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how about drinking?

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Comments

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2019

    Mornin ladies,

    Mornin ladies,

    Lori I'm glad ur going to take care of ur cold. It's really different for any of us. It used to be Oh it's only a cold, but our bodies don't take it like it used to. I never in my life had pneumonia and I had the shot, but I still got it and I like that ur going. Tell us right away what happens, cuz I'm going to check back for u.

    JC ur Dr. seemed very happy with the results always a great sign. Enjoy ur wine, drinks or whatever u want that's what to do.

    Joey's finally out of school, it's just so nice for me, but he is always running around but for some reason it just feels better. My niece came over yesterday and after my shower we talked. Kim I passed along again what u said, now where my brother and her were living has a floor that's on locked down for certain people so they said they can take her. Which I personally think it's way to much. When they moved in to a 2 bedroom place, it was 150,000.00 then 4,000.00 a month for a nice size palce. Now it's 6,000.00 a month for 1 small room with a toilet and sink a dresser,, a small closet and single bed.I know now they have to take care of her, pills, food <they did get 2 meals before> now it;''s 3...she can roam around all doors are locked. Right now she's physically fine so she can dress herself and stuff. All personal items are supplied by the family. My dad was in a great place being completely cared for they furnished everything plus holiday for families with a buffet, bigger room and it was a locked place for less than 1/2 that price.And of course there were people there that didn't think they were Cleopatra but thought they were Elizabeth Taylor,so there were problems too. My SIL is really mean now, but like I said she was always mean just more quiet about it. IDK I worry about the kids actually, they don't have a clue how to handle all this, cuz my brother handled her and really didn't know how bad it was. Oh well.

    LUBS U ALL

  • mistyeyes
    mistyeyes Member Posts: 581
    edited June 2019

    Goldie- I hope that you are ok. I have been thinking about you all day.

    Cami - I love your cat pictures- they are a perfect picture for the day. This mornings was great for this wacky Wednesday!


  • goldie0827
    goldie0827 Member Posts: 6,835
    edited June 2019

    Well, here's the down low....UTI, Upper resp. inf., elevated liver enzymes, have to do a stool sample then drive it back to the hospital (checking for C Diff), hour and half there then the same back! I was quite surprised they didn't put me on IV fluids, esp. after the uti diag.

    Cami, I hope your SIL settles in well with the new place and it doesn't cause more problems. Glad your boy is home!

  • JCSLibrarian
    JCSLibrarian Member Posts: 548
    edited June 2019

    Goldie-That is definitely more than a cold! Take care and get well. Keep us posted on the final diagnosis.

  • illimae
    illimae Member Posts: 5,724
    edited June 2019

    Damn Goldie, you must be exhausted, what a long day. I hope you feel better soon.

    In the mood for a glass or two of red tonight 🙂

    DH and I leave for our New England trip a week from today, I’ll be sharing pics soon.

  • chisandy
    chisandy Member Posts: 11,408
    edited June 2019

    Ugh, Lori—feel better (the abx should go a long way to achieving that and you might want to ask about probiotics (even real Greek yogurt—Fage, not the phony Oikos or Chobani stuff full of gums & starches). May I also suggest a digital thermometer—doesn't have to be the fancy in-ear or cross-forehead scanner type—a ten-buck CVS or Walgreens work just fine. Find out what battery it uses and buy a couple of spares.

    Speaking of which, Bob complained that my spare Subaru fob wasn't working. I sussed out that it must be the battery. Read the manual online, found out how to open it, and ascertained the proper battery—which I ordered on Amazon Prime, Arrived today, et voila: it worked!

    Did okay at Gebhard--until the bun from the plain bratwurst lodged at the base of my throat. Only some vanilla Culver's custard and a handful of TUMS saved me. Pepcid ditn't make a dent. Went to the bariatric clinic consult Mon. and was given the choice of 3 diets: keto (wildly impractical for a foodie); "partial meal replacement" (like Jenny Craig or NutriSystem--no go for someone whose lifestyle revolces around travel, cooking & fine dining); or low-carb (a less-strict form of Atkins/S. Beach, which worked for me 15 yrs ago--lost >40 lbs). Chose the latter, as it's easier for traveling and eating at most restaurants. But the food choices aren't good for GERD, so the NP agreed with Bob that I need to go back on Dexilant (for at least 4 days, then every other day). Combine that with the Invisalign wearing requirment (only 2 hrs/day to eat, brush & floss), and the pounds should come off at a decent rate.

    DOTD: coffee & seltzer: the story of my life for the time being. Will indulge vicariously.

  • nativemainer
    nativemainer Member Posts: 7,911
    edited June 2019

    Good Morning, Loungettes!Happy Thirsty Thursday! Apologies for being MIA yesterday, I got caught up fixing a computer problem and then had to leave for work.Wasn't it one gorgeous day yesterday! So nice to be able to have the weekly BBQ at work outdoors in the courtyard. Then met with the ladies of Wednesday, Women and Wine for a lively evening of chatter. We met at a little bar at the casino. I haven't been in the casino for years, not since just after it opened. Now they have table games as wells as slot machines. I was early so I killed some time by playing $20 at the roulette wheel.Cashed out $39!FYI, I won't be on tomorrow ayem, I've got to be in to work early to catch up with a couple of people on educational stuff. Sadie has an appointment on Saturday to make sure all her shots are caught up and so I can get a copy of her records, then she'll be able to go to work with me from time to time.That should be a lot of fun for both of us!

    Goldie--hugs!

    Cammy Cat--I live the show up but not participate line!OH my goodness, I am so glad your pup didn't get hurt with that escapade!Tell your doggo that Sadie uses a seat belt--a harness and a tether that clips into a seat belt buckle--to keep her safe if I have to stop fast and to keep her from bolting if something ever happens. Give yourself some time and credit, learning anything new takes time! Especially the computer stuff. It can be so complicated.

    Librarian--HOORAY for the great PET scan results!I'm with you about the humidity. That just drains me right out.

    Goldie--One of the risks of being in bed so much is pneumonia. Every time you think about it takes 3 or 4 really deep breaths, and try to keep up with lots and lots of fluids. That will help a lot to prevent pneumonia. I saw on Fb that you've been to be seen, that's good.When you are feeling better you might want to mention to your Onc that the receptionist is practicing medicine without a license.She should have passed on to the Onc that you are sick, the Onc probably would have seen you or advised you to be seen.Can't be messing with infections while on treatment for cancer.

    Cammy--I think a locked unit would be a good place for you SIL. She can wander without worry that she'll get outside and getting lost or hurting someone. Staff there will be trained to care for people who are confused or have behavioral issues. These places do cost a lot, though. It's sad how often a family finds out how impaired a family member is only when the person caring for them is no longer able to do that.

    Illi--can't wait to hear about your trip when you get back!

    Chi--isn't it amazing what a new battery can do for some things!Getting the bun caught like that must not have felt good at all!

    Penicillin Cocktail Recipe

    Penicillin Cocktail Recipe

    Ingredients

    • 2 ounces blended Scotch whisky (Famous Grouse works well)
    • 3/4 ounce fresh lemon juice
    • 3/4 ounce honey syrup (see note)
    • 3 slices fresh ginger
    • 1/4 ounce Islay single malt Scotch (such as Laphroaig)

    Directions

    1. 1.
      Using a wooden muddler or mixing spoon, muddle the fresh ginger in the bottom of a cocktail shaker until it is well mashed. Add the blended Scotch, lemon juice, and honey syrup, and fill shaker with ice. Shake untill well chilled, about 20 seconds.
    2. 2.
      Strain into an ice-filled rocks glass (you may wish to double-strain through a fine tea strainer to remove the small flecks of ginger), and pour the Islay Scotch over the back of a bar spoon so that it floats atop the drink.

    From <https://www.seriouseats.com/recipes/2009/11/time-for-a-drink-penicillin-cocktail.html>

  • goldie0827
    goldie0827 Member Posts: 6,835
    edited June 2019

    You guys, I'm not getting any better. Am I being too anxious. I just sleep all the time, can't eat. DH wants to take me back to the hospital, but they couldn't help before, so what would they do differetly. I'm getting to the point where I practically pass out if I get up to get anything. I'm trying to eat, just no appetite. And Cami, you don't have to worry about me doing too much....I am doing NOTHING.

    Sandy, I did order a digital one, was supposed to be here yesterday, shipped from Phoenix, but it decided to take a tour! Grocery store is an hour away, when we go, if I still feel bad, I'll get some of that yogurt, altho not a fan!

    NM I like to hear you say the "ladies of Wednesday", but then you throw in Women and Wine! I will mention to my onc about the receptionist, but I don't want her to get in trouble either. SOOOOOO, can one have clear lungs but still have uupper resp. inf.? As that is what I was told by 2 different doctors.

    Ok, got the new thermometer, temp shows 103!

  • karen1956
    karen1956 Member Posts: 4,609
    edited June 2019

    Lori - Call you oncologist or whoever is on call. ( My oncologist is very special and I had his cell phone number). I'm no medical specialist but if you are NOT getting better, I think you need to be seen. ER might be the best place. Hugs to you my friend.

  • illimae
    illimae Member Posts: 5,724
    edited June 2019

    Goldie, I’m with your husband on this one. Feeling so poorly and not eating is a big concern. Is it possible you picked up something unusual while camping recently?

    Sending you my super good healing vibes 🙂

  • janky
    janky Member Posts: 478
    edited June 2019

    goldie - please check into this via ER or on call doctor! If your neutrophils are low because of meds or anything, it is always harder to fight an infection. I had a respiratory infection in January and I was soooo down and out - mega dose of antibiotics, yet still took 6 weeks to get better :( After I started the antibiotics it still took at least 10 days before I was feeling human and up to doing anything - please take care of yourself asap!!!! Healing hugs. Janice

  • chisandy
    chisandy Member Posts: 11,408
    edited June 2019

    Lori, you need to go to the ER STAT! Let them contact your onco. Bet you're dehydrated too.

    Tues. I had my annual bilateral screening mammo. Last year I got my results right away because it was bilateral diagnostic: the nurse took me into the corridor and told me so as not to upset the women in the waiting room awaiting further imaging. A day later, the report came back "L--BIRADS1, negative for tumor; R--BIRADS2, stable small seroma, no sign of cancer in surgical breast." This time, it was "squoosh & run:" because I'm back to routine screening, the films (3D now) aren't read right away. But yesterday I awoke to find an e-mail from my patient portal: "Your care team has sent you a letter." A letter, not a message. I logged in and my eyes zeroed in on "Recommended follow-up: bilateral screening mammogram June 10, 2020." Then I saw the film had been read by my favorite radiologist (who did my biopsy & seed placement). No "report" in the "test results" tab, no BIRADS score, just "...showed no signs of breast cancer." So Thelma & Louise are good for another year.

    Yesterday I went to my orthodontist for trays 5, 6, & 7. He's delighted with my progress, and there is a chance that at my August visit I will get my retainer(s): a thin permanent wire behind the front incisors and a clear Vivera retainer (until the latter is ready, just keep wearing tray 7). He said it's possible we might need to do some "refinements" if the spaces between my canines and 1st bicuspids aren't closed to his satisfaction. Meanwhile, I am marveling that for the first time since 1983 (when I barfed up my retainer after a drunken debauch in Nova Scotia), both my front top incisors are vertical!

    But I had a little dental crisis this evening (no, not on the teeth being straightened). As I bit into a leftover piece of last night's low-carb pizza and started chewing the cheese, I felt something hard in the curd I was chewing. Thought I'd snapped off one of the Invisalign "attachment" buttons, but it turned out to be a chunk ("cusp") of lower R rear molar. I think it either had never been drilled or (it sort of looks like it) an old amalgam filling holding it together finally failing after weeks of aggressive and frequent flossing. Doesn't hurt. Called and e-mailed my dentist & endodontist, asking basically "which of you wants first dibs?" Was able to talk to the endo, who said that so long as it doesn't hurt, it's not urgent and may need only a crown w/o root canal. Waiting to see what my dentist says when he calls back. Meanwhile, I put the pizza back in the fridge and had Greek yogurt with imitation "honey" (0 net carb, made with maltitol) and vanilla.

    DOTD: Pellegrino Essenza cherry-pomegranate seltzer, in a flute.

  • goldie0827
    goldie0827 Member Posts: 6,835
    edited June 2019

    Karen, I've been to ER. I think things are looking up. 2 days on Anti B, need to give it time to work. I'm getting some eggs from my neighbor, I think that will help alot too. Will make poached eggs. Everything in the house currently is crap/processed food and tastes like chit. I don't do processed and I need to keep it light right now, since not having ate much of anything.

    Illimae, I don't know if I picked something up camping, not sure how that would have happened.

    Janky, I think things are starting to look up. Need to keep the temp down and get some food in me!

    Sandy, good to hear Thelma and Louis are doing well and I hope all goes well with the teeth.

    Anxious to get my eggs and eat! Temp is down to 98 this morning! I'm tired and want to head back to bed, but I think getting all covered up is causing the temp to rise, is that possible? Thank you everyone for your concerns and prayers......until next time!!!

  • goldie0827
    goldie0827 Member Posts: 6,835
    edited June 2019

    Waiting on my eggs, so I thought I would have some apple sauce that DH picked up for me, store brand and I think he got the biggest jar they sell! Get some in the bowl, put the container in the fridge and notice it says "sweetened". So I look....high fructose corn syrup, down the drain it went.

  • happyperidot
    happyperidot Member Posts: 19
    edited June 2019

    Hi. New here and I like my cocktails. Mind if I join you at the bar?

    I'm recently diagnosed and trying to figure out how to modify my lifestyle. My diet and exercise are already really good, but I probably need to cut back on my drinking; which I will. I've been filling out a lot of new patient paperwork these days and when I get to the question about alcohol consumption I write 7 drinks per week. They must assume that's 1 per day, because they don't tell me to change anything. But it's not. It's more like 2, 3, 1 and 1; which definitely needs to change. I know I know.

    I don't feel like a "real" cancer patient yet. That's part of the problem. I feel great, healthy and normal. I guess surgery (BMX and bi-lat SNB on July 8) will change all that. In the meantime I'm planning to eliminate 1 drink per week. It'll be tricky next week 'cuz I'm turning 55. What a mixed blessing to have all these great friends who want to celebrate.

    Cheers!

    PS: goldie, I worried about you. glad you're feeling better.

  • chisandy
    chisandy Member Posts: 11,408
    edited June 2019

    Lori, you didn't drink natural (stream, river, lake or pond) water on your camping trip--or use it to wash yourself or your food--did you? If you did, there are all sorts of nasty pathogens (especially e.coli and giardia) that boiling and DIY filtration don't necessarily kill. Being on oral chemo you are immunocompromised and thus more vulnerable even if the rest of your family was fine. Drink only sealed bottles of purified water, wash with wet wipes/"adult washcloths."

    Kelley, I never felt like a "real cancer patient." In fact I occasionally feel sort of like a fraud or impostor come Pinktober, or when I applied for an MMJ card--the consulting MD--whom my PCP's PA calls "the Pot Lady"--who certified me said that having had any kind of cancer, even basal or squamous cell carcinoma, no matter how long "NED," counts as far as the statute goes. I didn't have chemo--my OncotypeDX was considered "low-risk" even before the TAILORx study expanded the upper limits of "low risk" (for postmenopausal women) to 25. I had only a lumpectomy, and but for the scars (if you know where to look), you can't even tell. (Yes, it's the smaller and now "perkier" one, but the other one had always been larger and droopier anyway). I had radiation--but only 16 zaps aimed at only the "tumor bed," not the whole breast.

    And after my latest mammo came back negative Wed. morning, I can honestly call myself a 4-yr. survivor. Don't get me wrong--I am devoutly grateful for having (thus far) avoided the full-Monty "breast cancer experience," but do experience a few twinges of "survivor guilt," as if I'd walked away from an otherwise-fatal plane crash without anything more than scratches and a bruise or two. When people ask me about the pink Medic-Alert emblem on my faux-Pandora bracelet, or the faux-tattoo compression sleeve/gauntlet I wear in the gym or on long flights, and I explain i'm at lymphedema risk due to lymph node biopsy during breast cancer surgery, they give me a pitying look and say "Cancer? I'm so sorry." I invariably have to reassure them about how lucky I am. (Funny how nobody's said that after I need explain a cast on a broken limb, a c-collar for a neck sprain, unfashionable shoes for foot problems, or a ream of Kleenex and an asthma inhaler in my purse during allergy season).

    I get so frustrated over the limited vocabulary society provides us to express sympathy to others for their bereavement, serious illness or devastating injury. (Especially bereavement). "Condolences" sounds so formal and impersonal, "so sorry for your loss" a robotic response cribbed from a sympathy card, or anything religious as possibly insensitive to a mourner or sufferer with a different--or no--spiritual belief system. (Truth to tell, my appending "may his/her memory be for a blessing," the English translation of my faith's traditional response, is more of a way for my sympathy to go beyond the generic cookie-cutter expression, even though for us Jews it is sort of cookie-cutter). But "so sorry?" For what need the comforter feel "sorry?" (S)he's certainly not in any way, shape or form responsible for the death, illness or injury--and if (s)he is actually blameworthy, that's a helluva bigger issue than how to express one's sympathy. ("Empathy?" "I feel your pain" is too narcissistic and insincere; "been there, done that, you'll get through this" too flip, no matter how true).

    --------------------------------------------------------------------------------

    Rant over. OK, here are my "tips & tricks for the breast cancer newbie:"

    First, ask questions--no matter how silly, obvious or hypochondriacal they may seem--until you have done all your homework and fully explored all the options & their upsides & downsides with your surgeon, wait. Don't make up your mind yet about what surgery you will have (except the SNB, at least on the cancer side) for a tiny mid-grade unilateral tumor--unless your breasts are so small and/or the tumor so unfortunately located that a lumpectomy would be disfiguring (and oncoplasty or partial reconstruction not an option) or you are a BRCA-1 or 2 or other risk-mutation carrier (in which case a BMX makes sense).

    If you have no clinical indication requiring a BMX, you should avoid SNB on the non-cancer side (unless imaging & biopsy reveals atypia in the "healthy breast"). Every lymph node removed raises the risk of lymphedema (LE)--even decades later. Used to be (as recently as 2015) that "only" 1-4 nodes removed puts you at only a 2% lifetime risk of LE. Nope--statistics are showing the risk can be as high as 20-40%. By having a bilateral SNB, you have severely limited your options for such routine procedures as blood pressure cuffs, injections, tourniquets, blood draws, not to mention I.V.s. If at all possible, you should have one arm fully and safely available. (Most doctors, even many breast surgeons, are woefully ignorant about LE--the lymphatic system gets only 30-60 minutes out of FOUR YEARS of the med. school curriculum).

    A friend of mine was having BMX for DCIS--the cancer breast had several scattered (6 cm total) Grade 3 ER- lesions, and her breasts were tiny to begin with (she hadn't worn a bra in >30 yrs and had no desire to start dating 16 yrs. after being widowed). In her case the non-cancer breast was discovered to have had upon post-op dissection a small atypical ductal hyperplasia (ADH, a non-cancer that is sometimes a precursor to DCIS); so she had bilateral SNBs. When I asked the nurse what LE precautions she'd need to take post-SNB, she gave me a "deer-in-the-headlights" look and went to get the surgeon--reputedly the top breast cancer surgeon from the Loop on south all the way to downstate. I asked the surgeon, and she replied "What's the big deal about blood pressure cuffs & tourniquets? They treat LE with compression, don't they?" (When I reported that to my own surgeon's NP, she rolled her eyes and said "we've still got a lot of work to do among doctors"). My friend now needs to get her blood draws from her feet, injections in her butt, and BP readings from her thighs--my DH is her cardiologist & PCP, and refuses to put her at unnecessary risk. I also had a large seroma under my SNB incision, which caused it to pop open and need suturing. Why double that risk if you don't have to?

    I made my decision after being mutation-tested, doing lots of reading (more about that in a minute), talking with my breast surgeon and viewing her graphics about relative recurrence & survival risks between LX, UMX and BMX. Yes, LX has an ipsilateral (same breast) recurrence risk of 3% vs. 4% for UMX, and both have twice the contralateral (other breast) recurrence risk (4%) vs. 2% for BMX. (The risk is never zero, so there goes the "peace of mind" argument). And overall survival between the three options? Identical!! What drove it home for me was a series of slides she showed (from the Mayo Clinic), each depicting 100 patients in silhouette, illustrated in gray except for the ones representing the risk, which were red. 4% vs. 2% sounds dramatic--twice the risk, right? But looking at one screen with 96 gray and 4 red silhouettes and another with 98 gray and 2 red silhouettes showed me the real difference between relative and absolute risk---and how trivial that difference can be. I had a 1.3cm lesion at "10:00" in a large (DDD/F) R breast, and a SNB that took 4 nodes (2 sentinel, 2 "stuck" to the sentinels), all negative. So LX was my surgery of choice. Four years later, I know it was the right choice.

    Unless you're at high genetic risk, have a large (>1.5-2cm) tumor in a small breast, or LX or UMX would cause a glaring asymmetry, "less is more" when it comes to surgery. They're the only breasts you have, and even the most exquisite reconstruction will not feel (to you) or function like the real thing. LX is also less likely to require drains or cause other complications such as infection. You can never have true "peace of mind." Yeah, with BMX you can avoid mammograms, which can be anxiety-provoking. But you also can't have mammos as your first-line imagery should anything "pop up" later on. And "pop up" it can--just ask the hundreds of women on BCO who had BMX, chemo and radiation and still had recurrence in the chest wall, supraclavicular (collarbone) nodes, or axillary tail. You may be able to avoid "scanxiety," but you will always have some degree of anxiety.



  • JCSLibrarian
    JCSLibrarian Member Posts: 548
    edited June 2019

    Welcome, Happy Peridot! I am kinda new here as well. It has only been 6 months since the diagnosis of de novo stage VI metastatic breast cancer. My MO told me that alcohol consumption only mattered for survivors. 🤪🤦🏻♀️ I still drink some during the week, but not nearly what I used to. I am happy to say my last PET scan showed only scar tissue in both the breast and lung! I celebrated with Prosecco!! Hopefully your experience with cancer will be short lived and not horrible. This is a fun group. The info from ChiSandy is fabulous

  • chisandy
    chisandy Member Posts: 11,408
    edited June 2019

    Second: Read, read, and read some more! Best source by far is the latest edition of Dr. Susan Love's Breast Book (available as hard-copy or download). It's our "secular Bible." Another excellent one is Dr. Elisa Port's The New Generation Breast Cancer Book. There's even Chicken Soup for the Breast Cancer Patient's Soul. Of course, the knowledge base of articles here on BCO is a great tool--I'm sure the Moderators will have already sent you suggested articles. MyBCTeam.com and WhatNext.com are also good online peer communities (though the latter is an all-cancers site). The American Cancer Society and Komen are redundant of what you'll find here and in those two books.

    Third, get your ducks in a row. You have a month before your surgery date. Use every day of it. Locate a breast cancer support group in your area (if you're lucky enough to have one). Keep a calendar--one that's cross-platform for all your electronic devices (computer, cell, tablet), though a paper one or datebook is better than nothing. See your PCP for a basic pre-op exam, including EKG, and bring all your immunizations up to date. If you haven't seen your GYN in a while for a basic pelvic & pap, get that out of the way. Get routine dental work out of the way. Get measured (my surgeon's NP did it a week before surgery) for compression wear--you don't have to buy it yet till you get back to traveling, working out, gardening, spending time outdoors in the heat, going to high altitudes (even fast elevators to the top of skyscrapers). LympheDivas.com has a 2-day turnaround (and some really, really great colors & patterns). Much easier to prevent than to treat LE. If you have pets, take them to the groomer to have their nails or claws trimmed. A scratch is no joke when you're weak from surgery and immunocompromised,

    Now for pampering. Do you color your hair? Then get your roots touched up and a good trim (perm or straightening too if you normally get those). Facial & mani-pedi, too--but not dark polish. Transparent "French," even if you have gels or acrylics, is even better (the anesthesiologist will need to see if you're properly oxygenated).

    Fourth, call in the troops. Ask your friends & family if they'd be willing to drive you to & from visits for which it'd be unsafe (much less prohibited) for you to drive yourself, take public transit or a cab or rideshare. Let your job know what's up and put in for sick or personal time. Buy as many frozen meals as your freezer can hold, gather up take-out menus or get s GrubHub account. Of course, your video streaming services should be current--you may not feel like going out to movies or events for a couple of weeks (more if you're getting BMX). If you don't have a rideshare app, get one and set up an account. Arrange for pet care (dog-walking, cat-feeding/sitting, playing) if it would be too strenuous for you. Have someone take over temporary "grandma duty" if you're normally your grandkids' sitter. (I'm assuming that at 55, if you have kids at home w/o special needs, they're old enough to help you rather than need a sitter)

    Fifth, supplies. Get a pillow that slings over your shoulder to cushion your armpit & breast incision, and a smaller one to keep your seat belt off your breast. If you indeed will be having UMX or BMX, get some drain-friendly clothing (sleepwear, under-vests, shirts, etc.) with interior pockets. For showering, connect two kids' terrycloth wash mitts with sturdy cloth ribbon long enough to hang over your shoulders and hold your drains without pulling on your incisions. Ask your surgeon (or their NP) whether they will be sending you home in a surgical bra or just a big ACE wrap (they stuffed my poor oversize "girls" like sausages into an "XL"--hahahaha--surgical bra several sizes too small). Find out if there is a breast cancer boutique (freestanding or in a lingerie store, or corner of the lingerie dept. of a dept. store) in your area and ask about bra options--preferably non-wired (for the first few months) and front-closing. Stock up on button-up or front-zip sleepwear, loungewear and shirts; you might not be able to pull stuff on or take it off over your head. I was lucky in that I not only did have enough mobility to do that, but also that my incisions were located outside my bra underwires' "line of fire." If you don't want to look "unsupported," go a couple of sizes too big in your shirts & blouses. And if your bedroom is upstairs, prepare a living room or other first-floor room sofa, recliner, or daybed with a good view of your TV, and plenty of outlets for your phone & computer cables. You might be too fatigued to climb stairs for the first few days.

    I'm sure others can chime in with stuff either I forgot or that helped them.

  • janky
    janky Member Posts: 478
    edited June 2019

    Welcome happyperidot - is your birthday in August? This is a great thread for us, whether drinkers or non drinkers, I have been imbibing more lately - warm, summery days, my bloodwork is not doing what it is supposed to, making me 'thirstier' (grumpier) - but I do feel grat!

    goldie - glad your temp is down, it is so darn difficult to find decent food that is not processed or full of sugar, I am sure your DH was doing what he thought was a good purchase for you :) I get my eggs from a local girl and they are really decent, free from everything and the money is going to her 2 young sons who 'help' her - I think not, but apparently they try to help.

    Happy weekend to all! Cheers!

  • chisandy
    chisandy Member Posts: 11,408
    edited June 2019

    Oh, and you don't have to teetotal. Redefine what you consider a "drink," and downsize the portion if necessary. We ER+ gals have to avoid things that'd keep our meds from doing their jobs to minimize circulating estrogen. The standard max for us is three five-oz. glasses of wine, three regular cans or bottles of alcoholic beer, or three shots of booze (straight or in a cocktail) a week. Now, I'm a serious oenophile (a wino with a credit card), so wine is my alcohol of choice. For cardiovascular health, you don't need more than 2-3 oz. of (preferably red) wine a day. 3 five-oz. glasses a week are the same as 5 three-oz. glasses--15 oz., round up to a pint, a week.

    Life's too short to play cheap guitars, drink bad (or instant) coffee, and drink wines I don't absolutely love. (I don't like to get buzzed, so I've stopped using my MMJ card and just get over-the-counter CBD instead). Except for wine-tasting dinners (for which I save up my "allowance" but don't drain my glass for every course--total for the meal is still <5 oz) or serious tastings (where I swish & spit), I tend not to drink wines without a paired food. That means I often go several days, even a week, without wine. One thing that has helped me immensely is a Coravin. Not only does it let me sample great wines in my cellar without opening & finishing off the bottle w/in a couple of days, it lets me enjoy as little as an ounce, just perfect for the protein on my dinner plate. If I have any left over in my glass, it goes to Bob, who's delighted to finish it. And what's in the bottle stays good until the last drop (I still have a Bordeaux--an Haut Medoc--I Coravined back in 2015.

    And yes, it's much less healthy to teetotal and then binge (3 or more glasses) than to have a steady small consumption.

  • karen1956
    karen1956 Member Posts: 4,609
    edited June 2019

    Welcome Happy - and happy 55! I hope you will be able to enjoy your celebration.

    Lori - glad to hear that your temp is down and you want to eat. We were all worried about you, but you know your body the best. Hugs to you.

  • goldie0827
    goldie0827 Member Posts: 6,835
    edited June 2019

    Sandy, no no no! We take water from home and a huge case of bottled water.

    Janky, my eggs are free. But we do for each other, she is a good friend. My temp is all over the place. Last night about 11:00, I started shivering something horrible, and the coughing. I knew it was a fever coming on, but too dang cold. Finally I had DH get me some acetaminaphine, and in about an hour I was able to stop shivering and go to sleep. Then a bit later, the fever is starting to break, I'm sweating and need to be uncovered with fan blowing on me.

    Karen, I have wanted to eat, but there was nothing here, since we had just returned from camping. I think I'll have a smoothie for breakfast with a whole banana, some other fruit and maybe toss in some nuts. Then I'll boil a couple of eggs and have a couple of those for lunch. I know I have to go slow and mild.

  • nativemainer
    nativemainer Member Posts: 7,911
    edited June 2019

    Good Morning, Loungettes!Happy Saturday!Got up and went to work early to do a special session with a couple of staffers, got stood up by one. She forgot. Sigh. A little discouraging, that was. Anyway, Sadie and I have been up and to the Vet, she is now caught up on all her shots and can go to work with me. I'm really looking forward to taking her in for a visit to see how she does. She's feeling a bit abused cuz she got her toenails trimmed and she really doesn't like having her paws messed with. I keep reminding her that she got a dozen treats PLUS peanut butter while she was there! Not to mention her own box of Munchkins on the way!She's not spoiled, not at all.

    Goldie--Yup, you can have clear lungs and have an upper respiratory infection.When you can hear the gunk in the lungs it's no longer an upper respiratory infection, it's a lower respiratory infection, more often called pneumonia. The nose, sinuses, throat and bronchial tubes are the upper respiratory system, the lungs and bronchioles that branch off the bronchial tubes are lower respiratory system. If you are practically passing out when you get up then you must be severely dehydrated, and they can rehydrate you by IV at the hospital. DO NOT let this go on verymuchlonger, the low blood pressure is damaging to the kidneys, liver, heart, brain and a few other organs. A temp of 103 and a low blood pressure are indicators of sepsis, and you are immunocompromised by the chemo and so at risk of sepsis.PLEASE go to the hospital, tell them you are a cancer patient on chemo and get a properwork up done.

    Chi--Hooray for Thelma and Louise being good for another year!Glad the broken tooth doesn't hurt. That's a bonus.

    Goldie--glad your temp is down, but don't slack off on the self care.People with stressed or compromised immune systems cannot maintain a fever for as long as others, and a drop in temp does not necessarily mean all is well. There is a natural cycle of the temp going up gradually through the day, highest late afternoon/early evening, then going down gradually to the lowest in the very early ayem. Covers can raise the temp a half a degree or sobut not much more unless there is some other underlying problem.

    Welcome happyperidot!Belly on up to the bar and tell us about yourself. Bummer with the bc crap and your birthday happening so close together.

    Chi--good point about the limited vocabulary we have to deal with. I hope that changes as the taboo about talking about cancer and other illnesses continues to fade away.

    Where's Cammy Cat today?????



  • camillegal
    camillegal Member Posts: 15,711
    edited June 2019

    Image result for funny sunday cat memes

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2019

    Mornin' ladies,

    oh I was MIA but following Lori for sure, just didn't have any tips, all I know is upper respatory< I can't spell this word> keeps u down for a while, Leslie always gets those. And like I said before it's so much harder to get rid of now. But this fever is really hanging on. But it did break which is good. But if things don't change much get back to ER tomorrow. It wouldn''t hurt that's for sure. U might need something stronger and yep u r taking it easy. For u to say much about this I really know ur sick, but I couldn't help u Lori I just said my extra prayers for u at night. This infection can be rough and I think too with ur circumstances ur Onc. should know, but that's me. <<<HUGS>>>

    Welcome Happy <I thought it said period> at first, oh u'll get to know me. Sandy gave u fantastic advice, really couldn't add any more but maybe celebrate like u always do and enjoy. I personally don't drink, but my sister has never stopped her 2 glasses of wine at night <She's Stage IV> And thru the yrs. she doing really well. We both got it at the same time and staged the same, so maybe i should have a glass of wine at nite this is a great group and I've settled down here and there is never any judgement for anything we do or how we think. These women have helped me in so many ways even when I just blabber about nothing they take it. Their. from all walks of life and they are wonderful. As crazy as this disease is I found this place and share with us whatever u wish to and someone will have answers and help for u. Sorry I'm blabbering.

    Marty's cousin is here, her stupid DH not so dear, has asked her for a divorce and moved in with a 30 yr. old. They're in their 50;s They've been together for 30 yrs. and really look great, he's such an ass <and yet I've known him since he was 10 and really like him> not for this of course. I told u before out of all of Marty's family she's my best love there. We've been talking a lot, what else is there to help actually. I just feel sorry for her.

    Well my SIL is really cray cray now, more than before and thinks she's going back to her home this week, so this should be interesting or more crazy. At least her kids take turns and someone sees her everyday. It's only an hr. visit but of course my nephew thinks it's 55 minutes to long, but he goes. And for the type of mother she was I give them credit, I feel bad cu I don't feel sorry for her, she never had any friends except for my brothers friends and they tolerated her because of him. How can anyone go thru life without 1 friend.

    Oh I just talked to my sister for almost an hr. She talks more than I do, but I love her like crazy. sooooo....

    LUBS U ALL

  • chisandy
    chisandy Member Posts: 11,408
    edited June 2019

    Went to the Palm for an early Father's Day dinner. DOTD was Nicolas Feuilatte Brut Champagne--would you believe I was able to limit myself to only 3 oz. of it (not because of ER+ BC, but because of the carbs)! Bob was glad to drink up the rest.

    Going to Ravinia tonight to see Peter, Paul (and no Mary, RIP). Probably take along some leftover salad and cut either leftover lobster or roast beef into it. Bob might buy a gourmet sandwich. Maybe have some sparkling wine there---but we're driving to & from the train, so maybe seltzer instead. (Too cold and my muscles hurt too much to walk). Thank goodness we have pavilion seats! (Only hope there are enough chairs & benches for sitting & eating, because no food allowed in the pavilion. Restaurants were all filled up, so no reservations available.

  • goldie0827
    goldie0827 Member Posts: 6,835
    edited June 2019

    I do believe I AM severely dehydrated. I will go to the dr tomorrow and ask him to put me in the hospital for at least 1 night, if not 2. I was hoping I would feel better after the anti b, but I don't. My temp has gone anywhere from 96-202.I'm hoping for IV fluids and maybe IV anti b. Current one is Cephalexin 500mg, 2 pills morning and same 12 hours later. I do have a little drainage now in the back of the throat. I am eating a little, just not much of an appetite. I'm suppose to start my FU pills tomorrow, but I think I will hold off. There really isn't much my onc can do, other than put me in a hospital down in Phoenix, I don't want to do that. So we will just see how tomorrow goes.

    On the plus side, I think I have lost about 8 lbs, that's the only good thing about this!

    Sorry to make this all about me, not my style. But I know you guys care and want to know how I'm doing.

    Cami, waiting to hear more in the future on SIL. And Marty's brother, his he another FF??? LOL

    Hello to everyone.

  • JCSLibrarian
    JCSLibrarian Member Posts: 548
    edited June 2019

    Please take care of yourself, Goldie! Get to the hospital ASAP for fluids. The IV antibiotics will help also. Any kind of infection should be taken seriously. Tell the doctors you are a cancer patient currently on medication. You would tell others to do that. 🤪

    We postponed Father’s Day until tomorrow. My oldest will be back from Peru and the youngest is off work then. My father taught me how to persevere when things are against you. He greeted each day with a smile, never met a stranger and lived life as best he could. In his last years, he dealt with major physical problems, heart problems and vision problems. Still his smile shown bright. I have always wanted to make him proud.

    Love your families while you can! Worked hard this weekend and have several doctors appointments next week. Things could be different come July.

    Take care all!!!

  • nativemainer
    nativemainer Member Posts: 7,911
    edited June 2019

    Good Morning, Loungettes!Happy Monday Monkey day!I just realized that I didn't post yesterday, not sure how that got past me. Did get quite a bit done around the house before the cold symptoms started in. Yup, I've caught me a cold, and at the start of my busiest week at work of the month.Sigh. There's been a virus making its way around the nursing home, and several staff are working sick, so I guess I shouldn't be surprised that I caught it.Wed and Thurs I start work at 5 ayem, so probably won't be on.Should be back on Friday ayem.Going to take Sadie's shot record in with me and get it on file so she can come to work with me. I might even take her with me on Thursday, I go in early but also get out early, but I'll have to think about it.

    Cammy Cat--nope, you are no quitter, and finishing up doing nothing is exactly the right thing to do!Poor Marty's cousin, sounds like the about-to-be-ex is a real PIA. Did your SIL get placed somewhere where she is getting care? Dealing with dementia is so heartbreaking and so difficult. Hugs to all.

    Chi--sounds like a great concert.

    Goldie--If you have lost 8 pounds you are SEVERELY dehydrated.You need IV fluids. I don't care if you get admitted or not, you will feel so much better after getting a couple liters of fluids. It sounds like the Aunty B's are kicking in, I'm not sure you need IV antibiotics, but you definitely need IV fluids!

    Librarian--Your Dad was a good role model!

    image alt="Image result for summer cold cocktail recipe">

    Summer Tea Cocktail

    Ingredients

    • Makes about 4 servings
    • 4 cups water
    • 4 bags of Peppermint tea
    • 5 tbsp sugar
    • Fresh mint leaves
    • Lime and lemon slices
    • 1/4 cup Gin , optional
    • Ice cubes

    Directions

    1. In a large saucepan bring the water to a boil. Remove from heat and add tea bags. Cover and set aside for 5 minutes. Remove the tea bags and stir in the sugar.
    2. Refrigerate until chilled. I let it overnight.
    3. Before serving add gin if desired. Add ice in the serving glasses, pour the tea and garnish with mint, lemon and lime slices and serve.

    From <https://www.homecookingadventure.com/recipes/summer-tea-cocktail>

  • goldie0827
    goldie0827 Member Posts: 6,835
    edited June 2019

    JCS, I did tell them I was stage IV cancer. I also told them that I felt like I was severely dehydrated. And they could see that when they did the urine, as it was so dark.

    Kim, I really don't feel like the anti b has done anything. We are friends with the doctor, so I can make suggestions. I will also give him my oncs number, in case he wants to talk to him.

    I'll keep in touch.