Bottle o Tamoxifen
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PEG..Would also def call onc or doc always better to make sure please let us know how you are hugs!
OAKLEY..Welcom aboard. I was scared at first too I have been on Tam since Sept with a week break for surgery. Had a tough time back in oct/nov. When I went back on after surgery I started it slowly and now split my dose 10 in am 10 on pm that seems to help along with daily exercise and keeping very hydrated, which since I am always so dry mouth is getting easier lol... had insominia at first but that actually tapered off fairly quickly and now sleep is my new best friend:).. Try not to worry, someone awhile back posted all these wonderful things that have to do with Tam and I printed it ( sorry cant remember who)... well one that sticks in my mind is " I think of TAMOXIFEN AS A LITTLE WHITE ARMY IN A PILL"... so I read that a say go to work my little army anf fight
Good luck and hugs!
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jo1955 ~ You are anything BUT weird. My hat is off to you for being a Tough Cookie! I felt the same way you did, I'll just jump in with the Tmox and see what transpires, that's the only way to find out. My cancer was 90% estrogen positive and I hope the Tmox is starving those 90% with each passing tick of the clock. So far, I can deal with the few SE's I'm having far better than I can the thought of this cancer coming back. I've decided it is unreasonable to think that I would not have some lingering after effects from dealing with something that was trying to kill me ~ my bad left tata.0
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phxsunshine - My cancer was ER+/PR+ - both 100%. Good to know I had that percent for prognosis. My thinking was when I started Tamox, you gotta do what you gotta do to prevent the cancer from coming back. Why fight it or be scared of it. I couldn't see the logic in it.0
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TONIGHT'S DESSERT IS NOW SERVED!
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When I finished radiation in Sept. I started out on one of the Al's. In three weeks I had unbearable joint pain. My onc immediately switched me to tamoxifen. From the beginning I have just taken it in the morning with the rest of my meds and had very few SE's. Until about a week ago I've had interupted sleep patterns that have prolonged the recovery from the rad induced fatigue and loss of energy. The last couple of weeks I have had painful toe cramps in my left toes 3 or 4 times a week. Hurtful but manageable. Far better than the Al's and to me a small price to pay if it keeps me from another battle with a new lump.
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Hey I wish I knew what percentage of my cancer is estrogen positive. I don't think I was ever given a number.
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Yes ladies indeed you are right this is def a fasssssssssssssst moving thread. I dont know if I will be able to keep up with ya'll. . . . but I am willing to try . . lol !!!!!!!!!!!! I have been taking tamox for a little over two weeks now and the SE I have noticed are hot flashes and I dont sleep well at night.
I have developed a cold, and I have a bad cough (which I am going to monitor to make sure it doesnt turn into something else) . Typically "how long" should I wait to see about the cough ??? SO far it has been about7 days. Thanks
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Oakley - Welcome. I am like Jo...jumped in feet first. Had done all the reading I could pre-DR. visits and the oncologist , my surgeon and radioloist all confirmed what I had read...the benefits outweigh the side effects. Like Doingbetter...I hate having anything in this body of mine....but I am on Tamoxifen for the long haul and sleeping pills (zopliclone) for the time being along will my vitamins and that is the way it is....I prefer the potential for se's rather than the alternative. I split my dose and have also just gotten a script for 10mgs so I do not have to split the pill myself (and not split it evenly). I take half in the morning and half in the evening a supper. I do not have hot flashes very often but dress in layers in case I do and I have an extra shirt in the car at all times. Remember too that most people post when we are scared or worried or whatever...most folks who are coping beautifully do not reach out to others on Discussion boards. I found Breastcancer.org because I was not sleeping and was waking up sweating buckets at 4am...I wanted to know if that was a side effect of Tamoxifen...and vooila! Here I am one month or so later posting like a madwoman! I have glycine on my counter to help me sleep, split my dose now because of the advice I got here and all is fine....You CAN do this.
Sandee
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OKAY EVERYONE! I went and did it. I signed up on Facebook. I don't have a picture yet. I have to use my personal computer at work - it has all my pictures. I blocked the person I don't want to find me and I set everything so that only friends can see me.
I have no idea how to do FB, so I will need lots of help.
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ok...so now you need to give us your name so we can add you to our facebook pages! Mine is Sandee Thompson
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yeah Jo!!!! I didnt either when I started, but we will walk you through it
I will pm you my name and then you can friend request me when you find me and thats a start lol!
SINGLETON..Welcome aboard... sorry to hear your not feeing well, I would think waiting on your cough wuld be up to what is normal for you. I have asthma so when I get sick my coughs always linger so I expect that, so if you start to feel that its longer than normal for you I would check with your doc.. fell better soon!!!!!
Beautiful day here ladies tomorrow even nicer, I decided I am treating myself to a pedicure tomorrow...
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Ok all. Thanks for the advice. I will call first thing tomorrow to see what they say. Really hate the thought of starting periods again but don't like the other alternatives either. I will keep you posted.
Jo1955 - Send me a pm too with your facebook name.
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surfette - you ask your Doc for a copy of your pathology report, they will provide you one. I was given the report from both my biopsy and my surgery, it will state the numbers there for your knowledge. Helped me understand what I was dealing with and more importantly, what I wasn't.0
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phxsunshine,
Thanks, I am going to look for that report, I think I have it, I just didn't know there was a percentage attached.
Tomorrow I am going for my first mammo and ultrasound since the surgery in September. I'm a little nervous because I've been feeling a bit of pain in both breasts. The thing that's really weird is, I think to myself, if I have a recurrence, it may mean I will never get to finish the book I am writing that I am 1/3 of the way through. That is the main thing going through my head.
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Good mornin'!! Geeze this train does move fast!!! Working and trying to get on here to read is sometimes a nightmare...heheee I can't get all the post read and want to answer!!!
For those of you who are on fb...I will join ya...yeah, I do have so many of my family scattered all over the country that we keep up on there!! SO I am on there alot!Still on my break of the tamoxifen. Drs. decided NOT to do the MRI biopsy first, but to do another MRI first.....here we go again with mixed up decisions on their part again!! I am changing after this gets all taken care of... so here I sit.... had the MRI yesterday and waiting for the results.
Glad some of you are having so few SE's on the tammy, there is hope!!
And want to encourage you that are having SE's to just keep on keeping on...hopefully they will pass!
I should be starting back on mine after all this is over... we shall see what happens when I get the report.I will pm you Sherry with my real name and hopefully get to join all of you on fb too
HUGS to all of you!0 -
Morning gals! singletona80 .....I just read your post....Make sure you only have a "virus" like a cold or something, because any kind of cough can be bad...You probably "know" yourself if it is "just" a cough, but maybe get it checked out...
And yes, as you have probably read, hot flashes, are pretty routine with Tamoxifen, or as with me, they were just "warm waves"....and in MY case, they are hardly even noticeable now...Been on Tamoxifen for over a year..... But don't quit taking the Tamoxifen even if you have a cold!
I hear so much about "face-book".....I just have a stupid question here....Is it just another form of communicating with each other? I mean can you say as "much" on there as you can on here? Is it like repeating what you can say on here, like about breast cancer & all? I guess what I mean is "what's the difference?" (any explanations would be helpful...
) I mean, I have so much "stuff" going on during the day, wouldn't that take up even MORE of my time? TINK!!!!!!!!! Is it because I am older & my brain doesn't want anymore interferences?
xoxooxxoxoxo
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Good morning everyone,
Thank you SO SO much for all of your input and responses. You've all made me feel much better as to why I'm going to do this, and I'm going to be strong about it and dive right in! In the meantime, I hope everyone has a wonderful weekend (the weather here on the east coast is beautiful for now).
This is a wonderful thread and I look forward to chatting when I get back from vacation and hop on the train!
Jo - all that food looks delicious! No calories!
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Chevyboy,
You would have to join facebook to see how it works, it's not set up like this. In answer to your question, I don't talk about cancer on facebook, but that's me. Once you set up an account you will understand more what it is.
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Surfette I am like you as I don't like to talk about my cancer out loud....on occasion I might post something and the people who know what I have gone through can relate, otherwise I am pretty vague on FB......Good luck today on your mammo......fingers crossed!!
FB if anyone wants to look me up and friend me look under June Babineau Bonetti and just let me know your screen name so I know who you are......
Good morning ladies, looking forward to a 60 degree day today.....
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Singleton I developed a cough 6 months after treatment stopped and I had it for 6 weeks and I went to my doc's so many times and got different antibiotics......it just took so long to get over it that i could hardly breath when working out, like every time I took a deep breath I would cough non stop for many minutes......It turned out to be a cold from hell that just lingered and the doc's thought it was due to my immune system being down......so hang in there and it doesn't hurt to get it looked at, especially the nerves about worrying so much!!!0
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SURFETTE..Good luck with your mammo keep us posted!!! look forward to reading that book someday
CHEVYBOY...You sound pretty sharp and smart to me!!!!!
xoxoxo to you today!!!! FB is really a different way of communicating. I think its been a great way for us to kind get to know eachother, in a different way, not just we all have bc and our on Tamoxifen. Who we are on a different level... JUNE..I am like you I dont openly talk about it although when I was first diagnosed it was on there because of something a friend wrote to encourage me and then everyone started asking so I did put it out there, but having said that the amount of prayers and support I recieved from that post helped me so much that I was happy that they knew. But yes on a reg basis not really . Enjoy the beautiful weather
jo..whats for lunch????
Happy day ladies hugs!!!!!
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Glad I went to the gym today because that PIE looks divine. Virtual calories? lol
Sunangel, praying you get good results and soon. WAITING is awful !!
Surfette ~ hoping your tests go smoothly and you get the all CLEAR. And don't be silly, you will finish writing that book and then start another ~
I am one that talks about my cancer on occasion but doesn't dwell in it ~ it empowers me sometimes to talk about it and makes me feel like I kicked it in the butt. I am thankful for each day that I wake up and try to enjoy life for this cancer diagnosis makes you see that it can all be over at any moment. AND it is out of my hands........ so LIVE life my friends.
Ok that is my pep talk for the day. ENJOY it is going to be 62 and sunny here in NY woo HOO. Spring is a coming I hope......
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Justmealicia I like that attitude "live life" we all need to do more of that these days......
Tink don't get me wrong I have said small things but just not direct and it does help all the support that comes along from a post when completely depressed.....
Love seeing your pic Jo, you are a beautiful THIN women which surprises me with all that food you post....LOL
SO sunny and warm today.....
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I got ya June xoxo I know what you mean, people on fb know, most anyway, whats going on but any big problems concerns I would come here first .
YES ALICIA...Live life I love that and agree June we so do have to enjoy eachday!!
QUESTION LADIES... Any thoughs on why hot flashes stay away for nights at a time and then some nights its one big sweatfest???.. last night was an all night event wow.. and some nights no problem..hmm..
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Well this neausea business is not good but getting better. After supper last night just layed around because it felt better to lay down than to be up. Even missed yoga class. Got up this morning and thought everything was good until I ate breakfast. Took something the Dr gave me but put me to sleep. When I got up I felt so much better I finally made it to work. So maybe I am on the upswing of this. I sure hope so. Suppose to start back on my tamox monday night along with prescription prilosec 2 times a day. We shall see how I feel then.
Sunagel I have been wondering how things were going for you. Lets us know the results of your MRI and what is next for you.
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Sherry - I know this does not work for everyone - but I took my Tamox with milk for a while. It did settle my stomach. Now I just take the whole thing at breakfast and forget it.
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Hey Sherry, I will let ya know as soon as I do.......this waiting sure sucks!!!
Thank you JustmeAlcia!! I will as soon as I do.....
June I will look you up and add you....Paula
Oakley glad you joined our train, but not for the reasoning!! It will be good to see your posts....enjoy your vacation!!! I am going to get away the end of April with two of my best friends!! One will fly here from Ga, then we will drive to Dallas to spend a few days with the other friend!! I CAN'T WAIT!! I need some get away time with my buddies!!!!!!
Chevyboy...I keep tabs with all my family and alot of my friends thru fb... and I do share some of it there, because otherwise I would be making TONS of calls and EMAILS.......I come from a HUGE family and we are scattered from California to Georgia!!! heheee
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Jo, I had to have an emergency hystorectomy at 27, so guess I am probably glad I don't have to deal with any of that stuff now.......all this is enough!!!
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sunangel - You bet this is enough. This has been some experience - one I don't want to repeat.
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ALL ABOARD TAMMY LADIES - THIS WEEK THE TRAIN IS HEADED TO CALIFORNIA WINE COUNTRY. Anyone interested in joining me in the bar car?
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