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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Ladies in their 30s?

Topic: Ladies in their 30s?

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Jan 2, 2013 08:46PM

Kasi wrote:

Hi! I'm 33, just looking to see who else is out there that's Stage IV and in their 30s. I don't know anyone locally in the same age group as me who is also going through this so I thought I would reach out here. :)

Lots of bone mets. Dx 6/6/2011, IDC, 4cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2- Dx 7/31/2012, Stage IV, Grade 3, ER+/PR+, HER2-
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Jan 2, 2013 09:10PM nancyh wrote:

Hey Kasi,

If you haven't already, check out youngsurvival.org.  I've sorta' aged out now that I'm over 40, but back in the day, they had an active stage 4 board.   If you post there, I'm sure you'd be able to connect with others in your area. 

We've got some young gals here, some are in their 20's, sadly.  :-(  The boards have been a little quiet lately with the holidays, but I'm sure others will reply to your post.  Take care.

Stage 4 in 2009, mets to liver, lungs, bones, and brain. Dx 8/12/2002, IDC, 1cm, Stage IIB, 3/12 nodes, ER+/PR+, HER2- Chemotherapy 10/1/2002 AC Chemotherapy 1/1/2003 Taxol (paclitaxel) Hormonal Therapy 5/1/2003 Dx 4/2/2007, IDC, 1cm, Stage II, ER+/PR+, HER2- Chemotherapy 6/1/2007 CMF Dx 9/1/2009, IDC, Stage IV, metastasized to brain/bone/liver/lungs, mets, ER+/PR+, HER2- Targeted Therapy 9/1/2009 Avastin (bevacizumab) Chemotherapy 9/1/2009 Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy 6/1/2010 Femara (letrozole) Chemotherapy 9/1/2011 Xeloda (capecitabine) Hormonal Therapy 1/1/2012 Faslodex (fulvestrant) Chemotherapy 6/1/2012 Navelbine (vinorelbine) Chemotherapy 5/1/2013 Gemzar (gemcitabine) Hormonal Therapy 6/1/2013 Aromasin (exemestane) Targeted Therapy 8/1/2013 Afinitor (everolimus) Chemotherapy 10/28/2013 Halaven (eribulin) Chemotherapy 11/12/2014 Taxotere (docetaxel) Chemotherapy 10/1/2015 Adriamycin (doxorubicin) Targeted Therapy Ibrance (palbociclib)
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Jan 2, 2013 09:14PM SPAMgirl wrote:

I have less than a year in this age group, but I hit IV at 38. Luckier than some. My kids are 10 and 8 and watch their age more than I do my own.

mets to liver, bone and brain Radiation Therapy 3/6/2010 Breast, Lymph nodes Surgery 9/2/2010 Mastectomy: Left, Right; Reconstruction (left): Nipple reconstruction, Tissue expander placement; Reconstruction (right): Nipple reconstruction, Tissue expander placement Chemotherapy 9/27/2010 AC + T (Taxol) Dx 2/20/2012, IDC, 2cm, Stage IV, Grade 2, 4/16 nodes, mets, ER+/PR-, HER2+ Hormonal Therapy 2/20/2012 Arimidex (anastrozole) Targeted Therapy 2/27/2012 Herceptin (trastuzumab) Chemotherapy 2/27/2012 Navelbine (vinorelbine) Radiation Therapy 3/17/2012 Bone Chemotherapy 4/6/2012 Halaven (eribulin) Hormonal Therapy 11/5/2012 Faslodex (fulvestrant) Targeted Therapy 11/5/2012 Herceptin (trastuzumab) Targeted Therapy 11/5/2012 Perjeta (pertuzumab) Chemotherapy 11/5/2012 Taxotere (docetaxel) Chemotherapy 4/1/2013 Adriamycin (doxorubicin) Chemotherapy 6/17/2013 Xeloda (capecitabine) Targeted Therapy 6/24/2013 Tykerb (lapatinib)
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Jan 2, 2013 09:16PM kayrnic wrote:

Kasi, I am 39, but about to turn 40. I was only 28 when originally diagnosed. My son was only 3 at the time. I know I am not 33 anymore, but I can totally relate to what it's like to be younger and battling this stupid disease. The issues are a lot different. Feel free to pm me if I can help in any way.

Kay ---bone mets Dx 11/14/2001, IDC, 2cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Dx 3/9/2012, IDC, Stage IV, mets, ER+/PR+, HER2-
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Jan 2, 2013 09:25PM Sjayne2u wrote:

Hi Kasi,
I'm 37 and fairly new to this entire journey also. I just found the youngsurvival.org site yesterday. It seems to have a lot of info and support there too.

Dx 8/14/2012, IDC, 5cm, Stage IV, Grade 3, ER-/PR-, HER2-
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Jan 2, 2013 09:32PM Kasi wrote:

Hi all! Thanks for saying hi :-) I have checked out YSC, although their boards are pretty much inactive now and they have moved into a private Facebook group. I really like the setup over here better and having a specific place for Stage IV, you know what I mean? 

Glad to meet you guys!! :-)

Lots of bone mets. Dx 6/6/2011, IDC, 4cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2- Dx 7/31/2012, Stage IV, Grade 3, ER+/PR+, HER2-
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Jan 2, 2013 09:57PM EnglishMajor wrote:

Jen Smith, a 35 year old single mom shared her story at the MBCN Conf. (I don't think she is on this board tho). Just passing along her story:



http://mbcn.org/get-involved/details/your-stories-jen/

http://www.healthmonitor.com/cancer/metastatic-cancer/metastatic-cancer-im-stage-thrive

Dx 7/6/2009, IDC, 3cm, Stage IV, Grade 3, mets, ER+/PR+, HER2-
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Jan 2, 2013 10:03PM kingcour wrote:

Hey! Right there with you! I have four children and was diagnosed stage IV right out of the gate after finding a lump while breast feeding my youngest who was born on Valentine's Day of last year. It sucks, but I am determined to raise my young ones! God will get us through this! Nice to meet you!

Dx 4/25/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+
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Jan 2, 2013 10:51PM Groovywilma wrote:

Hey there!  I'm 38 now, diagnosed stage IV when I was 36.  I check out the YSC events every now and then, but sometimes feel uncomfortable with the earlier stage women because my journey is FAR different than theirs.  It helps me more to talk to stage IV people.  I hope you (and everyone else here) get to grow very very old! 

Dx 1/3/2011, IDC, 2cm, Stage IV, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 7/25/2013 Faslodex (fulvestrant) Hormonal Therapy 9/2/2015 Femara (letrozole) Targeted Therapy 9/2/2015 Ibrance (palbociclib) Chemotherapy 12/18/2015 Xeloda (capecitabine) Chemotherapy 4/7/2016 Gemzar (gemcitabine) Chemotherapy 3/31/2017 Navelbine (vinorelbine) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 2, 2013 11:09PM lanagraves wrote:

39 here. Dx'd at 38. I have two boys, ages 16 and 10. The 16 year old is starting college next week and I fully intend to be around when he finishes his master's. Heck, I plan to be here to see the youngest graduate from college.

It appears my battle is not over...but I never was afraid of a fight... Dx 2/9/2012, IDC, 4cm, Stage IIIA, Grade 2, 4/12 nodes, ER+/PR+, HER2- Surgery 2/13/2012 Mastectomy: Left, Right Chemotherapy 3/15/2012 AC + T (Taxol) Radiation Therapy 7/15/2012 Breast, Lymph nodes Hormonal Therapy 9/27/2012 Dx 9/28/2012, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2-
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Jan 2, 2013 11:59PM Tiger_Blood wrote:

35 and have a 6 year old!

My wife has Tiger Blood. Winston Churchill: If you are going through hell, keep going Dx 3/7/2011, IDC, 6cm+, Stage IV, Grade 2, mets, ER-/PR-, HER2+
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Jan 3, 2013 01:25AM hydeskate wrote:

I am 34 was dx out of the gate with Stage IV in 2008.

heidiy13.blogspot.com/ Chemotherapy 3/8/2008 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/25/2008 Adriamycin (doxorubicin) Surgery 2/12/2009 Lymph node removal: Left; Mastectomy: Left, Right Radiation Therapy 7/1/2009 Breast, Lymph nodes Chemotherapy 8/4/2009 Abraxane (albumin-bound or nab-paclitaxel) Dx IDC, Left, 1cm, Stage IV, metastasized to liver/lungs, Grade 3, 2/20 nodes, mets, ER-/PR-, HER2-
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Jan 3, 2013 07:18AM texasrose361 wrote:

Kasi- I am 30, dx'd at 27 stage 4. You're right about YSC, once the moved over to FB i had a harder time keeping up. I have 4 children (2 whom are mine and 2 that are a friend's that i am rasing) so I don't have TIME for FB lol (although my 17 yr old will post random things on there if i leave my phone in reach) 

There are a few of us young stage 4ers on here :) 

In my area I also haven't found anyone in the same situation, although there is a mom with the tell tell signs of maybe going through chemo, bandanas with sparse hair growth... I am afraid of chatting her up, just in case stage 4ness will scare her off. LOL it has def scared off other potential friends- Are there any groups like in Portland?





Children 10g, 10b, 8b :) Mets to ribs, sternum, femur, esophagus, retroperitoneal LN, lungs, ocular nerve, brain. Dx 7/22/2010, IDC, 6cm+, Stage IV, Grade 3, mets, ER-/PR-, HER2+
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Jan 3, 2013 03:59PM Bondgirl wrote:

32 at initial diagnosis and 35 now at stage IV. Unfortunately it seems like there are too many of us.

"Be Brave" Dx 6/19/2010, IDC, 5cm, Stage IIIA, Grade 3, 2/9 nodes, ER+/PR-, HER2+ Surgery 11/29/2010 Mastectomy: Right Dx 11/15/2012, IDC, 5cm, Stage IV, Grade 3, 2/9 nodes, ER+/PR-, HER2+ Targeted Therapy 11/28/2012 Perjeta (pertuzumab) Chemotherapy 11/28/2012 Taxotere (docetaxel)
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Jan 7, 2013 03:48PM Kasi wrote:

Thank you ALL so much for saying hi...it's so nice to know that you guys are here and that I'm not alone in this :-)

Lots of bone mets. Dx 6/6/2011, IDC, 4cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2- Dx 7/31/2012, Stage IV, Grade 3, ER+/PR+, HER2-
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Jan 8, 2013 01:01AM singletona80 wrote:

Hey I'm 32 original dx at age 29

33 yrs old ~~ 11/10/2011 Stage IV, mets to left lung -- Originally Dx @ age 29yr, (2010) Neoadjuvant Chemo DD AC-T , BMX, 25 sessions of RADS Dx 6/29/2010, IDC, 5cm, Stage IIIB, Grade 2, mets, ER+/PR-, HER2- Chemotherapy 7/26/2010 AC + T (Taxol) Surgery 11/22/2010 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 12/16/2010 Breast Dx 11/2011, IDC, Stage IV, Grade 2, mets, ER+/PR-, HER2- Chemotherapy 11/12/2011 Taxotere (docetaxel), Xeloda (capecitabine) Hormonal Therapy 9/28/2012 Arimidex (anastrozole) Chemotherapy 12/19/2013 Xeloda (capecitabine)
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Jan 8, 2013 11:04AM aic wrote:

Hi there...
I am 36. Diagnosed stage four out the gate at 35. I have a son who turns 8 this month. Nice to "meet" those that I haven't talked to before on here. Hate that we all are so young with this but glad we gave each other for support!

Dx 8/31/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ Targeted Therapy 9/24/2012 Herceptin (trastuzumab) Targeted Therapy 9/24/2012 Perjeta (pertuzumab) Chemotherapy 9/24/2012 Taxotere (docetaxel)
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Jan 8, 2013 12:27PM Moderators wrote:

Hi All, 

As you know, you are not alone. Do you think that this is worthy of a sticky topic, or a new forum (e.g. Stage IV and young)? 

Thinking of all you incredible women!!!!!
Your Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 8, 2013 01:10PM Tiger_Blood wrote:

I would love that.

My wife has Tiger Blood. Winston Churchill: If you are going through hell, keep going Dx 3/7/2011, IDC, 6cm+, Stage IV, Grade 2, mets, ER-/PR-, HER2+
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Jan 8, 2013 01:53PM singletona80 wrote:

Mods- That would be nice, thanks !!

33 yrs old ~~ 11/10/2011 Stage IV, mets to left lung -- Originally Dx @ age 29yr, (2010) Neoadjuvant Chemo DD AC-T , BMX, 25 sessions of RADS Dx 6/29/2010, IDC, 5cm, Stage IIIB, Grade 2, mets, ER+/PR-, HER2- Chemotherapy 7/26/2010 AC + T (Taxol) Surgery 11/22/2010 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 12/16/2010 Breast Dx 11/2011, IDC, Stage IV, Grade 2, mets, ER+/PR-, HER2- Chemotherapy 11/12/2011 Taxotere (docetaxel), Xeloda (capecitabine) Hormonal Therapy 9/28/2012 Arimidex (anastrozole) Chemotherapy 12/19/2013 Xeloda (capecitabine)
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Jan 8, 2013 02:26PM Kasi wrote:

Mods - That would be wonderful, thank you!

Lots of bone mets. Dx 6/6/2011, IDC, 4cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2- Dx 7/31/2012, Stage IV, Grade 3, ER+/PR+, HER2-
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Jan 8, 2013 03:57PM Moderators wrote:

To start out, I made it a "sticky" topic in this forum. So, it won't sink to the bottom. Hope that helps!
Best, 

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 8, 2013 04:02PM Kasi wrote:

Thank you so much!!

Lots of bone mets. Dx 6/6/2011, IDC, 4cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2- Dx 7/31/2012, Stage IV, Grade 3, ER+/PR+, HER2-
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Jan 9, 2013 05:52AM aic wrote:

Thank you!

Dx 8/31/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ Targeted Therapy 9/24/2012 Herceptin (trastuzumab) Targeted Therapy 9/24/2012 Perjeta (pertuzumab) Chemotherapy 9/24/2012 Taxotere (docetaxel)
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Jan 9, 2013 07:11AM Amyf wrote:

Me! I was diagnosed at age 28. I'm 30 now :)

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Jan 9, 2013 07:21AM Kasi wrote:

Hi Amy!

Lots of bone mets. Dx 6/6/2011, IDC, 4cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2- Dx 7/31/2012, Stage IV, Grade 3, ER+/PR+, HER2-
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Jan 9, 2013 11:09AM Mzmerz wrote:

I was dx at age 40 - I was 40 by about 5 weeks.  And 40 is still young for BC.  At the time I had 5 kids from 5-15.  I was totally the youngest person in the treatment room when I went.  Sorry you are here with us, but welcome.

Dx 6/12/2009, IDC, 3cm, Stage IIB, 12/19 nodes, ER+/PR+, HER2- Surgery 7/8/2009 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/7/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/3/2010 Hormonal Therapy 2/22/2010 Surgery 5/8/2010 Prophylactic ovary removal Dx 3/22/2012, IDC, Stage IV, metastasized to bone, 12/19 nodes, mets, ER+/PR-, HER2- Radiation Therapy 3/27/2012 Hormonal Therapy 5/1/2012 Femara (letrozole) Targeted Therapy 7/15/2016 Ibrance (palbociclib) Dx 11/2016, IDC, Stage IV, metastasized to bone/liver, ER+/PR-, HER2- Hormonal Therapy 3/3/2017 Faslodex (fulvestrant) Chemotherapy 5/23/2017 Taxol (paclitaxel)
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Jan 9, 2013 02:45PM keepingon wrote:

Hello Kasi.

Sorry to have to welcome you to these boards...but Welcome.

I was diagnosed Stage IV right away at age 32. That was two years ago and I have had good success with treatments. I am 34 now.

keepingon ;) Chemotherapy 11/14/2010 AT Surgery 4/3/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Radiation Therapy 5/2/2011 Breast, Lymph nodes Hormonal Therapy 7/6/2011 Aromasin (exemestane) Chemotherapy 5/25/2015 AC + T (Taxol) Radiation Therapy
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Jan 9, 2013 05:32PM nbnotes wrote:

I was 37 this past summer when diagnosed and found out that it was already in my liver a month before my 38th birthday.  It is nice to "meet" others who are in my age range since that is not what I see when going for treatment. 

Nancy

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Jan 9, 2013 06:21PM EnglishMajor wrote:

This conference is for young people (all stages) with breast cancer. (I am not in the YSC demographic--45 or under, so I don't have feedback on the conferenc/group, just an FYI).

Feb 22-24 Bellevue, WA (Seattle area)

http://www.c4yw.org/2013-agenda



http://www.c4yw.org/travel-grants-fee-waivers

Dx 7/6/2009, IDC, 3cm, Stage IV, Grade 3, mets, ER+/PR+, HER2-
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Jan 9, 2013 08:53PM stellaratovsky wrote:

Hi am 41 years old I was diagnosed at 37 years old. I have two boys they are know 7 and 16. It is so hard to have kids and battle the beast. But I have no choice I refuse to let my boys grow up without a mom. I still need to guide them. May 2013 only bring us all good news.

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