Illinois ladies facing bc

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  • zap
    zap Member Posts: 1,850
    edited September 2013

    Happy (late) birthday, Jackie.  You are the best!

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    Thanks one and all for the birthday wishes.  We really didn't do anything here.  That is the beauty of older agers.....you can do what you like, when you like, and not have to do anything on THE day.   We actually aren't sure just what we do want to do.  I'm working ( so far-so good ) really well in my new job. 

    I might have mentioned at some point....I've never applied for a job here, but as I lose one I get another one usually by word of mouth.  It has been nice not to fill out papers and go to interviews that could be difficult.  Guess I just want to make sure things continue to stay on the nice clean 'high' notes we have had so far -- so maybe in a week or so ( Dh is attempting to get used to his forced retirement )  when things have quieted we'll decide some fun thing.

    Again, a big thanks to all of you.....reading all the great wishes and thinking of each of you as I did, made for lots of smiles and happy feelings inside. 

    Peace and love to all,

    Jackie

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

      "There is a criterion by which you can judge whether the thoughts
        you are thinking and the things you are doing are right for you.
        The criterion is: Have they brought you inner peace?"
              Peace Pilgrim

  • lago
    lago Member Posts: 11,653
    edited September 2013

    Sorry I've been MIA. Was out visiting the parents out east.

    hi Karsie. I too had a tumor that was close to the chest wall. I'm 3 years since my BMX and doing great.

    Belated happy birthday Jackie.

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013
    "Confidence is the only key. I know a lot of people who aren't traditionally 'beautiful' -- not symmetrical or perfect-bodied or perfect-skinned. But none of that matters because all that shines through is their confidence, humor and comfort with themselves. I can't think of any better representation of beauty than someone who is unafraid to be herself." 

     

    -- Emma Stone
  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    I put the above quote in today because the minute I saw it....thoughts of all the Illinois Ladies came to me......just seemed a natural.

    Good for you Lago......being able to go somewhere and better yet to get in a visit with parents.  I wish my parents were still here, but I do know exactly where they are and that smooths out the feelings. 

    Hope you all had a great weekend.

    Love and peace

    Jackie

  • Karsie
    Karsie Member Posts: 5
    edited September 2013

    Hi Jackie-



    I love hearing things like that - for you and the rest of us too!! Thank you!

  • Karsie
    Karsie Member Posts: 5
    edited September 2013

    Hi Lago-



    I love hearing things like that!! Thank you!

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013
    "Just because you've made mistakes doesn't mean your mistakes get to make you. Take notice of your inner critic, forgive yourself and move on." 

     

    -- Robert Tew 
  • momto7
    momto7 Member Posts: 114
    edited September 2013

    Happy belated Birthday Jackie I hope you had a good one Smile

    Catyze I think I have the rounds I know they are saline filled and I am happy with them they feel soft too but my lefty seems to want to move  to the side a bit I go back to my PS on Oct 1st  and will have to discuss it with him It has been a month since my implants were placed also he did a one step .

    Welcome Karsie and biker girl  your  here with a lot of good people

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    Life is never going to give up on you because there is something important for you to do.  One of the primary purposes and processes of life is the development of character.  Your character—your nature, the distinctive qualities of your essence, what makes you you—is developed through experience.  If you do not understand that character development is an important process of life, you may be tempted to give up when things get rough. . . . When life detects that there is an opportunity for you to advance the nature of your character, it will send the perfect situation and people your way.  Your job is to respond to everything in a manner that develops and strengthens your character.

    Iyanla Vanzant

  • EnglishMajor
    EnglishMajor Member Posts: 122
    edited September 2013

    Hi Illionois Friends

    I don't often post here, but this is IL related....

    Have you been following Roz Varon's story? Last week she announced on the Channel 7 news she had DCIS and would be having (presumably) a lumpectomy.

    I wish Roz nothing but the best. But her latest story is just odd.

    Because I have Stage IV cancer, I do take an interest in public figures with it. So I knew Roz was dx'd with mets in 2006. This is from that time:

    Roz Varon was diagnosed with Stage 4 breast cancer in the summer of 2006. She talks candidly about her fears and daily challenges. ABC 7 cameras capture her experiences with targeted-therapy treatment and the CT scans that have become part of her routine. In addition, Varon talks about the unique bond she now shares with an ABC 7 viewer, also diagnosed with Stage 4 breast cancer. They talk about their friendship and their united front against the disease.

    Ok, so now fast forward to her DCIS news. If she is trying to protect her family or something, why make this announcement? It's very weird....she never says she has metastatic disease, but obviously she does.....

    ....we don't have cooties, Roz! And I do wish you the best, I'm just confused....

    This is Roz's most recent announcement:

    https://www.youtube.com/watch?feature=player_embedded&v=tWOCie8-tVY

  • camillegal
    camillegal Member Posts: 15,711
    edited September 2013

    Hi Ebglish major--If u'r confused imagine how confused I am. Doesn't make any sense to me at all, but then again I don;t know as much as u do.

  • TwoHobbies
    TwoHobbies Member Posts: 1,532
    edited September 2013

    I take this to be a thank you video to the viewers and explaining why she's off the air rather than pretending she just has DCIS. Another article says she is battling BC again. It looks like she was open about the stage4 in the past. I guess I am ignorant about stage 4 because I didn't realize they would do surgery for DCIS when you are stage 4?

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    First thought, then feeling, then purpose, then will, and last of all, character—that is being.  The interval between thought and being is immeasurable.  Yet the universal self-delusion is this, when people have good thoughts they fancy they have become what they think for the moment.  Good thoughts are very good; but unaccompanied by the difficult processes of character, they are often no better than soap bubbles.

    Protap Chunder Mozoomdar

  • lago
    lago Member Posts: 11,653
    edited September 2013

    EnglishMajor Roz actually is becoming more vocal about her disease. Last month at the Making Strides Against Breast Cancer kick off breakfast she mentioned she has metastatic disease. But she was NED according to this video (thanks to Herceptin): abclocal.go.com/wls/video?id=9249978

    The full article does say she is stage IV linky. I agree with TwoHobbies

    Roz seems to focus more on living from what I can see with her facebook page. She traveled route 66 this summer.

    It's her journey to travel how she chooses but I don't think she is hiding it. She walks and runs in just about every breast cancer event in Chicago.

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    "Everything is a gift of the universe —even joy, anger, jealously, frustration, or separateness. Everything is perfect either for our growth or our enjoyment." —Ken Keyes Jr.

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    Gratitude bestows reverence, allowing us to encounter everyday epiphanies, those transcendent moments of awe that change forever how we experience life and the world.

    John Milton

  • momto7
    momto7 Member Posts: 114
    edited September 2013

    Hope everyone is having a great weekend it is really nice out today stopped by a few garage sales but did not buy anything i need new curtains and can't seem to find any I like for my living room. My sister told me to watch a movie that is no Netflix it is called Dr Bruzynski it is a must see for every one . It makes me mad to see that the FDA goes after doctors that have found a cure for cancer and try to put them in jail over it.  I am disgusted as to how much money goes to breast cancer research or any other type of cancer research. The government is making money off of people getting sick and no one sees it. people hope for a cure and they cover everything up when there is one.  There was also a German doctor that had found a cure and when he tried to tell people he was murdered and his notes and records were destroyed and burnt  I  can't remember his name but Jim Marrs  in his book the  Rise  of the Fourth Reich has a chapter on him in the book

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    mom....you struck a chord.  I think a great many things could be cured or at least treated a bit differently and those who did have the problem would have it in much milder form.  But as you so aptly pointed out.......there is outstandingly HUGE to the point of totally obscene amts. of money to be made if people get ill or remain ill for a long, long time. 

    Of course, way back when people did not have the life expectancy we do now.....and likely some of that was in fact due to not having pharmaceutical remedies for many things.  There still is no reason to deny needed answers, and as well, to make sure that medicines are dealt with in a way that would be less harmful.  I don't know that the proper tests take place before drugs are turned loose on the market, but I do know that more often than not.....the tried and true are often skipped over for the "latest and greatest" from the oh so friendly pharmaceutical representatives that call at Dr'.s offices on an established, consistent basis with their satchels full of free samples. 

    To be fair, these same drugs can help a very poor person not spend their last dime till next SS check, as the Dr. will often give them a month or two's worth of samples that they won't have to buy.  I just think risks are taken by people who trust their physician's.....as you should, because so much of the time you may have no idea that older established meds with long detailed histories may not have the side effects ( some drugs have, in fact, been used for a yr. or so and then suddenly pulled from the market )  of the newer ones and some of the worst side effects might not have even been discovered. 

    But yes.....to get back to the original......greedy entities and huge corporations are going to have to come clean some day about what they have done or in many cases I'm sure......not done to make sure that effective help and or cures found their way to where they needed to be. 

    Peace and love

    Jackie

  • lago
    lago Member Posts: 11,653
    edited September 2013

    Sorry but I don't buy it. The company that comes up with the cure or vaccine for cancer is going to cash in big time! That's like saying the American Cancer Society won't fund research for a cure because they don't want to go out of business.

    I'm not saying there isn't greed going on and some real assholes at some pharmaceutical companies but I don't believe everyone at these companies has a mission to keep people sick and dying so they can make money. All a small few.

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    No....everyone shouldn't buy it.  I just worked in so many Dr's offices and saw the stacks of drugs to hand out to people.  I will admit I'm jaded by may things that I saw..........and the other part of the equation is that no one person as yet has the answer......it is lots of people with one little piece that fits.  that is the way I see it.   I also know from personal experience of nearly dying from something that is not too hard to figure out what can happen and how the ball can be dropped.  But you are right......if you aren't comfortable with some things, ignore them.  That's the right thing to do. 

    How's the job going ???  Do I recall your being kept on for awhile or somethng.  Sigh !!!  Hard for me to recall with all the reading I'm doing lately.

    Beauty of a day here.....cool and comfy.  Had a great rain yesterday.  Almost all day.....so early summer temps for a couple of days...then what, who knows.

    Peace and love

    Jackie

  • camillegal
    camillegal Member Posts: 15,711
    edited September 2013

    Well I have to weigh in on this one too, (poor choice of words,) When the Dr. who created Herceptin and was so excited about the possibilities for it--the drug companies and the AMA refused his funding any more==Why? He was privately funded, but there aren't many researchers who can be privately funded. I said before when I read an article a while ago why a Dr, of research totally quit his job it was because everytime they were coming close to something the were defunded and turned down. All the sources of income were denied to them.He said there was so much more to making money from the No cure than there was for a cure==If someone came up with a cure they would make the money for 1 year, then after that all companies would be involved, but if they didn't all companies were involved in making big bucks with all the chemo and meds that  could be available. And coming up with a new drug meant more than coming up with a cure. I just remember that so well, it was before I had cancer and I thought what a cruel system to let people suffer and die for money and that stuck with me this whole time.

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited September 2013

    Cruel is right.  But everyone is vulnerable.  How can money be the reason no cure is found?  Such a horrible thought!

    My son is a researcher.  He was trying to find the cause/cure of schizophrenia.  He couldn't get a grant from the government.  Anyone who thinks that government funding is pure is really naive.  There was tons of money for research into alcoholism.  So he submitted a grant for research in that and got a million dollar grant!  I find this really upsetting as schizophrenia hits one person in a hundred and destroys so many lives...think of just this last Washington mass murder.  Also, he says that he's frustrated by not being a "minority".  He's tempted to say he's part native American or Hispanic (who would know?).  Apparently the government is more inclined to give grants to minority researchers.  It's only his honesty that stands in his way.

    What a system!  In the meantime, we all suffer.

    i'm old enough to remember polio and I know someone who had it as a child and it's coming back as she ages.

    What a scourge that was!  Let's hope that bc will just be a bad memory too.

  • camillegal
    camillegal Member Posts: 15,711
    edited September 2013

    Tim, I do get very upset about that too--There would not be as many homeless people if it weren't for that horrendous disease. My DD2 wasdiagnosed with schizophrenia when she was 16. and it was the biggest nightmare I have ever been thru for her. It was like taking a whole life away and leaving the body. Even then there was not much hope and it's the same now, She was lucky and when she hit her mid to late 20's she was then DX as bi-polar not a huge difference but some.It took yrs to get the right combo of meds plus many cycles of electric shocks-I researched everything possible then and I thought it was going to be hopeless. Well her life is fine but she really can't work she gets to upset, she's wonderful with her son and kindhearted. She did have 1 yr of going back after she had my GS that's why I took him and he lived with me==so her life has not been one thing she planned when she was young But she has a life and a wonderfu; man helping her all the way and time she needs. But if u are an alcoholic there are plenty of funds to help u now, cuz it's a disease. one of the more popular ones. I think that's when I found out more about diseases and funds and just what was a money maker--I read like a maniac. And that was a reason I did no research on my own cancer, it wouldn't have made a difference what I knew I would have the same treatment or none if I so choosed. So... but see there are people like u'r son wanting to go in one direction to help and they are veered off for a newer or more IN disease==U'r son sounds like a truly remarkable man but not allowed to do what he realy wants to do. Sorry about the rant but I learned more about research than I learned about anything and that's where it all starts--and this brings the opinions out of me like crazy. oops I used the word crazy.

  • lago
    lago Member Posts: 11,653
    edited September 2013

    I know there is plenty of politics involved with getting funds. Who you know, how famous is the doctor running the study etc. I no way did I mean to say the system was pure. Also as I mentioned there are greedy people but not all are doing it for greed.

    If a company found a cure for cancer I think they have more than a year on that patent. Granted the government/world might required that company to license it out so more could be made to service those whom need treatment.

    Also the cure wouldn't be given to people who dont' have cancer just those who develop it. The drug would continue to be needed.

    A vaccine would be a one shot deal but people are being born all the time. The demand would continue. Do note there is a vaccine for certain types of breast cancer right now that looks very promising. Maybe in 9-10 years!

  • camillegal
    camillegal Member Posts: 15,711
    edited September 2013

    Lago I don't think nyone took u'r post as to sy u didn;t know about the political part of fundraising and I think there are a few organizations that are questionable--as everything is in life, We don't know what goes on behind the scenes in each and everyone of them and I think so many people are pure of heart. I just know it's difficult for funding anything right now, but cancer is a priority just hoping the monies go where they are supposed to and I personally believe some things are haulted for whatever reason that they feel could wait. And I don't know if the right people are making these decisions. OK I'm talking (writing) with some pain meds in me hahaha so I could be repeating myself.

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited September 2013

    Cami, I can see you understand.  I'm so sorry you've had to go through all of this.  It's interesting how the diagnoses change.  My mother was diagnosed as schizophrenic in 1952.  At that time every mental illness was called schizophrenia.  Nowadays, it seems, every illness is called bi-polar.  In fact, my dil, who is also a psychiatrist, tells me that my mother would never be diagnosed as schizophrenic today,  She's be bi-polar!  I told her it's just a name, whatever she had, she had something and it made life Hell for everyone around her...but only at times.  So I know a bit about what you're saying.  I am so glad your daughter found the right meds for her.  It makes all the difference!

  • Timbuktu
    Timbuktu Member Posts: 1,423
    edited September 2013

    lago, I don't think I had read your post.  I had to go back and find it.  My comment about "pure" was in no way directed towards you.  It was a comment born of a general frustration with the public's ignorance of how funding works.  There is a general idea that business is corrupt but government is not.  Government is honest, disinterested altruistic.  If only!  

  • illinoislady
    illinoislady Member Posts: 39,846
    edited September 2013

    You find yourself refreshed by the presence of cheerful
    people.  Why not make an earnest effort to confer that
    pleasure on others?  Half the battle is gained if you never
    allow yourself to say anything gloomy.

    Lydi Maria Child