Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, <em><a href="https://community.breastcancer.org/en/categories/stage-iv-metastatic-breast-cancer-only">Stage IV/Metastatic Breast Cancer ONLY</a></em>, where topics are open only to those members.
Hi all. I'm new here. I was in verzenio for 2 years. Worked great for me TM were normal range and pet scans were excellent. Then one spot on my pelvic bo e was being stubborn. Found out I had ESR1 mutation and started Orserdu. Has anyone tried Orserdu? Ever since I started it almost 4 months ths ago, my TM are climbing but…
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
Has anyone started to use RSO? I have mets again for the second time after a 2016 breast cancer dx. I had the lump taken out and the cancer was estr/proges + /her2-neg. I was taking anastrozal first for two years, 2019 it was the first met and then took ibrance/fasoldex, stage 4. The studies online with that mix states…
If you have taken Ibrance or Kisqali or another CDK 4/6 inhibitor, I would appreciate hearing about your experience. I recently had to stop Verzenio because of unmanageable side effects. Oncologist wants me to consider an alternative in that drug class.
Hi, My Mom started Enhertu today. She is also ER positive. Does anyone take Faslodex along with Enhertu? Thanks, Stacy
Hi everyone-Some of you may know me and remember that my younger sister also has breast cancer. Diagnosed at age 50 (age 60 now) w/ILC stage 3B, and once to MO she ordered a bone scan which led to a biopsy and was then diagnosed with bone mets. AIs worked well, Xgeva, and after a couple of progressions she has been on and…
Background: I'm 52 with MBC. In 2022 diagnosed with estrogen positive cancer w/high BRCA indicator. Had a double mastectomy and chemo. In February 2024 noticed a lump in the scar tissue from the mastectomy. My doctor and I thought it was just necrotic tissue, but she ordered a PET scan. Not only was it not necrotic tissue,…
Hello. I meet regularly with others in online bc.org zoom meetings. I am currently in treatment with MBC. IDC and ILC HR+ HER2-. I am taking Verzenio 100mg twice a day. Letrozole AM only and Xgeva once a month. I live with my sibling and his family. It is a gift in many ways but also a struggle. I found out this morning…
Hello again, It’s been a long time since I’ve posted on these forums. I’m almost 10 years out. I had 3 different tumor markers ordered by my GP in Bulgaria and done at an accredited lab. CA-15 (13.1 U/ml) and CEA (1.72 ng/l) were normal but a new marker I’m not familiar with was elevated. It’s called CYFRA 21-1 and seems…
Hi everybody I just read several studies that link antibiotics use to worst oucome in breast cancer... But been metastatic with continue cures and low white blood cells I unfortunately have to use them from time to time. Now I got a cold with ear infection and I'm terrified to have to take them, after I'm reading all this!…
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