Im bitchy, I moan, I groan.....anyway.
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OUCH! You know, I"ve been having a very hard time sleeping since the ovaries came out...I'm so tired but I can't sleep more than a few hours at a time..yesterday I was up at 3am...last night I did go back to sleep but I woke up like 5 times during the night. This doesn't last forever does it?
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update from dr. appt -
neck looks ok, to be treated with anti-inflammatory & muscle relaxer
liver - might be gall bladder, getting an ultrasound on thursday morning
Hugs to all,
Trish
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Prayrv...that's great! Here's hoping the liver comes back with nothing bc related too! The gallbladder can be a painful PITA after all we've been through!
Keeping you in our prayers!
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Hugs everyone. I had a DEXA yesterday and the tech measured my height. I always thought I was 5'9. She tells me I am 5 ' 7 1/4 "... did I lose almost 2 inches? Have to wait for the report in a week or so - you know, the old waiting game. THAT SUCKS as needed.
Prayers and smiley faces, Nancy
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Navygirl, I don't automatically get an itemized bill from the hospital but you can call billing and ask for them to send you the itemized bill. I did after my surgery in 07 so I could show where I was in the hospital for 3 days to file Aflac cancer plan and saw all the charges on my bill (17 pages worth of charges). I couldn't believe some of the costs of the simple things $2.00 for a vitamin was the craziest thing I can remember seeing.
Sheila
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Kathi,
I am not even sure what to say so instead
(((((((((((((((((((((((((((hugs)))))))))))))))))))))))))
Penny
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Hey, dear women. I'd be a complete wacko right now if it weren't for you all.
Just spoke to a nurse who reread the mammography report to me over the phone. I typed it as she was reading it, then got so flustered, I accidentally closed the file without saving it. However, the gist of it is engraved on my memory (unlike many other items which don't make it through the post-menopausal short-term memory deficit).
Penny, I owe you a phone call. How's work? You'll be able to translate all of this. So, slightly paraphrasing: "recent mammography of the R breast demonstrated architectural changes consistent with post-lumpectomy and post-radiation tissue response. However, MLO views [multiple oblique views of the breast] showed calcifications in the medial breast which were not visible in the cephalocaudal views.[...] Recommend further digital diagnostic mammogram of R breast with follow-up...."
So. Calcifications. With my dx, I am not in the position of regarding calcifications as benign. I think I'm looking at another probable stereotactic biopsy after the recommended mamm, plus a breast MRI, knowing my BS. Then, ANOTHER BIG TALK. Not to jump the gun here, but I don't think I can live with ANY calcifications. Which means a mastectomy. And I've had radiation in that breast, so that kinda sucks as far as healing & reconstruction go.
SH*T, SH*T, SH*T.
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Kathi, I had 2 previous calcifications needing biopsies that were ADH before I got my DCIS dx. Because of that history, I opted for bilat so I wouldn't need the radiation and reduce my chances of any additional cancer. I am hoping that your calcifications are nothing more than ADH.
Sheila
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Kathi,
Well SH*T. I had to have a mast due to DCIS throughout my whole little A cup boob. I had immediate reconstruction with tissue expander put in at time of mast. They found 8mm of invasive in the path after surgery. Needless to say margins were not good and had to have rads. PS was floored!. I had 26 regular sessions of rads and 9 boosts. I did not burn, peel or any of the se's of rads. I had my fill (only one with an A cup) and then I had rads. I had my exchange 5 months later and so far so good. My docs gave me a prescription cream and a prescription for singulair (they said they found that the women that they treated with this had fewer problems) I only tanned and I am extremely fair skinned.
No I would not have preferred to have rads and reconstruction, but I did and I was lucky that I had no problems (knock wood - it's only been14 months since exchange).
Gentle hugs!
Trish
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Thanks, Trish. You don't know how much it helps to hear your story. It's the freaking rads thing that is the wild card here, so it's good to know that despite rads, you're doing okay with your exchange. Thanks for the hugs from Texas.
You, too, Sheila. Wish I'd just had a goshdarn mast now to begin with. Darn it all.
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Aw, Kathi... that just SUX royally. Oh, ... [insert multiple curse words]. After all that effort to save that boob, and now it's threatening you again. If those calci's end up being bad stuff, there's not much choice. Can't do rads again on that side, right?
Wow. That was exactly the sort of thing I was afraid of. Everybody and their mother's son wanted (expected) me to choose a lumpectomy + rads, but I opted for a mast instead. I was having a bad day the other day--feeling sorry for myself because I've gained some weight despite losing a breast, and my hair was stupid-looking and I just wanted everything to be okay. I told my dh that I don't miss my left boob--in fact, I hated it. I wanted it gone. It had messed up my life, and I strongly suspected there was more trouble in store (eventually) than just that one lump.
But, to actually get that news, and have to go through all the poking and squishing once again. Cr*p. And worse.
Maybe not, though. Maybe it's just residual scar tissue, eh? None of this recheck business is happening this Friday, is it? I hope not. I think you need a super-rich chocolate cake with plenty of candles.
Hugs to all who need 'em...
otter
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I am so sorry Kathi.
Hugs and prayers for all you women.
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{{{{{{{{{{{{{{{ Kathi }}}}}}}}}}}}}}}}}}}}}
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All I can add is more hugs:
((((((((kathi))))))))
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Darnit Kathi, I hate when we have regrets. Try not to do that to yourself.
Gentle hugs
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Kathi - You gave me shivers of delight describing those tasty morsels!!
Now you're ready to rock the house! Sound more like the old KAK we've come to love!
New onco? Good for you! Say "hi" to the big city for me.
Hugs,
Susan
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Hugs, ((((kathi)))) smilies, LOTS of chocolate and prayers for a good outcome of all this suckiness.
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A quick fly-by---THAT SUX for all who need it!
KAK & Trish--hang in there---you are never alone!---prayers & good thoughts flying to both of you!
Traci--I am so sad about Deb----just came here after 4 days of no puter & read the news---IT SUX!
Hope to be back soon--HUGS to all--be well & stay strong
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Nice to see you Saint! Sorry for all who are having sucki days! This has been a rough few days with Angels.
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Lefty.....I also thought I was 5'7" and now they say I'm 5'5" and 3/4 of an inch. I think the extra inch and a quarter is now more "junk in my trunk".....as my young adult children put it. Do you think it might be the missing hair?
I really hate my BS right now. I wanted a mastectomy and he refused. Now my left boob is on fire from rads. In some ways I'm more afraid of radiation the the chemo. What if they miss?
Hugs to all.
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Well, after having my exchange in February I receive a letter from the insurance company stating that the approval done in September didn't not cover the addtional surgeries. Now I have to attempt to get primary care physician to call them and see how we can work this out. I hate insurance companies. What did they think I was going to have my breast removed, get expanders and that was the end of it? Do they ever use their brains.
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Sorry Pinky but no, they do not use their brains. They are simply clerical workers with a medical vocabulary. They only know their portion of the process. That is why you get stupid questions.
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Well well well..I think I am going to have to go join the drinking thread. I went back to obgyn today ---ok, hold on...THAT SUX for anyone who needs it...
sorry, I almost forgot the protocol.
So, the obgyn gives me a once over to clear me from the ovaries surgery, and she finds a lump in my breast that she doesn't believe is just a swollen lymph node - to big and to far from the arm pit. So, I sit here tonight going...WTF. I have to start this process all over again??? Wasn't that the point of getting my t*ts cut off in the first place? Clearly someone needs to tell "the man" I need to get off this carnival ride already! My poor SO has been through the ringer the past year and if not I then she surely needs a break today.
I don't see the onc until next week so I already know I'm not going to have any peace of mind for another 3 weeks by the time it all gets sorted out. What else can you do besides ac/tch/dbl mx...I mean really? What else can I do?
Damn it. (sorry, but this calls for chocolate)
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ps. Dream, I am laughing until it really is funny!0
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Navygirl - A HUGE "that sux"!!!! OMG!
Maybe it's just a baby booblette trying to sprout! As for chocolate, get enough to make a difference! Like a whole chocolate cake!
Hey, I'm just hearing that some type of body fat is good!! Who knew?? Brown fat (good) vs yellow fat (bad).
Hugs,
Susan
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Navygirl,
That SUX!!! If you're into Easter chocolate, might I suggest a SOLID milk chocolate critter rather than the hollow kind.
Gentle Hugs,
Trish
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Navygirl - That sux big time. Can't they get you scheduled for some testing before you see the onc?
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Bonniiee!!!! That sucks!
It sucks in such a multitudinous ways that it hasn't even had time to learn of it's suckitude!
Sheeeit!
Lisa
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Oh, SH*T, navy. I feel the same way. Haven't we all gone through enough?? What is this, Breast Cancer Has A Cruel Sense Of Humor Week?? Like, "hah, hah, thought you were done, didn't you?"
The earliest I could get an appointment for the diagnostic mamm in the big city where my surgeon is, is a week from Friday. Then I couldn't get a visit with her until 5/4. Knowing her, though, when she comes back from vaca Monday, she'll probably pull that appointment with her up and squish me in somewhere. She's very sweet that way. But, navy, and everyone, it's true. The waiting will kill ya. And I'm sure they'll want to biopsy me after the diagnostic and that will be another week or two to get that all arranged........
The BS offered me a tranquilizer prescription when I first met her if I wanted it. I didn't take it back then. But I'm gonna take it now.
ENOUGH SUCKAGE!! We need a break from suckage!!!
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Hopefully, the funny will catch up to you. A big that SUX for now.
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