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Attitude Debate
I have been a regular poster on breastcancer.org for over 2 years and this is my first time to start a topic. It seems that on a lot of threads lately, the original question gets sidelined by the discussion of attitude. So I thought maybe if we had a place to discuss that specific issue, it would alieve that problem. Plus…
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No pCR and still alive and living happy lives
Dear all, Today I have started My first session of Palictaxel out of 12. I have had 4 ACs and the tumor has shrunk from 19 m to 8 mm. I was expecting a full response because nobody felt the tumor anymore, but unfortunately that was not so. Yet I am happy with the 8 m left. My oncologist does not want to put me on carbo…
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High B12 levels
I had 15 chemo infusions(last one 5 weeks ago), I am preparing for double mastectomy with reconstruction and had blood analysis 10 days prior to surgery.(next week) PET Scan was clean and blood results came two days ago mostly good but I had a very high B12 level of 1335. I got extremely scared reading online what high B12…
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Mets during active treatment? Possible?
My wife's currently undergoing treatment for stage IIIb TNBC. She had a 4cm mass that was misdiagnosed as a fibroadenoma and removed via lumpectomy. Subsequent PET CT showed an enlarged axillary LN 3.6cm with no evidence of distant mets. She's currently completed 4 AC and 8 cycles of weekly pacli and carbo (with Keytruda…
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Anyone have pCR with a lot of nodes?
I've got a lot of lymph nodes involved. Axillary and potentially in my L3 axillary as well. Anyone have pCR with a lot of nodes? I am TN as well. Or any long survival stories?
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"Atypical cells"
Hey My mom has been diagnosed with TNBC this month. She has performed surgery today and is expected to undergo chemo in a month. She went through MRI and PET that showed no involvement other than the primary tumor site. Today the surgery occurred, and after finishing we were notified by the surgeon that they have not seen…
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Shrinking response in chemo
Hello all, After 5/12 taxol/carbo/keytruda rounds, tumor has yet to start shrinking. When did you guys have it start shrinking? Thank you
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Xeloda for "Maintenance" purposes (not Stage IV)
I was given Xeloda last year for "maintenance" purposes, and to say that I had a difficult time on it is an understatement. After some adjustments to the dosage, I was taken off of it after only three cycles (we tried lower doses.) I was diagnosed with a recurrence in July. It was physically present a month after having…
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Olaparib (Lynparza) as adjuvant treatment
Hi I was diagnosed with Stage2b TNBC earlier this year in February. I completed my chemo, surgery (no PCR) and radiation. I am now recommended to take Olaparib for a year to prevent recurrence. Looking for experience from people here on this treatment. Thank you
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To the newly diagnosed: 6 Years With TNBC, Still Going Strong
Good morning, everyone. I’m stopping in after a long hiatus to offer some help to those newly diagnosed with TNBC. Almost 6 years ago I was diagnosed with stage 3C triple negative breast cancer. I was in total shock, grief, and had to stop working due to anxiety and depression. I have had two recurrences since then. I am…
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Partial response to chemotherapy
Hi all, I had my first ECO few days ago half through the chemo(almost done first cycle, 10 infusions out of 12). In spite of a rather aggressive approach: 12weeks of Paclitaxel & Carbo, with Keytruda every 3 weeks (will be followed of Adriamicin & ...I keep on forgetting the second and Keytruda) I have only 60% shrinkage…
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Podcast: Hope After a Triple-Negative Diagnosis
Thought you all might be interested in this podcast from Breastcancer.org: Hope After a Triple-Negative Breast Cancer Diagnosis Hope you find this helpful! -- The Mods
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Tumor oscillating in size during chemo
Hi all! I have been diagnosed in early August with TNBC 30mm stage 2, grade 3, no lymph node involvement. I am negative for all 132 gene mutations, PD-L1 positive and TILS positive. I also had an 8mm spiculated nodule on one of my lungs that didn`t show activity on PET SCAN and was dismissed as scar..that still worries me.…
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Androgen Receptor Positive TNBC
Has anyone had their tumor tested for AR? I had a very poor response to neoadjuvent chemotherapy, which was a surprise because I had a complete clinical response, and am pretty young- which are both usually indicative of a good response to chemotherapy. I have been making rounds on second opinions since getting my surgical…
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Nivolumab - anyone tried this immunotherapy?
I was on keytruda during my chemo (AC-T) but had to stop after 2 doses due to a prolonged fever and elevated heart rate, which apparently is a rare side effect. Now I'm done with chemo and radiation, my Onc wants me to try another PD-1 immunotherapy drug called Nivolumab. I see it's not yet FDA approved for breast cancer,…
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Carboplatin-Taxol + Keytruda - Thread to Share Your Experience
Hi Everyone, Next week I will start a 24-week regimen of weekly Carboplatin/Taxol with Keytruda once every 3 weeks for 12 weeks. I understand this is the newest protocol for TNBC, so I thought it might be good to start a thread. I look forward to the chance for all of us to learn from one another! Aleta
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TNC metastasis to jaw?
Hi all. My dentist today found a strange spot in my left jaw. I'm going to have an oral surgeon look at it Monday. Anyone have triple negative BC metastasis to jaw?
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Immunotherapy Med Works Similarly in Black/White Women W/ TNBC
Experimental Immunotherapy Medicine Works Similarly in Black and White Women With Triple-Negative Breast Cancer Aug 4, 2022 When more Black women diagnosed with early-stage, triple-negative breast cancer joined a study on Imfinzi, the results showed the immunotherapy was as effective in Black women as it was in women of…
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Enhertu Improves Survival in People With HER2-Low MBC
A New Standard of Care? Enhertu Improves Survival in People With Metastatic HER2-Low Breast Cancer June 6, 2022 Compared with doctors' choice of chemotherapy, Enhertu (chemical name: fam-trastuzumab-deruxtecan-nxki) improved both progression-free survival and overall survival in people diagnosed with previously treated…
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Keytruda q3 wks and now elevated liver enzymes
I went through all the chemo for tnbc and finished in Nov 2021. Got the PCR and had a lumpectomy in Dec. Radiation for 20 sessions just to be safe. I started with Keytruda when I was on taxol/carbo and have continued Keytruda every three after surgery. My enzymes were slightly elevated last time but I still got the…
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Lynparza Approved To Treat High-Risk, Early-Stage, HER2-, BRCA+
Lynparza Approved To Treat High-Risk, Early-Stage, HER2-Negative Breast Cancer With BRCA Mutation Mar 13, 2022 The FDA approved Lynparza to treat early-stage, HER2-negative breast cancer with a BRCA1 or BRCA2 mutation and a high risk of recurrence, which also has been previously treated with chemotherapy — either before or…
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Sentinel Node Biopsy
Hello all, My wife was recently diagnosed with TNBC and upon scans it showed that her tumor was roughly 5cm. She did a PET, Bone and MRI. The drs said that the scans showed no cancer in the lymph nodes. Everywhere I am reading I see that people get a sentinel node biopsy as well to determine whether the nodes were…
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Hi, new and just diagnosed with TN
I’m in shock mainly because I’m 56 and have been on estrogen and progesterone since 2016 so when they first saw something I was sure it was the hormones! It seems to strike the younger more often. Anyone else this age when diagnosed? We are still waiting for the PDL-1 results. Mt KI-67 is 54% and my mass is 2.4 cm and…
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Looking for members experience
Hi! I'm new on this forum and I'm curruntly interested in Triple Negative Breast Cancer topic, since I'm studying it for an exam. I'm looking for some informations or personal experiences about it, if someone is willing to share. Thank you
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Surgery before chemo
Hi lovely ladies, Just wondering if any of you with TNBC had surgery prior to chemo? I know it’s protocol now to have surgery before chemo but I have also seen some stories were surgery was performedbefore and the ladies are doing fine. It seems a bit counter-intuitive to me. What do you guys think?
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Hey calling all Node positve survivors
Hi Everyone, Well I finished the last of my clinical trial on Nov 10 and today is exactly one year ago that I recieved that "call"...."I'm sorry but its cancer". I'm feeling very emotional about the last year and what is to come. I'm scared. I am hoping to get some positive feedback from some of you long term…
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Im devastated, terrified and angry! Newly diagnosed.
I can't believe I have to write this. I am 36 years old and was diagnosed with triple negative stage IIB invasive ductal carcinoma, just last week. To say I am terrified is an understatement. My treatment team says news research has showed for this kind of cancer, to do chemotherapy and immune therapy, first is standard.…
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Keytruda (pembrolizumab) Experience
****Breastcancer.org Moderators have approved this posting. Please note that Breastcancer.org is NOT responsible for, and is not endorsing any studies.**** My name of MJ DeCoteau and I am the executive director of Rethink Breast Cancer (www.rethinkbreastcancer.com) – a Canadian patient group dedicated to building community…
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Anyone know about the red devil?
I’m about to start chemo for triple negative breast cancer and that’s one of the drug
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Share Your TNBC Story
Hello, everyone! Share your triple-negative breast cancer story here to give hope to others recently diagnosed.Thank you for contributing! --The Mods