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Im bitchy, I moan, I groan.....anyway.

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Comments

  • Connie07
    Connie07 Member Posts: 446
    edited December 2009

    WOW.  There's a lot of great big SUX out there. pk0199, I agree totally. and good for you for helping out, it really is better to give. It's what love is made of.

    KAK - you scare me with words like; radiation pneumonitis, what does that mean? you have pneumonia because you had rads? is this yet ANOTHER side effect that they never mentioned? Please take care of yourself that sounds really .. um.. challenging? I'm so sorry.

    Here's my IOS.. I had that cyst removed about 3 weeks ago.. and in the last week or so, my boob has been "pinking" and I've noticed discomfort. Today when I undressed and saw it in the mirror, I gasped... it's really RED today and it's warmer and it hurts again. I know that all sounds and it looks like it's infected and I don't want it to be.    DAMN. I don't want people messing around with my breast. maybe I can just take some antibiotics, but since then, I had a UTI and was on a 5 day course of a sulphur antibiotic. seems like that would have.... idunno. All I know right now is that it's red, it's warm to the touch and it might be swollen, and I'll call my doc in the a.m. 

    Thing is, I'm scheduled, Monday for the Myelogram on my back and dh wants me to cancel cause that kind of stuff can take me out for several days, right here in the holiday season.

    scared. again.

    ~Connie  

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited December 2009

    Ah Connie, gentle hugs to you! And Harley prayers to your friend and her daughter...how tragic.

  • GramE
    GramE Member Posts: 2,234
    edited December 2009

    THAT SUCKS, for those who need it.   The sun is hiding and the ground is wet, rain - not snow.   I like to see the sun, even if I stay indoors.  It just adds a bright spot to the day.   Hugs for all, Nancy

  • konakat
    konakat Member Posts: 499
    edited December 2009

    Oh crap Connie --  get that boob looked at.  Sounds like an infection, but don't let it get worse!  Let us know what the doc says. Hugs!

    Elizabeth

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2009

    Connie,

    Please get that breast checked out.  Then report back to us, ok??

    Here's an update about my friend's daughter:

    I called her earlier today, and she said that it's breast cancer, alright...  and it's spread everywhere.  The poor girl was having so  much trouble breathing, and the dr. said that if her Mom hadn't brought her to the hospital when she did, she wouldn't have made it through the night.  Now they are just trying to get her off the respirator, and then they are going to send her home.  I guess there is nothing they can do for her now.  This is SO SAD!!!  

    Thanks for all the prayers... 

    Harley

  • konakat
    konakat Member Posts: 499
    edited December 2009

    Oh no...  This is so sad Harley.  Oh gee, this should not have happened.  That poor woman.  Her poor family. I'm so terribly sorry for your friend and family.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited December 2009

    What a horrid tragedy to happen to a family...so sad! My prayers are with them all.

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2009

    yes, this is SO sad!!   She is only 40 yrs. old, and she has TWO young children, too!!  This is SO unfair!!   This disease is just horrible!!  It SUX, bigtime!!


    Thanks for all the prayers. 

  • EWB
    EWB Member Posts: 592
    edited December 2009

    so so sorry. Some days life just sux. hugs and prayers all around.

  • konakat
    konakat Member Posts: 499
    edited December 2009

    My heart is breaking for her family, and you too Harley.  So unfair.  Those poor little children.  It's always the worst when there are children being left behind. This is a tragedy.

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2009

    Thanks, everyone.  I think that for me, the worst thing is that I feel so helpless...  I want to help them, but all I can do is let them know that I'm thinking about them, and praying for them.   I think that having experience breast cancer myself makes me more sensitive to others being affected by it. 

    The thing is, that years ago, before bc,  or BBC, I don't remember hearing so many stories about women being dx'd with bc.  Maybe I was living in my own little bubble, not affected by anything cancer...    

    anyway... sorry for rambling.   I do wish there was something that I could do for them.  It has to be just awful, to see your daughter sick and know that she is suffering, and that the end is near.  And I hate to think about those kids, being raised without a Mother. 

    ....you are right...  some days, life just SUX!

    Harley

  • Sessna1
    Sessna1 Member Posts: 200
    edited December 2009

    Harley44, I believe that we're all oblivious to many things in life that don't directly affect us or those that we love.  That part about walking in someone else's shoes is true.  If nothing more, you learn that they don't fit you at all

    Cancer in general is still a skeleton closet word.  Better treatments today, yet, they work better on some than others.  It SUX that younger and younger people are diagnosed with it.  It SUX that it is still so scary.  This is so tragic to hear of a woman who is certainly more terrified of the treatment than the disease.  She's not alone in her fear.

    Now she and her family are heartsick, which makes waiting for tests harder.  Prayers for them, hugs, hugs.

    Yes, Connie07, when rads or chemo lowers your resistance to the point you get pneumonia, it is pnemonitis. http://www.mayoclinic.com/health/pneumonitis/DS00962/DSECTION=causes .  Not being able to breathe and becoming winded in a matter of seconds is scary.  Depending on an oxygen machine is just weird - all the movies and people on TV that you've ever seen with people attached to a tank come back into your memories.

    Then, your oncologist and a pulmonologist (your next NEW doctor, the pulmonologist) go back and forth to determine if the cancer has spread to your lungs or if it is pneumonitis while you are still asking yourself, "What the #$%^& is pneumonitis?"

    Please call your doc, Connie07.  Medical personnel examining your painful spots SUX!  Show some compassion, people.  Human being in here!

    pk0199, community?  Hmmm.  Even the word "neighborhood" doesn't mean the same thing it did when I was a kid.  (Insert taking my dinosaur to the groomer joke here.)  We lost a general sense of humanity when street gangs (anywhere) would fire into a crowd of people not caring who they hit (babies included) to prove how brave they are.  Life is not cheap and apathy towards others makes it look even cheaper.  Also, there was one stage of law suits a while ago in the paper that got people scared of helping.

    sessna1

  • navygirl
    navygirl Member Posts: 369
    edited December 2009

    Oh clearly I have fallen behind in the last week...I have not the energy to catch up right now so I will say a hearty THAT SUX to anyone who needs it...especially you Barbe as I did read about booe .... only you could make us laugh and cry at the same time> I love you!

    HUGS to all of you ladies...I will try catch up over the weekend...we have nothing planned so I should have some quality laptop time :) 

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited December 2009
    KissInnocentCry
  • Connie07
    Connie07 Member Posts: 446
    edited December 2009

    HEY GIRLS.. Thanks for all the concern. I called BS and her nurse was very concerned and I'm back on another round of antibiotics, keflex, a broader drug for a broad Broad. HAH.

     Went to see my PCP's new Doc on the team, SHE, again... I'm seeing a lot more females in medicine these days... anyway..She checked out the boob and agreed that indeed, it looked like an infection. and part of that REALLY PISSES ME OFF. .. HOW did THAT happen inside my boob???  I remember when it was done, she inserted a needle and tried to draw, withdrew that one, got a bigger needle and went back in. Did she poke 2 holes? Does that matter?

    I was planning to have a myelogram CT/study done on Monday, of my cervical and lumbar spine. But this has scared me off of doing that. Well, I was kinda freaked out about that anyway and it didn't take much to have me cancelling. So I did. Those kind of tests can take a lot out of me and I am enjoying hanging garlands and decorating. I got the 'Season" in me.

    I make big bows out of wide ribbons and tie them to stuff. Doorknobs, the china cabinet handles, railings, mailbox, in the corners of the front door. I also get open weave baskets and fill them with pinecones, draping a string of lights inside (with the plug hanging out enough to plug it in.) Then I place sparkly garland, weaving it around the cones. done. Or tie on a bow. They look GREAT.

    SUX to lose pets.

    SUX to lose young mothers.

    SUX to lose our parents.

    It must reallllllly suck to lose your spouse. Mine vows to live to 100.

    Life goes on. It seems to really slow down when you lose someone special. My friends Dad passed away on Tuesday. The obit said, quietly. He was a robust, extroverted, dooer of good deeds. He always wore a beard. He looked a LOT like Santa every day. And he loved it. It hits me back in high school part of my heart. Her Dad was a lot like mine, he Ruled the Roost with 2 daughters. He lived a darn good life with his kids, then grands, and even 2 great grands, I'm sure he loved his life and celebrated it often. Here's to you, Mr. K. I'll miss ya.

    ~Connie

  • KAK
    KAK Member Posts: 297
    edited December 2009

    Wow, there is way too much suckage going on here. 

    Harley, OMG, I am soooo sorry.  Hugs to you, prayers for that woman & her family.

    Connie, pneumonitis can develop months after rads.  It's like instant asthma, constant dry coughing & I can't take a full breath.  Sometimes a fever.  Sometimes it shows up on chest Xrays as dots.  Mine didn't -- got a chest Xray yesterday.  It seems to hit those of us who have had any minor or not so minor pulmonary issues in the past.  I had very, very mild, infrequent asthma if exposed to a fierce allergen.  Hadn't had any in 3 years.  Never had it like this, i.e., constantly.  Today I start prednisone for a few weeks.  If I don't get better, I have to get a CT scan.  Glad you are on Keflex.  You can also put a softly wrapped cold pack on your breast (gel pack is the best, ice might be too hard).  Sorry about your friend's dad, too.  You are NOT having a good week!

    THIS SUX.  AND THAT SUX.

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2009

    Thanks, Sessna1.  I'm so glad that you all understand how I feel...

    Thanks KAK!! 

    Connie,

    Antibiotics SUCK!  Needles SUCK!!   Haven't you been through enough already?
    HUGS!!

    Harley

  • navygirl
    navygirl Member Posts: 369
    edited December 2009

    I'm so sorry I did not get the chance to catch up that I thought I would...whatever I was fighting appears to have won and I am home with a suspected case of pneumonia...I go to pcp this am so I will no more after that...although I don't expect to hear any different. I've had bronchitis before, many times actually when I was a full time smoker) and this is nothing like that. I expect to have plenty of time over the next few days to see what's been happening -but from the looks of the lack of posting this weekend maybe things have slowed down a bit for us all. Here's hoping :)

    a round of HUGS  while I get to reading... 

  • GramE
    GramE Member Posts: 2,234
    edited December 2009

    Gentle Hugs, bonnie.   I hope it is not pneumonia.   Let us know how it goes at the doctor's.    Nothing much going on with me.   THAT SUCKS, as needed.    

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited December 2009

    Very gentle hugs Bonnie...please let us know how you are doing.

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2009

    Bonnie

    I'm sorry that you are sick.  Hope you are feeling better soon.

    {HUGS}

    Harley

  • Connie07
    Connie07 Member Posts: 446
    edited December 2009

    I'M BITCHY, I'M MOANING AND I GROAN A LOT. And all it's gotten me is a bad boob. Remember about a month ago, I had a cyst in my lump scar? The doc drained it and in a week it turned pink, looking infected. I called. got meds for 7 days. that was 8 days ago. I'TS STILL INFECTED. And it's still red and it hurts and NOW SHE SAYS I HAVE LYMPHEDEMA!!!!!!!!

    I'M BITCHING... I'm two years out and now, for the holidays I get to get all swollen and sore and painful and pissed off. HOW DARE MY BOOB BETRAY ME?

    AND... I'm Moaning. . . in 5 weeks I've had this thing poked THREE times. Had a UTI, and am on the THIRD round of antibiotics and wondering if the infection is body wide?

    I don't know anything about LE, except that I had no nodes removed and thought I was free and clear, but NO. Just because 2 years has passed, Now all the side-effects are kicking in big time. AND THAT REALLY BURNS ME UP. I don't want to have to learn about it. DAMN.

    DAMN MAD. THIS SUCKS. SUX, SUX, SUX.

  • konakat
    konakat Member Posts: 499
    edited December 2009

    Connie -- that sux!!!!  I wonder how your doc can determine LE -- maybe your boob's still swollen from the infection?  Gawd, I hope this 3rd round of antibiotics works. And, if your temp ever hits 101 get to the ER!  You've had such stress the past few months, that probably took it's toll on your body and it's taking longer to heal.  Keep us in the loop re. the infection, make sure the docs are keeping an eye on it.  Hugs,

    Elizabeth

  • Sessna1
    Sessna1 Member Posts: 200
    edited December 2009

    Dear ladies -

    Hello!  I have not dropped off the face of the planet.  Dad had his appendix removed on Nov. 3rd, and now he is having intestinal blockage apparently because they removed some of his small bowel.  I am spening my days/afternoons next to his hospital bed.  They don't know if they'll have to go into him again to see what's blocking what.  Prayers are appreciated and welcomed.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited December 2009

    Sessna! Your Dad is in my prayers and gentle hugs for you, too!

  • Jane_M
    Jane_M Member Posts: 932
    edited December 2009

    {{{{{Sessna}}}}}} {{{{{{Connie}}}}}} That Sux to both of you!

  • kmccraw423
    kmccraw423 Member Posts: 885
    edited December 2009

    Okay - major suckage going on here.  Wow!

    Harley - I am so sorry about your friend's daughter.  I lost my Mom when I was 42 and felt like a little kid, a little orphaned kid.  While I am a big believer that if you ignore something long enough it goes away does NOT apply to an illness.

    Elizabeth - there are nice people out there - its just when sometimes meet some really rude folks all at the same time which tends to taint our outlook.  I'm sorry a few of those jerks could not have been nicer.

    Sessna - what do you mean they took part of his small intestine?  Before they go in again, have a serious talk with his doctors - my uncle had colon cancer and then kept developing scar tissue problems - my physician sister said all you have to do is touch intestine and you will get scar tissue - its best to leave it alone as much as possible.  Also, can they do a laparoscopic surgery instead of cutting him open again?  My prayers are also with you Dad.

    Connie - that just sucks - two years out and you are still having to deal with bc.  It is NOT fair!!!!!!

    Navy  - sorry you are not well - it just doesn't seem to end, does it?  Prayers that you are feeling better soon.

    (((((((((((((((((((((HUGS))))))))))))))))))))))

  • KAK
    KAK Member Posts: 297
    edited December 2009

    Prayers & hugs to all!  Way too much suckage, as usual.

    I've been MIA lately because of some pulmonary suckage.  Had a chest X-ray last Friday showing pulmonary fibrosis -- i.e., permanent scarring -- from radiation.  Lovely.  At least I know why I've been coughing.  Have been on prednisone, which was only helping a teeny bit, then insisted on getting an inhaler with a steroidal anti-inflam and that worked a lot better.  Now, what I have to find out is whether this could get worse, and am I going to need this kind of inhaler forever.  Grrrrr.....

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2009

    kmccraw423

    you are SO right!  I know that I was so very scared when I found my lump, but, I still saw the dr. and the rest is history.  I know how scary it is, though.

    KAK

    Oh no!  I read on FB about your   pulmonary fibrosis ...  it sounds just AWFUL!!  I am hoping that it will go away, and you won't  need an inhaler forever...    it just SUCKS!!   {HUGS}

    Harley

  • EWB
    EWB Member Posts: 592
    edited December 2009

    Blah and Ack to everyone - bestest wishes for renewed health and happiest of holidays!!!

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