TIME TO CIRCLE THE WAGONS GIRLS
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Hugs right back to You Sweety, hang in there I just sent a special prayer for You!
Odalys, thinking of You sweety!
Gods Speed to Everyone
Puppy
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Hey Neesie...you don't have to truck all the way up here.....I'm just huddled down to stay warm by the fire. It was -11....yep eleven BELOW zero this morning. Here is the sick thing, we still have only about a half an inch of snow. I may have to go visit MB to see a white Christmas.
No big news here. We are just doing the whole winter/Christmas hubbub thing...Christmas concerts, ski meets to far away places to find snow to ski on, cookie parties, tree decorating....you know the drill....
To add to the Christmas cheer I have a funky new pain. I have a very tender spot right above my collar bone on my cancer side. So of course I have self diagnosed cancer in my subclavicle nodes.....Actually, what ever is causing the pain seems a bit better today. I am wondering if it can be connected to either my LE or the 2 cases of shingles I had in my ribs. I can't feel any lumps or bumps, but I think it might be a bit swollen. Do you think it is because I can't keep my fingers off it??? I am such a dork.
Anyway, to all of you who are having problems or sad times I am sending big hugs.
Deb C
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hmmm...mighty quiet around here. Where has Nicki disappeared too.
Overslept this morning once again...and (whispering)...we actually have some sunshine.
Only have a minute as I am at work...sending warm hugs to Odalys and her mom and Cheryl...Lots of prayers along with those hugs.
Love all around...from A to Z
TTYL
Vickie
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Hi Deb,
I don't think you're dork! Geez ... call the doc or the nurse and see what they think. Might be muscular from all the Xmas activities you've been doing. Have you been working out lately?? I hate those stupid aches and pains!
Love ya gal,
Brenda
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I am happy to report that I feel much, much better. The bs removed the drains and stitches and sure enough there was an infection in one of the drain openings. He cleaned it out and packed it. That's why I didn't feel any better 2 weeks post surgery and that's why I felt soooo depressed. I still have a bunch of positive nodes which is not good but at least I stopped crying for the moment. As always, I appreciate all of the hugs, prayers and good wishes and send them back to you. I don't know what I would do without this opportunity to help and be helped by those who understand at all hours of the day and night.
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Hi Marian,
Glad to hear you're feeling better and the grenades are finally out. It's no wonder you were feeling so bad with an infection in one of the drains. And you stopped crying for a few minutes ... another good sign. Now, in a few weeks we'll get after those nasty nodes with the Xeloda. I'll ask Gina to send you some tips on Xeloda. In the meantime, rest up and stay close, we're here for you anytime of the day or night.
Love,
Brenda
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Odalys-So sorry you are going through such pain. It is hard to let go of your mom. I am praying for all of you to find peace. You are in my prayers.
Shrink- I am happy you are feeling better. It feels so much better when the drains come out. I am your neighbor. Please feel free to call me if you need someone to vent to.
I would love a white Christmas! No snow here but it is cold enough.
My son Michael got home on Saturday. It is great having all of my boys home, crowded but nice. Tommy started moving in his house today. It's just around the corner so I am ok with the seperation thing.I am sure I will still see alot of him. He got his living room furniture today. I always told him when he was little I was going to jump on his furniture when he was older. Guess what! Now is my chance I am stopping by and standing on his couch. I will take off my shoes only because I feel bad for my future DIL.
Take Care girls and I am thinking of all of you!
Joyce
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Hello Everyone! Im here, just have been crazy the last 2 days. This morning I woke up so late, I barely had enough coffee to open one eye.
I will see ya all in the morning.
Nicki
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Checking in. I am sorry to hear so many are not feeling well and are having troubles. I have asked the Lord to help you all.
I have been busy getting ready for Christmas and working but I do stop by to read. Love you all.
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Why are my jeans feeling sooooo tight? I think after the holidays I'll be back on the "diet" for a bit!!
Glad to see some of you............after this morning I thought I'd be back here talking to myself tonight!! I know it's a busy time for all..........the holidays are such a crazy time anymore it's hard to actually enjoy.
I'll tell you though..............today was a day from "hell" as far as clients went........only because I was running way late with my first for the day.....that is all it takes to throw the whole day off. So by the time I got to my last clients house I was mega stressed.........I don't like being late for them. Anyhow, this lady is the sweetest thing...........we connected right away.........a multitude of problems, but does all she can for herself. A very talented lady to boot. Anyhow, she gave me a Christmas Present and It actually brought tears to my eyes......................she is an artist amonst other things..............she gave me a hand painted Bird house that she had done! I tell you, I love that Bird House...................things like that really make me stop and think of why I do the work I do!
Joyce: You go girl! I soooo wish I could see the look on your Son's face when you jump on his couch!!!! Glad all is okay with you!
Shrink: Sorry about the infection, but glad you are feeling better. Rest up and then we will all jump in and beat the crap out of those pesky nodes!
Deb: Of course you're a Dork..........that's why I love ya! I swear, outside of myself........you're the worse at self-diagnosing! You don't have cancer of the collar bone...............probably slept funny on that side!
Snow, you want snow???? Come back to Your long lost home in MI.....we have more than enough to last the entire winter!
Nicki: Do you need a new alarm clock for Christmas? It does sound like your days have been crazy lately! Wanted to thank you for the cute lollipop in with your Christmas Card!!!! It's hanging on my tree!
BrendaBMD: Always good to hear and what's going on in the San Diego area! Thanks for the extra prayer for all..........that is always appreciated.
Susan: Just missed your call.............why are you off to the "warm pool" when your hip and leg are messed up? I'll call you tomorrow and you can fill me in!
Odalys: Thinking of you and your Mom.........Prayers to you.
Okay.......left the DH in the kitchen making Pumpkin Wheels.........his specialty..........definitely not mine.........and now I hear the vacumm running.........don't recall reading that in the recipe! Me's thinking something must have been spilled!
I wish I was one of the people that actually baked Christmas Cookies......I just don't. Love to eat them, just don't have the patience or maybe it's the talent.........don't know.
It's getting late already................for me...................this working a full day is just not right!! I'll have to do something about that!
Hugs to all!
Denise
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{{SRINK}} Ihad no idea You were going through such
hard problems in Your life! My Lord wish someone would have told me!!!
You are my Sister and I Love You, my prayers are with You Sweet Sister, and forgive me for not knowing this!
Gods Speed
xoxoxoxoxoxoxo Puppy
Hi Sweet Brenda, sure have missed You too!
praying for all!
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{{SRINK}} Ihad no idea You were going through such
hard problems in Your life! My Lord wish someone would have told me!!!
You are my Sister and I Love You, my prayers are with You Sweet Sister, and forgive me for not knowing this!
Gods Speed
xoxoxoxoxoxoxo Puppy
Hi Sweet Brenda, sure have missed You too!
praying for all!
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Checking in for a quick hello.
Odalys, still keeping you and your mom in my prayers.
Shrink, so glad you are feeling better. I hope the feeling continues!
DebC, I have self-diagnosed metastatic cancer so many times it is not even remotely funny. My onc has told me to not even worry about anything that does not last at least 2 weeks. So now, whenever I get a pain, I write it on the calendar so that I will know when 2 weeks have passed. I told my onc and he just shakes his head at me...that wasn't quite what he meant, I guess! LOL
Getting ready to leave for Pittsburgh on Saturday morning to stay at my parents' house for Christmas. The kids love spending Christmas with their cousins (my sister comes with her 2 kids). I hope the weather stays OK for travel!
*Hugs* everyone.
Kristin
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OK...ready for some GOOD news? My genetic counselor just called me and I am negative for the Brac1 or 2 gene mutations It really doesn't make a lot of difference for me. I am glad to not need a hysterectomy, but am really REALLY thankful that my daughters, sister and mom don't have to go through the stress of being tested. I know they will have to be extra careful just because I was diagnosed, but this feels like such a blessing!
I am off to katie's band concert.
Hugs to everyone
Deb C
PS...I think I just pulled a muscle over my chest and that is what is causing my pain. I will write it on my calendar and see if it is still bugging me in two weeks : )
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Good morning CG's. I hope everyone is staying warm today. We are finally experiencing cooler weather...50' and 60's. It's nice to be able to wear my one winter suit for a change.
Shrink - wow, no wonder you were feeling so ill. Are you taking any antibiotics for the infection? Sorry to hear your glands were affected too. The good news is that they took them out! Are you going to receive chemo? We are here for you.
Thank you all for your thoughts and prayers. They mean the world to me. I feel your presence. Mom is holding her own. She asked to go back to the ER yesterday because she feels better there. She doesn't want to burden my dad and sister. We were allowed in her room one at a time. And, one at a time, she told us to take care of each other, how much she loves us, and asked that we forgive her for all the pain she was about to cause us. She doesn't want to leave us and was afraid to go to sleep. It's heart breaking. All I could do is cry. She has always been such a strong person and to see her lying there so fragil......
Got to go now, work awaits. Have a good day.
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Good Morning Everyone: I just lost my post. Cant believe it as I said hello to everyone.
Dont have time to rewrite it. Hoping you all have a wonderful day.
Odalys: Big hugs to you.
See ya all later.
Nicki
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Odalys - Glad to hear mom is holding her own. You, your mom and all your family remain in my prayers at this trying time.
Deb - Great news on the genetic testing! As for diagnosing yourself with mets I do that at least weekly. Seems like my new pains always last more then 2 weeks then dissapear during week 3 when I am in absolute painc mode! OMG I hate this disease!!!!
Shrink - Glad your feeling a bit better. As for crying - just let it out. I understand the horror of continued bad news. I have always been super proactive about BC because my mom had premenopausal BC. Yearly mammos starting at 30, monthly self exams, Multiple biopsies of anything suspicious. I was going to find BC EARLY. Well guess what - that tiny lump I found three weeks after a negative mammo turned out to be an aggressive, trip neg, stage 3 BC. I cried daily for months. It really does get better as time goes on - I promise. Hugs to you my dear sister.
Hi and Hugs to all from A to Z,
Sue
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Odalys.. gentle hugs for both you and your Mom...
Shrink, so glad you are feeling better...
Deb.. self diagnosing... yup we all do it.. but on the snow front come on down... really could use a friend....that gets it...
Neesie... you really need to take a break.... running around likea maniac... remember to smell the egg nog... lol...
Vickie.. hugs my cold weather friend...lol... so when are we moving to florida?...
Nicki... now its the holiday and you must stop inmore often.. we miss you...
Kristin.... you too must remember to put your feet up and have a cup of tea...
BMD... good to see you , and how warm is it?... no don't tell me...lol...
missing so many.. hugs to all and prayers all around...
MB...
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Well, I had every intention of going to work. But, I fell asleep at the computer after typing my previous post. I am exhausted both physically and emotionally. There is no way I will be able to go in to work today. I'm going to shower and head to the hospital to check up on mom and dad.
Thanks for the hugs and prayers. I am praying for strength to get through the next few days.
Love,
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Thanks Neesie! I did stand on my son's couch last night. He thinks I'm nuts but at least I keep my word.Now the others are afraid of what I will do when they move out. Keep them guessing,that's my motto!
I still need to finish shopping. Not too much to go though so it shouldn't be too bad.
I am trying to keep an upbeat attitute. I am grateful for all the positives in my life right now. Why do I get in those dark moods? I try not to think negative thoughts but they creep in.I think my DH is getting frustrated with me although he doesn't say it.
He doesn't want me on line because it depresses me when I read that we lost another sister.I just can't explain why I keep comming back to him. I know you all understand.
Odylas-my prayers are with you and your family.
I'll check in later..gotta do some work I guess.......
Joyce
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Odaylas - sending you a hug and a prayer....wish I could do more. Don't worry about work. Take the time you need.
MB - hang in there. Hey, don't you have a party to plan? LOL. Sent you a PM
Joyce- I understand why you keep coming back. I get sad when we loose a sister, but I couldn't stand not knowing how everyone is doing. Big hugs.
Hey Sue....anoter self DX Queen I am still poking my collarbone. I'm sure it's nothing....until 2am...when I am not so sure...you all know the drill...LOL
Hey Nicki- hope you had time for some coffee this morning Sunshine
Kristin - havre a great time in Pittsburgh with the family
Hi Puppy! Good to see you
Neesie- SLOW DOWN!!! I am tempted to come to MI for some snow but that would mean I would have to spend time with my inlaws...OMG...did I just type that?? LOLOL I guess I could just hide in your basement and we could shop... Hang in there girlfriend.
Shrink - hang in there!!! I'm sure you will feel better with out all those yucky drains. You are in my thoughts and prayers.
OK...running short on time....Brenda. Bren, Vickie.....OH, all you silly girls! I love you all....gotta run
Bugs and fishes
Deb C
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Hi Everyone,
I continue to feel really great! Yes, I will be having chemo (Xeloda) for 4-6 months in addition to radiation starting in January. I didn't think I'd need more chemo but the docs want to treat this very aggressively since this is a grade 3 tumor. I hope it works. I found out I don't handle bad news of this kind very well. But you all are a very big help! Thank you.
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Shrink I have done xeloda and its tolerable. Gina might disagree with me though. I didnt have any problems with it. It took several times of flucuating the dosage but finally got it right. keep immodium handy.
Amy
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Hi all,
I went to gastro doc yesterday. One of the polyps in my colon was pre-cancer!!! the others were B9. He says all is well as he snipped it out. I have to have colonoscopies done every 3 years.
For the endo--all benign. I do have a hiatel hernia which he gave me meds for and he says it will heal. Thank God I had that done!!
I am off next week...we close for the week which is nice. I will read one day soon. Holiday stuff giving me no time to read or post. All of you in my prayers everyday.
Hugs and prayers,
Candie
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Hey all,
Ugh, had such a bad day at work. But I guess I should keep it all in perspective...treatment is over and this Christmas will be much different than last Christmas (when I was bald and recovering from my last AC treatment and getting ready for my first Taxol+herceptin).
I saw in the San Antonio Symposium abstracts that mastectomy was better for HER2+ patients than lumpectomy in terms of recurrence. Wish I would have known that a year and a half ago! My surgeon convinced me that lumpectomy+radiation would be just as effective as mastectomy. Well, I guess I cannot undo what is done...just need to keep hoping for the best!
I am way tired....going to bed early....good night all!
*Hugs*
Kristin
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odalys i am praying for your mother hope she is feeling better i had chemo today am really tired but hanging in there thanks girls for all your prayers sheri h how are you doing puppy glad to see you thanks peter i got your card today it was lovely well i am going to try and rest love deb fromky
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Deb -- I'm so glad you checked in and that you are doing better. We are all thinking of you.
Odalys -- I'm so sorry to hear about your mother. I know its hard to lose a parent.
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to tired to post...know that you are all in my thoughts and prayers...I love ya's...
Hugs from A to Z
Vickie
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Here is a video to remind of what is really important in life. Enjoy!
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Good Morning Everyone: Well Im gonna try this again today and hope I dont lose my post like yesterday. Life continues to be very busy and hectic. Didnt get home until after 6pm last night. Im missing my computer big time.
Vickie: good morning sunshine sister. Yep me too - too tired and busy to post. Im going through bigtime withdrawal.
Odalys: That was a very nice site.
Kristen: All the stuff coming out of the San Antonio conference is really upsetting me for some reason this year. I want to know about the new research and new treatments for breast cancer. All I keep hearing is how this or that treatment isnt as good as they thought? Huh? It used to be exciting cause they would have so much new stuff to tell us about.
Candie: Glad those tests were over and all is ok.
Slonedeb: Hoping you have very little side effects to the chemo.
PurpleMB: Its making me crazy not having any computer time. I havent been this busy since I started this job 3 years ago. So many sick people and complicated cases. Seems like everyday I have one or two emergency evaluations. As most places slow down for the Holidays - healthcare has become crazy. What I am most upset about is having to work both Christmas Eve and New years Eve. Thats giving me no time. This week-end it will be baking, cleaning, and wrapping presents. Dang I wish I wasnt such a big procrastinator.
Odalys: Im glad you took the day off to be with your parents. I know this is very hard on you and Im sending lots of love and hugs your way.
Joyce: The last couple of months have been very difficult because we have lost so many sisters. Its been a hard time for many of us. My DH used to tell me not to come on the computer but now he has changed his tune. He is surprised I have spent such little time here and tells me you all have become part of my life.
Shrink: Im glad your feeling good and hoping the side effects to the xeloda are minimal.
Amy: So good to see you. Waiting for that Christmas miracle to come your way.
Vicki: Dearest sunshine sister. We are both running around in a crazy world right now. Sure do miss talking to ya. Hoping you have a good day.
OK - time has run out. The shower is calling my name. Hope you all have a wonderful day.
Nicki
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