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What do you wish you had known when you (or your loved one) were first diagnosed?
Share words of wisdom, unique tips, self-care, and coping advice for our newbies here! It will make a difference for all those joining us this year. Thank you!
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How well do you feel your family understands your diagnosis?
Please take our poll and share your experiences below on navigating a breast cancer diagnosis at any stage with your family!
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Share your stories of online support friends here: From the forums or zoom meetups
Hi All, We'd love to hear about the supportive relationships that have formed at Breastcancer.org. Thank you All for sharing! 💜 Your Mods
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MBC Caregiving Partners Virtual Zoom Meetups every other Tues at 4pm, ET
Hi All, Reminding you that we offer a free caregivers meetup for partners of someone with MBC every other Tuesday. If you are a caregiver, or have a partner who you think could benefit, please share. We meet every other Tuesday at 4pm, ET. People need to register here to participate:…
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How to fill out your Profile to let others know more about you!
Our community is built on connections and shared experiences. So, we’re excited to announce we’ve made it easier for you to learn much more about each other with our NEW Member Profile! Filling out your profile benefits you and others by allowing registered members to compare your information with theirs and create a…
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In Treatment? Join us on Zoom, Tues & Thurs weekly!
Hi Everyone, We have created a weekly virtual support group for all who are planning or going through active treatment. If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…
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Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
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Starting Chemo April 2024 Support Thread
Gather here to support one another, ask questions, and share experiences. We're all here for you. What is the type of chemo and regimen you'll be doing? When do you start? Share your thoughts and get support!
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mets to lung
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all barb
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Any stage IV surviving 5+ years ?
When you look up stats for stage IV they’re dismal, yet I continue to see lots of longer term survivors on this site. Some were given a year or two. Would love to hear how many are there and how life’s is for you. I’m coming up on three years and just failed with letrozole. MO says plenty options sti
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Given my dx, should I adopt a dog?
Okay, bear with. Last year was the sh*ttiest year of my life, bar none. My DH was dx with prostate cancer (now in active tx), I had my own crappy dx (in active tx), and probably the worst hurt was that we had to say goodbye to our own fur girl, Preshy, who had been in our family for 13 years. She was my soul. Got me…
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March/April 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Can we have a forum for "older" people with bc?
I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66). I notice that most of the posts seem to be from people younger than I am (often by quite a bit...). I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc. I see that there is a forum for young…
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Comfort dogs
Okay, I am just throwing this out there: does anyone else feel closer to their dog than to humans through this roller coaster journey? I have a wonderful life and great support, but my little blind shelter dog Lewie (a white poodle mix) has been constantly by my side- whether I am sleeping on the couch after chemo or in…
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CT and Lung Nodules
I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…
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My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
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4 Letter Word Game
Hi Ladies, It is time to add a four letter word game. I received an email of a forwarded scrabble game. The game started with a four letter word and kept changing by one letter. I like playing here much better. Get your 4 letter words ready. First word: Word
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Fun Game -- 5 Letters Become a Sentence
Leave five letters and the next person will make a sentence out of it. Like ILRWS becomes I love running with scissors. Or Ill Llamas rarely welcome snacks. Next up is WCLFE
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how about drinking?
Where did our thread go? Is anyone out there from our drinking group? Did I miss something - like we became too offesive or ...well, drunk? I would love to hear from you gals! Janie
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So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
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Panic attack, sadness and breathing exercise
Hi everybody I'm usually happy and try to have my normal life, but sometimes I just feel like I'm going deeper snd deeper in to sadness, or having a strong panic attack . Especially now that I fpund out my cancer is back in my liver, after only an year of Ribociclib. I tough it was supposed to last 5 or 6 year, but not for…
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Illinois ladies facing bc
I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you? I thought we might be surprised to find somebody right in our own back yard that could use some…
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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
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Has anyone else used black seed oil?
I am just curious if anyone else has been using black seed oil for breast cancer (nigella sativa) and the results they have experienced. I have been taking it for a few months and I am (so far anyways) stable. I am wondering if I stumbled across a hidden gem or am I the last to know about this stuff?!
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Did your doctor talk about your Ki67 %
Hello - I have IDC Stage 2 (++-), and I am one week out from my bilateral mastectomy. My lymph Node pathology reports were posted online, and from what I can read, there is no cancer in my lymph nodes. However, my Ki67% - was reported at 43%. so I have a Ki67: 43%. Is that bad? Did your doctor put much stock into your Ki67…
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Extreme fatigue on Arimidex
Ive been in Arimidex for a year and 3 months. I started out only taking it every other day as I was afraid if side effects. Until 2 months ago when my MO said he "hoped" it would work. Sigh. So I am now taking 5 instead of 4 days a week. Probably no difference in effect. Since on Arimidex, I have had joint pain,…
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Breast lump, firm. Hope!
Last 2 nights my hands found a lump in my left breast. It's large, smooth, but firm and doesn't seem to move. It's doesn't hurt much. Like all the others, I panicked. I am 4 months postpartum, with a history of cystic breast bilateral. I recall to have a 1.5cm cysts on the same side I felt the lump. But I didn't think much…
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Kisqali/ribociclib, Faslodex/fluvestrant & Xgeva combo - Anyone?
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
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Upcoming Oncoplasty Lumpectomy
I’m having the surgery with reduction & lift next week. Hoping to go home same day. Can anyone share what their recovery was like? I’m off work on an (unpaid) medical leave, but live on a farm and single parent teens so I’m usually kinda busy. Thx
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10 years after BC diagnosis, I have mets in lung which are BC
Hi All My oncologist called this morning to confirm that the node in my lung is indeed breast cancer, it took them a few days to figure out but they knew it wasn't lung cancer. I'm so shocked. I had stage I, HER2+ breast cancer diagnosed 10 years ago and had a lumpectomy, lymph node removal (which was clear for cancer),…
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Bilateral mastectomy
I had a nipple sparing bilateral mastectomy on 4/1/24. Invasive carcinoma on the left and two spots of DCIS on the right. Lymph nodes were clear. I’m waiting for the Onco results. I am very anxious, and hoping that I won’t need chemo. Recovery has been tough, but I’m only 6 days post op. Pain management has been a…
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2 Word Phrase
This game has the poster making a new 2 word phrase starting with the second word of the last post. Only Two Words! Example: Post : Hand out Next poster: Out cast Next poster: Cast Iron Next poster: Iron Age Now let's begin the game~ Age Old
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Radiation Questions
I’m a seasoned 71-year-old 2X survivor who is going for #3 & #4!!! Each cancer has been new. Except for the 1st, they were all small. I was notified today that 2 recent biopsies of the same breast indicate cancer. I have questions while waiting for the referral to a surgeon. Has anyone had the full course of daily…