New Want To Play A Word Game
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@2TA, I find that napping in the afternoon often makes it harder for me to sleep at night. I don't know whether the cat will jump on my bed or not, but when she lived at my parents' house she was always shut up at night. Since she came here, I've kept her restricted to one room while the remodeling was going on. Now that it's essentially finished, maybe it's time to let her out. Or maybe not. Last week I noticed that she was walking oddly. I took her to the vet, and he said she has a herniated disk. Who knew cats could throw their backs out? So she is supposed to stay on one level and avoid jumping as much as possible. Also, I think I want to get some sort of slipcover on my living room couch before allowing her to roam freely. I've seen some web pages about how to make no-sew covers from bedsheets or painter's drop-cloths. That sounds like about my speed!
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Poor kitty! I have a cover on the sofa I had custom made when I bought my first home (twenty-five years ago!). It's the one-size kind with elastic, works really well. I used to order linens from a catalog called Domestications. They had nice things at reasonable prices.
Never fails around here: when I finally do fall asleep something wakes me up. Either a cat jumping on me, noisy neighbors, DH who snores or a car alarm that beeps. Lately, I just sleep in long naps, cants wait to kick this sinus infection (or whatever it is, it's hanging on way too long). Beginning to think I have what I had once before, they treated sinus probs with anti-b's that were ineffective. Had to try a couple of different meds before I felt relief.
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@2TA, don't feel too sorry for the cat. She seems to be improving. Lucky little blighter, she got over her bad back a lot faster than I got over mine! Anyway she's right around 19 years old and isn't going to be doing the high-jump or setting a new land speed record any time soon. I think actually she sleeps most of the time. That's fine with me. Who knows what kind of deviltry she might get up to if she stayed awake?
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sorry all, lost this on my favorites again. I'm training my formerly-shy cat to come to where I'm sitting and touch my hand or arm (like to get my attention) with her paw when you wants a treat. It's really cute! Problem is, she walks across the iPad at times and I think she removes this topic for me. Now if I could train her to tap it back on! Lol! She's pretty much mastered that one, on to a new one: to offer her paw when I give the instruction "Shake". We're just starting the new one. The other thing I near to train her: she will sleep on my pillow and I have to move her quietly because goes to sleep much earlier than me. Sorry to reuse the word, I'm at a loss and want to bump this thread.
Curve, I saw your new chair is so much more comfortable. Way cool! How is the home coming together? Sure you're happy to not have to wash dishes in the garage. Saw somewhere you were talking about more rain coming in? Haven't seen that here. Hoping we get some more rain too.
Hi Red, Wahine and Onco (and anyone else I'm. Issuing). Hope all is going well with you all
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@2TA, my cat has taken to putting her paws up on the side of the chair when I am at the computer, or on the side of the bed, if I am in there. I have started letting her loose in the house during the day, when I am home, but at night or when I'm out, I shut her in the spare bedroom in spite of all her pleas to the contrary. Actually, she doesn't fuss about that, because it's what she's used to. My parents never let her roam the house when they were out or at night. But now that I am back from the Ash Wednesday service, I guess I better go let her out. Or, since it sounds like she's asleep in there anyway, maybe I'll wait until after my nap to open the door.
The house is almost finished. There are two small parts for the bathroom that have been ordered but not delivered yet. When those are delivered and put in, the interior remodel will be DONE! (at least phase 1 heheheh) Then, on to gutters, tree removal and exterior paint. Also, I got it fixed up with my neighbor to mow the lawn for me, although it turns out he doesn't have a riding mower, so I was asking for a bigger favor than I realized.
And, I have made a start on my genealogy project.
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curveball, yay, big steps towards completion. Sounds like the work to be done is outside so no strangers need to be in your home. Ahh, sounds like a new lease on life!
So cool with the cat. My two wouldn't deal well with that. We had carpeting replaced in fall of 2011 after major water damage. Since then, one cat in particular accidentally got shut in a room different rooms, she she torn the carpet by the doors trying to get out in two rooms (also, in the coat closet downstairs, but we had tile placed there with water damage last year).
Onco, good to see you here!
Red and Wahine, hope you're doing well!
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Hi all. Well rads is going, just not well. They are having problems with my stats and I spend 45 mins in the stirrups each day not moving. Yesterday, after all the adjusting etc., they didn't even do rads. Just said sorry can't do it, we'll tack one on to the end. So my last day is no longer on my birthday but on the day after. Booo. At LEAST it's only another 9 days.....I think.
Love to you all.
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oh Red, I am sorry to hear about your difficulties with rads. I wonder why they made you get in the stirrups before they know for sure that you will be getting tx that day. I remember last time I had a bone scan (also takes about 45 minutes) my back was really hurting by the time I got to the end. I really found it almost impossible to hold still and can't imagine what it would have been like to be fastened in place and unable to move. Agony! But when I hear some of the things that happen to people in the hospital, like nurses or other hospital staff who berate or belittle them or treat them as if they are stupid, lying or otherwise being troublemakers, anything I have ever been through in like circumstances pales in comparison. I am glad to say I have never gotten one of those mean, unprofessional nurses that other people on bco seem to have encountered. And I hope I never do!
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Curve, you know how they take pics on days 6, 11 and 17? Well when they took mine on 6 I was off line with what they my planning schedule said I should be. So the next day they took pics and adjusted me 8 times before they were happy and did the rads. The next day it was 6 times. And it hasn't gotten better yet. On March 5th they couldn't get me aligned and called in my planner. On the 6th it was a no go and they had a Medical Physicist in the room. Yesterday, my RO was there and they did the rads. I think it's because my breast is shrinking daily.
It'll all be done soon. 8 more. My skin is red and I'm not looking forward to the day it PEELS, but I'm ok.
I'm also now wearing a heart monitor for the weekend. When it rains it pours, eh? Guess my beats weren't happy during the last test. O well, this too shall pass.
Have you heard from Kat at all? U miss her and she has been on my mind a lot lately. {{{{{{{Wahine}}}}}}
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@RedReading, I don't know anything about rads. The major reason I had a mastectomy rather than a lumpectomy was to avoid RT. I have dozens of little moles all over my chest and abdomen, and the thought of going through the rest of my life wondering whether the radiation would make one of them turn into cancer was something I just didn't want to deal with! I will confess I have a phobia about radiation and I hope I never end up having it to treat bone mets or anything else. When I read about people's difficulties with radiation SE, I am glad that I made the choice I did, even though I will almost certainly never have my breast reconstructed as I originally planned to do. I really agonized about the decision of what kind of surgery to have, because my tumor was so close to the chest wall that even with mastectomy there was some possibility I would be advised to do rads also. But a mastectomy was my only chance to avoid it and as it turned out, no rads were advised. I'd have been furious with myself if I had decided LX and it turned out I would not have needed rads if I'd had MX!!
It seems like whenever I have to make hard treatment choices I go into what I call the "black spiral of despair". The same thing happened last fall when I was advised to go back to chemotherapy, and had to choose between four different meds. I am taking a class to learn coping skills so hopefully next time I have one of these decisions to make I won't get quite so depressed and worried. I hope the class helps me to cope, because going down that spiral is a really miserable experience.
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Hi girls! Red, I heard you calling for me....really I did! How are you doing, dear? My DD has her last rads tx on Monday, and gets to ring that bell. You can believe I will be right there next to her! She has had to be on very strong pain meds to even get the mouthpiece in her mouth as it is full of ulcers now and in such pain. Then the mouthpiece fits into the mask that goes over her face and shoulders and is attached to the table, so she can't move at all. When they get it on her, it just takes 10 min. She is very burnt too, so dark red where the rads are aimed. Deb, I sure hope you do okay with it! I think the combo of chemo with the rads is what is making hers so hard to deal with. I hope you are not having chemo too. Rads is hard enough! Do you have my email? I was thinking of you the other day too.
Curve, hope that class helps you!!! I can only imagine how hard it is to deal with everything. Well, not just imagining, as it has been pretty hard for me too. Just want to sit on a shelf and hide.
My DD2 plans to drive here tomorrow after church, from TX, so I expect her to arrive around 10 pm or so. She wants to be with her sister, and wants to help me out. She didn't think that I would have to be cleaning MY house all weekend before her visit. LOL. I finally had a nice visit with my parents this afternoon. I was gone so much and just tired when I would get home at night. SO this was nice. I also planned a visit to Cancun for my DH and I, later on. We had our honeymoon there, and it will be nice to get away for a few days.
I heard from Maddy, which was so sweet of her. And I also heard from OncoWarrior awhile back, which was also sweet, so I am hoping they are still ok, too.
I think Deb has some neat trips coming up this summer and fall too. Hope everyone is doing well, I didn't get to read the back pages, just got on this page and read the last 2 posts. Take care, and BIG HUGS!
Kath
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Kathyyyyyyyyyyy. O it's so good to hear from you. I have been worrying and praying for you and your dear family. Monday is her last day? Thank God. Then it's time for healing. O my. It's been such a long and tough haul for both of you. Make sure you ring that bell loud and long! Super that you will get a few days vacation when this is over. You need it I'm sure.
I have been missing you. You were one of the very first to welcome me to BCO. And no, I don't have your email. I see Bernie on FB but Maddy is the only person I've exchanged emails with. I feel awkward asking if someone hasn't offered.
Curve has been marvelous company tho. She has a quirky sense of humour that I like. And she's way better at word games than I am. Yes, you are Curve. ((hugs))
Curve I'm glad you are taking proactive steps to avoid another descent into the black spiral. I hope the classes help. There are tons of strategies for coping when life's coming at you too fast. It's just finding the one that works for You that can be difficult.
I really get it tho, because I've been thinking I might ask to speak to the social worker at the center this week. I've been down for a couple weeks now and that's not like me. It FEELS horrible. I think the heart thing on top of bc just tipped the bucket. You know?
On a lighter note, how's the reno coming. You should be almost done now, yes? I know you're not washing dishes in the garage any more. Lol.
OK. Kath, can you pm me with your email? Thanks.
{{{{{{Kath & Curve}}}}}}
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Onco Warrior - hooray the gangs all here. How have you been? I've missed you too. That is one smart old Indian. I've always wondered what the point of daylight savings time was. Also, I don't have the kind of brain that copes well with time changes. I just can't figure it out. Light earlier or later? Is the west coast ahead or behind. I also do poorly with north south east and west. I need the lefts and rights. Lol.
Glad you popped in to say hi.
(((onco aka cc)))
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OOPS, no word here, just wanted to give a shoutout to OncoWarrior, too. That was cute!
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@OncoWarrior AKA CC, I never figured out what Daylight savings time is supposed to accomplish.
At least they finally moved it so the time change never happens on
Easter Sunday any more. Before I moved I was in the choir at my church,
which has a sunrise service starting at 6 AM. Now I am the original
night owl and I hate getting up that early in any case, but to have the
time change that weekend made it even worse! I finally figured out that I
could make it not quite so bad by doing the time switch on Saturday or
even Friday night after I got back from that service. I resigned from
the choir last year after I ended up in the hospital from a chemo
reaction and haven't gotten back to it. I was thinking about starting
right after Christmas and then I got that rotten bug or whatever it was, and I've had a persistent cough since then. Now I haven't sung for a year, which I think is the longest gap ever. I might try it if I were still at my old parish, since I already knew most of the music we did, but my health has been so unstable that I don't feel confident of being able to make it to enough rehearsals to learn new pieces well. Really, I don't know if I will ever be able to go back.@ RedReading Heeheehee I got my strange sense of humor and being good at word games from my father. He used to play pun games with us when we were growing up. Its funny, we kids all knew how to play, but had a hard time explaining it to anyone else. I don't think anyone else ever quite got the hang of it, even my mom, and she's no slouch. I think it must be some quirk in the wiring of our brains that we inherited from Dad. Anyway I am glad to know I haven't lost it totally. Ever since chemo I have sometimes had trouble thinking of the word I want, which almost never used to happen before that. I guess if that's all the cognitive impairment I end up with, I got off lightly, but it's disconcerting, to say the least. The renovation is finished all but two little loose ends, and parts have to come in before they can finish those two. One is little trim pieces that fit in the edge of my shower pan, and the other is brushed stainless steel trim for under my bathroom sink. Well, actually it's brushed nickel, but that's too many letters.
@wahine I am so glad your DD will be done with rads on Monday. What a long haul it has been!
OK, I gotta go now, I hear the timer to take the lasagne out of the oven. Thanks for cheering me up. I've been pretty blah today, it's raining buckets and I've had an annoying headache.
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Have been training my cat and she walks across my iPad and accidentally deletes threads from My Favs, she did for this one. Takes a bit to realize this has happened.
Curve, I often have trouble thinking of the next word and figuring out how to place it is a narrative and I didn't have chemo so no excuses there! Lol! People throw the "getting older" phrase in there, but I refuse to believe that my age will steal my cognitive abilities. Sometimes, it just doesn't happen. So glad your home is coming together.
I used to have the same problem with changing clocks on the same day as Easter Sunday ( and for sunrise service), I also had a 1/2+ hr drive. Not happy with those services. The only thing I did like back then, was we used to have a special guest for the later Easter services - do you remember Della Reese from Touched by an Angel? She would come to sing for us (back in the days before she had her own church). Ah, brings back memories from the '80's.
Oops, looks like the clock gods bumped my online clocks ahead one hour but they don't match my regular clocks. Hope I'm not confused later.
Wahine, I owe you an email. I did get both, thought I replied the first, maybe not, wasn't feeling well then. I need to gather my thoughts and give you a proper response after your great notes. Am so sorry you and your DD (and family) are going thru so much now. Hoping the worst is behind all of you now.
Red, sounds like there's a light at the end of the tunnel for you. Chuga, Chuga, choo choo.! I think I can. I know I can..
Onco, looking at old PM's, saw the CCFW, surprised they didn't disappear or crash the system!
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Maddy!!! Yay welcome welcome. Now we are truly back together, on the same page! Haven't talked to you in a bit either. I've had stuff like that favourites thing happen to me too. Generally by the computer though, not by a cat. Lol. Usually, it makes a long post go bye bye when I hit submit.
I too have had problems searching for a word now and then. More upsetting to me is when I can't remember how to spell something. I was always such a good speller. Sometimes the rotten DEALS life gives us suck!
I like good grammar too. My DD once got me a card for no reason except that it said - yes, Mom, I know you are silently correcting my grammar as we speak. We both chuckled over that one, because I do.
8 more tx and I am done. Sigh. Wish it were today. I've heard there's a bit of a let down after tx are done. Did anyone experience that?
Ttyl
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Good morning girls!
Awesome that you know Della Reese, Maddy! She must have been such a delight to listen to.
Red, Hoping your tx will be more gentle for you, this is so hard, I know it. You have kept your sense of humor, awesome! When you don't know a word to use, just try to slide any word into the conversation. Or just say this is my word......(insert word). LOL.
Curve, so glad the reno is almost done, that was a long haul, esp when you were so sick during parts of it. Hope you get back to the choir! I used to teach the 3-4 year olds at Sunday School, but when my late DH died (almost 22 yrs ago) we had just gotten a new minister, and he just was no help to me at all. He really turned me away from the church for awhile. I did stay on, but a few yrs later when I started dating my current DH, he took me on so many trips, plus I was still working, that when I was home on Sunday I had too much to catch up on. Not a good excuse, I know that, but that is what happened. Then it is SO hard to start back. Both my girls are very active in their churches, and do so much there. My youngest DD is driving up today from TX, but has to wait till after the church service, even though it will prolly take her 10 hrs to drive here.
Have a good day, OncoWarrior, and everyone else too!!!
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Good morning again.
Kath, I think at this point I am more angry than sad. I'm ticked off that they keep saying it happens to everyone. It doesn't and they won't tell me what's up. Breathe Deb! I'm taking my DH and my DD with me tomorrow for my RO apt, hopefully that LEADS to more answers than I'm getting now.
ttyl - my mom is coming! Yay!
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Deb, My mind leans more to listening to what others who have gone through similar tx, have to say. My DD learned so much more (and the bad SE's) from an online thread with others that have had what she has. The drs and nurses sure don't mention much, and don't have many helpful tips either. I HOPE you can find answers, and I PRAY that you are healing every day. I know my DD was so frustrated as it seemed every visit the nurses and drs would mention something else, some more tx or more SE's that they kept from her earlier. I guess if they had told her what she would be going through from the very beginning, she might have nixed having any tx. I do hope your heart problems settle down and you will have healing there also. Enjoy your mom's visit!!! (((Deb)))
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@wahine, really, I sometimes think our oncologists are so focused on zapping the cancer they either don't realize or ignore how thoroughly their treatments can zap the patient. I remember hearing somewhere about an exercise of some kind where the effects of aging were simulated by such things as wearing glasses with vaseline smeared on them to replicate reduced vision, having to do everything with gloves on to simulate loss of touch sensitivity/lack of ability to grip and so on. I don't remember now whether this was for medical students planning to go into gerontology or something less specific. I found a link that describes some of these simulations and the reactions of students to the exercise. Or maybe it is this newspaper story I remember.
Anyway, sometimes I wish there was a way for our oncologists to experience what it's really like to be on chemo. Maybe require them, as part of their schooling, to wear weights in a vest and on their ankles and wrists to simulate fatigue—progressively heavier weights over a span of time. I'm sure there are relatively harmless substances that would make food and water taste strange, or replicate the all-over achiness some people get. Perhaps we should also include a good dose of No-Doz, to simulate the wakefulness steroids can cause. I won't suggest that the doctors-in-training should be given a dose of ipecac to simulate getting antinausea meds that don't work—that would be mean! And no chemo simulation could be complete without removal of hair, eyebrows and eyelashes. Last but not least, the ROs should have to spend a certain amount of time every day for several weeks fastened immobile to a table to simulate that part of treatment, and the MOs should be required to go to a particular place and stay there for an hour or two once a week for several weeks in a row, to demonstrate the impact that administration of chemo has on your schedule. And of course, they would be required to get to all of these appointments on their own time, their own dime, and making their own arrangements for alternate transportation if they draw the random card that says an unexpected side effect has made it impossible or inadvisable for them to drive themselves!
I think they need to learn not only how to treat cancer, but just what it is they are putting us through in the course of doing so. Maybe then, they would not be so likely to gloss over side effects, and they'd know and remember to take the necessary steps to prevent them, like covering your DD's fillings with wax before her mouth was full of sores. Or perhaps this type of experiential exercise is deliberately left out of their training. They are (supposedly) afraid we might reject all treatment if we knew in advance how rough it would be. Maybe they'd be afraid to suggest it, if they knew!
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Wow, your associate must be one tough cookie if she's still around after four bouts of ovarian cancer, including mets. I'm sure her talk does those docs some good, but I bet they still don't really know what it's like. As it's often said around here: people who haven't had cancer "just don't get it". Even with a simulation exercise I think most still wouldn't "get it" completely, because
there's really no way to replicate the knowledge of early stagers that the cancer could
come back, or with advanced disease that the cancer might progress anyway in spite of the tx, and that even if it works at first, eventually it will probably stop working.Since you ask, I'm not a bowler, or a baseball fan either if that was your next guess.
I chose my username because getting cancer was not what I planned on—as in "life threw me a curve ball", though with as many near relatives as I have who've had cancer, I guess I shouldn't have been surprised. I'm not even going to try to work my way around to my next word, which is nurse.
P.S. my cat has discovered that the tile floor in the bathroom is heated. She loves it!
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moo
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OK I need my STERN voice now. Moo? Really? Moo? It threw me right off. There I was, reading about future doctors and suddenly - moo
Onco you're too darned funny. But really, why moo?
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Cow goes moo.. my kids used to say that a lot when they were younger. I can't do another word now just I just used STERN one post ago. Darn.
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I''ll do another word but I'm too sleepy right now to make up a story to go with it. The word is trend.
Now it's time to do the dishes (in my nice warm kitchen
) and go beddie-bye.0
