Im bitchy, I moan, I groan.....anyway.
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PS: The movie "The Jerk" with Steve Martin just started on HBO; now, I shall laugh at stupid stuff. Hopefully.
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Well C**P, I just typed up a huge long post and the hit a wrong key and the D**M thing disappeared. Not gonna do it all over again.
A great big THAT SUCKS! to one and all. Nothing to grumble about on my end.
Tuesday I had my OFFICIAL FINAL 5 YEAR CANCERVERSARY CHECK UP. I am done!!!!!!
YEAH! HURRAH! ZIP-PA-DE-DO-DA! AND ALL THAT OTHER STUFF
No more tamoxifen, no AI cause of my crappy bones. New that issue was gonna benefit somewhere along the way. I still have to see onc every 3 months cause he orders my Aredia. Still get to see the blood suckers every 3 months for labs. So nothing has really changed except I get to pop one less pill every day.
And the beat goes on!!!
Anywhos, had lots more to say but the brain cell is tired and can't remember what the more was.
Gentle hugs to all.
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Traci, even us die hard Greys Anatomy fans blubbered buckets full of tears last night.
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Traci.
I am fine and recovering but my dh and I are traveling. We are in Austin tonight with my son and his wife, they are going to be keeping our dogs while we are out of town. Then Sunday we fly to Orlando, drive to Cocoa Beach where we have a beachside suite to watch the space sh.uttle lauch. Then we are driving over to Cedar Key to stay in this wonderful old hotel (islandhotel-cedarkey.com)We've been visiting this hotel for about 26 years, it has so much character, no tvs, no phones and probably no internet...and I sleep like a baby there. Then we are driving to Chattanooga to spend a few days with relatives before we fly home on the 18th. I can't wait.
Thanks for calling me and if I don't get a chance to call before we leave, I will call when we get back and you and I (and Trish) will get together as soon as we can! I can't wait!!
Love ya girl
Sue
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I have a BIG IOS! I am going to RANT!
I have waited 3 months for an appointment with a specialist, urologist due to a very large kidney stone. We already know I have it, the doctor said, wow, they're going to want to yank THAT one out! Anyway, my appointment was for Jun 9th. I am on 24 hour released pain meds, the most my doc can give me and still let me drive legally to work.
I got a letter, a LETTER, yesterday saying that due to scheduling problems, my appointment has been moved to......JULY 8th! WTF!!!!!!!
I have left TWO messages saying I don't care what doc I see out of the 3, just please get me in and explained my situation. No response. On my day off Tuesday, I am going to go to their office and see what's up. Today at work, I am going to find urologists in that city (one hour away), then when I see my doc on Wednesday to get follow-up from my CT scan, I'll see if he can refer me to another one!
I was hoping to get this resolved before I went to my daughters wedding in the Dominican, but we leave 2 weeks today. I just pray I don't get an infection down there.......
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Barbe: I'm sorry that does suck. Hope you can find someone to help you sooner
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Barbe, Is it possible your doc will give you a Rx for some antibiotics for you to bring with you just in case. It would be a big IOS to try to go to the emergency room in the Dominican.
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My bitch: Went to the oncologist for follow up appointment- done with rads YEAH! Anyway, little miss nurse (who looked all of 15, with her blond perfect hair, perfect nails, perfect shape, perfect clothes, etc. etc.) goes to take my blood pressure, I say "you have to use my left arm" her response: WHY? DUH!!!! Sure wish docs would train their staff a little better.....Not a big deal, but just another thing to top it all off.. Tami
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And now that I have started I can't stop- my problems: THe day before my surgery I got layed off at work. My husband is already on disability due to an auto accident. I have a special needs daughter, and I was getting ready to leave DH (dead husband is how I think of that!) before I was dx'd due to the fact that he is emotionally abusive. Now I cannot leave due to no job, and having to go through this cancer SH%&*#@^. Ummmmm oh yeah, THe weather sucks - rain , cold, rain, cold, Ok.... I feel better. Thanx for listening. Tami Edited to add I am only 46.
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Man, Krista, that SUCKS!
Schools are required by law to provide for special needs children. You might have to do a rain dance on their desk, but if it gets results....The fact you have to go to such lengths to get help for your Son SUCKS.
You may concider joining a grief support group. I need to. (this is a case of the pot calling the kettle black) Anyway, This SUCKS
and I hope you can find the strength to find and walk the rigt path
xoxo
Lursa5
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Tami wins! That DOES suck! (((((((( hugs ))))))))))))
I am going to get an antibiotic prescription filled before I go just in case. Problem is mostly with pain, it'll be interesting to see how I handle the heat.....sigh. Also painful to sit for long periods; driving to and from work (hour each way), so I wonder how I'll do on the plane. BUT, it's not about me...!
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WhaSux??
IOS's: Stupid ppl, untrained medical staff, delayed app'ts, KIDNEY STONES! sad shows, no job,no isnsurance, children in need, crappy dh's, misunderstanding posts and......loosing pets! I just read that Stephanie lost Tugger (so sad) Then my dd's friend had to go get his cat after it was hit by a car & has to lie to his little sister about it dying; my foster didn't make it..........I'm OK---we went into this KNOWING he only had a 1 in 4 chance & he isn't suffering, but I wanted to scream THAT SUX!!!!! I plan to try another foster after a break.........
On the SOI side......Just as dh called from the shelter with the bad news the new cat (now called Jonesy) made us split a gut when he got his head stuck in the handles of a paper shopping bag & went tearing thru the house in a fit....felt it was Mother Nature's way of giving us a message. My ds received another scholarship today at a nice luncheon. Then we got make-up & hair done without any problems & dd is glueing on her fake nails for prom! Life continues to perk away; taking the good with the bad! I promise to post pix SOON. I just got a new camera & when I took it our to take some of her "in process" I found pix of that baby cat too! Smile........
Hugs all-----YOU make the sun shine thru my clouds! Be well & stay strong
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I saw the second interview with Chemosabi but I think that the news channel rehashed some of Amy's and Chemosabi's stuff, but this time someone from breastcancer.org was there and stated that there are rules to using the website and those that refuse to follow them put others at risk. It was a less one sided presentation. However, what did they think they would achieve? Did they think that the moderators would be embarassed into taking them back? So now there are two nights that someone new to cancer may see that message and decide that chats are not supportive. I have never seen anything of Amy. I thought Nikki had more integrity than to try to harm our website.
On to better news. My husband, doctor and I decided to play with my pain meds. I am in a little more pain but am much more alert. I was so overmedicated that people could see it. So now I have to balance pain with being able to function.
The blouse that I am currently handsewing now has two sleeves. I just have to do a seam up the back, sew two buttons & facings, make two loops for the buttons and hem it. It is red gingham and I have matching ballet slipper shoes. I am hoping to finish it tomorrow.
Monday I have to take my sister to her BS. How could she think that she could do that without support. She tells me she is not scared. Holey smokin bacon Batman - why should she not be scared with anything to do with BC. She says she is not worried cause it is not stage 4, like me. My sister has Cerebral Palsy and she has a more simplified view of the world. I dont want to scare her by telling her any BC is reason to be afraid. But since her hubby is dropping her at the door of the hospital, it falls to me to go with her. She has no female friends, no male friends. She basically is in a group of disabled people who have emotional problems (Kathy does not play well with others). I am the only one that she feels she trusts enough to go with her. YEAH!!!!
I worry that I am going to be emotionally blackmailed into going to all of her medical appointments too. Her adoptive mother died a couple of years ago and her adoptive father died late last year (Nov-Dec). Her 2 sisters are no help, one is in treatment for fibramyalga (sp?) and cannot do anything of use, the other is confrontational with Kathy... seems she objected to Kathy being adopted (even though she too was adopted by same parents). Our biological mother died some ten years ago. She is just a name and description - she died 4 years before the search came up so we never got to meet her.
Ok thats all.... Im going back to my sewing.
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Dream, I have fibromyalgia and 'treatment' usually consists of pain meds and or physical therapy. It is not an all-day job, so why can't your sister help out? That is a cop-out in my book...
The only thing I can say in her defence is that you never know if you'll feel good from one day to the next. Never know if you can get out of bed or not. But because I have to work, I make extra effort and sleep a lot on my days off and go to bed very early. (I've been in bed and gotten up already tonight.) It can be done!
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Good luck on your trip Barbe. Hope everything clears up and you have a fabulous time! (use tears at the Doc's office, if he doesn't give you anti-biotics then, I think his name might be Scrooge?) Tami
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OK--if I can remember how to do this---here are the prom pix as promised. First is my son & his date & crowd. then daughter & her boyfriend (with a prop! LOL)
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Good looking kids Saint!
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Oh, Saint - those pics made my day! Your daughter's gown is gorgeous! And, your kiddos are too!
Thank you so much for sharing!
Susan
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What wonderful looking children!
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Thank you Saint! Those are gorgeous kids!
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I finally got out of bed a couple of hours ago. I don't sleep well because I'm always waking up with my "boobs" hurting (guess I'm laying on them). My PS made my boobs too big, he had told me a year ago that I wouldn't need to wear bras, now he's telling me that I definitely need to wear a bra. WTF?
What also sucks is that I'm having to wear and sleep in a mastectomy bra and I've been sleeping in my chair some nights so I won't lay on my boobs. My poor dh, I know I must be a terror to live with right now. I'm just so tired and I hate my "boobs".
Thanks for letting me vent a little.
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man...what a weekend! I didn't take notes so I'm just gonna say that SUX to everyone...blech seems to cover the weekend
Saint...thank you for sharing those photos! All the kids looked fabulous in their prom duds! Oh..remember the days!
Nancy - thinking of you this week as we go down this road again...here's hoping we both just have funky stuff going on and we get to move on from there!
I hope you all have a FABULOUS IOS free day!
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Hugs for everyone. Bonnie, it took the van driver over 2 hours to get me to the National Cathedral yesterday - the GPS was so far off... I had the grand tour of Oxon Hill, Bolling Air Force Base, the National Harbor, then of course I had to pee. The driver pulled in front of Starbucks and I ran in, to find 5 waiting in line. I pulled the cancer card and said it was Mom's Day and I HAD TO GO. They let me ... Good thing I allowed extra time for the ride, was going to visit with my son before the concert, but that didn't happen. However, I got there 10 minutes before the concert started.
I will be on 5 north for Herceptin on Thursday, then back again for the biopsy on Friday.
The pictures are great, thanks for sharing. THAT SUCKS for pain, sleeplessness, bad weather, sickness, and all the other garbage going on. Here's to NO IOS. Nancy
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Nancy,
I'll be thinking of you on Friday... and thinking B-9 thoughts!!
HUGS
Harley
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What gorgeous pictures! I think your daughter had the nicest dress and classiest hairdo in the whole bunch!
Lisa
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Hey ya'll,
Yes, I really say that. A Big THAT SUKS to all who need it.
I had a good day. Did some chores, then got to hold, hug, smell and laugh with my new grandbaby. She's Katie, and she's 9 weeks old tuesday and she's recognizing us, ME, and she's perfect. When she smiles, all my cares just disappear. What an amazing thing to get to be with the child that my child birthed. I'm so happy just because she's here.
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Awww - Connie! How wonderful for you! Those grandbabies can put you on cloud nine!!
I was in the delivery room for both of my grandbabes. What an incredible joy to be included!!
Navy and Nancy - Hoping it's just funky stuff for you both!! BBB9999!!!
Boobs - sorry to hear your girls are giving you trouble. Hope they settle down and let you get some sleep.
Susan
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oops,
In my last message, I meant to say
Navy and Nancy,
I'll be thinking of you BOTH and praying for B-9 results!!
HugsHarley
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The last time I met Kathy's sisters were at her wedding some twenty years ago. These are the excuses she is hearing. I dont care... if they are not going to be there for her, then I will be. I couldnt stand the guilt if I wasnt. It is obvious that without the parents, these kids will have nothing to do with each other. It is a sad thing since they were adopted and loved by the parents. Some jealousy is normal, but it is time to grow up and act like grown ups. When Kathy appears to be the one behaving maturely.... the others should be ashamed of themselves. May they look like Barbie turning 50, and feel like they are turning 90.
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Sorry I did that message looking at the previous page.... Saint your children are soooo good looking and I agree, the red dress and dramatic hair, put your daughter in the forefront prettiest there. It is so different looking at all the colourful dresses, my daughter's school has a 100 year tradition of white dresses only and although the hemlines have changed, no one wants to break the white rule.
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