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Illinois ladies facing bc

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  • donnadio
    donnadio Member Posts: 674
    edited September 2009

    Annette.... AWESOME NEWS!!!!

    Susan...Laughing,.. some kids  SAID You look like you are in the Military.I was thinking , since I am there all next week.. YES, I was a teacher over the summer in Afganisitan!!! Look forward to meeting you Saturday and everyone!!!

    Hope all is well and may the fog lift so we can see where we are walking,..lolol

    Donna

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2009

    Good mornign everyone!  I am up and moving and even have a green bean casserole in the oven.  Our church is involved in a funeral dinner today and the casserole needs to be delivered mid morning. 

    Annette, I tried to email you about your good news but it bounced back to me.  I rechecked the address and don't understand why it didn't go through.  Anyway, at the time I read your news I had tears in my eyes.  I am so relieved and happy for you.  Now you can finish up the Herceptin and be back to living your life.  Hugs to you!

    Laura, OMG, I'm so sorry to hear about hubby's job.  That would be very scary right now and is definitely something nobody needs.  I agree with Wendy's quote.  When God shuts a door, another one is opened.  Sometimes it just takes a bit to find that open one!  Hang in there. 

    So Connie....how'd the birthday go?  I hope you had lots of fun celebrating, both at work and at home.

    Tanya, still feeling pretty good today?

    Jennifer....so good to hear from you and to learn that all is going well.  Keep in touch!

    Michele101....how are the boys doing and how is Mom doing now that they are gone?  I think of you often and always enjoy seeing a post from you.

    Blackjack, it's hump day today!  You're half-way through the week!

    Well, I have lots of things to do today...(unfortunately no golf!) and I'm ending my day with a visit to the friendly chiropractor.  Hopefully this will be the last trip there for awhile.

    Hugs to all of you.  It's not raining yet here but it's VERY foggy.  Have a great day!

    Rita

  • illinoislady
    illinoislady Member Posts: 40,996
    edited September 2009
    Not what we have, but what we use;
    Not what we see, but what we choose;
    These are the things that mar or bless the sun of human happiness.

    Joseph Fort Newton
  • conniehar
    conniehar Member Posts: 585
    edited September 2009

    Congrats Annette!  That is great news!

    Jennifer - Happy cancerversary!  You made it!  It will all be uphill from here!  I remember having mixed feeling on my one year - I remember that dx day so well and it was so emotional, but I was so happy to still be here one year later.  I am now 2.5 years out and sometimes it still seems like yesterday and sometimes it seems like lightyears ago.

    Laura - so sorry about DH's job!!  What field is he in?  You will be in my prayers as that is a stressful thing to go through. 

    Birthday was nice.  Got home from work to the smell of baking - my daughter had made me some chocolate chip muffins (I'm not a cake person so DH knows that I wouldn't eat it).  The muffins hit the spot.  They put 6 candles in one - 4 on one side and 2 on the other (42 - get it?)  We are going to a Japanese steakhouse tonight for dinner as we didn't have time for dinner out last night.

    Hugs.....

  • illinoislady
    illinoislady Member Posts: 40,996
    edited September 2009
    Not what we have, but what we use;
    Not what we see, but what we choose;
    These are the things that mar or bless the sun of human happiness.

    Joseph Fort Newton
  • zap
    zap Member Posts: 1,850
    edited September 2009

    Laura, I know it stings now but I am chiming in with Wendy and Rita that indeed something even better may turn up for you and DH.  Never-the-less, I am so sorry and I know things are dark right now for you. You are for sure in my thoughts today.

    Annette, so relieved for you.  Good heavens what we all endure!

    Rita, have you considered bringing some ice packs with you as you travel in the car?   You could bring one of those coolers.  I could have some waiting for you at my house for your trip back.  Does ice work for you?  I know what you are saying about the car.  You are sitting right on the darn problem.  Perhaps if you put the seat down it might help.

    My grandchild was born with a cataract, so it can occur early.  Because of her age, there is a possibility it will heal on its own and it is clear (no pun intended) that her vision is just fine.  She sees a pediatric eye doctor  every six months and the drops are just miserable for her.

    Have a great day.

    Susan

  • illinoislady
    illinoislady Member Posts: 40,996
    edited September 2009

    OMG....this better be good.  I have lost my post about four times now.  Laura, I am so sorry that this has happened to you and your husband.  Who'd have though, huh!!!  Not that it would really help, but I did read some time back that repercussions would keep coming for some time after things seemed to be on the up-swing in the market.  My heart goes out to you and you both will be in my thoughts and prayers deeply.  I do believe though that a CRISIS really shows us  of what we are made.....and that sometimes, it takes a big shake-up for us to wake-up to opportunities and possibilities that we would never have considered.  So often it is easy to leave the status-quo alone feeling that it is dis-loyal after several years to even give thought to leaving a job  -- who thinks the job will leave you instead.  Take deep breaths, remain calm, explore all avenues, and don't neglect to check into even those things that seem a bit far-fetched.  Their may be a hidden kernel that turns out to be just the ticket. 

    Annette, I am so very happy for you.  I read/lurk on another bc blog and so many of the women have talked about the lung nodules and abnormalities they have which are benign nodules, old pneumonia scars, and are nothing to be alarmed for at all -- but they all were at one time.  Now you really can go on and finish up those few txs knowing that they are working wonderfully and no monster is alive inside any more for sure.  Happy, happy B-9 to you and I just tool 5 deep breaths in your honor.  I highly recommend it...and your lungs will be happy you did. 

    Jennifer...hooray for you as well.  No more te's and an anniversary too.  Got to thinking that it was this month but 2007 when I got my bad news and went into freeze frame mode........and stayed there I don't really know how long....thru quite a lot of my chemo txs I think.  An un-pleasant memory will sometimes pop in and make it feel like just yesterday but other than that, often like today I am surprised at the amt. of time that has elapsed since the freeze frame ended and I have been living my life just as I did before I was diagnosed, though I will never quite know that BLISS again. 

    Wendy, I too found out some time ago that I have beginning cataracts......and my Dr. said to me that they would take years to ( ripen ) enough to need surgical intervention.  My only concern is my very, very lazy left eye.....so hope the right one "ripens" first.  I could be wrong but seemed to me that the eye color helped determine who got cataracts and how long it would take to need care for it as well but I could have that last sentence quite wrong.  We shall SEE. !!!!

    Connie.....I think I would have made you a birthday pie --- but CChip muffins don't sound too bad either. 

    Donna....at four months your hair will just get better and better.  I remember thinking it was taking forever for my hair to come back and I wore it spiked for quite some time.  It was such fun to discover one day that it was way too long to really spike anymore.  Lots of people felt I should just get it cut and keep wearing it that way.....and I considered it, but I didn't really think it was truly me so in the end.....since I got my **own** and I do mean my own hair back.....as thin and fine and slightly darker brown than it originally was I decided to go try a perm.  I needed the body that would provide and I did not come close to having enough gray ( it seems to only be on hair tips ) to consider coloring it.  I'm not a big fan of color....but who knows, I may get there at some time. 

    I'm going to get some breakfast and send this post before something else happens.  Hope you all have a good day.......and Laura, hang in there.  A little deep breathing is in order for you too.  You need the calmness. 

    Hugs, Jackie

  • elf_song
    elf_song Member Posts: 148
    edited September 2009

    Good afternoon, Ladies~! 

    Connie- Happy (belated) Birthday~!  I am excited to meet you and your daughter!!!  Have a good dinner at the Japanese steakhouse tonight.. yummy~!

    Jackie- Happy belated and really belated Birthday to you too~  Tongue out

    Wendyk- omg~~ that is such cute card...  My son said, look mommy, his picking his nose, yuckie~   haha...  I wish I can meet you on Saturday walk..

    Donna- I can't wait to meet you on saterday~!  

    Buddy- I wish you could be at walk too.. I'll be thinking about you on Saturday..^.~* 

    Susan- that train trip sounds fun from Chicago to Springfield, IL  Maybe we should get on that train..

    Annette- that is GREAT news~~~  I am HAPPY for you~!

    Jennifer- Yes, we are BIG fan of Trains~!  My three boys are so call choo choo bodies..  Congrats~!  on your one year mark..  I was dx on September last year too and I still have my TE in my left chest... Yell   

    Laura- You and your husband will be in my prayers.. 

    I am getting more excited since walk for cure is only few days away..   I will probably sobbing when I meet you ladies, omg.. omg..   happy tears~  omg,  I better bring box of tissue or two Kiss

    EJ

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2009

    EJ...I still cry at the walk!  It's very emotional with all those pink shirts and some of our most favorite people who are wearing them.  We'll just all have a good cry together!

    Susan, my car seat is heated so I'm hoping that helps.  I'm going to the chiropractor in just a few minutes and I'll ask him what he suggests, too.  I know I'll do O.K. with the walking once I get straightened up!  LOL

    I'm really looking forward to seeing all of you again and meeting those of you that I haven't had the chance to meet!

    Rita

  • donnadio
    donnadio Member Posts: 674
    edited September 2009

    Laura...  YES.. another door will open.. just beleive and trust!!!!As hard as that is, it will bring you thru to a something maybe not the same but better overall.'

    I do hope I find everyone at the race!!!! I think i  will register to walk now.. i had no idea it was so easy to do.. i was goin as a friend was doin a race in my honor.. my DH is coming and most likelly will not be walking as his knees are terrible.. so one way or the other. I WILL FIND my No Surrender Friends!!!!!Crying already!

    Jackie.. thanks for the hair advice as it is goin really slow.. but it is thick as a mop and cannot spike it as it is so thick!!!! IT will be 4 mos Oct. 10!!!!People actually like my short hair style. and can pull it off as i have a small face!!!

    Also, had a pelvic ultra sound today to use as a future baseline. A fibroid of sorts may have been found but IT  all sounded ok..DR's review it and then will call by Friday.

     Hope all is having a good HUMP day and will see you soon!!!! Those in TX or taking tests... etc.. healthy and healing thoughts being sent!!Tanyar..glad your exchange went well!!

    Donna

  • buddy1
    buddy1 Member Posts: 529
    edited September 2009

    Laura.  Hang in there.  I am so sorry.

    Elfsong.  Thank you.  I wish I could be there also.  I am not a downtown girl...at all..

    I would get very emotional if I were there.

    I went with a friend to have her port removed.  It was very cool,  kinda gross.  I held her hand.  She was very brave.

    Do any of you have much pain in your arm.  Mine  seems to be getting worse.  I do have mild lymphedema  and a nerve was sacrificed  at surgery when tehy removed the 22 nodes.  The pain is from the shoulder down.  teh elbow and wrist ares the worse.  I cant write more than my name.  It hurts to bad to write a grocery list, open a jar or hold a fork to eat dinner.  I am told this is from te surgery.  They say the side effects from radiation swelling etc wont start for maybe a year.  and to expect it to get worse.

  • zap
    zap Member Posts: 1,850
    edited September 2009

    Donna, you will find us.  We are the group of people wearing pink.  Only kidding!  We really will find each other, and I am so glad you are walking!  As I said,  the problem is walking at all the first mile as the group is huge and it is hard to get them going! Of course, I do not want to have your DH alone.  Please do what is best for you and for him.

    Also, I emailed Laura to put out an Addy email to invite everyone  (locals who cannot do the race) to stop by and to give directions to do so.  The  problem is I do not know when I will be back at the house, but if we all remain  flexible, I could call from Grant Park and let you know about when we will return if you think you can stop by.   Just let me know if you are able to stop by to see Rita and Laura.

      I am so naive.  I received a PM that I should not have put my cell on the boards (I will delete the message after the race) so now I know I should not put directions to my house there.  Take a teacher out of the classroom and you have a loose cannon!

    This is good. 

    Susan

  • Mich101
    Mich101 Member Posts: 489
    edited September 2009

    Popping in to say Happy Birthday to Connie!  Your dinner plans sound great! Is it one of those places where they cook in front of you? Your kids will love that!

    Laura-I am so sorry to hear about your DH's job. Hang in there, it may be rough for a while but it will get better for you.

     Rita-DH and I are doing ok without the boys around all the time. It sure is quiet. They do come home quite often on the weekends (because of girlfriend, paintball practice/tournaments, etc.) so it is always nice to see them (and their laundry!).  Sorry to hear about your back issues. Hope that's getting better.

    To the other ladies, I think of you all often.  Prayers for those going through tx and surgeries, or those just going through difficult times. Take care.

  • lisamed123
    lisamed123 Member Posts: 87
    edited September 2009

    Hi all,

    Happy belated birthday Connie!

    I am looking so forward to the walk on Saturday, although I am am being picked up at 5:50 a.m.-yikes!  We are planning on parking around my work and walking, so that is about a 2 mile walk to and from the race.  I am planning on a big dinner on Saturday night.  Susan, I would have loved to come back to your house afterwards, but that is just so far and I have a feeling I am going to be exhausted.  Cannot wait to meet some of the new ladies.

    Laura - Sorry to hear about husband's job.  My hubby has been working four days for a few weeks now, and will be until at least the first of the year, if not longer.  They are trying to do what they can to keep from letting people go.

    Take care everyone.

  • elf_song
    elf_song Member Posts: 148
    edited September 2009

    Rita- I think we gotta have a group hug and cry out loud~!   Wink    Are you taking I-55 all the way to the Grant Park??  We are thinking about taking I-55 and still need to figure it out where we need to get off since they gonna block the streets for the race..

    Buddy- I've been crying just thinking about meeting people on Saturday, omg..  I also had pain in my arm and was exactly same as you are and it got worse during the rads and slowly went away after rads done..  I took motrin everyday and still taking almost everyday..   can't wait to take this te out of my body and port too..  Hope you feel better soon you've been through too much already..hang in there~  **(( BIG HUG ))**

    Lisa- I look forward to meeting you too~!  

    I hope you all resting well tonight, sweet dreams~!

  • blackjack
    blackjack Member Posts: 771
    edited September 2009

    Morning Girls....looks like it will be a nice day today. Sunny for part of the day. I hope for no rain for all of you who are walking on Sat. I will be there in spirit with all of you. Take a group pic Laura and post it for us non walkers. Go No Surrender Girls!!!!

    Rita.. I hope your back is ok. You can try those heat packs that stay on for 8 hrs as they work really well. I use them and they keep my back toasty. Just a thought for walking.

    Laura...my thoughts and prayers are with you and dh. Yes one door closes and another will open. Hang in there. We are here for you. Hugs.

    Wendy...how is your back doing?? Yes I did go get some dress down clothes. lol Do you think I will fit in now? lol

    Susan.. I am sorry that I can't make your post walk lunch. I would love to have seen everyone. Hopefully you can come to lunch in Oct. Anytime you are up north I will walk the lake front with you. It is a great walk.

    Ef...I hope your boys love the lakefront. I too like to take train rides as we did one last week in Wisc. to the pumpkin farm. It was so much fun. The trees are starting to turn colors so it was pretty to look at. 

    Jackie... hope all is well with you. Looks like you have lots of rain coming your way. Drip drip. Good for washing your car. lol

    Lisa..how are you doing. Good luck on your walk too.

    Connie...how was the bday dinner. yummy. Any more boat rides for you. We are pulling the boat this weekend. sniff sniff. I miss it already. We are busy everyweekend in Oct so no more boat rides for me. Wish summer was here again.

    Well off to the shower as work is calling me. To those in tx I hope all is going well for you.

    To everyone else I missed I hope you are going out there and enjoying life. Have a great fun filled day everyone.

    Remember to be healthy...be happy...enjoy the day.

    BJ

  • conniehar
    conniehar Member Posts: 585
    edited September 2009

    Morning ladies!

    My birthday dinner was great.  I am still full.  Yes, they cooked the food right in front of us and did all sorts of tricks.  The kids loved it.

    BJ - we are taking the boat out Oct 10th, but we are done with boat rides as well as we won't be back up to MI until then.  Very sad as I feel like we did not have a good water sport summer.

    EJ - I'm sure you have been to the Illinois train museum up north - I can remember the exact town - I know it was past Huntley.  They have a big Thomas come there a couple times a year.

    Susan - sorry we can't make it to your house.  We are heading to my mom's after the race and she is considering moving out of her garden home into an apt - so she wants me to see the choices this weekend.

    I don't know where I am going to park on Saturday either.  Last year I parked at some hotel that was really close, but boy was it expensive.  Laura suggested we stay downtown Friday night, but it didn't work out with our schedule as we wouldn't get downtown until 7pm and it didn't seem worth it.  So, we will be up bright and early Sat morning!  It sounds like we have a huge group! 

    Buddy - I had bad pain in my arm after the mastectomy - shoulder, elbow, wrist.  I was sent to a physical therapist and was surprised how quickly it improved.  Have you considered that?  Sorry that you are dealing with such pain every day!

    Laura - thinking of you!  Stay positive....

    Have a great day everyone!

  • donnadio
    donnadio Member Posts: 674
    edited September 2009

    Buddy...Have some pain in my right arm by shoulder into bicep.. but think it is all unrelated to the surgery and chemo, I wish i knew why for you, but Elfsong seems to know and maybe more who has gone thru rads! You are almost done and for now, call your DR to see what is safe to take for this arm pain!!!!

    Susan...Not sure about the lunch as we live so far south..what town do you reside in? So excited that many are coming to the race and will find you all one way or another!!!

    Have a good day all and stay out of the fog!!! lol

    Donna

  • zap
    zap Member Posts: 1,850
    edited September 2009

    No worries, Donna.  We probably live as far north as you are south from Grant Park......maybe even further.  We will have plenty of time to visit at the park.  Same for Lisa, Connie and ElfSong.I am just glad you are all walking.  Lisa has a great point....we may all be exhausted what with the hour we have to get up and all.

    :Laura, I hope today is an easier day and that you got some sleep last night.

    I am off to the library to work on my manuscript that has been in progress for more time than I care to admit.  I cannot work at home, so stuck in a cubicle in the library, I do  fine.

    Have a good day!

    Susan

  • elf_song
    elf_song Member Posts: 148
    edited September 2009

    Buddy- my rad. doctor once asked me if I want to see a physical therapist for my arm which I should have done but I told her I will be fine and she told me they can make life a lot easier..    After mx, I have pain all over my left arm from shoulder to the fingertips..  It got worse during the rads but got better after rad was done.. However, I am thinking about seeing physical therapist after te exchange..  I think you should try too..

    Susan- My dh said the same thing as Lisa, what if we are too tired or kids are..   oh well...  at least we get to meet each other as a team  and that is the best part, right??   Wink

    Connie- I think it's call Illinois Rail Road Musuam at Union..  Oh well, we never been there yet, every time we  tried to go there something happened..  We are hoping to go there before winter comes...  

    BJ- This will be the first time for all of us to be at the lake front since we moved up here 2 years ago.. I hope kids like it too.. Train rides to the pumpkin farm sounds fun..  I love scenic train ride..

    I hope the weather will cooperates on Saturday..

    EJ

  • donnadio
    donnadio Member Posts: 674
    edited September 2009
    YES Elfsong  is right!!PT was something, I almost said no to and it did make all the difference in the world for after surgery. May not be the same as for RADS.. but they are trained for these things and can get you thru this time. Your insurance should cover this as well Buddy!!!
  • zap
    zap Member Posts: 1,850
    edited September 2009

     DH is sick!  he went to the doctor and she said he has a flu (not swine).  So we'll see.  He feels bad that he got sick and I told him not to...I just want him better.  So, again, we'll see.

    I went to my Livestrong exercise class for people with breast cancer and everyone wears a sleeve..  I do not as I never had a problem.  We are finally going to fly, so I should get one I think.  I am unsure as I have never, ever had a a problem and surgery was three yeasr ago. I forgot all about sleeves until I went to this class.

    Have a good night!

    Susan

  • illinoislady
    illinoislady Member Posts: 40,996
    edited September 2009
    Oh the comfort, the inexpressible comfort, of the feeling safe with a person, having neither to weigh thoughts nor measure words, but pouring them all right out, just as they are, chaff and grain together; certain that a faithful hand will take and sift them, keep what is worth keeping, and with the breath of kindness blow the rest away.- Rex Cole
  • illinoislady
    illinoislady Member Posts: 40,996
    edited September 2009

    Hi all.  I am on quite late.  No time today to get on here.  Hope you have all been well.  I have thought of each of you throughout the day knowing I couldn't come till late.  Hope you like the quote...it is one of my favorites.  Hope you all too have a pleasant, restful evening and night.

    Hugs, Jackie

  • blackjack
    blackjack Member Posts: 771
    edited September 2009

    Morning girls,TGIF hey!! I am so looking forward to a nice quite weekend. School has been crazy. I still don't know how your girls do it. lol Anyway I am looking forward to sleeping in tomorrow.

    Jackie...we do miss you when you don't post. I look forward everyday to your wonderful quotes as you are my inspiration. Words of wisdom. Looks like you are having lots of rain by you. Stay dry.

    Susan...I fly 2 weeks after my surgery and I have been flying a lot since then. I never had a problem with my arm. I think the sleeve helps with swelling if you have it. I exercise my arm with wt lifting everyday. So I really don't have any issues. You may want to ask your md what he/she thinks about a sleeve. Happy flying.

    Rita...how is your back feeling. Did you stop at the casino for any big wins.lol

    EJ, Buddy, Donna,  Susan, Lisa, Laura, Connie and anyone else I missed..Good Luck No Surrender Team. Have a wonderful and inspiring walk. We do need to find a cure. I will be thinking of all of you wonderful girls. Thank you for walking for us. Hugs to all of you.

    Well off to the shower...Have a wonderful weekend..it's Friday!!!!!!!!  Time to play.

    Remember to be healthy....be happy. The Lunch Bunch is meeting next Friday Oct. 2 for lunch at 11:30 am Maggiano's in Schaumburg. I hope you can come for good food, good friends and lots of laughs. PM me if you can come. Have a great day.

    BJ

  • illinoislady
    illinoislady Member Posts: 40,996
    edited September 2009
    Kind words do not cost much. They never blister the tongue or lips. They make other people good-natured. They also produce their own image on men's souls, and a beautiful image it is.
    -- Blaise Pascal
  • zkacmom
    zkacmom Member Posts: 146
    edited September 2009

    Hey Girls...Just a quick update.  I had my first chemo on Monday.  /They did Abraxane, Avistan and Zometa.  Been feeling good. No naseau but did have bone pain yesterday but feeling better today.My chemo schedule is 3 weeks on and 1 week off for Abraxane, every other week for Avistan and every month for Zometa and then a monthly shot of Falsodex.  He is going to do scans after two rounds of treaments, so that should be in 8 weeks.  I sure hope this works.

    The kids and I are going to Myrtle Beach tomorrow and spending the night.  My husband is going to Denver for a week for a conference for work.  Looking forward to going.

    Hope everyone has a good time at the walk tomorrow.  Wish I could be there.

    Ginny

  • zap
    zap Member Posts: 1,850
    edited September 2009

    Ginny, I just love hearing from you!

    To the people walking tomorrow, my DH called the doctor and she said he is not contagious as he has had this so long that he could not be.  He gets  hoarse WHENEVER he gets a cold and sounds raspy and it gets worse in damp weather. It is so damn damp! We told the doctor that he would be walking among people in  treatment and she said HE IS NOT CONTAGIOUS.  I just wanted to tell you as I was paranoid when I was in treatment and a raspy guy came up to me.Foot in mouth.

     Also, I will bring directions for anyone who can join us for breakfast, although I know that just about everyone cannot.  That is fine with me.  I am just excited to be walking with you.  Imet a woman at the grocery store and we started talking. I told her about the  race and she asked if I was a BC survivor!  I said I was and she said she was as well.  We are both three years  out and COUNTING!  We must find a cure.  There are just too many of us.

    Susan

  • motheroffoursons
    motheroffoursons Member Posts: 80
    edited September 2009

    Hi Girls,

    Have fun on the walk.  I have some family obligations, plus I am having another surgeryYell on Tuesday.  Just an arthrscopic knee thing, just a pain to get over .  It I get to Maggianos, I will come on my crutches!

    Have fun tomorrow.  Wish I was with you.

  • MAMAQ
    MAMAQ Member Posts: 140
    edited September 2009

    Hi Ladies...

    Just wanted to wish a "Happy Walk Day"  to all the No Surrender Ladies.  I'm so sorry that I won't be able to meet/join you.  But I will be attending the Lunch Bunch on Friday.  I can't wait.  Anyways, thank you to all of you for representing and fighting this cause.  From a mom who sometimes feels guilty for possibly passing on the BRCA gene, I believe we have to find a cure now.  You are all my HEROES!

    Jo