cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2+ Chemotherapy 11/6/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 3/30/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 18, 2017 11:58AM keepthefaith wrote:

sj, welcome to the thread! Someone else may chime in with advice on recon, etc. Please consider joining us the next time we get together. We try to have lunch together every few months. Best wishes!

Terri

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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May 18, 2017 02:48PM Sjsparks wrote:

Thanks Keepthefaith, I'd love to!

Dx 10/17/2016, IDC, Left, 2cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2+ Chemotherapy 11/6/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 3/30/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 18, 2017 03:07PM MinusTwo wrote:

Sjsparks - below is the link to a BCO thread called Breast Implant Sizing 101. if you read the complete header and post your particulars as requested, Whippetmom will be able to advise on sizing.

https://community.breastcancer.org/forum/44/topics...

I couldn't tell if you meant "not looking" or "now looking", but I do think a second opinion is in order. Whippetmom also keeps a list of docs around the country if no one from the Hill Country chimes in.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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May 19, 2017 10:07AM Sjsparks wrote:

Awesome, MinusTwo! I am looking at other opinions for sure. I will check out that thread! Thanks so much


Dx 10/17/2016, IDC, Left, 2cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2+ Chemotherapy 11/6/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 3/30/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 19, 2017 11:39AM vbishop wrote:

I live in round rock and had TE reconstruction. I an happy with my results. Dr. Holzman is awesome if you are looking for a second opinion. Questions? Ask away. I am an open book.

Hi Terri, Jen, Cindi, Holly, Canot and anyone else I may have missed. Let's do a June hookup.

Sassy, classy and still kickin' assy! Dx 9/8/2013, LCIS/ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 9/28/2013 Lymph node removal: Left, Sentinel Surgery 10/8/2013 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 11/1/2013 Arimidex (anastrozole) Surgery 12/23/2013 Reconstruction (left); Reconstruction (right)
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May 19, 2017 04:32PM keepthefaith wrote:

Vicki, so good to hear from you! Haven't seen you in a while. Yes, let's plan something real soon! June sounds perfect.

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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Jun 15, 2017 03:28PM - edited Jun 15, 2017 04:47PM by JWoo

June is getting away from us, and TBH, is packed for me as our nephew is visiting from Illinois.

How does July 9th sound?

Someplace south so our SA area ladies can join us?

I'm thinking.....

brunch here at noon

http://thegruenedoor.com/our-menu/

and then an afternoon looking at some antiques?

maybe a glass of wine at the winery place?

I know it will be hot as the dickens, but, I'll bring an ice chest of frozen waters and extra parasols :)

Or, if that is not workable for you, please let us know what would work!

effitall
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Jun 15, 2017 05:02PM keepthefaith wrote:

Jen',

That sounds fine to me. Thanks for posting. I was just thinking about this the other day!


Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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Jun 15, 2017 07:02PM shewolfpg wrote:

Hi all. It has been a while. Going back to work kept me busy. Hubby was gone for about a year and I was going to join him but recon didn't take so well. After 7 surgeries it has finally taken in the cancer side. Hubby ended up moving back home and life settled. I was chosen for the Casting For Recovery this last month and I didn't realize how much I truly needed it. I cried, I laughed, I made some friends. Going back for the reunion in September. Anywho I have still lurked as I get the messages in my email but since this site is blocked on my work computer just harder to keep up.



Dx 7/24/2014, IDC, 5cm, Stage IIB, Grade 3, 1/9 nodes, ER-/PR-, HER2- Surgery 8/5/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 8/27/2014 AC Chemotherapy 10/22/2014 Taxol (paclitaxel) Radiation Therapy 1/5/2015 Breast, Lymph nodes
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Jun 16, 2017 06:09PM keepthefaith wrote:

Please try to join us next month!

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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Jun 17, 2017 05:32PM JWoo wrote:

yes, everyone, seasoned and new! please join us!


effitall
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Jun 17, 2017 08:33PM jbdayton wrote:

shewolf I will be at the CFR reunion in Sept. as well. It is a blast. We had about 30 women there last year. I am looking forward to meeting you. The reunion is very relaxing yet motivating at the same time.

Cindy, are you going to try to make it to the reunion this year? I think someone else from this thread went a couple of years ago. This will be year three for me.

Someday I will make it to Austin for one of your get togethers. I read this thread regularly. I learned of CFR from Cindy right here when I was still in treatments.

Have a great weekend.


Jeannine. My bi-lateral DIEP turned into a single DIEP due to bad veins. Next was a Ruben's flap. Wound opened requiring a wound vac. 6 revisions using fat grafting and scar revisions; completed nipples and tattoos. Dx 2/4/2013, IDC, Left, 3cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/12/2013 TAC Dx 8/26/2013, DCIS, Left, 1cm, Stage 0, Grade 1 Surgery 8/26/2013 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 10/9/2013 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 11/21/2013 Arimidex (anastrozole)
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Jun 17, 2017 09:37PM SA8PG wrote:

Ladies,

The meeting place is wonderful. Let me see if I can get a sitter. What time are you thinking on the 9th?

Genny

Until God opens the next door praise Him in the hallway! Diagnosed at 39 pregnant with my 8th child. Have had 5 surgeries from an infection & 12 weeks of IV antibiotics. Completed Diep on 12/9. You can do this too! Dx 7/25/2014, IDC, 4cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 8/22/2014 AC + T (Taxol) Surgery 12/18/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/9/2015 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jun 17, 2017 09:38PM MinusTwo wrote:

JB - I didn't realize you'd done CFR. What a neat thing.

I too follow this thread & will some day make it up there for a lunch. Sad that we just don't have any kind of even semi-active group in Houston.

Did anyone every find out what happened to Braids? She was kind enough to invite me to an MBC luncheon & presentation in Houston when I was deep in trying to figure out what was happening with my recurrence. Such a gracious lady.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 17, 2017 10:04PM JWoo wrote:

oh- forgot to put that on there- I was thinking NOON if that works for everyone.


effitall
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Jun 18, 2017 05:42AM keepthefaith wrote:

MT, Braids met us for lunch several yrs ago. I don't think anyone here has been in touch with her since. I know she was going through the Breast Cancer Resource Center here, bc Marjorie came to lunch with her. I think about her too. Come for lunch if you can. About 2 hrs from Houston to Gruene, I think! Would love to meet you. The more the merrier!

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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Jun 18, 2017 07:59AM MinusTwo wrote:

Thanks Faith. I'm familiar with the area. We went to Canyon Lake a lot in the '70s. I used to have property by Bertram and have a niece by San Antonio. I can't make lunch this time, but like JB Dayton, I have this site on my favorites and hope to get there one of these days. It's always so good to meet fellow BCO members.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 18, 2017 08:16AM jbdayton wrote:

MinusTwo, I would be glad to carpool to a meet-up some day. We can maybe even pick up Sandra on the way.

Life is good. I just got back from 2 weeks visiting my brother in law and wife in south Florida. I also connected with a cousin I had not seen since I was in high school. She found me on facebook and reached out. She lives only 30 minutes from my brother-in-law. Had a very good visit, actually met her 3 times that week.

Keep applying for Casting for Recovery. You would really enjoy it. Then we can go to reunions together.

Have a great week everyone.


Jeannine. My bi-lateral DIEP turned into a single DIEP due to bad veins. Next was a Ruben's flap. Wound opened requiring a wound vac. 6 revisions using fat grafting and scar revisions; completed nipples and tattoos. Dx 2/4/2013, IDC, Left, 3cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/12/2013 TAC Dx 8/26/2013, DCIS, Left, 1cm, Stage 0, Grade 1 Surgery 8/26/2013 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 10/9/2013 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 11/21/2013 Arimidex (anastrozole)
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Jun 18, 2017 10:26AM Bootscootin wrote:

I am in the Houston area, too, and would like to meet-up sometime. Will be out of state in July but will put this in my "favorites" for next time

Dx 2/9/2015, IDC, Left, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Chemotherapy 2/18/2015 AC + T (Taxotere) Targeted Therapy 5/13/2015 Perjeta (pertuzumab) Targeted Therapy 5/13/2015 Herceptin (trastuzumab) Surgery 8/16/2015 Lumpectomy: Left Radiation Therapy 9/28/2015 Whole-breast Hormonal Therapy 11/30/2015 Femara (letrozole)
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Jun 18, 2017 10:29AM keepthefaith wrote:

Maybe we can all meet up somewhere in between Austin and Houston sometime this Fall...La Grange, Schulenberg, Columbus...? Let's stay in touch!

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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Jun 30, 2017 06:15PM JWoo wrote:

Ladies in the SA area, who is up for the 9th? Trying to get a head count/location for everyone that wants to go

effitall
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Jun 30, 2017 09:31PM SA8PG wrote:

I tried to get a sitter but no luck for me. :(. Have a blessed time ladies. Hope to meet you all soon

Until God opens the next door praise Him in the hallway! Diagnosed at 39 pregnant with my 8th child. Have had 5 surgeries from an infection & 12 weeks of IV antibiotics. Completed Diep on 12/9. You can do this too! Dx 7/25/2014, IDC, 4cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 8/22/2014 AC + T (Taxol) Surgery 12/18/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/9/2015 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jul 4, 2017 03:35PM Largepizza wrote:

Hello from West Texas! I could use a little direction. I have a reddish blotch on my breast that the dermatologist has ruled out skin cancer and set me up for a mammogram tomorrow. I did not have a regular doctor so I got into a Nurse practitioner last Friday and she agreed on the mammogram and said she could forward the results to Lubbock breast cancer center. They are not NCI. She also feels I need other tests like a biopsy or some sort scan-I can't remeber at the moment. Does anyone know anything about Lubbock's breast cancer center? Would I be better off going to Dallas. I guess I just don't know what my next step should be . Beside the sPlotch I have pain and itching.

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Jul 4, 2017 03:50PM keepthefaith wrote:

LP, Sorry I can't help with Lubbock or DFW medical facilitiies. I go to Austin Cancer Center. I hope you get some answers quickly. Good that you are doing some research. Pls let us know how it goes~ Best wishes

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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Jul 4, 2017 04:21PM MinusTwo wrote:

Pizza - I was the one who directed you to an NCI center. Sorry no one else answered that thread.

I don't know anything about either Lubbock or Dallas, but I'd go ahead and follow through with what you've got scheduled so far. It might be an ultrasound after the mammogram. Or they may refer you to a breast surgeon to discuss biopsy. Once you get a tentative diagnosis, you can certainly go to Dallas for a second opinion.

In the meantime, my niece went to college in Lubbock and I'll ask if she knows anything about the hospitals.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 4, 2017 07:40PM MinusTwo wrote:

Sorry, my niece said she just always went to the clinic at Tech.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 5, 2017 06:49AM Largepizza wrote:

Thank you so much for checking. I think it would be unrealistic to seek treatment in Dallas as it is 5 hours away. That is if I even need it! I think I'll send the results today to Lubbock and schedule an appt with them

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Jul 6, 2017 12:18AM Balthus wrote:

I'd be happy to provide any Dallas info if needed. Hopefully will not be needed :

1/12/16 BMX & SNB. Left Breast: Stage 1A & DCIS Stage 0. Right Breast: DCIS Stage O. 64, married & with DH 25 years, no kids, 1 wonderful dog, professional, working F/T.
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Jul 7, 2017 03:37PM JWoo wrote:

Largepizza (i love your name) I hope you were able to get the help you needed in Lubbock, and that everything is benign.

Bootscootin' - welcome and I think a meet up in between would be great!


Terri, I think it might just be us. Want to just keep it local? brunch in Round Rock? Maybe Kerby or Star Cafe?



effitall

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