Illinois ladies facing bc
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Wishing you all well, as well. Two Hobbies sure glad you are on the road to recovering from your last chemo. That is a wonderful reason to celebrate. My last bout of se's seemed like they wanted to hang on, but I think I was so thrilled to BE DONE AT LAST that I was really antsy to have it TOTALLY be a thing of the past and was impatient.
I do think most find that rads are something of a piece of cake. Not that they are issue-less, but with good care of the skin in-between sessions for the most part it tends to be more boring and feels like a time-taker extraordinaire since you go every day. It is usually quick and painless. If you are doing a little exercise.....even some moderate walking.......hopefully all will go well. I did feel that taking a walk, even a short one per day seemed to keep any rad fatigue mostly at bay. There were a couple of times during the 7 wks. but mostly not.
Wishing you and everyone else well. Thinking good positive thoughts for all of you.
Peace and love
Jackie
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Laura- Peace, strength, prayers, hugs, love......
Good morning to all.
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TwoHobbies you need to finish treatment… we'll do it again next year BUT if you feel up to it come by the survivor tent. I will be there. BTW 5 weeks PFC I found I started to be less stiff. I think the taxoteares where much much better too. It's weird but I specifically remember getting out of bed 5 weeks pfc thinking OMG I don't feel so stiff!
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Dear lady from Rockford (your code name is too tough to remember one page over) you sound like a real warrior. You will do fine! Love that spirit!
Every day, Laura, I think about you!
Susan
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Hi ladies just checking in glad to see everyone is doing good it has been so hot here that I don't even want to go out but I haveto to water my flowers . I get my stitches out tomorrow and so i will be happy with that one lol hope every one is keeping cool!
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"You are not separate from the whole. You are one with the sun, the earth, the air. You don't have a life. You are life."
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Hot as blue blazes again here. Or maybe it was just my putting a bit more energy than I should have in my morning outdoor chores. At least I get them done early......so, a bit of a/c inside after a wash up, my second of the morning.....and I'm good to go again. I'm one of those if I don't do it in the morning.....it may have to wait. I start winding down in energy about 1:30.
Hope you all have a good day and treat yourself gentle in the heat.
Peace and love
Jackie
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Jackie, 1:30, mine leaves about 10 ayem--I'm done.
Momto---Oh getting stitches out is a good feeling I'm sure, it doesn't like squeeze so much, altho I think all my stitches all desolved, Drs. try to see me as little as possible.
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Good evening ladies. I feel like I have been AWOL for awhile. Spent a couple weeks in Seattle visiting our daugther and family. Tried to keep up with emails, but finally gave up.
Welcome to aaoaao. You just keep that great fighting attitude! TwoHobbies.. glad to hear that chemo is OVER. I just realized that I am exactly 3 years PFC. You will be amazed how quickly you will start feeling stronger again. Momto7... congrats on getting stitches out. Welcome to any new ladies that I may have missed. I will try to do a better job of keeping up.
Lago and mdg... I may be able to walk this year. Just not sure about that weekend yet. It sure was fun last year and a great opportunity to meet many of our ladies.
Onward... hope that you found a new ONC. I really like mine, but he is too far away for you and he plans to retire in another year. But he is definitely advising a full 5 years on AI's. Fortunately, I have found one that I can tolerate and my insurance has agreed to pay for the name brand, Femara. Adey..... a big hi!!!!
I am going to start back to LE PT in another couple weeks. My LE has remained well under control, but it is time to replace my custom sleeves and my PT wants to run through a week of therapy before measuring for the new sleeves. I have a pump to use if my LE flares up, but really have used it in a very long time.
Hope everyone is staying cool in this heat wave. I cycle at least 10 miles every morning and have been getting up extra early just to get it in before the sun starts baking. This Saturday afternoon we are going to be on the Rooftop at the Cubs game celebrating a friends retirement. I can only imagine how warm that will be. Just hope that it is one of those days when they say "cooler by the lake".
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Lago - thanks for the reminder. I am bummed I will not be able to walk. My DH is doing the Marine Corp Marathon in DC that same weekend. Since I seem to be doing okay with Tamoxifen (I hope I didn't just jinx myself!) we bought a ticket for me to go watch him run. I AM though going to make a donation right now.
I get so busy at work and forget to check in on this forum. And when I do am reminded of what special people you all are.
Have a great holiday weekend!
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joan888 Two of the women in my building (diagnosed right after me) are both doing acupuncture for their LE and say it really helps. If you want I can find out more info for you. My LE seems to be stable but I do wear the sleeve till at least 6pm every day. Hope you can make the walk but remember you can still fundraise even if you can't.
BTW tomorrow, Aug 31st marks my 3 year NED date. I'm excited I made it my still angry that a few of us have to continue fighting this. This is the reason I do the walk. Keep those research dollars coming in.
BoatinGirl OMG thank you so much! It's been 2 weeks since my last donation. Nice to see that thermometer go up!
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Yay Lago---Great Anniversary.
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Lago, why is it only one year NED? Seems you have been clear for longer.
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aaooaa (is that right?), I am in Algonquin- so not that far from you- east 45 minutes. Welcome to the boards!!
Girls I am one week post bmx with expanders. Am trying to figure out what to wear- not shirt wise, Ive been doing button ups- but over my chest. Of course am still healing and have one drain left- I started with really loose sports bras but they rub under the expanders ( note: I had 2x lumpectomy with reconstruction and reduction both sides 3 weeks ago- so have incisions where the underneath of breasts were)--- today trying a really soft sleeveless tee/tank,which seems more comfortable...any suggestions of tops/tanks/ soft cammies etc to try?
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A repeat, but one I love:
A smile costs nothing but gives much. It enriches those who receive
without making poorer those who give. It takes but a moment, but the memory of it sometimes lasts forever. None is so rich or mighty that he cannot get along without it and none is so poor that he cannot be made
rich by it. Yet a smile cannot be bought, begged, borrowed, or stolen,
for it is something that is of no value to anyone until it is given away.
Some people are too tired to give you a smile. Give them one of yours,
as none needs a smile so much as he who has no more to give.
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Tumbucktu corrected. It's 3 years.
aviva5675 If I wore a "bra" it was one of those very loose training bras that are all stretchy but if your PS hasn't told you to wear anything you might give him/her a call and see if s/he wants you to wear anything. Most of the time I just wore a cami or light tank tee under my shirts if I needed it.
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Congrats lago on the the 3 years! :-)
Love your repeat Jackie! There is indeed power in a smile.
I've just cooled down from playing 18 holes of golf. Now I'm off to the shower and then some cold watermelon! Be careful in this heat!
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Hi aviva, I found these Jockey 'bras' that look like 1/2 tank top that worked well when I wanted to wear something. They're very soft and come in a few different colors. I've also heard others recommend Gap Body. Most of the time with my expanders i didn't wear anything. Now that I have my permanent implants, I've been wearing some Bali bras that come in S-M-L sizes instead of cup size and those have been good for work. I'm planning to get measured at Nordstrom soon to see what my new size is and then will invest in some pretty new bras. Good luck with your recovery!
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hope49 once you figure out what size you are also look at Nordstrom Rack. I do really well there and the bras are the same brands at a fraction of full price. They have all sizes!
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Great tip, lago thank you!
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Is anyone facing some of thise storms it seemed to come out of nowhere---OMG it's black and windy here in Dupage County. It can't just rain it has to come with violence.
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Just as it was coming in
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Talk about a picture saying a thousand words....that really does look nasty.
Peace and love
Jackie
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Oh lago what a picture--it's actually beautiful if it were someplace else.
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Happy Birthday, Rita. The cakes will be coming. I bake a mean, real time cake but couldn't post one here if my life depended upon it. Well, maybe I could, but it would be a feast for the eyes weeks past the birthday! Have some catfish for me!
Zap/Susan
Maybe one of you tech girls could find a cake, do some graphic tricks and impose (right word????) a catfish on top. I am good for setting the bar on tech for others!
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I'm on my way out(rain stopped) but will this work? There are a lot of catfish cakes out there! Happy Birthday Rita and keep on dancing to that tune I posted this morning.
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Happy Birthday Sweet friend
and many, many more.
Peace and love
Jackie
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Yes I'm in the storm area right now too. Downpour, thunder, lightning, high wind gusts, and some hail. My electric went off twice and I lost tv signal for about 30 minutes...that was the worst part..lol.
Thanks everyone for the welcomes. It's easier to talk to people here about what we go through then anywhere else. My friends and family mean well but they just don't understand. My dear sister thinks I should be preparing for death and accomplishing everything on my bucket list today. My mother calls me everyday..sometimes several times a day...if I don't answer right away she calls over and over. God forbid if I'm in the bathroom when she calls (constipation takes a while to go and I don't bring my phone in while using it...gross). She thinks I could become unconscious and die at anytime. However, other family members think that my cancer treatment will cure my cancer and keep asking me when I will be told that I'm cancer free. Uh I'm Stage IV I will never stop cancer treatment and never be told that I'm cancer free. I try to tell my sister, Mom, and son that I'm not at death's door and I'm not frail but they just keep worrying. I know it is because they love me but it drives me a little crazy. I've always been very independant and strong so it makes be feel SICK when they stand over me all the time. I have to admit I sometimes forget that I have cancer, I know that sounds weird but true. So I do sometimes do more than I should and I feel it the next day. I have to remind myself that when my counts are low I should avoid being around large groups of people.
Well sorry for the long post but sometimes I need to vent. I do love having you people here but regret that any of us have to be here. Take care and thank you!
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ohhhhhhh, Jackie and Lago, those are very nice cakes. I am shocked to hear there are lots of cakes with catfish, Who would have thunk it!
Dear aaoaao (I did it),
We have a woman who no longer posts but she is stage IV and she is not only alive, she is lively and living a good life! She did seek a clinical trial and travels for treatment. I do not wish to jeopardize her privacy here, but I can ask her if she could email you privately if you are interested. She went to my doctor and was receiving "traditional" tretament. She did her research and found the clinical trial. Tell us where your cancer has traveled (lungs. liver, etc).
Now as far as your family. Yes, they love you and want to make all this go away. When I bug my adult and very independent daughters (health, relationships, work, etc), they rather firmly but without malice, tell me to get busy with other interests and concerns and not to hover as it makes them crazy. Just today I had to promise my younger daughter I would not ask her about an issue she is struggling with. It is hard but you may need to ask them to back off a bit. Good Luck! Susan/Zap
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Thanks Zap for the advice. I have been thinking about that. Telling them that their hovering is making me crazy. I've told them that I'm fine and have a long time to be here so they need to keep living their lives but they still worry too much. I only have one met to one of my lower vertebrae. I have a good MO who is helping me fight this aggressively. I also got a second opinion from University of Chicago, a highly rated cancer center, and they agreed with my MO's treatment plan. They also told me I should be around for a long time since one bone met is a favorable dx as far as Stage IV goes. They also said that I'm no where at the time that I need to do clinical trials. Yes, it's okay to share my info with your friend.
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