Im bitchy, I moan, I groan.....anyway.

1280281283285286398

Comments

  • prayrv
    prayrv Member Posts: 362
    edited July 2009

    Saint,

    Thanks for giving me an idea of what could be happening.  That's more than what I got from my gyn's nurse.  I guess I'm concerned because of the growing fibroid and "ovarian mass" that was dx'd from my last tvu.  My gyn knows I have the fibroid but it's a growin'!  Four years ago when I had my first tvu (prior bc) my endometrium was measured at 10mm - now it's 41mm.  Cause?  Dr. thinks my little estrogen makers are in overdrive. 

    Have a wonderful trip and good luck on your scan results!

     Trish

  • sueper13
    sueper13 Member Posts: 360
    edited July 2009

    Trish,

    Are you on tamoxifen?  And is your oncologist aware of this bleeding? (Probably just me being paranoid...)

  • prayrv
    prayrv Member Posts: 362
    edited July 2009

    Sue,

    I've been on tamoxifen since Oct 2007.  I saw my onc back in May and gave her a copy of all previouse tvu's (except the one in June).  In May we discussed the possiblity of a hysterectomy depending on what my June tvu showed.  Since I'm still "spotting" (sorta heavier than a light spotting) on day 13, I'll call her up and see what her opinion is.

    I'm already paranoid!!!!!!!!!!!!!!!!!!!!!!!!!  That's why I guess I'm a little ticked off at the gyn's nurse.

    I'll call her on monday as it's 4:55. 

    Have a great weekend all!!!!!

    Trish

  • flash
    flash Member Posts: 129
    edited July 2009

    saint- put me down for $100 towards the festival.  Kids need to be rewarded for their hard work.

    Hugs to all. A day without suckage to everyone.

    grace

  • saint
    saint Member Posts: 583
    edited July 2009

    WhaSux?
    Happy 4th to all!

    I got my scan results---all good! "No longer evident on scan; shrunk; & unchanged"  You would think I should be celebrating. I expected "progression" with the events of the last few weeks (rads!) The unchanged was on the bones & that is what makes me distrustful. How can I need rads to my spine? I will have to ask if it was just an anomaly when I see him in less than 2 weeks. Yeah, I know, here I am complaining about good news! We are taking it as good news! And for whoever said I had brain mets---NOT YET! It was a fluke, but the tech did a whole brain MRI, so that is the definative answer to that rumor! (I now know first hand how it feels to be the subject of such!)

    Got the Rv & it's MOSTLY packed to leave tomorrow! Few glitches (like dd's bf) but we will figure them out!

    Grace----are you serious? I meant it as a joke, but anyone who cares to donate we'll take it!!!! We are doing all kinds of fundarisers....maybe you should get a case of World's Famous Chocolates!!! OMG--the sisters here NEVER cease to amaze me!!! special hugs.....you rock!

    I may be away til the end of the week--F&F will post tho!

    HUGS all----be well & stay strong

  • pk0199
    pk0199 Member Posts: 49
    edited July 2009

    Happy Birthday to all our American sisters!

    Saint so good to see you up and about. I hope you have an absolutely marvelous vacation.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited July 2009
    Great results Saint! You done good! Laughing
  • barbe1958
    barbe1958 Member Posts: 7,605
    edited July 2009
    Great results Saint! You done good! Laughing
  • KAK
    KAK Member Posts: 297
    edited July 2009

    Saint, I'm glad about the scan, but understand your skepticism with the rads.  That would be great about Scotland!  Can I go with you?  I could be the troupe's official physical therapist!!  LOL\

    Jane, good for you.  There are enough docs in the world that we do not need to put up with crap from any of them.

    Thanks for the wishes, pk!!  

    Hugs & a large THAT SUCKS to all who need it.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited July 2009

    Well done Jane!!!!

    Saint- YYYYYYYYYAAAAAAAAAAAAAAYYYYYYYYYYY!!!!   

  • dreamwriter
    dreamwriter Member Posts: 678
    edited July 2009

    Way to go Saint.  Wish I could see you in the RV but fate and time conspired against us.

  • dreamwriter
    dreamwriter Member Posts: 678
    edited July 2009

    Now I am really upset.  I arranged 3 get togethers.... One Cheryl showed up..... the next one NO ONE showed up and the last Mary showed up.  Then I arrange one more, but I changed the date from Sun to Sat and slept through it and EVERYONE showed up.  I could just cry.  Mary Cheryl and Kathleen had a great time (without ME).  B OO  H OO   :*(

  • Sessna1
    Sessna1 Member Posts: 200
    edited July 2009

    Dear Friend Dream, THAT SUX, BIG TIME.

    Big hearted people know the pain of planning to make others happy and see their joy along with their own - only to have their hopes dashed due to unforeseen and unforeseeable.  That's why God gave you a heart that He can touch, heal, and strengthen to go on doing outstanding kindnesses.  Trust me, I talk to Him.  (smile)  I know we both do!

    Three get togethers?  Maybe, like the doctor's offices have started doing, you have to call people the day before to remind them.  I think all this information overload and crazed electronic this and electronic that PLUS the people using electronic this and that aren't doing us a favor by overloading us with information.  Take that, news media and paparazzi!

    Here' is a "THAT SUXS" please.

    When three technicians, one nurse, and one doctor can't find your vein to inject the stuff for a CT Scan, THAT SUXS.  My scan had to be done Non-Con, or non-contrast, because my veins wouldn't show for a contrast injection.

    SMART VEINS.  Why can't the cells of my body go defcon four on the tumor cells, eh?  Just blitz them.  Kick them out.  Destroy with unrestrained prejudice.  If my veins are smart enough to hide, why can't they teach my cells not to let renegades divide themselves and do rotten things?  I want answers, body!  NOW.

    Ahem.  I have also re-realized that you can't save, help, or change stubborn relatives and friends even when you see how badly they are messing up.  All you get for your worry is fretfulness and you know they won't listen as they never have listened before.  Don't let pride mess up your life - Let's be careful out here.

    They said that I will need a Central Line, Power Picc or Power Port especially if I will be re-entering chemotherapy treatment.

    -sessna1

    I must now read posts backwards to catch up on my people of the boards...Wink

    It's the 4th of July.  Yes, it is!

  • ktym
    ktym Member Posts: 673
    edited July 2009

    Jane, did I catch that right, your PCP spent time in the room with you complaining about how many patients she had seen that day?  Happy you found a new one. I know you're probably maxed out with the effort of getting angry and changing, but you may want to consider sending a letter to her letting her know why you felt you needed to switch docs.  It may help the next patients.

    Saint: congrats.  What RV to you have?  I live vicariously through everyone elses RV experience one day DH and I will get one.  Also could you post or PM  how we can give to DD's fundraising efforts?

  • ktym
    ktym Member Posts: 673
    edited July 2009

    whoops, Dream, missed a page when I posted, sorry, that does suck

    Sessna, a that sucks for you too 

  • EWB
    EWB Member Posts: 592
    edited July 2009

    What did I miss? Are we raising $ for Saint's DD to do something, something good I hope !? Anyone have details..I've slept thru past several days operating on autopilot.

    Hope everyone had happy celebrations, enjoying a lovely Sunday- bright and clear, soft breezes.

  • idaho
    idaho Member Posts: 53
    edited July 2009

    Here is my IOS for the day!   Minor but..... this is the third year in a row that we have had to wear COATS to the fireworks show!  I realize that I live in Idaho but it IS the 4th of JULY for heavens sake-  we almost froze our %&%$# off!!  Hugs to those that need them....Tami

  • Sessna1
    Sessna1 Member Posts: 200
    edited July 2009

    kmmd, you have NO idea how much better you've made me feel.  Great minds think alike ... or at least, I'm not alone in my thoughts and ideas.

    WHY do I continue to listen to well meaning people when my gut is pretty darn good about things?  WHY do I beat myself over the head?  I am too nice.  By the buy, I am bitc*ing, moaning, and groaning here.  WHY am I overly concerned about others when I could get some stress off myself and educate them - however, when I'm sure it won't "take," because they are non-receptive, I swallow the bitter pill and lie writhing on the floor for a few days until I stuff it down.

    Ahem.  I did write a letter explaining to my doctor why I switched doctors.  I fought with myself, figuring that he must know the faults of his staff, and probably approves of some of them.  He must've had a stake in the hiring process.  I sent a letter without getting feedback from a trusted friend or two and one friend later said that I don't owe a doctor any explanation for changing.

    That is correct.  This is a business transaction regarding health, and in a business transaction without a signed contract you can generally vote with your feet and take your money elsewhere.

    Some people might consider writing a letter a waste of time.  I said "some," not all.Undecided

    The kicker is, as they said in the 70s (60s?)  'If you're not part of the solution you're part of the problem.'

    So, I wrote a 1 1/3 page length letter, and I'll never know if he read it or not but I tried.  I like the person I see in my mirror better for doing it.

    Pardon me ladies ... Do you usually swallow the bitter pill of compassion even when it gnaws on you?  It's like being somebody's mother and determining what sure child can or cannot handle and then administering that with love.  You are not supposed to do that with everyone, are you?

    Just how mutated out am I?  How many adults are you supposed to 'mother' or is their something Christian in there OR am I basically a schmuck (as a New Yorker would say)?

    Thank you for letting me bitc^, moan, and groan.  I need this post.  The ladies are smart, kind, informative, and level headed.  Where else could I assemble this?

     -sessna1

  • navygirl
    navygirl Member Posts: 369
    edited July 2009

    Yah Saint! That Sux Idaho (I think that's worse than seeing it's snowing in Colorado in May)...I hope you all enjoyed the weekend! We had a great time, it was nice to be able to attend festivities this year!

    I've been so bummed about the events of the past weekd (RanD, the news about the ankle, etc) that I went out and bought a new car. Depression is a dangerous thing! But, I love what I got :)  Thanks to Nancy (akaLefty) who drove when we went to Arlington, I went and checked out a Subaru. I Love it. It's sporty, fun to drive and it has enough room for two bikes or 3 dogs depending on what we are going to do. And it gets WAY better mileage than my Jeep did. I'm almost looking forward to Monday morning just because I get to drive it again :)

    I'm off to check out the threads and play some mafia wars...I hope all you ladies enjoy your Sunday evening...

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2009

    Navygirl,

    I have been playing Mafia Wars, too...  Oh, and I sent you a gift, I think.

    Everyone have a great week!

    Hugs

    Harley

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited July 2009

    Sessna, I applaud you for sending the letter! I'm a letter-sender too! I figure I can't bitch about something unless I let that something know what is bugging me.

  • ktym
    ktym Member Posts: 673
    edited July 2009

    Sessna, I struggle with that too.  I've always hated that old saying/pray give me strength to change what I can, ...can't...wisdom to know the difference.  Was happy to find a like mind in Vonnegot in Slaughterhouse 5 in his disdain of it too.  That being said, I have tried harder to not beat a head against the wall when it was wasted energy.  Yes, sometimes someone needs to do it, but quite frankly at this point in time my energy is needed in healing and keeping well.  I do agree that if you aren't part of the solution you're part of the problem and that bad things happen when good people stand by and do nothing.  I'm also appaled at how others don't mind their own business nowadays.  Like I need their negative opinion on my "new haircut" otherwise known as growing in from chemo bald.  So, try hard to know when it is my business, be tactful and non hurtful in my interventions, and stand up and write when needed.  I still think it was the right thing to do to vote with your feet and write a letter to the old doc and let them know why.  Then put it away and be happy to move on and that you don't have to deal with the old office anymore.  That putting it away part.....don't do that well but I'm trying.

  • navygirl
    navygirl Member Posts: 369
    edited July 2009

    Ladies I need your help...

    Please say a prayer for my co-worker/friend Roberta. I came in today to find out she had a stroke during a surgery she had on Thursday. It is apparently very serious and she is in the ICU. She's a wonderful person and I hate the thought of her having to go through this.

    Thanks....

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited July 2009

    Prayers for Roberta.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited July 2009

    prayers for Roberta

    kmmd boy you hit a nerve there... two things... one day coming home from RADS I came upon what has recently been voted the most annoying thing in NYC, and that is sidewalk hogs.  this one was a fashionista bitch and I took her apart.  She made a nasty comment as I walked around her and I just went off.  but I am such a chicken, my heart was pounding the whole time.

     I am not at all sorry for it.

    And I recall now that after my excisional biopsy in 2003 (B9) I told the surgeon at that tiem that I could write up a list of what I thought might be helpful for his other patients, things I had noted.  Looking back now I realize how little they give a damn.  He had retired by the time I was DX this time, but worked in the office doing BRCA screenings.  He didn't even remember me.  If I had had to come back to him for this DX, I wonder how I would have felt knowing he had that letter.

    But he probably wouldn't remember me, and doesn't care.

    Again, I am not sorry I wrote the letter. 

  • KAK
    KAK Member Posts: 297
    edited July 2009

    Oh, navy....I'm saying prayers for Roberta.

    Sessna & Rachel, the pen is mightier than the sword, that's what I say about writing letters!  

  • Jane_M
    Jane_M Member Posts: 932
    edited July 2009

    Maybe I'm flattering myself, but I really did think that when they got my release form today, that someone would call me and ask me why, after all this time, I was switching doctors.  Apparently, it doesn't matter.  Not that it would have changed my mind.

  • KAK
    KAK Member Posts: 297
    edited July 2009

    Doesn't say much for our healthcare system.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited July 2009

    Jane, you smelled a rat and got out.  They are probably not at all surprised, and you are probably not the only one voting with your feet.  Good girl!

  • dreamwriter
    dreamwriter Member Posts: 678
    edited July 2009

    Remember the release form may have only gone as far as the mail sorter.  The same may have happened to your letter.  Put it in your folder and close the file.  There is nothing to say that the doctor ever read your letter or is even aware of losing a client.