Join our Webinar: REAL Talk: Healthy Body and Mind After Breast Cancer Treatment - Jan 23, 2025 at 4pm ET Register here.

Illinois ladies facing bc

19279289309329331174

Comments

  • camillegal
    camillegal Member Posts: 15,711
    edited July 2013

    Did I miss something, as usual I didn't see any pictures. Oh I wanted to go too but wasn't up for it Adey is so sweet and we stillhave to meet--hahaha

    I see my surgeon tomorrow, my old one, I don't like these new ones as much, and he squeezed me in but I did get my girfriend to drive me, I was going goofy trying to figure out last minute but I did it so he's stuck with me again.

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited July 2013

    Good luck tomorrow cami.  Hope things go well.  Good friend!

  • camillegal
    camillegal Member Posts: 15,711
    edited July 2013

    Oh Tim Thank you I have to say Im' really dreading this one all these organs of mine moving all over the place--what are they thinking, like they can party? They belong in a certain place not up my ribs and moving to the side and all this chit. I've had Diareahha all nite, but I think it about over with all the meds I took, but I had to wash a load of clothes at 3ayem and I don't like doing that---at any time. LOL

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited July 2013

    I've been up all night too,  Hate it!  I can't even do the wash because it wakes my husband so I have to be on here or reading and that's it.  Oh well, c'est la vie.

    Let us know that you're ok, ok?  Just be well!!  (((cami)))

    L

  • camillegal
    camillegal Member Posts: 15,711
    edited July 2013

    Tim my SIL leaves for work super early and my DD doesn't hear anything and I'm on the other side of the house or I could never wash my clothes either. hahaha. Boy Am I going to be crabby today.

  • illinoislady
    illinoislady Member Posts: 40,917
    edited July 2013

    Live your life each day as you would climb a mountain.  An occasional glance toward the summit keeps the goal in mind, but many beautiful scenes are to be observed from each new vantage point.  Climb slowly, steadily, enjoying each passing moment; and the view from the summit will serve as a fitting climax for the journey.

    Harold B. Melchart

  • illinoislady
    illinoislady Member Posts: 40,917
    edited July 2013

    Just stopping in to say hi to "crabby" because I care about her.  Hope it goes well for you today, little crabby.  A huge, huge, ( like all ) of us here and I know on your other threads are hoping you get GOOD answers and a plan to deal with problems.  Love you.

    Peace and love

    Jackie

  • kjiberty
    kjiberty Member Posts: 687
    edited August 2013

    HI Ladies.  Hope all is well. I had a biopsy yesterday and was very, very nervous--results came back benign.  I am so excited!  We just got back from vacation.  Life is good!  Hope all is well!  Back to working again.  

    I miss all you ladies!  Jackie..I am still keeping up with your daily quotes.  Had my one year anniversary ($) with Xocai!  Still loving it!

    XOXO

  • lago
    lago Member Posts: 11,653
    edited August 2013

    Kjiberty wish you lived closer. So happy about the B9

  • illinoislady
    illinoislady Member Posts: 40,917
    edited August 2013

    The experienced mountain climber is not intimidated by a mountain -- he is inspired by it. The persistent winner is not discouraged by a problem -- he is challenged by it. Mountains are created to be conquered; adversities are designed to be defeated; problems are sent to be solved. It is better to master one mountain than a thousand foothills.
    --William Arthur Ward

  • illinoislady
    illinoislady Member Posts: 40,917
    edited August 2013

    Karen....what fantastic news.  Tests are always scary, but when they are for poss. tumor/cancer they really get an edge to them.  Yours is definitely news to celebrate. 

    Glad as well that you are still happy with your 'chocolate'.  I still "indulge" on a daily 3X's basis as well.  I credit that along with lots of activity ( something I have to get better with ) with keeping me quite sound and also I think helping me tolerate Arimidex without some of the hitches that might have come along.

    Peace and love

    Jackie

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited August 2013

    Karen, it's when we get a reprieve that we really appreciate life, I think.  Congratulations and celebrate!

  • camillegal
    camillegal Member Posts: 15,711
    edited August 2013

    Karen I always love hearing good news and I'm so glad for u. YYYAAAAYYYY

  • ritajean
    ritajean Member Posts: 4,042
    edited August 2013

    Yea Karen on the good news!  PHEW!  Biopsies are so scary! I'm so glad you got good results.  Now, take a big deep breath and go right on with your life!  Hugs to you!

  • illinoislady
    illinoislady Member Posts: 40,917
    edited August 2013

    An author that ALWAYS says a lot to me:

    Whether you know it or not, one of the most important relationships in your life is with your Soul.
    Will you be kind and loving to your Soul, or will you be harsh and difficult?
    Many of us unknowingly damage our Souls with our negative attitudes and actions
    or by simple neglect.  By making the relationship with your Soul an important part of your life,
    however, by honoring it in your daily routine, you give your life greater meaning
    and substance.  Use your experiences--all of them--as opportunities to nourish your Soul!

    Elisabeth Kuebler-Ross

  • dltnhm
    dltnhm Member Posts: 420
    edited August 2013

    Great news Karen!



    Hope you are feeling better Camille!

  • Adey
    Adey Member Posts: 2,413
    edited August 2013

    Yay Karen!  (I will call or text about dropping the kid at Bradley)

  • momto7
    momto7 Member Posts: 114
    edited August 2013

    Hi ladies Happy Friday to every one hope you have a great weekend!!  Counting down the days to my reconstruction will be getting saline implants instead of the gummies  So much to do tho like clean the house but it is to nice to be indoors too ugh!!  August 7th is coming fast! Balloon Fest is coming up soon here and i really want to go this year Hope i will be able to.

    I never thought that anastrozle would raise cholesterol  yikes maybe I need to get mine checked again

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited August 2013

    Happy Adey!!

  • kjiberty
    kjiberty Member Posts: 687
    edited August 2013

    Adey:  Yeah!!

    Lago:  See my FB PM

    Thanks all you wonderful ladies for your support!

  • oconnor2450
    oconnor2450 Member Posts: 32
    edited August 2013

    Hi Ladies, Im a transplant living in Maine originally from Chicago. Recently diagnosed for the second time after mastectomy (12/10, DCIS, 2mm inv)..6mm triple+, clear PET scan, no lymph. Need second opinion and considering University of Chicago, Northwestern and RUSH. ( Dr Melody Cobleigh) My sister lives in the suburbs and for some part of treatment I was thinking of staying with her. I like my team herer in Maine, but because this is an unusual presentation I feel like I need due dilligence of a second opinion. And, they want to everything under sun, more surgery, rads, chem, year of H, 5 years of AI...Hmmm, I take an aspirin about every three years... so this is a bit over whelming.

    Thank you for any opinions or advice you have in regards to tmt you have received, preference for Dr.'s etc..

    Blessings of every kind to you all~

  • dltnhm
    dltnhm Member Posts: 420
    edited August 2013

    Oconnor -

    So sorry about your recurrence. I was thrilled with my care and love my team at Lutheran General Hospital in Park Ridge. I am certain someone will contact you regarding UofC, NW, and Rush.



    You could also search this thread inputting those hospitals in the search words and come up with those who've written or inquired about them.



    Blessings back to you.

  • C-squared
    C-squared Member Posts: 338
    edited August 2013

    Buongiorno ladies!!!Smile  I'm getting ready to take off for Italy tomorrow.  I am so excited and a little scared - I've never been to Europe.  Yes, I've been to Mexico and Punta Cana where locals speak a different language and live in a different culture but stayed in a "resort" where it didn't really matter.  It seems like this will be a lot different(?)  We have made plans to see the Vatican (and all of its museums), the Colosseum, Pompeii, the Amalfii Coast, then travel to Florence on one of those high-speed trains and visit Venice from there.  There is so much to see!  

    KJ~ Such good news!  Whew!  That must've been so frightening!  Surprised

    I've been trying to keep up with reading the posts but haven't had much time to post myself.  I'm thinking of you and sending good vibes to all.  Thanks for asking Rita, it's always nice to know I'm not forgotten.  Have a great 2 weeks ladies!!!  I'll sign in again when I return!  Ciao!!! Smile 

  • illinoislady
    illinoislady Member Posts: 40,917
    edited August 2013
    "Your present circumstances don't determine where you can go; they merely determine where you start." 

     

    -- Nido Qubein 

     
  • illinoislady
    illinoislady Member Posts: 40,917
    edited August 2013

    Oconnor....I'm way too far from Chicago but others will see your question and respond.  Sorry about the recurrence.  Your team there sound like they really want to hit it hard.  Hoping the Chicago people will be in general agreement. 

    C-squared....Ciao to you and you can bet many will be waiting for your travel descriptions.  It all sounds so fantastic.  I think exploring can be a wonderful thing and I am a little green with envy but vicarious will have to do for me.   Have a great time.

    Peace and love

    Jackie

  • rosamond
    rosamond Member Posts: 32
    edited August 2013

    oconnor2450,



    I think you would do well with any of those three hospitals. I am at Univ of Chicago, diagnosed with DCIS, grade 2 with needle biopsy from Northwestern Lake Forest, who recommended lump with no MRI or other imaging other than the mam prior. I am 49, so something didn't sit right with me about being so conservative. Ended up at U of C for second opinion and had MRI plus another MRI-guided biopsy that revealed invasion. Getting SNB on Wed, then mastectomy the following week (about 1-2cm IDC estimated, plus about 5cm DCIS).



    Ladies, I would like to "join" the group. I live in the NW suburbs of Chicago, but, luckily, my family has a condo downtown that no one lives in full time, near the hospital.



    I enjoy reading everyone's positive postings and seeing how many of you made it through treatment well.

  • illinoislady
    illinoislady Member Posts: 40,917
    edited August 2013

    Rosamond -- welcome to you.  By all means do join us.  Of course, wish no one ever needed too, but that time is still somewhere in the future.  Needless to say --- yay for you being steadfast about your intuition to cover your bases and get a second opinion. 

    There no such thing as too cautious where this beast is concerned.  I am about 4 hours south of Chicago -- so no input from me about the hospitals, Dr.'s and other can cer facilities there but otherwise...I'm solidly in your corner.  My job is to put in a daily quote....hopefully uplifting, sometimes helping show a fresh viewpoint....and sometimes just good words to live by.  Been doing it for a long time now.

    We strive to keep things positive here because some of the cancer roads are ful or rocks and ruts and whatever makes it easier along the way....is a way for us to give back for those who made it easier for us. 

    Again welcome to you and OConnor--- glad you found us.

    Peace and love

    Jackie

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited August 2013

    O'conner.  Send your slides to Memorial Sloan Kettering.  They are number 2 in the country.  MD Anderson is Number one.  U of C  told me my nodes were clear and I had no lymph invasion so I would not need chemo.  Just for  a second opinion we sent the slides and films to Sloan.  They will not see you unless they see the films and slides first and their people diagnose,  they found 100 cell microinvasion in one node and lymph invasion,  The said I needed chemo when no one else did.  They sent the report to U of C.  There was a lot of back and forth over the months.  I went to my surgeon at u of C and was told that the final decision was that I did NOT have lymph invasion or micromet.  She brought out the report and we read it together.  It said I Did have both of those things!!!!  She did not acknowledge that and told me to get off the chemo (I was at the 6th infusion).  Confused I went to a friend who is a pathologist and had just finished a fellowship at Sloan.  He read the report and said, what I thought it said, U of C agreed with Sloan.  

    It's not hard to send the stuff to sloan.

     I went to Northwestern too and they just read the original report so they had the original advice.  They did not ask to see the slides or the films beforehand.  If you take the same report to 100 different hospitals you will get the same advice.  You want Sloan pathologists, radiologist, etc to see the original evidence.

    I've spoken to several drs since then and they tell me that cancer centers like Sloan are much more aggressive in treatment.  I like aggressive.  My advice.  Contact Sloan or MD Anderson.  they have social workers who are wonderful and will help you every step of the way.

  • lago
    lago Member Posts: 11,653
    edited August 2013

    Welcome Rosamond

    Oconnor I agree with Timbuktu in the sense that your imaging is only as good as the person reading it. I was going to a different place for mammograms/ultra sound. I came in with a blood nipple and they told me that my tumor was suspicious for breast cancer but not typical. Switched to Rush… radiologist told me they were doing the biopsy to confirm their diagnosis of cancer not to prove it… and if the biopsy didn't prove it they would do something more invasive.

    Rush also has an outstanding award winning imagaing department… but I agree that Sloan is one of the top places in the country. Even my BS new I had cancer by just looking at the mammogram (they didn't send over the ultra sound). My BS did some of his training at Sloan.

  • camillegal
    camillegal Member Posts: 15,711
    edited August 2013


    Welcome Rosamond--sorry we have to welcome u, but there are a load of ladies here with so much info and care u will be happy knowing u'r not alone and that everyone here gets how u feel. So feel free to be sad, mad, vent or just talk anything u like.

    Oconnor I certainly can't add to the info Tim and Lago gave u so if u need u can do what they advised and I think u'll feel good about whatever is decided. And Rush is another well known and the Dr. u menioned has a wonderful rep. so u can't go wrong. (I think)