TIME TO CIRCLE THE WAGONS GIRLS
Comments
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Good Morning all-
It is 8:45 in the morning her and the sun is just starting to peep over the edge of the world. It is cold this morning and the smoke from my fireplace is just hanging in the air in my yard. It looks like a low flying cloud...kind of neat.
Below is a list of all the people who have sent me a snail mail address for a holiday card exchange. Anyone else want to participate??? I have said I will send the address list out to all the people on the list next Wednesday, so you still have time to join in! The more the merrier.
Purplemb
Susanmcm
Shel38again
Newvickie
Sherndon
CherylG
Lizws
Silvergirl9114
Sige
Spartan72
Snowmen n thongs
Cthomason
K4katz
Lini57
MargaretB
Lynn48
Lv2cmp
Karen1956 Karen in Denver
Ishop1
Csp
tgirl
christineK
RobinKW
I did have a second thought while I was making up the list...does anyone know of any of our sisters that might need a little extra good cheer over the holidays? I was thinking of ladies that might still be in treatment or struggling with mets. They might not have the energy to send out extra cards. I personally would love to send them a card. If you know someone like that (or ARE that person), and have their snail mail address, would you please send it to me? I will make a 2nd list of card receivers and anyone who wants to, can send out a few extra cards.
Hugs to all of you keep WARM.
Deb C.0 -
Good Evening Everyone! Oh my goodness Im so happy. The sun actually came out for a bit while I was walking about. What a difference. I even had a skip in my walk. In my travels, I met a woman who has bc with bone mets. Young - 52 - and of course bald cause of chemo. I stood in front of her bed and said, I was where you are now one year ago. She took one look at me and said wow, you have great hair! So that was the shock of my life cause it still seems so short, but its starting to look stylish.
PurpleMB: Yes please pm me with the recipe. Im really serious about these cookies. Im gonna decorate them to match the individual. Even gonna make one for my husband and have his gingerbread man playing the guitar.
Colleen: OH Im jealous. What a fun day and night. Enjoy, enjoy. Especially the wine. I have a glass of pinot grigio right now.
Robin: The boil thing stinks and of course its cause the neutrophils are 0.9 - same thing happened to me on taxotere. How are the wbc's? Did you get some neupogen or some neulasta? Seems scarier when you are a nurse and seeing you blood tests look like they do. But dont stay away, we miss you.
Debbiefive: So I see you responded when "Distorted Humor" gave you a nudge and said you better tell the circle girls how you are doing.
Carrie and Denise: I have lost track of time. What is happening?
DebC: Ok Idiot that I am. What is snail mail? If I give our my email addy - my husband will kill me. If I give out my home address - my husband will kill me.
Yeah! Like Im scared of him.
Ok. Time to go. Gotta work on the Christmas presents Im making. This is how I occupy my week-ends now!
It really is a nice evening here in the Chicago end of the circle. Chilly, but not so bad if ya have a coat on and sit by the fire. Ive got some homemade French Onion soup. French bread has toasted nicely over an open fire. 3 kinds of cheese.
Amy: Hope your doing ok. Havent talked to ya since the testing. Im a bit worried and Distorted Humor is pacing.
See ya in the morning
Nicki
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hey Nicki
snail mail is the good old US post office. I will not be posting anyones address on the web. I will pass out a list via PM, so you won't have to worry about people you don't know having your address...it will just be the circle girls...and we won't tattle to your hubby if you don't
Just send me a private message with your address if you want to play 
deb C.0 -
ok checking in here after missing out yesterday and most of today due to being severely pissed off. (excuse the language but sometimes no other word works.)
OK I will give a quick catch up and try to get back on later on for an detailed overview.
I go for bone scan and they give nuclear meds and come back in 2 hours. I go to my oncologist during that time. She comes in and treats me like a child getting on to me that she is the doctor I am the patient and I should trust her. Bear in mind she is the one that told me I would have a bone scan in November and I had to bring it to her attention so I am sure that is why that part came up. Anyway,,,I get furious, first of all, I am an adult and treat me like one and second of all, I have enough sh!t going on, the last I need is my oncolgist getting on to me for something she should have followed up on. Also keep in mind for 6 months or more I told my oncologist about my groin pain and was assured it was not breast cancer over and over again. If tylenol effects it, i promise its not breast cancer. Finally when enough was enough and I can hardly walk due to pain I demand an MRI,,well guess what??? Its freaking breast cancer which was no surprise to me. ok so she goes on and on and by this time I am pissed and cant even talk to her, so my partner is doing the talking. She says test are unnecessary and she has my blood work that tells her everything she needs. My partner says well blood word didnt tell you she had mets 1 year to 6 months ago and if she had not demanded the MRI would you have known? Needless to say she didnt like that comment. Anyway, things progressed on and she tells my partner obviously I am sad, my partner says oh I can assure you she isnt sad, she is mad! She goes on and on about trusting your doctor and how I didnt trust her she didnt feel because I went to New York and MD Anderson. I said you know I dont trust you like I did before and I think its time we part ways. She was shocked but I could have cared less. Dont treat me that way. Then to top it off, she rights my report for herceptin and zomata or however you spell it and I had zometa last time. I got in the chair and told the nurse when she went to give it to me that I had that 3 weeks ago. She said are you sure because if so you wouldnt get it today. I said I am almost positive and the other nurse guy looked up and said yes you did on Oct 27th so you cant get that today. The other nurse said now you see why we listen to our patients and not the doctors? I would have loved to call my used to be oncologist in there and say, this is another reason I dont trust you, you cant even put down the meds I need. I didnt do that but I sure thought it.
ok now for the bad part. Get the call today that there are lesions on my ribs and nothing to compare to since I havent had a bone scan since 04. No sh!t!!! I now go for a skeletal survey because I had one of those in August and they can compare to that. Bear with me girls, I will kick butt regardless what it is and I am more mad than anything. Her saying test are useless and now I find out the bone scan shows lesions???? go figure! Some useless test that was.
OK sorry for the rant but still trying to digest it all and I am just typing up a storm and probably all over the place. Maybe I can come back later and give more details.
I am not in the wagon tonight due to excess energy so if you see somebody running around the circle ranting and raving its me. Just smack me and tell me to get over it and move on. I know not to panic until I get the skeletal survey but you girls all know lesions is not a good word.
GRRRRRRRRRRRRRRR! Ok sorry for the rant!
Will check in later! Amy0 -
Evening girls,
Sheri, sounds like youre overwhelmed. So sorry youre having to deal with this. Come to the massage tent. You really need some R & R.
Vickie, darn girl. I hope youre not coming down with something. Take care of yourself. I was wondering what the front of our frolicking guy would look like too. LOL Stay safe and away from the water.
Kristin, sorry about the sick kiddo. Take care not to get it too. I love Christmas lights too. Last year I didnt do much decorating. Hope to make up for that this year.
Madison, our guy is here to make everyone happy! Of course, hes invited into the tent.
By the way, what is libido? I seem to remember it from awhile back.
CherylG, its so fun to click on the map and see where everyone is. Thanks again.
If you use photo bucket its really easy to post pics here.
Tracey, I love the pic of your kitty. Toys? Thats hilarious. Where is he getting them from? Sorry about your daughter. Sounds to me like the mom is a bully as well. Being a teenager is hard now days.
Linda, nice to meet you and welcome to the circle.
Nicki, my theory is if we dont take a break from exercise at times, well stop all together. Thats my story and Im sticking to it. Ive had many tell me how cute my hair is. How nice of you to give the lady encouragement. I saw a lady in the PS office the other day with very short hair. I smiled at her and told her it does grow. She was having her consult for her new boobs.
MB, just a small distraction. After all, it is Friday. Id like your gingerbread recipe also. When you have time email it please. Thanks. Because of you, I worked out again today! Who needs a cell phone when I can picture you in my head shaking your finger at me.
Jeannette, I honestly dont remember where I got that picture. Wish I could. There could be many more!
Sher, good for you taking a me day. Hope the son had a good first day at work. Glad you got a little sleep.
Colleen, wow breakfast was great! What a way to wake up. Have a great weekend. Sounds like a lot of fun!
Debbyfive, so glad to hear from you. Ive been wondering how you are. Keep checking in please.
Robin, so glad the boils are better. Bless your heart. No wonder you had those with the neutrophils being so low. Prayers for you always and hope your weekend is calm as can be.
DebC, great idea on the receiving of cards. Right now I cant think of anyone, but if I do, Ill let you know. This will be fun sending/receiving cards. LOL love that picture.
Amy, OMG! I cant believe your oncologist did that. I would be mad too. If you truly want to get rid of her, send her a formal letter firing her as your oncologist. That way, if she ever decides to say you wouldnt do a prescribed treatment you will have that on file. My oncology nurses said the same thing. They always trusted the patients. Its sad we have to do that, but we do. Run around, rant and rave. Were 100% behind you. Sorry about the possibility but as you said, youre strong and you will beat whatever comes your way. Hugs.
I didnt do much today. Went and worked out and went to my old employer and recorded some radio commercials. I do that sometimes when they need a different female voice. Its fun and I get to play with the dogs out there. Boy, I am craving pumpkin pie tonight.
Hugs and Prayers to everyone.
Liz
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Amy-
I sure won't smack you, but I will pace around the circle and yell with you. It always feels better to have someone yellin' along with you...makes more noise, and you learn creative new cuss words that way.
I am so sorry you are having to deal with this junk. I am sure you will kick the cancer's butt, but go ahead and spend a few hours cussin' out you kooky doc first. It feels good to express that type of anger instead of holding it in. That is always when I like to split wood...take out all your aggression on the job.
Hang in there. We will be here for you.
Deb C.0 -
I have been so busy with Bruce I forgot to check in!
Actually yesterday was so bad weather wise we kept losing power... why our powerlines aren'nt buried is beyond me. We are a waterfront community! The wind BLOWS!
What a mess that storm was! I am glad to see everyone is safe.
I got an interesting letter today from my insurance company. The PET/CT scan they approved and I had done a month ago? Well, the "medical director" of the Insurance Company just informed me that on second thought he "doesn't think it is medically necessary"
TOO LATE BUB!
medical director- he is probably the janitor!
Cherylcy, BEAUTIFUL writing by your niece!
Colleen you are doing Nordic Trak? I tried that once and had to call 911!!
Karen, that sounds like an awesome concert. I am also so happy to hear the effexor is kicking in!
Deb C- girl, I want to party with you! You look SO CUTE and your mom is a doll! I got a chocolate fountain to give to my sister for Christmas in honor of the one she had at her sweet sixteen- it only cost $19.99- I found it at CVS.
Sister Nicki, I just love the pilgrim poem/song.. Thank you for posting it. Now I was thinking, with all your meetings... applied for any upcoming jobs??? hmmm????
WOW Lynne! You sure are getting a lot accomplished! Good for you!
LAURA!!!!!! HOORAAYYYY!!!!! I am SO HAPPY!!!!!
Sheri, I have been in a funk too. I am going to see if MB will let us build an addition to her special tent. We could call it the Disco Funk tent. And we will fill it with all of Deb's liquid fountains! We will go from funk to funky! OK?
Shirley, I wish I could help. I was one of the oddballs who couldn't take effexor because of weird side effects.
Kristin, I am so proud of you! You really are fighting the good fight! You go girl!
Where is Lisa! She is fighting too!!!
Tracey, I have a message from MY cat to YOUR cat
"Honey- you are fiiiine. Are you single???"
What can I say, he fell in love with her picture!
I just love you Susan! You always put a smile on my face!
Amy Amy Amy!
CRAP!
I will join you and run around the circle with you!!! First let me say OUTSTANDING JOB dealing with your doc. I am so proud of you for reminding your doc that she works for YOU.
Fire her a$$! Find yourself a doctor who will give you proper, respectful treatment.
Now CRAP! about the lesions!! but they may not be progression, right? Because you haven't had a proper scan.
We are with you no matter what.0 -
Amy we are screaming right along with you! I can't tell if the tears in my eyes is from reading the posts or from the dust I made sanding the window sill. Hubby surprised me by getting half the painting in the frontroom done today. He did a good job picking out the colors too. An English rose and sand. I can't wait to see it finished.
I got good news today the lab results from the polyps came back B9! Yahoo!
Oh will you just look at the map there are 28 of us on there now! Our circle is really taking shape! It's so nice to see where everyone is! Makes me feel closer to all of you!
I really should try to get some sleep. I just realized I'm really tired. I've been going non-stop.
Hugs and prayers that everyone is safe and feeling better!0 -
Good Morning Everyone. Yes its my day off, and yes I still up early. My body is its own alarm clock. Its another cool, but not cold day here at this end of the circle. Actualy the weather report for this week says it gonna be mild - in the 50's. There have been some Thankgivings here where it has been very cold and snowed. So I'll take the 50's. Its very quiet. Sure am missing the birds singing in the mornings. The only birds left are the tiny Finches that hang around all winter. yesterday I was standing in this huge parking lot and heard a black crow - caw caw caw was the sound. I looked around - of course all the trees are bare now and saw it in one of the trees. Darn they are big. Cardinals hang around too. No wonder they are our state bird. They sure are pretty, but they arnt singing their pretty songs.
So Im sitting by the fire, having my first cup of coffee and just thinking about things.
DebC: Ok so now I understand what snail mail is. Your cartoon was funny. So my dilemma still is, my husband who will have a fit if I give my address out. But I have thought of a solution. So I will pm you with an address later.
Amy: So what was up your oncs butt anyways and what the hell is wrong with her! Another pompous ass doctor thinking they are God and dont be challenged? Geez! I have heard many times that blood tests are guides but not very accurate. So what wonderful blood test is she talking about? Tumor markers? I mean does she have a blood test no one else knows about that tells you everything? Yes she is the doctor, but you are the one with bc and you must be your own advocate. Sorry if this sounds crude, but people die all the time because they just did what the doctor said to do. We have a right to challenge what we are being told. And she had alot of nerve talking to you that way, especially because you are scared and dealing with mets. So what was she in a snit for. Cause you went to MD Anderson. Sounds like she is an insecure person to me. So Im glad you told her its time to part ways. You need someone you CAN trust, and someone that includes you in part of the decision making. Never, ever back down. In fact a new doctor, with a new set of eyes sounds pretty good to me. Im sorry about the lesions in the ribs, but geez, who knows they may have been there for a while - not new. And what if these lesions were there before, but more of them and the chemo has decreased their size? OOOOH im so angry right now. But you missed the best part. After you left her office, Distored Humor left a big pile of crap right outside her office door. She was walking in a huff, slipped and landing in a big pile of horse crap. Yep all over her butt and hands. Stood up to push and used her hands to push her hair away and guess what - she became sh#t faced. Served her right. It was pleasant for her let me tell you - fed Distored Humor beefaroni - and oh yes it smelled pretty bad.
Liz: How are your in laws doing? I may have missed exercise yesterday, but its Saturday and I have all day to do what I want. So I think I will double my time on the treadmill today to try and make up for it. Woke up last night again with the munchies. Shoved 3 chocolate kitkats down, oh and had an ice cream sandwich. I cannot have sweets in this house! My husband was trying to be so helpful. Got some fresh broccoli, cut it in bite size pieces and made blue cheese and french onion dip. Now I could have munched on that and stayed healthy - but noooooo not me. Oh well, at lease I cant do the same thing today. I finished all the kitkats. No more in the house to eat.
NS: what a jerk that Medical Director is. But think of it this way, what kind of doctor is he anyways. Probably not good enough to have his own practice. You got it approved, and had the test done. I really think there are some ethical and legal issues going on with your insurance company. Whenever I get upset with my insurance, I write a letter to the Attorney General for Insurance Fraud. They dont like to get investigated. Believe me its a big headache. Ya know one of the reasons our insurance rates are so high is that they are paying nurses and doctors to review charts and look for ways to deny coverage. How or how do these people sleep at night?
Cheryl Cy: So glad for the B9 results. My goodness your just going to bed, close to the time Im getting up.
I just realized how close Thanksgiving is. My husbands birthday is Monday, gotta go to a TK dinner Tuesday at the nursing home where my brother is, and then Thursday is big Turkey day. I sure hope this year I can eat the Turkey. Last year, cause of chemo, I could even stand the smell. Have had issues with poultry since then. But hey who cares - Im gonna eat lot of pumpkin and apple pie. Oh there we go - those darn sweets again.
Hope everyone has a wonderful Saturday.
Nicki0 -
Amy, what an awful experience. Definitely find a new onc. I can't believe she didn't even check your chart before ordering the med. That's scary! I think Nicki's horse took pretty good care of her.
I heard someone mention they go to Curves. I got a two week free pass, is it worth trying out? Maybe some exercise will help my funk.
NS, I like the tent with all the fountains. We could just sample whichever we feel like it. I may never want to come out!
I love the holidays, but it does seem to add some extra stress. I'm looking forward to sending out Christmas cards, and of course getting some, too.
My financial situation right now is my fault. I take care of all the bills and have to juggle them. Well, after my dh and I got paid this week I thought I had enough $$ to get caught up on a few things and paid too many at one time! Pretty dumb. Now there's not going to be enough to get through until next pay day. What a mess.
I may be buried in the no blues tent for quite awhile.0 -
Thanks Nicki And Liz for the kind words.I will try and be back to the tents more,now that I can walk.I am on Neulastin,and the wbc were low but not very low.
It is very scary being a nurse and knowing what everything mean.
My onc commented on my thinning hair last week also.Yuck,,He also wrote me an rx for a wig I am gonna get a good one this time.I thought this was all over and donated all my hair stuff to the rads center where I went.No looks like gonna have to get some more head gear.
You girls have a good weekend.
Amy:You will be in my prayers also.0 -
Good Morning Girls. Another weekend. Hmmmmm wonder how many episodes of 24 I can get away with. Both hubby and the kid are working so it's just me and the tube. Can't watch it when hubby is home. He hates it. He says its unrealistic. Well duh!! And its a heck of a lot more entertaining than watching cars go around in circles.
Colleen, I get my meds from my gyn. I whine a lot.
Love banana muffins, thanks. Hope your weekend is grand.
Debby, waiting with you, holding your hand. hugs
Robin, glad your legs and foot are healing. My nuetrophils are always sky high. I'd be happy to share.
DebC, I would love to do the card exchange but I will be gone for most of December having fun in the sun. Next year. Love the cartoon.
Nicki, what a joy to be able to encourage someone.
Double timing your workout will only make you sore. Just pick up where you left off.
Amy, hugs and more hugs. This doc sounds not only arrogant but incompetent as well. Good riddence
Liz, I had a good me day. Seriously considering how I can get away with another one. Maybe rush rush rush for an hour or so tidying up my very messy wagon. O wait I know. Grandsons bday is in two weeks and his quilt is not done. I have to sit to finish it. Yehaw!! I love good excuses.
Sleep still broken. It's gotta be the effexor. I am taking it in the morning and ambien before bed. But have woken up every hour for the last two nights. I'm gonna give it two weeks. Would rather have the flashes and sleep thru them with ambien then no flashes and no sleep. I am not nice when I am tired. Have to admit tho, the no flashes is truly grand. I forgot what it felt like to have a normal body temp.
NS, Our lines are not buried either. But we are in the mountains on bedrock. They tell us the cost would be astronomical. So we deal with the power going out every time there is a strong wind.
Don't get me started on insurance companies. They top my hate list. Our insurance company (not medical) that we have been doing business with for 22 years, just canceled our home owners policy because......we live in a forested area. How stupid is that.
The weird, of of body feeling is gone but I have had a raging headache for 3 days now. Bad enough that I took one of hubby's vicodin last night on an empty stomach. OOPS bad idea. Puked my guts up. And that only made the headache worse. I'm sure it's from lack of sleep. Sometimes this "new normal" just plain sucks.
Cherylcy, good for hubby. pictures please.
Sheri, been there done that. hugs
I go to Curves 5 days a week. I love it. They use resistance machines so it is as strenuous as you make it. Not a good cardio workout tho. The cameraderie at my Curves is amazing. I have made a lot of friends there. Our ladies range from teens who come with their moms to our oldest member who is 82 I believe. She is a hoot.
Anywhos. Try it out for the two weeks.
Off to do the dishes so I can sit without guilt. Sort of. hehehehehehehehhee
Have a great day.0 -
hi ladies,
its me snowmen_n_thongs...
i knew i had a another account but couldnt remember how i spelled my name......lol
so which account should i keep? this one or my snowmen_n_thongs????
tracey aka snowmen_n_thongs
yes i was bored at work today and had nothing better to do
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I like your avatar, I think I would miss it. Your screen name always makes me smile (snowmen n thongs). I say, Keep it.
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ok this account wins
if i can make one person smile then its definately worth it...ty sherndon
xxxxx
tracey0 -
i must of got drunk one night
i found this one to,,, yes its still me snowmen_n_thongs
going to keep my snowmen one but i wonder how many more accounts i have??
i think this is it
tracey
i am really bored at work.....lol i just about fell asleep 0 -
Hi girls,
Hope everyone is having a relaxing day. Its a bit cool here but better than it has been. The grocery stores here are nuts! Everyone is running around like all the turkeys will be gone in a flash. Soooo I picked up what I had to have and headed home. Ill try later at night or on Monday. Still not sure what the plan is for Thanksgiving anyway.
NS, I would have to call 911 also if I tried a Nordic Trak. I can just see the guys coming in and laughing. I know a lot of them here.
CherylCy, I hope youre getting some rest. Going non-stop isnt good for you. Take care of you. Hooray on the biopsy. Great news!
Nicki, weather reports say it will be 80 degrees here on Thursday. I was just about ready to put the summer clothes away. Here we go again. Okay, no more candy in the house kiddo. I bought some Russell Stover breakfast bars that have 1 net gram carbs. They are wonderful! Give those a try. The in-laws are doing pretty well so far on their own. My sis-in-law (who doesnt work) was supposed to come back with my dh yesterday, but she had given notice to vacate her house by the end of the month. However, she didnt pay the full months rent so she has to be out by this weekend. What the heck did she expect? Im sorry this sounds mean, but shes about as useful as tits on a boar. Even when shes at the in-laws, she doesnt do anything. Okay, thats my rant for the day. Grrrrrrr she frustrates me to death. The MIL is getting around great since the kyphoplasty and my FIL is having laser ablation of a bladder blockage on the 27th. Ive gently stopped doing a lot. I dont want anyone depending totally on me.
Sheri, Ive done that. Paid something and then realized I screwed up. Hang in there.
Robin, youre very welcome. Good for you for getting a good wig. You deserve it. Big hugs.
Sher, as weve talked about before, I love NASCAR racing. My husband says the same as you do. What is so fun about watching cars go around in a circle? I never watched it pre bc. My son swears something in the chemo made me where I liked it. LOL Of course he lives and breathes college football. Glad youre taking time for yourself. You deserve it.
Tracey, Ive always loved the snowmen-in-thongs even though Ive called you Tracey for awhile now. It makes me smile. I can just picture making a snowman and putting a thong on him. LOL Sorry its a boring day at work.
Mena, think of you often. How are you?
Peggy, Denise, Carrie and everyone else whom Ive missed let us know how you are please.
Hugs and Prayers to all,
Liz0 -
Good Evening! How is your Saturday? I have been working on my next craft. This one is plastic canvis too. Its a kleenex box that looks like a chimney. Red bricks and all, but my fingers hurt so Im taking a break. Its been a nice day so far in this end of the circle. No sun, but still nice.
Sheri: Stress? Holidays? Holidays? Stress? Hmmm are they connected? Even though they are wonderful Holidays, they are definitely stressful.
Robin: Definitely go for the expensive wig. I did hats, but I swear if I had to go through hair loss again I would have a nice wig. What hair I had left from my A/C which wasnt alot, I lost on taxotere. Glad the boils are healing. Hope those neutrophils come up soon. Yes, very scary being a nurse and interpreting your blood tests results. Its like you cant believe its you.
Shirley: You might be having side effects to the Effexor. I couldnt take it. Then tried Zoloft and failed at that one too. Finially Lexapro seemed to agree with me. The headaches might just be the Effexor. Oh vicodin nausea, thats the worst. I cant take it. The only pain med I can take that doesnt cause nausea is Darvocet. When I said it take 2 weeks to get used to, it doesnt mean 2 weeks of being miserable. So maybe call the doctor if the sleeplessness and headache continue. I did pretty good with my exercise today. Added a couple of more songs to dance to and walked one mile instead of 1/2 mile on the treadmill. Dont feel sore - thank goodness.
So my husband brought out pictures from our 25th annviersary. That was 3 years ago. I had great boobs and beautiful long hair, but ya know what. Im fat in the pictures too. When I look in the mirror I guess I see my self still as a young chick.
Tracey: Oh I vote for snowmen in thongs. Thats how I have known you now for such a long time. Although Santa in thongs might work lol.
Liz: Oh my. First of all Im feeling guilty cause I should be putting my summer clothing away right now. My closet is bulging! Glad your in laws are ok. Your SIL sounds like something is missing upstairs. Can you imagine having to move the week-end before Thanksgiving? My very good friend who has lots of money wanted to take me to Florida with her this week-end but I had to decline. Gotta spend this year with the family. Last year was awful cause of chemo. Im lucky. Going to my SIL and the only thing I have to bring are my Italian sauteed green peppers. And since I have to work Friday, I might get out of doing the dishes. My husband and I are taking separate cars. He has to play at a pub TG night. So I might just sneak out - safe at home once again.
Madison and Sheri: I have heard that curves is great. My problem is how do I work it in with my work schedule. They arnt open at 5am and Im too tired after work. Motivation and discipline. All I know is on Thanksgiving - all rules are off. Im eating everything and anything.
Robbie: JMO thanks but no thanks. Hands on healing? I think we have that going on right now in our spa tent. Im not fatigued anymore. Im just lazy.
Shirley: OMG so good to see you again. Glad you came back to the circle. Yes, I know for sure on any given day, I will laugh out loud.
Two Shirleys? One sherloc!
OK Another long lost friend. Nanium where are you? Miss hearing from you and hope everything is ok.
Ah well, my fingers are rested. Time to go back to making presents. At this rate I will never finish enough presents for everyone.
Have a great evening and Ill see ya in the morning.
Oh - for you football fans, the Ohio vs Michigan game is pretty darn good.
Oh and Shel? where are you hiding?
Nicki0 -
Hello,
I just returned home after visiting my elderly parents. They live 2 hours away and I do go to check on them almost every Saturday.
Tracey, I think snowman-n-thongs is a keeper. I am from the deep south so I really have a vivid picture of a snowman wearing thongs. If we ever had snow down here I would have to put thongs on the guy.
Amy, fire the onc. I hate it when we are just a name on a chart and no follow-up is done. Take control. I fired my first surgeon and IT FELT GOOD to fire her a**. She kept calling my by some other name (which made me wonder if she even had the right chart).
Shirley, do you like Curves? There is one between work and home that I was thinking about joining. Do you recommend joining?
CherylCy! Good news. Was it a colonoscopy you had done?
Robin, I hope things get better and you feel better.
Sheri, hang in there. All my final medical bills are coming in this month for payment in December. I had a bad gut feeling they would all come in now.
Deb, I sent you another pm. I even know how to do it now!
Gotta go. Time to fix dinner for dh.0 -
Hope everyone is having a good weekend. I stumbled on to this Trial and thought someone might like to give it a try. It seems its 2 years old, but was updated this month
USCD Study on Fatigue AFTER Breast Ca Treatment
Fatigue is one of the most common complaints among breast cancer patients and survivors. Large-scale studies show that over 1/3 of survivors complain of excessive fatigue even up to 2 years post-treatment.
Hands-on-healing is a complementary medicine technique that has been shown in a few studies to reduce cancer-related fatigue. However, no studies have examined whether hands-on-healing may have positive effects on immune system functioning for survivors, compared to touch alone.
This UCSD research study, funded by the National Institutes of Health (NIH), examines whether one month of hands-on-healing effectively reduces fatigue and improves immune function compared to touch alone.
All survivors enrolled in the study will receive hands-on-healing treatment at no cost to them.
You may be eligible to participate in this study if:
· You are a female breast cancer survivor
· You were diagnosed with stage I-IIIa breast cancer
· You have completed surgery, radiation, and/or chemotherapy at least 1 month ago and up to 1 year ago
· You are still feeling fatigued
If you are interested in learning more about this study or would like to volunteer, please contact: Shamini Jain, M.A., M.S. Phone: 619-543-7913 Email: sjain@ucsd.edu
Posted 20060 -
Hey ladies. I haven't been here in a LOOONNNGGG time, but had to drop in and be nosey.
You guys crack me up. It's so nice seeing everyone get along and laugh when most people would be crying.
Amy, you're onc is definitely a jerk! You have such a good sense of humor. I love the idea that you are MAD as he!!.
I can just see you running around like a lunatic. What you are dealing with is not funny however, your post made me laugh. You ARE going to beat this!
NS, I'd be calling 911 too. Heck, if I'd just get on that treadmill I'd be happy. And are power lines EVER buried? What if a contractor cuts one. Heck, they're always cutting the cable or telephone lines and every so often gas lines.
Robin, so sorry to hear all that you are going through. AND, you're keeping kids!?
One more, Snowman, yep, you have to keep the "thong" name. It's just too darn cute.
I'm off although I haven't read all the posts. It would take me a couple of days. Have to fix din din.
Shirley
You ladies are amazing.0 -
Good evening circle girls.
Have been just whiney and miserable all day...crying and the works. I am so terrified of all this coming back and biting me in the ass again. Took a Xanex and me and Nathaniel went out and hung our Christmas light on the front porch...got blue icicle lights, sparkling snowflakes and this neat ball that sparkles from a girl at work. Frozen solid but feeling better.
It sounds like me and Sheri are still in the blues tent though...think I need a dose of Harrison Ford but not sure if that would work either.
Deb...I am so excited about the card exchange...I have started working on them already...just inside messages. Gives me something to do except worry. I think that our girls here who can't send out cards should sign up anyway...I'd be happy to send and not receive...truly!!!
Oh..Tracy..keep the snowman in thongs...it makes me smile!
NS...glad to see you peeking out and joining us and giving poor Bruce a break...your gonna wear him out.
Theresa...um...are you still with Matthew...time to share!
Robin...get yourself the most beautiful wig you can find...you certainly deserve it...call it an early Christmas present to yourself.
Nicki...would love to see pictures of your crafts...I love to craft. My current projects are chemo caps and scrapbooking. I have decided it's time to work on my daughters wedding scrapbood since she's been married a year now. I haven't been able to do it until now...all those pictures of the "before" bc kind of hit me in the stomach.
Shirley and Liz...I stayed high and dry during the storm. The drive home was pretty scary and there is a lot of damage in Broome County once again. So sad for all those effected in June to no sooner get back in their homes and have this happen all over and so close to Thanksgiving. Stomach is ok now...not as achey...I starting taking Centrum vitamins and think that may have what upset my stomach...so many weird things make me sick now. Cannot touch Pepsi and it was my early morning staple for years! Who knows.
My poor daughter called me several times Friday...had a terrible toothache and had a dentist appointment. She is literally terrified of the dentist. I hate the fact that she's so far away. I talked her into keeping her appointment only they couldn't help her, she has an impacted, infected wisdom tooth. She also has VonWillabrands disease (which is a bleeding disorder like Hemophilia) so she has to go to an oral surgeon for a consultation on the 29th. They will probably have to do the extraction in the hospital because of her bleeding disorder which doesn't bother me in the least but I'm not sure she'll be too thrilled. She has type A VonWillabrand which is the most serious and if doing the work in the hospital is safer it's right where I want her to be...send some prayers for her if you can...please.
I think half my funky blue mood is just the fact that she's so very far away and it's Thanksgiving but she called me tonight to tell me that they will be visiting May 11 for a week!! She said it isn't definite yet but they are pretty sure that they will be here.
Moscow Russian Nutcracker tomorrow at 3...yippee...can't wait. I'm going to Ithaca early and doing some shopping...RETAIL THERAPY!
Need to find something really special for my sister for Christmas...really special as she took me to ever single chemo treatment and took care of my son while I was in the hospital. She did so very much...she loves horses and dogs but I want do find her a forever keepsake.
Love ya all...missing a bunch of you but your all in my prayers.
May be back later...may fall asleep!
Vickie0 -
Oh, don't get me started on the medical bills! I don't think they'll ever be paid off.
So I have to share this with you all. I was feeling really down this morning and seriously wondering how we are going to get through the next couple of weeks and realized I wouldn't even be able to pay for the gas to drive to AL for Thanksgiving. That's been another stresser. We usually have a half day before Thanksgiving, but they didn't do it this year, so I've been trying to decide if I leave Wed after school and get there around midnight or leave early Thurs AM. My dh has to work, so it's all up to me. I finally decided to go Thurs and get a good night's sleep before when now I realized I wouldn't be able to afford the gas. I emailed my parents and explained that I made some bad financial decisions this month and didn't plan ahead very well. I stressed that I WAS NOT asking for money, but would have to pass on the trip down this time. I am trying to be responsible and not depend on Mom and Dad all the time (I am 46, you'd think I would be responsible by now). I cried and said I couldn't call because I was feeling too emotional right now, but would talk to them later.
Well, you guessed it. My dad emailed me right back and said he sent a check for gas today. Now I'm really a blubbering idiot. He said it was for them, not me. The thing is, I would do the same for my kids in a minute, but I really didn't want him to feel like I was asking for money.
I guess we are going to Alabama for Thanksgiving!0 -
OH Sheri...go tol Alabama and have a wonderful happy time. Don't feel guilty about the money. Trust me...if my daughter called me and wanted to be here I would send her the last dollar I had just to spend Thanksgiving with her and her husband. And...it would be as much for me as it would be for them.
Hugs and praying for you to have a very special holiday...drive safe and have fun. Leave the blue tent behind.
Vickie0 -
Snowman gets my vote. He has been thru to much to just end his life in the recycle bin.
Liz, I'm happy with NASCAR till the M&M car crashes and since thats every week I'm rarely happy
OK Nicki, I'll give it till monday. If the headache is still here I'll call the doc.
You see a young chick, I see my mother. And that my dear is frightening.
Madison, yes I would recommend Curves. I love it.
Robbie, will have to look into that study. Wonder what hands on healing is?
Hi Shirley, nice to meet another.
Vicki, praying for your daughter. How scary. Sounds like a hospital is the place to be.
Sheri, Daddies are grand. Have a wonderful Thanksgiving.0 -
Ive had a special day.
VERY long story at least a little shorter, very good friends of mine bought the property right next to us to build their house. They sold there old house and moved in with her in-laws. They are building the house themselves. About 3 months ago her MIL kicked them out of her house, so her mom bought a 5th wheel trailer for them to live in until their house is finished well, they have had a series of bad breaks. Things have taken WAY longer than they though, they have all been sick. They have two boys, one is 11 years old and one is almost 3 years old. The 3 year old is disabled ANYWAY; the weather has been below zero for almost 3 weeks. Everything on the 5th wheel keeps breaking, the furnace died, the water froze up so they were packing water from our house finally 3 days ago their septic for the trailer froze. After weeks of nagging I finally talked them in to moving in with us until the house is livable. SO
Today I rounded up about 12 people to help them put up the sheetrock in the house. They never want to ask for help, but I told her that I had to learn how to graciously accept help from people who loved me, and that they NEEDED help this time. So she let me call every one. I made a huge chili lunch and kept all the kids here at my house. They made a ton of progress on the house. It made me feel like ME again!!! I got to help someone else after a year of being on the receiving end of things. Boy it felt good.
Doing this did more to cure my case of the blues that anything else has kind of cool how that works sometimes all I need to do to feel better is quit focusing on myself and do something for someone else.
I have not had time to read all the posts hope everyone is doing well this weekend. Ill catch up and post more soon,
Hugs,
Deb C.0 -
Deb, how very sweet of you to be of so much help. I'm so happy that YOU feel better. Seems you had some good therapy. I bet you're tired though. But a good tired.
Shirley0 -
Hi Girls!
Haven't had much time to post. Was working on my website and it crashed
The files for our map are still sitting on my computer but can't get it back onto my webpage 
I am so mad! I had 30 posts to it already. I will work on it some more but may have to start all over again and use new name. Will let yo know tomorrow.
Hope everyone is well... prayers and hugs for all who need it
Cherylg0 -
hey ladies!!!!!
i've been in a big old funk and i decided not to post anymore unless i felt "cheery".
so i'm feeling ok and wanted to check in......i couldn't keep track of everybody so i'm going to second cheryl........hugs and much love for all in need! and i'm always feeling your hugs and love in return!!!!!
gotta get up at 7am for my nephew calvin's hockey game so g'night all.........i send you all my best! i heard there was a blues tent with fountains and stuff.......i'll bring my corona fountain and my best pitious story and i'll be there after hockey!
shel0 -
Oh Cheryl! I hope you didn't lose everything!!
For the Record, I vote for Snowmen in Thongs!
Liz, Shirley, and Sheri, LOL! I thought I was the only one wanting to call 911!
Once I took a spinning class. It was my FIRST one. The instructor put on that big band song "Sing,Sing, Sing" which goes on forever. It was the end of the class too- She then kept making us go faster and faster- Finally I just screamed
IS THIS SONG EVER GOING TO END???!!! I was brand new there but EVERYONE else was like THANK YOU! We are about to drop dead too!
Thanks for the tip Nicki. If they suddenly decide to bill me after they approved it then I will take action. We used to have Eliot Spitzer as our AG- HE WAS FABULOUS. He helped me and he helped other girls I know so many times. He really went after people and corporations. But now he was just made our Gov. I am glad he is our Gov- and I voted for him- but i am sure going to miss having such a fighter on my side!
Sheri, I am so happy you can go to Alabama. I screwed up my finances this month too- plus a client is late in paying. It does not make for a nice time around the holidays!
Shirley, they just told me I can't get Flood Insurance here. They decided to redesign the maps and the number of feet you are from the water and change it. I was in a safe margin before but now, no way.
Hi Robbie, this must be a follow up study they did to last year's. That one showed that years out from chemo you can still be fatigued. Lord knows i am years out and I still get chemo crashes. Thanks for posting it.
Deb, I finally remembered to PM you my address! I just love your story. You really are an angel disguised as a person walking around this earth- you know that?
Dear Vicki,
I know how you feel. It is so hard. But here is what I learned to do. When I feel that way I ask myself Did I do everything I possibly could to get rid of the Beast? And the answer is yes. So I have learned to let some of it go. You just have to - otherwise it can consume you and you wind up thinking only about cancer. That is what happened to me. But I realized that if it DID come back then when I looked back on the time that passed all I did was live like it already was back because that was all I was thinking about. So now I try really hard to look forward, to leave the rest to faith or fate and live like it isn't coming back. I know it is hard because it STALKS us. I have all these friggin tests that still have to be run to see if it is back in my lung and thyroid. But for now, no one has told me it IS back so I am going to just keep moving forward.
I spent almost two years stressing about it so I really can relate to how you feel.
When I wasn't with Bruce today I decided to paint some more in my house. This time a spring green with a bright white trim. It looks so crisp and cheerful in here that it DID make me feel better!
Checking the fountain tent before I make my rounds.
Love you Circle Girls!0
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