TIME TO CIRCLE THE WAGONS GIRLS
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Dear Odalys,
I had a wonderful present from the mail-lady today!! Thank you so much. I've been baking all day and I'm sending you a holiday surprize tomorrow. Hope all is well with you and your family.
Love,
Bren
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Hi Everyone ~
I haven't been on for awhile... Certainly not before this new format. Had my mammo for the 3rd year. Everything is clear.... scar tissue still shows up. Doesn't it show up now forever?
How is everyone doing?
How do I get this print much smaller?
Take care all --- Judy
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Hey friends!
Am I allowed to post without taking notes???? Figured it can't be much worse than when I take them!
Nicki: Ahem........I think you know that you don't have to "feel sad" or "depressed" to actually be.........I'm glad your Onc has added yet another wonder drug to the ever growing list!
I really don't even think the TB test was a reaction to the serum.......I think it was just a little red circle from the injection.........which translated into my 'new' way of thinking means............something with an 'itis' on the end!! I laughed over you learning to give TB tests with a hot dog! Kinda like me........I don't know how many oranges I gave insulin injections to!
Odalys: Glad to hear that your Mom is doing better..........Now, if we can get you slowed down.....................! Who's doing the baking? You or Bren?
Either way.......I'm open to sampling for you!!
Margo: You're still on Tamox? I had very little trouble if any with the tamox................Now the AI's are a total different story. Good luck when you go to oncs.
Susan: I'm a WHAT? Gotta go back and look at the word again..........a FLIBERTYJIBBIT.........I think I like that!!! Then I thought You said we were Dingy.........like dirty! Re-read and realized that we are "Dingy" like ditzy!!!!
Yes girls, Susan is bored..............I tried to take a home video of myself last night to entertain her................but..............let's just say "NO"....then I tried to tape myself "singing in the shower"......Ahhh..."NO", Then I was gonna snap a candid shot of DH in the Hot Tub ........ Then I remembered I was supposed to Entertain her, Not scare the bajeebies out of her!!
Cheri: If you're reading, I called to chat with you yesterday, but you let that little voice mail come on.................I rattled off a message to you....hope you got it! I hope to try again tomorrow as I'll be in the car quite a bit!
Vickie: EWWWWWWWW on the snow! They keep threatening us with it, but.....knock on wood.....hasn't hit yet! Stay warm and stay safe. You've got Canceritis of the heel? OH, I am amazed at how many places we can "catch" Canceritis...........Not funny, but oh so true.
Madison: Like your little diddy you wrote..........been kinda worried about you as I haven't seen much from you lately..........or maybe I've been on the wrong sites...........don't mean "wrong" sites.........just different sites at different times...............hey, as Susan said...I'm a Flibertyjibbit.......just go with it!! Hope all is okay your way!
Susan: (again)....Yes, anything is possible in "pinkstock" land............I even allowed myself to have fun!!!! I don't know if you really want MB to be your Mommy though...........She's a sweetie and all............but she'll be chasing you all over counting jumping jacks and push ups!
And Continuing with MB: You actually are giving all of us permission to endulge in all the eating guilts we can muster during Christmas!! WOOHOO! Then you're going to whip us back into shape come January! It's a Deal!!
Sounds like you had a clean kitchen growing up.....................but I'm thinking I'll stay with Susan and be bored!!
Hey Bren: What ya baking today? Sounds like you got a mighty fine package in the mail today! Did it fit in your MailBox????
Odalys: Again....that was very nice of you!
Judy: Glad you are around............just stop by when you get a chance, we're pretty easy going around here! I'm with you on the scar tissue showing up.....................I'd think it is always going to be with us!
I have made so many typo's............my fingers go faster than my mind or my mind goes faster than my fingers.................either way...........I think one day I'll just post without correcting my errors............that could be interesting!
Okay.........got most of my Christmas shopping done!! WOOHOO..........! Tomorrow I am going to watch my Granddaughters first "official" performance at pre-school! Outta be fun!
Hugs to all!
Denise
How are our OK girls.........anybody have an update?
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Holy Hot Tamales: Im home from work late. So many posts and so many I want to talk to. I have no time - saying hello cause dinner is ready.
Hi! Hi! Everyone. See ya in the morning.
Susan: I am soooooo jealous of that picture.
Vicki: There is alot of water, rain, moisture, ice, snow whatever you want to call it with this storm.
Love ya all.
Nicki
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the white stuff falling from the sky has stopped...whispering...must be verwy verwy quiet...don't want it to come back and sneak up on me.
Nickster...get your fanny back here...no fair goin to bed at 7pm! I actually took a nap this afternoon...if felt good!
Neesie...you make me smile with every single post. Shooting videos are you LOL! I need to "elf" some more girls and bring some smiles. I do not have my Christmas shopping done...I told you I needed a shopping buddy. Gonna try to do it on the internet tonight (planned on it last night too LOL).
Judy...congratulations on your third "clear" year!! I type in bold...its the only way I can see it!
Susan...you're bored and looking for fun...I don't quite understand what Miss MB finds fun about cleaning windows, stove and (oh horrors) the refrigerator!!! Come hang out with me...we'll sit on the floor and make shrinky dinks (thats what I made MB do when she stayed with me LOL). We'll watch movies and see how much we can drink before we fall off the couch.
MB...now...listen up missy...I miss ya! I still have to burn our vacation pictures and I promise I will ASAP!! I haven't even had a chance to upload them to Kodak...maybe I'll do that tonight. hmmm...just added something else to my neverending list. I'm so far behind I think I am first!
Bren...sending you a sweet hug for a sweet lady. Are we smiling a bit more yet?
Madison...tis the season! Great poem...you need a vacation too...wanna come to my house. We can go get our hair done again! I am seriously thinking of getting mine cut very very short. I kinda liked it that way...not sure though...I can never make up my mind. Love ya sweet sister.
Liz...where are ya sweetie...hope your safe and sound...nice and warm.
Jan...do you have electric yet. I know that the snow we are getting is really bad but doesn't compare to the awful mess the ice left behind.
Biker girl...where are you?
Shokk...MIA...hmmm...gonna send out a search party soon. Worried about you.
Oh my...Nate wants the computer...I need to get busy...
Sweet dreams dear family...
love and hugs from A (has anyone heard from Amy?)to Z (who is also AWOL).
Vickie
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Hi Neesie,
Nope, package didn't fit in the mailbox ... the mail-lady sat out front and pounded her horn!! My dogs were going nuts so I had to go investigate, otherwise I would ordinarily ignore a honking horn on the street (I don't know anyone here). Good thing I went to check!! Yippeee! And yes, I was baking ALL day. And I'm sending Mrs. Santa Claus a package tomorrow.
I have to lay down now. I'm not used to being in the kitchen for anything longer than a drive-by.
love,
Bren
PS - Hi Vickie - I'm smiling ... cause I'm feeling the love!!!
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Bren - Yeahhhhhhhhhh....you got the package! I was so worried you wouldn't get it on time for Christmas. I bet Mr. Tim will be surprised. Just tell him is a gift from the wife of a trucker. I hear Truckers take care of their own. DH said the clerks at the post office all came to see what he was mailing out. One of them told him she wanted one too. He was laughing cause he had no idea an x-mas tree would cause so much ruckus. I'd love to see a picture of it all decorated. So sweet of you to bake something for me. I can't wait to receive it. I love surprises.
Nickie - DON position, I say go for it!
Neese - Me slow down...not a chance. I've always been a bundle of energy except for the year from hell...surgery, chemo, rads. I was so upset then, could not stand that my mind wanted to go but my body was saying no way.
Would you believe I haven't done my shoping yet? This year is a little different because I have 140 employees accross three hosptials and I don't know what to get them. I will get them an individual card but would like something else to go with it. There is no way I can buy presents for all so I am at a loss. Does anyone have any ideas? I was going to provide lunch but they already put together a Christmas committee and have planned the whole thing.
CG's - What would you like for Christmas this year?
Okay - DH is wanting my attention so good night all. Pleasant dreams.
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VICKI>if ya meant me yes we got power back late Wednesday afternoon.
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Good Morning Everyone: I am sure glad today is Friday. At least I will have a chance to catch up with all of you.
If you could have seen me yesterday evening you would have laughed. I needed to wrap a couple of packages that will be mailed today. It took me about an hour. I had this intense look on my face. DH even came in and said "are you mad at me?" Ha I just laughed and said no, this is just alot harder than I thought it would be. Im so glad we have bags to put presents in now - I dont know how I would handle all the wrapping come Christmas Eve.
Odalys: The employers where I work are throwing a Holiday Party after the holidays. I know it sounds crazy, but there is so much going on now and so many parties to go to - another party just wouldnt be special. And we have something to look forward to when all the usual partying is done. They also are doing little things each day. Drawings for a gift, special meals in the eating areas, special treats for breaks - stuff like that. BTW - Im not crazy - a DON position is just too much for me. I am enjoying my lazy, crazy job right now.
Bren: Im smiling at the gift you got from Odalys. You must take pictures. This will indeed be a special Christmas for you.
Vicki: Good morning sunshine sister. Glad the snow has stopped, although Im hearing another one is on the way and this one could turn into a noreaster. I agree - we are missing many and hoping they will check in soon. Whoo hoo! Its Friday. BTW - the only shopping I have done is for my DH. Guess I better stop procrastinating and get my big butt out there. Just having a hard time this year, cause nothing is appealing or catching my eye.
Neese: Seems like I have to look all over for you. Glad I found ya. Entertaining susan? Now I want to know more aobut that! Regarding Christmas shopping. There are some who are organized and finish before the stress begins. And then there are people like me - who procrastinate and then find myself running through the stores to find stuff. But somehow - it always pulls together by Christmas day.
PurpleMB: Oh my. Just like a kid, Im running away from you. The last thing I want to be doing is cleaning windows, washing floors yada yada.
Gosh, I know I have missed many - but my time is up. Have to get ready for work. Have a wonderful day.
Nicki
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Wow, so much snow and ice out there. Please be safe and stay warm. Wishing all CG's a good day.
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Odalys - how about a gift card for Starbucks, Borders, etc? That's what I'd like from a boss if I couldn't have a bonus!
I had one drain removed today - not as horrible as I'd imagined. On Tuesday I go back to the bs for the removal of the 2 other drains and the stitches. After the new year, I see the onc to determine the revised treatment plan. I think it will be rads for 6 weeks, Xeloda for 4-6 months and post-op scans of some kind. I'm seriously considering an anti-depressant to add to the mix.
Have a great weekend everyone!
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Ooops! Quiet day. Hope everyone is doing well.
Odalys: I want to live where you live. Lots of nursing jobs and DH could entertain! But dang - who wants to leave family.
Slonedeb: Oh Im so glad you had a drain removed. I remember that as quick as I could say "ouchie" the drain was out. Do not hesitate. Get yourself an antidepressant and an antianxiety. This journey is so darn stressful and bites ya in the butt when you dont expect it. I want you to know 2 years out of chemo - life is pretty good again and you will get there. Just takes time.
CY: I know your reading and actually wondering how your feeling post treatment. Sure do miss talking to ya and hoping all is going well.
OK - have a wonderful evening. Need to go get some dinner.
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Just popping in with a quick hello. I miss you guys! I have been so busy with Christmas stuff that I have not had much time to post.
Passing out hugs
Deb C
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We are supposed to get snow tonight.
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ok..you got it all wrong, lol... that was what my mom did when we said we were bored...lmao..you've been in my kitchen... ewwww i think there is still pinkstock on the bottom of the fridge....
ok DH for his yr check up..his heart is aok ..hard to believe its been a year since his heart attack..so do you think I can convince him to have you all over again this summer...
hugs to all my family... and anyone who needs to send their family up to make snowmen or angels... let me know I have lots of room...
mb
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Where are all the CG's? Hopefully home, resting under a cozy blanket and keeping warm next to the fire place. How I'd like some cold weather right now. I haven't seen snow since I was 9 years old! It's too hot around here for December. It sure doesn't feel like winter yet.
MB - I'd love to visit you. Steven would love the snow and makimg snow angels.
Susan - how cool you are getting snow tonight. I bet it's begining to look like Christmas....
Deb - Any snow yet?
Nickie - yes, lots of nursing job here, the weather is warm, and your DH can get a gig at South Beach. How cool is that?
Shrink - thanks for the tip. A Starbucks card would be nice. I'm sure they would enjoy it. Glad one drain is out...a sign of progress. Nicki is right, at the beginning it seems like time drags and everything is so overwhelming but before you know it you will be looking back and remembering the hard times. You are a survivor...this too shall pass! Yes, I do hope you consider the antidepressant. This journey is soooooo hard an antidepressant will help you get through it . We all need help on this journey especially at the beginning. I hope you will consider it. I'm sending hugs your way.
Wild/Jan - I'm so glad you got power back. Those ice storms look so scary. Those pics you posted are impressive.
It's hard to believe today is the 30th anniversary of Saturday Night Fever.
Geeze...it can't be....no way! It feels like yesterday. Time really flyes. Isn't Travolta hot?
Okay - enough of my ramblin on. Wishing you all a good night.
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I just found out Kim Piccione one of my chemo '05 sisters passed away last week Thursday. Crap, crap, crap...I hate this disease.
Thanks Lini for letting me know. Her husband sent several emails but one went to my old employer and the other got buried in my personal inbox. Such a difficult time of the year to lose a loved one. She had three small children. I pray God grants them strength to get through this difficult time and peace in their heart. Ay....so sad.
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Wow has it really been that long since Saturday Night Fever came out? Where did the time go???
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Hi All ~
Hope everyone is doing well...... Everyone ready (shopping done yet???) for Christmas.... NOT ---- still have a few more gifts to buy yet.
Say some prayers everyone for my best friend.... On Wednesday, December 19th she will be undergoing a kidney transplant donated to her from her 23 year old son..... She has Systemic Lupus and it really messed up her kidneys as well as other parts of her body. She was on Chemo for quite awhile too (Cytoxin) not as heavy of a dosage like we get ---- her hair majorly thinned out, but she did not lose all of her hair like us......... She has been on home dialysis 4 times a day for a while now and she is actually really looking forward to this surgery. The ONLY thing that makes her nervous is going under and having her son go under as well. Hey most of us know what that is like.
My work's mail carrier's co-worker ex-wife (they are still friends) will be undergoing BC surgery on December 21st and is very nervous about it.... She had chemo first to shrink the tumor and will now have the surgery. He is unsure if it is a lumpectomy or mast. He does not ask too many questions. Let's say a prayer for a "newbie" too. This club is NOT the best club to be in, but I bet it has the MOST support.... This site helped me through my surgery, treatments, and afterwards. It still does. I am going to make a point of popping in occassionally and seeing how my "ole" sisters and my "new" sisters are doing.
Take care to all of you and lots of hugs {{{{{{{{ }}}}}}}}}}}}}
Judy
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Good Morning Everyone! Today is gonna be a wonderful day. They are predicting 1-3 inches of snow, but this time we dont have to go anywhere or be out driving in it. Gonna decorate our Christmas tree today and I think Im gonna enjoy the atmosphere.
DebC: yes yes, me too. So busy with getting ready for the holidays. Glad you popped in to say hello.
Bren: Where are you? Making cookies, decorating your tree I suspect.
Susan: Love the Merry Christmas elf. Im in such a mood. If I werent 57 and if it wasnt so cold out - I would be tempted to make snow angels in the snow.
PurpleMB: I do think its amazing that it has been one year for your DH. My goodness it seems like that happened only yesterday. Im so glad he is doing good. BTW! I dont trust. I just know if I came to visit you, that you would have me washing windows, cleaning cubboards, and scrubbing floors.
Odalys: This is one strange winter thats for sure. I think the good Lord is watching over DH and myself. I think if we were in South Beach we would get right into the atmosphere there. Imagine two old hippies walking along the streets. Im very sorry to hear about your friend Kim. Did she come on the boards much? It puts a heaviness in my heart because she is so young. I really cant believe that its the 30th anniversary for SNF! My goodness how life is just flying by.
Wild/Jan: A big hello to you.
Judy: Sending big hugs your way. Will have lots of prayers for your best friend and coworker. So hard to go through this stuff right before the holidays.
Hope everyone has a good morning.
Nicki
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Hi Nicki,
I'm here. I've been so overwhelmed with responding to each and everyone that I just kinda give up and read. I left a note for our own Lori last night, her mets have progressed and she'll begin more agressive treatment in January.
I was really busy yesterday. Went to the bank (9 miles away) then post office, then back home to get the house payment made on-line, then drove 1 1/2 hours up to see my sis, then she treated me to lunch, then shopping (finally found a bra in my NEW size cause I have BACK FAT now), then back up to her house, and by then it was 5:30. So now it's dark, my night driving glasses are at home and I never drive after dark. And I get a call from Mr. Tim that he'll be at the drop yard in Martinsville about 8:30 that night with a one day layover. Holy Moly. I gotta drive through the mountains, half blind in the dark, get home, get the dogs fed, vacuum, clean up every dish and pan in the house that I'd used the day before for my ALL day baking spree, before I have to drive the 9 miles back down to town to get Mr. Tim. He wasn't supposed to be back for 2 more days!! He has 3 things that must get down when he's home ... hold the remote, eat and sex. I told him right off the bat ... no lovey dovey tonight cause I'm so tired I can't see straight. "Okay baby, I'm pretty tired too." Thank god!!
I need another cup of coffee, smoke another cig, and then I'm going to put up my new Christmas tree!! Yippee. Hope to have pics later of the tree, xmas card wall of glory, and Mustang ranch decor!!
love you all,
Bren
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Hi I haven't had a chance to post....hope you are all well. Gonna make a nice big cup of tea tonight and read. I am going to NYC today to see the Christmas tree and sights. Will be going to St.Patrick's Cathedral and will light a candle for all of my bc sisters.
Even tho I haven't been here, you are all in my heart and prayers everyday.
Hugs and prayers,
Candie
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I just read where Lisa40 passed.
I hate this frickin disease. It is taking so many of our loved ones in the past few weeks. I hate it.
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Liz, I just read this too. She was so young and so beautiful.
Perhaps Pinkstock should be held at the San Antonio symposium next year, with a candlelight vigil and pictures of all the loved ones lost this year. Maybe then someone would hear us. As Bimmer wrote 58,000 soldiers were lost over 9 years in VietNam and they have a memorial. We lose 40,000 EACH YEAR. WHERE IS OUR MEMORIAL!!! If Bush lost 40,000 soldiers this year, somebody would sure as hell sit up and take notice.
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Bren - that is a great idea! How about having it here in Miami? I can rally folks at the teaching hospital as well as local hospitals and also folks from the tumor registry network and various breast cancer centers. Awesome! What do you all think?
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I know this is not very Christmasy and light, but I have landed right smack-dab back in angry mode! I found out yesterday that the mother of one of my high-school friends has breast cancer. I have not talked directly too her yet and got a whole bunch of warped info:
"The cancer is too deep to cut out. She will just die anyway so they are not going to treat it." Oh...how about this one..."She is too old to have chemo" WTH???? She is in her 60s!
I know that the people who were passing on the news don't understand diddly-squat about breast cancer, but the ignorance makes me NUTS. I did finally wheedle enough info out of them to figure out that it sounds like stage 4. They are not going to do a mastectomy right now because the cancer is already "somewhere else".
Here is the thing I don't understand.....why can I still get slammed back in to this overwhelming anger? Yes, it is sad that she was Dx, but I have to find a way to keep this from affecting me so personally.
Last night I couldn't sleep. I was trying to visualize cancer as an actual beast, then I amused myself thinking of terrible ways to torture and kill it.....that can NOT be a healthy response!!!
Anyway.....sorry to dump this here. I just needed to vent a bit....
We are off to drive 2 hours for a high school ski meet this afternoon. The race was supposed to be run here in town, but we only have about an inch of snow...not enough to groom the trails for a race. Instead we are driving to Homer where they have a trail further up a mountain where they have about 4 inches of snow. Realize that we should be talking about FEET of snow by now in the mountains. This weather is tooooo weird.
Hugs to everyone. I promise to get on here tomorrow and catch up with everyone's news
Big hugs
Deb C
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Deb - You rage is mine and all of ours!
Odalys - I'M IN!! Let's get the media involved. Hopefully, the other gals will like the idea.
... and by the way ... I'm decorating my tree right now!!
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I cannot believe that Lisa40 is gone...simply speechless. I agree with you Bren and Odalys...time to really raise hell. Its just so wrong.
Deb...I imagine the beast too and all the ways I could torture it...I think its perfectly healthy!
Stunned at the new news...I'll be back...
Love and hugs all around
Vickie
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Ok, lets put our anger to good use and let's have a rally!!!!!!!!!!We still have plenty of time to plan. Of course, I'd like for us to have a planning committee....sorry. The administrator in me kicks in when I am ready to do some serious butt kicking! hahahaha. This year our tumor registry board planned a breast cancer symposium at our hospital and we had a very good turn out. Since we are a teaching facility we have several well known researchers that could speak on current issues and latest research. I can get my tumor registry employees to coordinate the event and maybe the Fla tumor registry association could even take over some of the marketing. Just some thoughts....
BTW- is anyone following the politicians these days? Any word on where they stand on healthcare and cancer research? I've been lazy and won't really get into it until is the last two candidates and we are ready to vote.
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Odalys, I like the idea of a rally, but not a "pink ribbon" rally, a black t-shirt, pink arm band, boot stomping, type of rally. Nobody pays much attention to a bunch of women running around in pink. Maybe our msg is not to raise money, but "WHERE IS OUR MEMORIAL?" written on our shirts. Something that will wake up the politicians ??!! The doctors and researchers are already at the front lines. Breast cancer is perceived as a curable, nice lady disease! I propose we show the powers that be that it is a deadly, black (not pink), killer of young mothers, daughters, wives and sisters.
Tell me what I can do to help get this going. I will be in Miami or anywhere else you want to march.
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