African American Women & Triple Negative Status

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  • amIdoneyet
    amIdoneyet Member Posts: 17
    edited August 2010

    Hi all.  Good to see that everyone seems to be okay.  I am winding up my radiation with 8/9 being my last day.  I have 3 more boosts to go!!  I am still doing a clinical trial of Avastin every 3 weeks and I have about 7 more doses, so more treatment for me after rads, but I can definitely say that I fought this beast with everything and gave my all!!  Blessings to all....

  • patoo
    patoo Member Posts: 5,243
    edited August 2010

    Alaina, update please - how are you doing?

    Amidoneyet - how are you feeling now that rads have been completed?

    Indominable and ILinda - chime in and let us know how you are doing when you get a chance.

    Blessings.

  • village
    village Member Posts: 2
    edited August 2010

    Hi i am afro American with triple negative status also no spread to the Lip Nodes.

    I will start Chemo soon not looking forward to it. han anyone had the Chemo treatment cytoxan/taxotere will have 4 treatment? My doctor said will be low dosage not sure what that mean.

  • patoo
    patoo Member Posts: 5,243
    edited August 2010

    Hi Village, welcome to the club that we were not given a choice to join.  You will find lots of support here that you won't really be able to duplicate anywhere else.  This thread is not always active as we get tons of information from the other threads but do come occasionally and let us know how you are doing. 

    Meanwhile, I urge you to check out the "Chemo" threads, and I believe there is also another triple-neg thread too (you can see I'm here but I'm not TN; just somehow only post on this AA thread).  You will get loads of support and information on those other threads and will make many cyberfriends. 

    Good luck and if you ever feel the need, you can also PM me (click on my screen name or the 'private message' link in upper right).

    HUGS

  • village
    village Member Posts: 2
    edited August 2010

    Good Morning

    Thank You so much

    I am not looking forward to Chemo treatment, definetly not looking to

    purchasing a wig.

    Again Thank You

  • patoo
    patoo Member Posts: 5,243
    edited August 2010

    Village, sent you a private message.  You can click on the link at the top right of your screen.

    More HUGS coming your way.

    Hi to everyone else!

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited September 2010

    I was daignosed 8/30/2010, and I am ready to fight and win! I don't care about loosing hair I care about being here for my kids! Please ladies welcome me into this elite club of DIVAS!

  • patoo
    patoo Member Posts: 5,243
    edited September 2010

    Fighter_34 - YES - you have the right name!  Welcome into this club that no-one applied to join.  We come here, to this thread, occasionally but the other threads are much more active so please read/post on them as well as you will find amazing support from the sisters who have gone and are going through.  Yes, you may lose your hair but it's much better than losing your life.  Think of all the cute wigs you can model!

    Here's also a link you might like to checkout as well: http://www.sistersnetworkinc.org/index.html

    You are limited to only 5 posts a day until you reach 50 but feel free to PM (private message by clicking on any member's name) which are unlimited in case you need quick information.

    HUGS.

  • indomitable1
    indomitable1 Member Posts: 136
    edited September 2010

    Hello Ladies. So glad to hear that all the ol'timers are doing well. Village, Fighter-sorry you are in the club but know that you are not alone and will be supported.

    And it's true, Patoo keeps us lifted in prayer.

    And Village, please make sure you have looked at the Calling all TNs and the chemo discussion threads (especially preparing for chemo) which are very informative. I did TAC x 6 and rads. PM me with any questions. I'll start checking in more frequently.

     All is well here. Have repeat scans in October in anticipation of one year post chemo (which is when my onc counts my first year out.)

     God Bless! His grace is sufficient.

  • indomitable1
    indomitable1 Member Posts: 136
    edited November 2010

    Hope Everyone had a Wonderful Thanksgiving Day! 

  • patoo
    patoo Member Posts: 5,243
    edited December 2010

    Hi everyone.  I've been MIA for a month but still thinking of you all. 

  • indomitable1
    indomitable1 Member Posts: 136
    edited December 2010

    Hello!

    I pray everyone had a peaceful and joyous celebration of the birth of our Savior! We had a wonderful quiet Christmas with immediate  family (and food). Will meet the rest of the relatives for New Year's celebration.

    Patoo-is it true that you went on another mission trip? Where? was it for the whole month? You look great in your new picture.  

    Linda-miss hearing from you!

    I pray health and peace for all. Hopefully, those of you in the mid-atlantic and north are not too snowed under. 2 words for you-snow blower! 

    God Bless!

  • patoo
    patoo Member Posts: 5,243
    edited December 2010

    Indomitable1 - if I get a snow blower, how will I get my exercise in the winter?  Looks like it won't be until 2012 when I join you in FL, although it's been a little nippy down there lately.  (still better than 18 inches of snow with 3-4 foot drifts to shovel out from under!)

    Yes, I was on missions trip to Nicaragua in November but it was only 9 days.   

    Praying for a safe and healthy 2011 for you all.

  • JourneyNC
    JourneyNC Member Posts: 39
    edited January 2011

    Happy New Year Everyone!!!

  • patoo
    patoo Member Posts: 5,243
    edited January 2011

    Back to you.

  • indomitable1
    indomitable1 Member Posts: 136
    edited March 2011

    Anybody going to the Sisters Annual Convention in May?  I met Karen Jackson, the founder, at the C4YW.  What a dynamo!  In addition, they are having  a doctor from Jefferson, Dr. Edith Mitchell, present on TNBC and life after BC dx. Great conference by the way!

  • patoo
    patoo Member Posts: 5,243
    edited March 2011

    Are you going?  Aside from church and family gatherings I really don't do conventions.  I'm not a "group" kind of person - guess it's the introvert in me.  If you are going, enjoy!

  • msphil
    msphil Member Posts: 185
    edited March 2011

    hello to All, I didn,t have triple negative,( idc,0/3nodes, L mast,(3 months chemo,) followed byLmast, then 3 more months of chemo), rads for 7 wks,reconstruction didn,t ake,implant removed, tamoxifen for 5 yrs, now (Praise God) cancer free for 17 yrs. I,m sorry for your lost and I continually pray for us ALL.  (God Bless).msphil

  • indomitable1
    indomitable1 Member Posts: 136
    edited March 2011

    Thanks MSPhil!  Congrats on your cancer free status!

     Patoo-you're kidding! You are no introvert on here! There is so much that I learned at the C4YW conference and there was something so inspiring about seeing ALL the Survivors-up to 26 years out! And that was of women diagnosed as YOUNG women. So, I am expecting the Sisters  Annual African American Breast Cancer Conference to be awesome. They are even having a gospel brunch.

    God Bless Everyone & Special Prayers lifted for iLinda!

  • patoo
    patoo Member Posts: 5,243
    edited March 2011

    Hi Indomitable1 - yes, I am very much the introvert.  It is super easy to "appear" extroverted when behind a computer screen and keyboard.  Life of the party - yeah, right!   Actually there is a thread somewhere on BCo for introverts.

    So, I'm sure the Sisters conference will be awesome for those who enjoy that interaction.  I know  several sisters from the local NJ chapter who will be there so have fun and enjoy the gospel brunch for me.

  • rogam
    rogam Member Posts: 123
    edited March 2011

    3 years  cancer free next week---checking in! I pray that you all are doing well. Getting prepared for reconstruction at NOLA

  • patoo
    patoo Member Posts: 5,243
    edited March 2011

    Rogam, keep us posted.  I know we don't post much on these threads but you will be in our prayers.

    Sending a big HI to all my sisters.

  • rogam
    rogam Member Posts: 123
    edited March 2011

    Patoo Thanks so much. How are you doing?

  • Thatgirl
    Thatgirl Member Posts: 34
    edited April 2011

    Hi,



    Tis all

  • patoo
    patoo Member Posts: 5,243
    edited April 2011

    rogam, is reconstruction done or do you have a date?

  • rogam
    rogam Member Posts: 123
    edited April 2011

    Patoo the recon date is May 25 in New Orleans. Looking forward to waking up with boobs again.

  • patoo
    patoo Member Posts: 5,243
    edited May 2011

    Okay, will keep you in prayer.  I'm sure all will go well but be certain to keep us posted.

  • Lcharmie
    Lcharmie Member Posts: 156
    edited May 2011

    Hello Patoo,

    Hope all is good in your world.

    Rogam,

    Got you in prayer.

    Linda C.

  • indomitable1
    indomitable1 Member Posts: 136
    edited May 2011

    Hey Ladies!

    Linda-so good to see you back on the boards! How are you doing? You have been in my prayers.

    Rogam-I met Dr. Sullivan at the Young Survivor's Conference and he was awesome. There were a group of us who had dinner with him. Those who had already had surgery had only wonderful things to say about the group. I just don't feel ready yet. I, too, will keep you lifted in prayer. Congrats on your 3 year survivor status. You go Girl!

    Patoo-Hope you are well. Heading to Baton Rouge next week for the Sisters Convention. Looking forward to it They were really generous with scholarship funds. It should be awesome.  

    Had my 2 year (post diagnosis, not treatment) checks last 2 weeks. Praise God!

    God bless you all with continued peace and health.

  • rogam
    rogam Member Posts: 123
    edited May 2011

    Indomitable 1 please share more info about the Sisters Convention. Congrats on 2 years..that is something to celebrate and praise God for! I appreciate you ladies on the board keeping me in prayer.