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Topic: CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

Forum: Bonded by Breast Cancer —

For those who have met on Breastcancer.org and want to continue growing their cybersibling friendships beyond cancer.

Posted on: Jul 18, 2015 08:14PM - edited Feb 21, 2016 12:31AM by SlowDeepBreaths

SlowDeepBreaths wrote:

I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!!

I wrote a little story about visiting Crazy Town last year on my blog, and I received some lovely emails from women all over the world talking about how terrifying those feelings can become. I thought I would share that story with my BCO sisters. I know many of you can relate to the craziness of worrying about recurrence or progression. I think my experience epitomizes the crazy place our minds can go. I've found when I can laugh at myself, I always feel better.

"My master bath has its own little room for the toilet. The sink, shower and tub are all in the same room. At night when I have to use the bathroom, I always turn on the closet light which is right next to my sink. This way I don't have to turn on all the lights above the sink. They are very bright and there are a lot of them. I do this so the brightness doesn't wake up my DH. Being the OCD person I am, I always wash my hands after using the restroom – even in the middle of the night.

One night last week, I was doing my usual ritual and I caught a glimpse of a big blackish/brown mark on the upper left side of my chest.This thing was huge. I could feel my heart beating out of my chest when I caught a glimpse of it. I'm sure many of you will know what I'm talking about - that feeling of dread.I ran my fingers over it and it felt raised. I couldn't imagine what it could be – it was SO big. I thought, "Oh great, here we go again, now I've got skin cancer." Then I decided to risk waking DH up by turning on the millions of lights above the sink. Then I got a closer look. UNBELIEVABLE!!……it was a piece of chocolate from a cookie I had eaten earlier!!!!! Apparently it had melted into my chest and I went to bed that way. Can you imagine?? Now if that doesn't give you a good laugh, I don't know what will. CRAZY TOWN!!!"

I have many stories since diagnosis. I call it going to Crazy Town. Some of them are funny, others not so much. I usually go there in the middle of the night when everyone is sleeping, and my mind wanders. There are no trains, planes or busses out of Crazy Town in the middle of the night. I also go there at times when I'm waiting on test results. I hope we can all share our Crazy Town stories. Talking about it has helped me to stay on the outskirts of the town. I've been really good about not visiting lately, but this week it's been a real challenge.

If you have tests coming up, or you just have a day where you're worried more than usual, or if you just want to hang out and chat, please stop in to visit. It is my hope we can have some fun here and get each other through on difficult days with humor, kindness and hugs!!

Much love to all,

Beppy ツ

P.S. If you've just been diagnosed, I strongly suggest starting a blog. Whether it be just for yourself, or you'd like to share it with others. It's been a good outlet to get my feelings out as well as a wonderful timeline to refer back to when needed.



Great info about breast cancer and PTSD:

http://www.healthline.com/health-news/cancer-treatment-leaves-survivors-with-ptsd-scars-031215#3


Dx 4/2016, TN mets to lung. VATS left upper lobe wedge resection. "Fall seven times, stand up eight" Japanese Proverb Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2+ (FISH) Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2- (FISH)
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Mar 14, 2021 11:16AM octogirl wrote:

Mommy, so glad hubby will be getting his shot! I got my first one last week, second on the 22nd (Pfizer).

Dx 6/18/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 7/16/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/15/2015 Hormonal Therapy 1/15/2016 Arimidex (anastrozole) Hormonal Therapy 4/8/2016 Femara (letrozole)
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Mar 14, 2021 01:04PM M0mmyof2 wrote:

I am feeling a sense of relief. Can’t wait to put this virus crud in the rear view mirror.

If you value your freedom, thank a servicemember both serving and retired!
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Mar 15, 2021 02:04AM ThreeC wrote:

Haven’t been on here in forever but it’s the night before another mammogram and sleep is a long way off. Finally got my 1st COVID-19 vaccine last week after weeks of no success. That is a big relief. Lost my MO recently and just can’t talk as well with the new one I was assigned. May have to look for a new one. It’s always nice to have this site to come to when the scan craziness starts. Good luck to all

Dx 4/11/2017, DCIS, Left, 3cm, Stage 0, Grade 1, ER+/PR+ Dx 5/23/2017, DCIS, Left, 5cm, Stage 0, Grade 1, ER+/PR+ Radiation Therapy 7/20/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/13/2017 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 15, 2021 11:32AM MinusTwo wrote:

ThreeC - don't panic if your mammogram shows weird things. There are a number of studies showing that the vaccine can effect the results and recommending you wait 6 weeks after your shots.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Mar 15, 2021 07:41PM ChiSandy wrote:

ThreeC--be sure to tell your mammo tech (if you haven't already) and patient-portal-message your primary care doc & interim MO that you're a week past your first COVID shot. Temporary lymphadenopathy--even if you had no more than an injection-site reaction--is quite common after any kind of vaccination, as your lymph nodes are where your newly-created antibodies are "mustering" for possible "deployment" in reaction to your next shot. It's usually on the same side as the injected arm--which if you were following lymphedema-prevention protocols would be your right arm, the opposite side from where you had DCIS. Occasionally, there's bilateral axillary-node swelling, but in that case the nodes near your salivary glands would also be slightly swollen too. It's NOT a sign of spread. Your MO or RO might consider doing a quick CT or ultrasound to make sure it's just a vaccine side effect (and one that shows the vaccine is working).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Mar 15, 2021 08:13PM Poppy_90 wrote:

First six month dx mammo tomorrow. More nervous than I thought I would be—to be back where it all started is hitting me. I know you ladies get it. Deep breaths, right? And maybe a sleeping pill tonight.I’ll happily take any good thoughts and wishes. Thanks!

Dx 5/1/2020, IDC, Right, 2cm, ER-/PR-, HER2- Chemotherapy 5/29/2020 AC + T (Taxol) Surgery 10/5/2020 Lumpectomy: Right Radiation Therapy 11/5/2020 Breast
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Mar 15, 2021 08:36PM Beaverntx wrote:

In your pocket for the mammo, Poppy!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 15, 2021 08:55PM Poppy_90 wrote:

thanks so much, Beaverntx.

Dx 5/1/2020, IDC, Right, 2cm, ER-/PR-, HER2- Chemotherapy 5/29/2020 AC + T (Taxol) Surgery 10/5/2020 Lumpectomy: Right Radiation Therapy 11/5/2020 Breast
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Mar 15, 2021 09:32PM ChiSandy wrote:

Jumping into your pocket, Poppy! (A nice sundae with Ativan sprinkles--as Queenmomcat, the second "Mayor of Crazy Town" used to say when welcoming a new BCO sister--wouldn't hurt, either).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Mar 16, 2021 05:42AM M0mmyof2 wrote:

Yesterday was good news and bad news!

The bad:

The oil cyst has grown on the left surgical scar has grown again and will probably be removed in the near future. My surgeon wants me to have the plastic surgeon take a look at it and see if she can remove it in office or toss it back to my breast surgeon and she can do it in the OR quickly. The reason my plastic surgeon is involved now is that it is close to my implant.

The good:

I will be able to register for my 1st vaccine dose on Friday instead of Monday since the governor has moved up the timeline on my age group! So the hunt will begin Friday morning!


If you value your freedom, thank a servicemember both serving and retired!
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Mar 17, 2021 06:09PM ChiSandy wrote:

My son just got his first Pfizer shot today--UIC Health called him and said they had some no-shows today, and he has asthma. He's in IL's Group 1B+/Chicago's Group 1C. 1B+ is already being vaccinated downstate. The city's health commissioner says that while 1C doesn't officially start till 3/29, if centers & pharmacies have cancellations & leftovers that need to be administered, they can offer them to those in 1C who are restaurant workers or have underlying conditions.

Have a little "scanxiety:" had my 5-month followup chest/ab/pelvis contrast CT scan this morning and am awaiting results--the only thing in my portal inbox is that my kidney enzyme levels (via finger-stick) are normal and that I passed the COVID screening questionnaires. Meanwhile, my allergies are driving me nuts: itchy throat (even on the outside), itchy eyes & ears too; twitchy lungs; and an annoying crackle that sounds like cellophane in my R ear when I move my jaw. FP says it's likely fluid in the Eustachian tube, due to allergies. I've had to go off both Zyrtec (and any antihistamines) and my Pataday eye drops since Saturday, since my penicillin allergy challenge test is tomorrow morning. Had to cancel it twice before (due to awaiting COVID test results), then they cancelled on me because a staffer tested positive, then they suspended all elective procedures while Glenbrook (the only hospital in the system with allergists) was used as NorthShore's COVID-only hospital. I've been getting by on Nasalcrom, Nasacort, my rescue inhaler, Singulair and if truly desperate, the prednisone eye drops left over from my plaque-brachytherapy eye surgeries. (All the above are OK to take, per the allergy clinic's NP). My cats have been unduly affectionate of late, which does aggravate matters; and trees are starting to pollinate. If the challenge turns out negative, then I can take penicillin instead of a costlier antibiotic before my dental procedures. Apparently, while 10% of patients claim to be penicillin-allergic, only 1% of the population actually is: the "amoxicillin rash" is not an allergy, it's a side effect. Fingers crossed!

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Mar 17, 2021 09:00PM octogirl wrote:

uugh, Sandy, allergies and scanxiety! In your pocket!

Dx 6/18/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 7/16/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/15/2015 Hormonal Therapy 1/15/2016 Arimidex (anastrozole) Hormonal Therapy 4/8/2016 Femara (letrozole)
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Mar 17, 2021 10:29PM - edited Mar 17, 2021 10:33PM by ChiSandy

Scan results in: all stable. Same lung nodule <5mm (likely a scar from December 2019's cough-fest), same diverticuli w/o inflammation, same uterine fibroid, same 3.3cm scar at the mammary seroma site, same "degenerative changes" in my spine (guess that makes me a degenerate?). Whew! Now on to the penicillin challenge.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Mar 17, 2021 11:00PM Betrayal wrote:

Good news and let's hope tomorrow's challenge will rule out penicillin allergy.

Surgery 2/1/2016 Lumpectomy: Left Surgery 2/1/2016 Lymph node removal: Sentinel Surgery 3/4/2016 Lumpectomy: Left Radiation Therapy 3/31/2016 Whole-breast: Breast Hormonal Therapy 6/25/2016 Arimidex (anastrozole) Hormonal Therapy 5/19/2017 Femara (letrozole) Hormonal Therapy 6/16/2020 Aromasin (exemestane)
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Mar 18, 2021 06:53PM ChiSandy wrote:

It did, Betrayal! (Although that 500mg oral dose of amox. on a virtually-empty stomach, followed by a lunch of fried egg atop avocado toast and more black coffee is doing a number on my appetite right now. abx+fat+acid=yuck).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Mar 18, 2021 07:54PM M0mmyof2 wrote:

Hubby’s first shot is done! I become eligible in the morning!

If you value your freedom, thank a servicemember both serving and retired!
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Apr 1, 2021 12:08PM M0mmyof2 wrote:

Everything was perfectly fine his morning and then my day went straight to crud. I got word that I lost a dear friend last night

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Apr 4, 2021 04:31AM ChiSandy wrote:

Oh, M0mmy, I am so sorry! May their memory be for a blessing.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Apr 4, 2021 07:46AM M0mmyof2 wrote:

Its been a hard couple of days since my friend passed but it is slowly getting better. She is an angel now.

If you value your freedom, thank a servicemember both serving and retired!
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Apr 7, 2021 08:35PM octogirl wrote:

I am so sorry M0mmy. Glad it isn't quite as hard.

Dx 6/18/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 7/16/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/15/2015 Hormonal Therapy 1/15/2016 Arimidex (anastrozole) Hormonal Therapy 4/8/2016 Femara (letrozole)
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Apr 10, 2021 12:54AM Lucy55 wrote:

Mommy ..thinking of you ..

Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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Apr 24, 2021 04:06PM M0mmyof2 wrote:

Thanks its hard to believe its been almost a month since my friend passed.

On a more positive note, I am now fully vaccinated! Got my 2nd shot a week ago!


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Apr 27, 2021 10:28PM octogirl wrote:

yay for shot two! I am also fully vaccinated; happy about that...

Dx 6/18/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 7/16/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/15/2015 Hormonal Therapy 1/15/2016 Arimidex (anastrozole) Hormonal Therapy 4/8/2016 Femara (letrozole)
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Apr 29, 2021 07:44AM M0mmyof2 wrote:

May 19th I get the oil cyst removed.

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May 1, 2021 03:48PM - edited May 1, 2021 07:48PM by LW422

Tuesday I have an ultrasound of Thelma, my homicidal boob. I'm nervous because it's a check of how I'm responding to chemo after 10 weeks of Taxol, and if it's not a good result it will sink me. Ugh.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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May 1, 2021 06:19PM M0mmyof2 wrote:

In your pocket, LW

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May 1, 2021 08:24PM MCBaker wrote:

We will be with you. Taxol works wonders (although it makes us feel like a dog who ate a slab of Hershey chocolate)

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 11/15/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 11/16/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 12/18/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Surgery 6/27/2019 Reconstruction (right): Fat grafting, Saline implant
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May 2, 2021 06:45AM M0mmyof2 wrote:

If it ever came back, they could never give me Taxol again. I had a real bad reaction to it.

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May 2, 2021 04:31PM Lucy55 wrote:

LW...in your pocket ...hoping all goes well for you !!! Let us know how you go ...


Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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May 4, 2021 06:37AM M0mmyof2 wrote:

Went to bed with a heavy heart and woke up with it. Last night I got a call from my mom that one of my cousins woh I had been close with had died.

If you value your freedom, thank a servicemember both serving and retired!

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