Im bitchy, I moan, I groan.....anyway.
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Angel -- we're all here to support you and help in any way we can. You will be OK. Take the time you need, we will be here for you. With love,
Elizabeth
xox
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Angel, I will DRIVE to you and give you my shoulder if you need me. You are NOT alone...
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Angel: {{{{{{{{{{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
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(((((((((Angel)))))))))))))))) you and hubby are in my prayers
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(((((((((((((Angel))))))))))))))))
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Hugs Angel. I have always been the one to take charge of things. Short version: my mom has been in a nursing home over 7 yrs. We requested an outside doctor examine her and within an hour she was admitted to the hospital for further evaluation. Yesterday, she was transferred to another nursing home and an investigation is being started. She is not in any danger of dying, but she had multiple things that needed to be monitored and treated. Most significant was the numerous black and blue marks on her body. I faxed over 40 pages of letters I had written, with very few replies, to the Patient Advocate. She is 96 years old.
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I ate all my halloween candy, bought more, ate it. I can't fit in my sexy devil outfit any more -- only the red devil wig fits. I'll have to revise and be a fat sexy devil in a stretchy black dress. Sigh...
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Thinking of you sweet Angel and your DH. I hope you're getting some answers, and solutions. Hugs and kisses,
Elizabeth
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Sending prayers your way Angel. We are here.
Nancy...how infuriating. The care is bad enough, but unanswered letters from a so called "patient advocate"? That just makes it all that much worse.
Kona, dresses have their advantages too
Rock...you always know just the right thing to say.
SOI...5 days on my new meds and my nerve pain is a shadow of it's former self. I didn't think about it once today. Praise Jesus and better living though pharmaceuticals.
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(((((HUGS)))))) ANGEL!!!!!!
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My grandson brought me halloween cookies - make that aw cute sound NOW.
He was Batman
He loves all the super heroes
I am hanging in there and my pain is surprisingly smoothing out. I feel foolish. But I am on more pain meds so I guess it was time to up them but it didnt have to be a OMG experience.
Had MRI today so will see how things really are.
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Navygirl & Dreamwriter - thank the good Lord (or other deity of your choice) that your pain is relieved. Your trip to FL is back on, right, Dream? Tramadol did NOTHING for me, like taking sugar pills. Glad to know it is your magic bullet, Navy.
Angel - please let us know what is happening, when you get a minute. We care about you.
Nancy - glad you paid attention and got your mom out of that horrific situation. Damn straight an investigation is in order. Someone should be strung up by his ba!!$ for letting those conditions exist. (tell us how you really feel, Lisa)
Sorry about the suckage, but glad to know there's some SOIs to balance 'em.
Lisa
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THAT SUCKS, as needed. I am keeping a positive attitude as I face an echo and "6 month mammo" on Thursday. Echo is follow up from chemo and herceptin - you know the words: "routine check up"... The last routine mammo showed "spots", then stereo biopsy and dx was calcifications. I wonder how many other medical conditions I can add... Sorry, just joking. One doctor once told me everyone has at least 5 things wrong - I think I am on overload !!!
I found my Halloween shirt with BOO on it. I was going to add a B at the end, but decided not to. If you want a cute costume - take a colorful tshirt and put safety pins all over and call yourself a "pin up" girl. Or paste a quarter on you back and call yourself a quarterback... I know - weird. Hugs and Blessings for all, Nancy
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Oh, Angel, you've got us, remember that.
Rockster! Glad to see you here!
Hugs to you all.
Nancy, I went to an event called Tickled Pink the other night, which is about the only pink thing I can stand to do. It's an evening of comedy by women to raise research money for the hospital where I had my surgery. So it involves 3 things that I think are very therapeutic -- eating, hanging with pals, and laughing one's butt off. These are the folks that gave me a pink feather boa last year, and lets face it -- who can't use a pink feather boa?? I've got two now, so I've got one to lend out...
Anyway, one is encouraged to be silly and dress silly, which I did. Just call me the Accidental Pirate, or Jacqueline Sparrow. You can't see my skirt in the first photo, so I've included a shot of that, too.
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Thank you for the opportunity to be so real. Three years later my PTSD is screaming and making my fibro cause my vacant chest (bilat mast) to feel like the skin is going to stretch off my bones. Every October, date of dx, and then 1week later in November removal of both breasts just hits me so hard. Now, a lump in my neck - removed once and growing back at an extremely fast rate. I just feel like......I don't have the words. Who knew bc would be with you forever once they took everything. It is always in my head, as I have heard others mention. I thought, and have been told, not to think about it. OK - where's Alice with that magic pill? First time I have been able to express this to anyone I know would understand. I live in a small community and have isolated myself. There is no group that meets to discuss these issues. I am thankful I found you tonight as I really thought I was going to lose my mind. Thank you.
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Hey Nan, I have FM too and it is a hard cross to bear. We are all here for you to lean on.....
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terrific costume, Kathi. I wore a "BOO" tshirt, the letters were outlined in sequins. A blouse over top with skeletons on and skeleton earrings. I can't post pics, so use your imagination.
Hugs for all, Nancy
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Kathi, you look great with your hair up!
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Kathi, love your costume. And you look mah-velous!!!!
We stayed home, turned out all the lights and drank champagne because WE SOLD OUR HOUSE!!!!!
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Kathi, awesome costume! You are so right about 3 things that are very therapeutic!
Angel...even if you're not ready, let us know you're ok. You have lots of fans here and we're on your side, in your corner, ready to join hands and form a circle around you if need be.
I hope everyone enjoyed their Halloween. I was officially trumped by friends this year with my 6 almost 7yr old niece. It's still **sniff** **sniff** hard to believe my time as favorite trick or treating companion is up. Alas. All good things must come to an end.
Which brings me to subject of tramidol. How many people who have been on steroids remember the feeling of being keyed up, intense, on the verge of exploding, like a ticking time bomb. I had anxiety all day yesterday...which is very NOT like me. I can be hyper like a kid on pixie sticks...but I very - very rarely experience anxiety. Then this morning, before I was even up and about, I felt like I had steroid rage. It only got worse when I got up and had to face the world. I'm afraid it's the tramidol. My partner says she's been noticing it coming on the past few days, but I just thought I was ready for the week to be over...I'm going to use something else today and see if this issue resolves itself with the tramidol taken out of the picture. That will suck if it is because it has been like a godsend on the pain. We checked the side effects again and it's quite possible these feelings are triggered by it. Cross your fingers for me, I really want it to be phantom PMS
In the mean time, I'm trying to find the Eagles game on TV today....I love Sundays
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Nan, I also have Fibro, its not easy to live with at the best of times.
Everything seems to press in on you when you already have a medical condition, them breast cancer comes along.
I have been trying Gabapentin for my Fibro, it hasn't given me much ease, but I know it IS really helping some Fibro sufferers, so maybe it would be time to think about trying it yourself.
Come and join in, there is always someone who can answer your questions, I think we have all been, or are still going thru, the mill !
Isabella.
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Navygirl, I used to use Tramadol for pain and now I use Tridural 300. It is a different composition (stronger) so maybe it will work for you too! It comes in lower doses. (You do know it's not a steroid, right?)
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It's Nov 01 and the panic has set in. One month and I'll be back in Ottawa, Canada. Four days from now and I'll be there for a few days looking for an apt. I am already feeling suffocated!!! I moan and groan because I'm lonely. Now that's all I want to be is alone! The pitying looks from friends wondering when I'll die. Pooooor lizzie. I hope I can keep my trap shut and not tell Mom about the cancer when I'm there next week -- I'm bitchy in anticipation, I can't imagine having to handle her flipping out. I wish my French was better and I'd move to Montreal. Closer to my b/f too. Crap, crap, crap! Life sux big ones. :-((((
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Yes, I know it's not, but I swear the past two days it's felt like it was. It's the strangest phenomenon. I so hope I'm wrong because it was working beautifully!!!
Kona...deep breath. anticipate no stress, anxiety, drama. I hope you find an apt. and I hope you're not suffocated.
HUGS to those who need it and a big THAT SUCKS to boot.
I'm off to get my clothes ready for the week. I love Sunday's but I hate Sunday night because Monday morning is only hours away now.
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Elizabeth! Deep breath......another one.....that's better! You're going back to Ottawa to get a better job and be back in the cirlce of those who truly love you!
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Pant, pant, pant.... OK. I've scheduled 3 apts to view on Friday after an apt with my doc! Two downtown, one in the burbs near a friend. My sister will cosign if they don't like that I'm not working yet. Do you think I should pull the cancer card? Or will that make me sounds like an unreliable (i.e., potential deadbody on premises) and unemployable? Hehehe. I was a former homeowner so I hope that helps...
Thanks navygirl and Barbe!!
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{{{{{ANGEL}}}}} and {{{{{ANGEL'S DH}}}}} Thinking of you and your DH.
Elizabeth
xox
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(((((HUGS ANGEL))))))). I have always enjoyed your posts. Stop in just to say hi.
Elizabeth - in these latter years I experience anxiety attacks just thinking about moving but I got through it and so will you. And then you will be home!
Navygirl - I am going to vote for phantom PMS.
Speaking of fPMS, true story.
My uncle and his wife were out to dinner with my sister and me. I was complaining about PMS and wanting to commit homcide and how it was getting worse each year. My sister agreed. My aunt (who is 3 years younger than I am!) said she was lucky not to have PMS. My uncle did a slow turn and lovingly said "yes you do honey."
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And then she commited homicide...right?
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And we miss him but you can't mess with a woman during PMS.
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