Im bitchy, I moan, I groan.....anyway.
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Oh LuAnnH, that sucks SO MUCH -- geez -- I'm trying not to bitch about the days it took them to figure this out -- I guess I should leave that to you -- I'll be praying that this fix is quick and lasting. Hugs, Ann
Wishiwere, that's FANTASTIC you have insurance again!
(Geez, this post is kind of like "it was best of times; it was the worst of times" -- anyway, LuAnn, hope the worst is soon behind you)
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Thanks Ann!
{{{{LuANN}}}} I'm so glad you posted, I've been worried sick about you. I swear this headache I had all day is getting relief from the fact YOU KNOW what it is now! Prayers for the surgeons steady hand tomorrow, for your relief and for a quick recovery from the surgery dear. Dang it, it's just not easy for you any which you turn. Many, many, {{{gentle hugs}}} tonight that rest better knowing what it is and that it's fixable! Try to get some rest before surgery and we'll keep the prayers headed up for tomorrow sweet friend!
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LuAnn, you win the sucky award for the day - I hope everything goes well tomorrow
Bliss, I am so sorry, but all I could picture was a one-breasted woman doing 360s in her wheelchair. Are they at least kind to you when they tell you these things? Too much to deal with, no matter what.
Pets are funny things. The damn dogs I live with drive me nuts, but last year when #2 pug started shaking, stumbling, falling over, I rushed him to the emergency vet and considered $1200 for a scan of his pea-sized brain. Turned out it was a hair or something wedged down in his ear canal. Still, the family teases me about it.
I took #1 daughter for her senior photos. Lord, that child is photogenic. Not a bad picture in the bunch. The college catalogs are coming in the mail in force. Won't be long before we are dropping her off someplace.
No real suckiness today - I got to leave work early today, hit the bookstore on the way home, and told the husband I wasn't fixing dinner. Oh. there is the $600 bill for the crown on the tooth that I broke last year on the day of my dx. I thought we paid that bill last month. Guess not.
take care all - keep the suckiness to a minimum.
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WhaSux???? There was SO much to catch up on! I'll do my best (which is never too hot! LOL)
Drc-I don't know if it is an option, but abraxane is a derivative of taxotere & is better tolerated due to the way it is made--but you can't take it if you are allergic to eggs----might be worth asking about it if you really can't stop wondering....HUGS
Bliss-I am so glad you are here! The way you write about yourself made me LOL even tho what you are facing sux! I bet you are fun! Magic mouthwash is an Rx that any onc can order & it really worked like magic for me---mouth sores SUX! IF you have to bandage your leg how about using an ace bandage instead of tape? You may be able to do recon later--lots of ppl here have found that out months after tx is done! And...you go to photobucket.com, open an acc't, load your pix, hit the direct link button & paste them in here after clicking on the little tree up above!
AKA---big hugs- I often find other ppls' ios's make mine seem insignificant!
Hanna---are you sure it's a wedding & not a barn raising?? You may all get there & be put to work! LOL--sounds like fun! I actually had a wedding similar to that back in '79 but we only had about 25 ppl......I bet it will be a blast & can't wait to hear your review.
Diane--OMIGOD-you make me LOL & spit soda on my monitor!!! that sux!
Trish--sisters??? ENOUGH said!! siblings can really suck
Miss S--sure thing--- I think I still have thos pix-they will come to you by pm
Jerseymaria- I keep following your posts saying- I agree with jersey! Are you sure we weren't separated at birth???
sueper--you made a good suggestion about the KFC---are you a Semi-Homemade fan???
Wish- I have heard of thinking out loud--but you write out loud!
Nikki-thanx for deb's update!
psk- I have a hs senior too! Holy smokes-when are we gonna get to enjoy the senior year?? They have their little tootsies half way out the door already!
& THAT SUX!!!!!!!!!!! Be well & stay strong-- I LOVE this thread!
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OHH-- I said I suck at this!
LuAnn---you are in my prayers for an easy, successful procedure! Please let us know how you are doing asap (or my knees will get sore!) Big HUGS
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LuAnn, hope they get you fixed up soon with that pump.........big sucketh
Yay Wish.........cripes, all that insurance crap gives me a headache just reading about it, glad you got some again!!
Diane....BOO Hiss.......chemo
Hanna.....your wedding invite made me laugh! Last month a niece up north got married. It was an outdoor wedding in a small town more or less out in the bush. The invitation read to come casual and feel free to BYOB and bring a tent! WTF???? HAHAHA.....OMG talk about a redneck wedding!
Dani Girl.......nice to see ya back, now if I could just get mine packed off back to UNI I may get some R&R!
Sue.....done chemo, YAY......rads...BOO.....take care don't get too crispy!
WOW and a big that sucks to ya all.............I can't keep up!
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LuAnn: "The catheter in my pain pump factured and I am having narcotics and spinal fluid leaking into my abdomen" -- Once again, I am having a moment of "What kind of world are we living in that things like this even HAPPEN???!!!!" My heart (which as far as I know is not being doused with narcotics or spinal fluid) goes out to you. And to all of you with IOS. Including you, Bliss. BC + MS?? No. I have a strong policy against that.
I'm flattered my name came up on the "bring a side dish" discussion though you folks seem to have it well in hand (I like the idea of bringing your own thank you note or undercover KFC). I am such a lousy cook that I am always "volunteered" to bring cups and napkins. "My people" are known for side dishes which involve some combo of catchup, potato chips, Velveeta, cream of mushroom soup, fried onion rings in a can, and salad dressing. The more sophisticated of my people also include ramen noodles. I'm thinking maybe you could simply bring these ingredients and encourage people to "build their own" side dish. Or go the postmodern route and bring a 20-lb bag of onions or a couple of boxes of corn flakes. Sorry, folks, it's all I got.
xo.
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Sending out a big "that sux" for any of you who are in the path of these storms. Hanna is hitting the East coast as I type and Ike is on his way.
My IOS is small and simple. Vacation is almost over and back to work on Monday. Im sort of excited to get back to work as Im starting to get bored, but I hate the fact that once again I will lose touch with some of you. You will be seeing many pop in and marking my spot posts lol.
Sue: Wondering what the nurse said yesterday about the reaction your having to RADS. All I can say is a big that sux for having to deal with reactions so early on in your treatment. Sounds like it will be hard to say the least. You dog is so cute. I get all my doggy treats from Walmart too. Cant beat the prices.
Harley: Hoping Hanna isnt causing you too much trouble. All of these hurricans suck big time.
Felicia: Well good news that your cat came home. I would have been so worried. Both of my cats are house cats! One loves to try and sneak out and the other wants no part of it. A big that sux though about all that money you had to spend. Seems like Vet costs are going higher and higher.
Saint: I liked your pictures lol! Got a good laugh out of them. I have to agree, sometimes when I come here - my issues seem so small in comparison to what others are going through. This is also my favorite thread - just love it. Hoping you have a day free of IOS's.
LuAnn: Im so glad they finially found out what is wrong. A big that sucks for needing surgery today. Will be thinking about you all day and sending only healing light your way.
Diane: Never has made sense to me to order a pill for nausea when someone is vomiting. Taking care of sick children must be very hard for you and Im sending a big that sucks your way. Hoping you son starts feeling better soon.
JerseyMaria: What sucks is that we have to beg to get our treatment. Waiting on the Tykerb sucks.
Cristine: So glad they got the taxotere issues figured out. Will be looking forward to celebrating when your done with chemo. October 2nd isnt that far away.
Nancy: Good news about 'big foot' moving out and that your tumor is shrinking!
Hanna: Im laughing about the wedding invitation. Thats a new one for me, but after reading your second post - it does sound like it will be fun.
MissS: Welcome bac and glad you are safe from the storm.
Dani: I saw the cancer special last night. My DH was at work so I was alone watching in. When they all came out on stage and sang at the end - I cried, like I havent in along time. Sure hope they collected lots of money - love the idea of it going to research and finding a cure now!
Wish: Good news about you getting insurance again.
Well I have run out of time. A bug that sucks to everyone that needs it today. And a big hello to all that I have missed. Must get dressed and be productive today!
Nicki
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Nicki- I was right there with you crying like a baby. Having loss my father in law, my best friend to two different cancers then bam I get BC. The special brought back alot of hard memories and I suppose I should say fear that the doctors did everything right for me.
With 12 current lumps in the old girls and nodes enlarged on MRI scan We can never be sure and I as we all do, wait to see if the other shoe will drop!
Does that feeling ever get easier!?
I thought they did a great job last nite especially with Homer, and the live prostate exam!!! LOL!
Do you think they were trying to send a message to our STUBBORN MEN in our lives! LOL!
I donated to them last night, I should have donate through the team here on BC.org but did not see the thread until this morning.
A good cry is sometimes what we need, along with the money to kick cancer's A**!!!
Dani
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this is not a bitch. tykerb came this morning but won't start taking till i find out from onc monday if she wants me to wait out the xeloda schedule. this is going to sound stupid but i did cry when i got it. i'm so so thankful that i did get it and at no cost to me...it's just that there's another 5 pills a day i have to get down. this brings me to 28 and that's not counting if i need to take an advil, xanax, sleep aid etc. and i haven't had to take the anti-nausea pill yet. and there's no end point like when i first got dx'd. that's what kept me going. i would just tell myself "ok 3 more chemos or 10 more rads). this is the new reality of my new normal. it's sure is expensive to keep me alive these days. oh some of you may enjoy this...i have a method of taking my 8 xeloda pills daily. every time i put one in my mouth i said outloud "die f...king bastards". call me crazy but that makes it easier to do it. i hope i don't get knocked off for the previous comment but that's what i do. that's it!
ps...has any heard about luann?
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No, and I was so hoping someone had!
Keeping a prayer vigil going for her and deb.Wow, so many pills, so little time! How do you keep them all straight! Love the command you give with each dosing!
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This is just a "hit and run" (and marking my spot) - IT ALL SUCKS!
Hope to hear about LuAnn and DebC later...
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Oh geepers! First cat puke on the floor, now wet spots on posts!
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This is the best forum yet!! LET IT ALL OUT !! i was told that my cyst was ok. My fam doc, my surgern ..i get it removed and then was told it was BC...what the $&%^ !! My DH are like roommates..nothing happening here...no talk no nothing!!
Had my right Breast removed (mid June)..waiting to hear if and when i can get fitted for a prosthesis...
After reading a lot of your posts..i noticed that a lot of you are SICK of telling people that everything is ok.....well, heres my story... i only told a FEW people about what happen to me....i asked to be let home after the surgery....ladies i was home 4 hrs after the mest. I'm a stay at home mom and i was able to pull it off........NO ONE KNOWS...I can go shopping and NO ONE ASKS " how are you"? AS far as getting fitted...i plan on going OUT of town.
I hate all of this!!!...everything that has happen to me.... i was raped 4 yrs ago and have kept that to only a few people...i have gotten help but, to get SLAPPED with BC ...IT just rips me up....i also have so much Shit that i will not mention here..
Lets all light a candle and get drunk......kidding (thanks for your ear)
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Just a quick note to say prayers for LuAnn and DebC. Hope all goes well and hope to hear from you both soon. No IOS today (yet).
Gentle Hugs All,
Trish
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Hi, all...
Whasux? There's a lot--it all sux!
This will be brief. Here's my IOS for today (and probably for all of next week):
Hugs to everyone--stay safe!
otter
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Hanna (the storm, not our very own) sucks. My ex sucks. Not being able to make it all better for my child sucks, too...
Here in NY, it's been raining since about 3pm from Hanna. My ex - who was due in sometime this afternoon with family in tow to take my son to lunch for his birthday (he'll be 15 tomorrow) - cancelled when my son called him to confirm the time. Their area - 40 miles away and one county over - is under possible flood watch so he felt it better to stay home than to venture out in the rain. How convenient. He's seen the kid three times since last September and blew him off TWICE this summer when he was supposed to pick him up for weekends. He says he'll "try" to make it in tomorrow, which sucks because we had birthday stuff planned that will get pushed to the back burner unless I go ahead with our plans and be the evil meanie who is keeping his son away from him or change them for the sake of an a$$hole who seemingly could give a f*ck about anyone other than himself. GRRRRR! I divorced his sorry a$$ so I wouldn't have to be controlled by his freaking whims - and here I am seemingly right back where I started. Honestly, if the idiot would have been here when he said he was coming, they could have been halfway home before the rain even started...
My son's upset and dampening the mood of the whole house. The absolute worst part is that I KNOW my ex doesn't even realize what kind of havoic he's wrecking by not following through and always having a blinking excuse. I'm sick of picking up the pieces from the messes he makes - been doing that for 15 years now and I'm beginning to hate, I mean truly HATE him for it. I swear I want to punch him in the eye for this crap...
Somebody hand me a shovel...
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WhaSux??? Too much for too many of us!
I'm just leaving the proverbial "wet mark" LOL, but have to say to all of you with ex's who are crappy fathers----your kids will remember it & they will KNOW it without a word from you!! I have a friend who had the ex from hell---she NEVER once said an unkind word about him to her kids-even when he embezzled $10,000 from her & worse!!!!---God knows I chided her constantly for letting him make weak excuses & get over on all of them. Those kids turned out great inspite of him & are now 28 & 34 & have they got his number!!? Her dd even calls him by his first name & NOT "dad" cuz he does not deserve that respect ...Keep being terrific moms & know that what they do WILL come back to them! Just like Harry Chapin's "Cat's in the Cradle"......Meanwhile... THAT SUX!!
My IOS---I was going for ice cream with dh & dd today & when I saw my reflection getting back in the car I was so alarmed at how I looked! I have been doing my best to ignore how I have changed due to all my tx & just be happy to be upright & moving.... but today I got kinda blindsided! Got into the car & said, "I never believed it at the time, but I was once good looking" & I started to cry. Freaked them out! I know cuz after we got home my son came up & hugged me & when I asked if he was lobbying for his ice cream he let me know it was over what happened in the car----dd told him about it as soon as they were alone.. I HATE this @#$%^%%$%##$@#$!@ disease---that my kids have to witness this @##$$ & that I have to deal with so many obnoxious details in my day to day living--- I DO well 96% of the time, but it makes it SO hard for others when I slip & meltdown----I know, I know: I am allowed! They know it too, but it doesn't make it any easier & I'm PO'd.........IT SUX
I love this thread cuz, as I said, I do not have many places I can really let this out------hugs, be well & stay strong!
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Arrgghhh! My son's first football game was at 5:30 tongiht. As of Wed, a few of us parents started wondering aloud about the game given the fact that the remnants of Hannah is hitting us tonight. Nope, we were told, won't be canceled due to rain. So, we're there at 4:15 as instructed, we stand in the rain for 45 minutes, and then they cancel the game and reschedule for tomorrow. Ummmm, it's not like this storm just popped out of nowhere! And if rescheduling for tomorrow was an option, why on earth didn't they just cancel the game this morning (like the rest of the East Coast?)
Turning off the computer as we've already lost the satellite and I'm afraid the power is next. I swear, that satellite goes out if there's dew!
Nicki - thanks for the update, that's just way too scary but I'm so glad to know Deb came through the procedure OK.
Felicia - I'm sorry, what a tool!
All - hilarious about the covered dish, but I could see how it could be fun, particularly if it's small and everyone is close friends. I would default to my "special salad", which is ridiculously easy but for some reason tastes/looks very impressive.
bagged baby spinach or lettuce, chopped nuts (any kind, but I like the "Pecan Pie" flavor coated pecans), sliced strawberries, crumbled gorgonzola cheese (I don't like gorgonzola cheese, but for some reason it's good in this) and poppy seed dressing (any bottled poppy seed dressing works, I use Brianna's because that's what my supermarket sells)
Could I be any more of a nerd sharing my salad recipe for a covered dish wedding that I'm not invited to! LOL
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The rain has stopped here also and some areas got as much as 10 inches in 5 hours. Where I am only 5 inches, but I am safe and dry. No real IOS today except stomach feels like I want to eat, but nothing has any taste. Yes, I eat to live, instead of living to eat.
Hugs and Blessings, Nancy
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My IOS for the weekend. Got a copy of my lung scan Friday when I went in for my 4th doxil infusion. Most of the back pain I have been having comes from 2 fractured ribs, Left 9th and right 5th. Add back pain for a doxil side effect, small wonder I hurt enough to get depressed a couple of times. However the rib pain is not as bad after 8 weeks of healing. Onc nurses couldn't find the orders for the chemo- waited over 90 minutes before they even drew the CBC. My appt was 1:00 and the chemo didn't get started until after 330. 4 hours in the chemo chairs was getting painful. Nurses were very apologetic and it really wasn't there fault, so I didn't bite anybody Friday- The lung tumor has begun to shrink. The bone mets are still progressing. The tumor marker was down over 300 (3817) instead of going up it usual 800 so I figure its a net decrease of 1100. Makes me feel better to think that anyway. The nausea set in Saturday morning a little earlier than usual. Zofran seems to be keeping that at bay. Worse days are usually Mon thru Wed. I've stopped going to workon Tuesday.
For the first time in nearly a year, I can be a little optimistic. Nice to know the acute back/rib pain was fractures instead of bone mets. The fractures will go away eventually. As long as the side effects are tolerable, he will keep on with the doxil.
Foot ball officially starts in KC tomorrow. The Chiefs play the Pats. Tom Brady isn't scheduled to play for the Pats and the Cheifs are still 16 points underdogs at home at Arrowhead
A Hugh IOS for the Kansas City Chiefs
And for Nikki----- GO BEARS!!!!!!!!!!!!!!
Helen
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{{Nancy}} Eating to live, yes I understand that one. Please do keep eating small meals to stay strong. I know it's hard, but even some real fruit popsicles when you aren't feeling like anything sounds good might help. Have you tried pureeing some fruit in a smoothie, and adding some peanut butter to it for protein, or other protein powders? Thinking good thoughts you can you get your appetite back, it's so necessary to makign through these tx.
{{Helen}} So sorry you had to wait in a chair to get the infusion. With back pain, I know even sitting in a chair a few minutes can hurt. Rib pain is bad, I remember my brother having 3 of them and any little touch or bump in the road sent in writhing in pain. Many {{hugs}}
BIG That SUCKS to those in need this morning not mentioned too. Hope Sunday is restful for you.
Prayers Ike behaves and lessens in strength to a 1 before making any land fall!
Dang hurrican season!0 -
Hello and a big that sucks to anyone who needs to hear that today. I realized today will be my last day of being able to check in on a regular basis. Its back to work for me tomorrow, and I suspect I will be marking my spot alot come next week.
Dani: I dont think I will ever get past waiting for the other shoe to drop.
jerseymarie: Im so glad the tykerb finially came. I think I mentioned earlier that it sucks we have to beg for the medications we need. I too have had the feeling sometimes that Im a walking pharmacy. I loved your story about what you say with each chemo pill you take.
Otter: Good to hear from you. I have been watching and tracking the hurricanes during my time off. Looks like Ike is headed towards the Gulf again. That sucks big time.
Felicia: Happy Birthday to your son. When I was reading your post, I thought how sad - your son does have his dads number! Just the fact that he had to call and confirm what time he was being picked up. I say forget the shovels. Lets get a tractor - there is a nice field I know where we could dig a big hole and throw your ex in there. No one would know lol.
Saint: Sometimes I wish I could avoid all mirrors and old photo albums. It upsets me everytime I see what I looked like before bc! And of course, it always likes to come and bite you in the butt when you least expect it. Anyways, Im sending you a big that sucks and hug too. This is a song that was introduced to me by DebC. I play it every morning while I exercise.
http://www.youtube.com/watch?v=NcH-A1hJzEc
Colleen: Oh you made me laugh this morning. Your recipe sounds good. My favorite dish to bring is Italian sausage cut in small pieces, marinated in wine and herbs, sauteed with mushroom caps. Put the sausage in the mushroom cap, stick a toothpic in and thats that. Of course I always make a bowl of sauteed green peppers, Italian style.
Helen1: Hi to you my friend. Sitting in the chemo chair for all that time deserves a big that sux! Cant believe your still working! Yikes you are one strong lady. Yep, I did think of you today. Now tell me why do the Chiefs have to play the Patriots and the Bears have to play the Colts. I dont think we will get that lucky though. I believe Manning will be the quarterback! Of course it doesnt matter because our defense couldnt stop Brady Quinn during the preseason games. Well ya never know - maybe we both will get lucky today.
Wish and Cristine: Hi to you.
Nancy: "I eat to live" that deserves a really big that sucks. How about milkshakes? I made myself lots of them when I was going through chemo. Would even get fresh fruit and blend it all together.
Well, time to do what? Hmmm last day of vacation - so I think I will go back to bed.
Nicki
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Felicia: For you. And whoo hoo, look at the shovel on this baby.
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Looks like I have missed alot! Feliecia, guys are total JERKS most of the time. I have heard too many stories of idiotic men doing terrible things lately. Is it possible to find a mentor of sorts for your son to rely on? I know when my husband died I had a friend that would take my boys some weekends and do guy stuff! They could be completely rude and no one cared. If the real guy isn't availiable then find someone to make due! It's all about your son, although he sounds like a pretty good kid (learning from his mom!). Tell him I a singing happy birthday to him way out of key and slightly messed up.....oh who am I kidding, I'm having trouble typeing straight!
Helen, gald to hear they were fractures! can they do anything for them though? Seems you could get something done to help and ease the pain.
I am sure there is more stuff, but that is as far I my little mind can comprehend! Heck I may have posted already. I've been making my calls to say everything is ok only to find out I already called.....so who knows. If this is a duplicate sorry! Surgery is over and went well. Needless to say I HURT!!!!! My abdomen is very sore and I have no real food to speak of in the house and not sure who is even home today to go to the store for me.... Life used to be so easy. I'm somewhat nervous that this worked because I still have a hard pocket of fluid but maybe that has to absorb isselt into my body. But if any of you have luck like me it will turn into a major infection. Well the screen doesn't stay stable in my eyes so I better quit trying to type.... Take Care!
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LuAnn, take care! Hope everything heals well! So glad you are home!
Felicia -- really, really sucks that this sh*+ happens over and over again. I know what you're saying about feeling like you'll be cast as "the meanie" if you "deprive" your son by insisting on not having your own plans disrupted today -- and even if EX can't make it today either, your son may be so unhappy that your plans for a nice day today are scuttled anyway -- but my hope for everybody's sake is that your son feels "today I already have plans with Mom" and you both have a happy celebration of his birthday.
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Hi all... I haven't had a chance to get caught up on everyone's IOS's yet, but just wanted to let you know that THEY DO INDEED SUCK!
We were in the path of Hanna, she passed directly overhead early Sat. morning, but even though she packed winds of about 72 mph, and some rain, heavy at times, we experienced no damage. I am sorry to say that even though it looks as if Ike will be hitting the Gulf, I am happy he's not going to visit me...
Glad to read that Deb C's surgery went well.
Helen, sorry that you had such trouble with your latest tx, but glad that the lung tumor is shrinking, and also glad that the bone pain was only fractures... even though that also SUCKS!
enjoy the rest of your weekend! I will be going to Wilmington to see my idiot gyn onc tomorrow, but the good news is that I'll be meeting Shirley for lunch after. At least, I hope we are still meeting for lunch. I'll call you later... I haven't seen any posts from you for awhile. I've been thinking of you, and hope you are doing ok.
Harley
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Hi ya HARLEY!
Have fun tomorrow! J/K...but do enjoy the time with shirley inspite of the idiot onco! Don't envy you dear!{{{LUANN}}} I'LL TYPE IN CAPS SO YOU DON'T HAVE TO STRAIN YOUR EYES! HOPE YOU ARE DOING WELL, AND THAT THIS POUCH DISAPPEARS WITHOUT THE INFECTION YOU ARE FEARING DEAR! SO GLAD THE SURGERY WENT WELL AND IF YOU POST AGAIN, SO BE IT! WE DON'T MIND AT ALL!
BIG sucks to felicia for you idiot ex too! What a numbskull. He has no idea that your young man, is just that! A young man, who's learning from his fathers mistakes and will remember these times he let him down. I hope today d-ex is absent again and can't make it or that dson just blows him off to celebrate this birthday with people he CAN COUNT on! But you are smart in letting the son decide, b/c you are the one he'll remember learning the best lessons from and will grow into the fine strong man he is becoming.
BIG that SUCKS to everyone that needs it!
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Hey guys, I don't want to get away from the wig exchange idea. We can start getting them gathered while I am recovering. Do you all want me to set it up or someone else? If you want me to, let me know how you want met to get my address to you. This will be really cool and help those out alot!
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