Share with others who have ER-/PR-/HER2- breast cancer.
I was diagnosed with TNBC in July 2022. I had a lumpectomy in August, then chemo Oct-Dec. Because of the genetics results, I elected to have a bilateral mastectomy with breast reconstruction using my own abdominal fat in January 2023. I have recovered quite well. By April 2023, my med onc discharged me to family practice,…
Anyone else in the UK had TNBC and gone on to have HRT or oestrogen creams ? There seems to be a lack of knowledge with GP's. Any info would be grateful. Just out of interest I'm also had surgery for hyperparathyroidism.
Hi Since the standard of care for early TNBC has changed and now includes Keytruda (Pembrolizumab) with chemotherapy in the neoadjuvant setting, followed by Keytruda alone for 9 cycles in the adjuvant setting, I was wondering if everyone on the current regimen could share their experiences? How has it affected you? Have…
Hello, I’m curious what the community here has experienced in terms of time from diagnosis to start of treatment. I am concerned about accessing treatment and delays where I live. Dec 9, 2023: found lump Jan 19, 2024: ultrasound and xray, suspicious Feb 1, 2024: core needle biopsy, clip inserted, additional ultrasound and…
Hi. My 30 year old wife's been diagnosed with TNBC. Unfortunately our treatment right from the start has not gone as per the standard algorithm. In fact her 4cm lump was determined to be a fibroadenoma and excised by a general surgeon, and it turned out to be tnbc with LVI, ki-67 65-70%, necrosis present, closest margin…
Hi all, I am hoping someone can help. I was diagnosed with invasive, aggressive, triple negative breast cancer in May 2023 with some micrometastasis in 3 out of 4 lymph nodes. Have had surgery, chemo and radiation therapy. Apparently 5% of the cancer was oestrogen positive and my oncologist if leaving the option to take…
Wow the last month has been a whirlwind. Dx on 12/19 with TN Stage I with no lymph node involvement. Mastectomy with reconstruction is scheduled for 2/27 and discussions of post op chemo have started… I feel so overwhelmed with the unknown. please share any tips, insight or wisdom!
Good morning, everyone, My sister was just diagnosed with TNBC, in fact she hasn't been staged yet but the Onc feels she's probably at IIIB given the size and at least one Node involvement. She will be getting her scans this coming week then starting Chemo. She lives in Georgia and I'm in PA so I can be at her dr appts to…
I’m finishing up NAC chemo 4 rounds of a/c, 6 rounds of Tchp, to be followed by a double mastectomy and rads. Did any of you have chemo after your surgery/rads? I know it depends on the results of the surgery pathology report but just trying to get a handle on what is to come. Could you share your experiences?
I've been searching everywhere to find a peer to peer group, to maybe find someone who has been diagnosed with my same form of breast cancer as I figure out what treatment path to take. I was diagnosed with TNBC on September 18th. I have since been on a whirlwind ride of getting doctors to respond etc. Here are my details:…
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