Im bitchy, I moan, I groan.....anyway.
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Oh, thank goodness, Connie! This calls for champagne!!
This is how I feel about 2009 & what we can do with it:
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Many of you have worse "suckiness" than I do today. Long story, but this too will pass. THAT SUCKS as needed. Hugs, Nancy
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Hi everybody. Sorry I've been absent. A huge and sincere 'that sucks' to all who needs it.
My sister shaved her head and started chemo yesterday.
((((((((((((hugs))))))))))))) everybody.
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Traci!!!! That sux!
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Aw, Traci, ... that sux, big time! Hugs to you and your sister...
otter
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Oh Coonie, what wonderful news to come in on! I'm so happy for you!!! Congratulations!
Traci...rub her head for me and tell her to hang in there...like there is anything else she could do
That Sucks!LisaSDCA...how are you doing these days darlin'?? I'm going to have to come peek in on you
thinking of you and hoping you have a wonderful ringing out of 2009!!! I'm with KAK on this one, just flush the whole dang year! The bad news is, the roads are a sheet of ice. The good news is, I don't have to work. I do have to go to the Dr. in a bit but hopefully the sun will be up and melting it by then!
Happy New Year my friends...everyone be safe, I'll be saying prayers we all see better times in 2010!!!
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Here's to a healthier and hopefully boring new year with no IOS for everyone. Miracle years to all.
(I can dream can't I?)
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I'm just sending hugs, prayers, love and hope for a healthy new year for all of us!
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Connie, I will celebrate with you!!!
My scans last week show no progression, met @ T11 even appears a bit less intense. There is a bit concern about bile duct dilation that onc wants to check with some special MRI (just to be careful) but he doesn't think there is anything to worry about - although I've heard that before; he said there was no sign of masses, stones, lymph nodes etc enlarged or pushing on it. So all in all its good news, I am also celebrating 3 years from dx.
Many good thoughts and prayers for good health and much happiness to everyone for the new year. To all hurting and/or waiting for results -- gentle hugs.
Here is picture of the new kitty, Missy and dh
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Connie!!! Wonderful news!!
Tracie -- good luck with the chemo.
EWB -- More wonderful news! Excellent! Cute kitty and DH!
Hugs, and sux where needed.
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Okay, I have a bitch for the day. I was to have my last chemo treatment on New Years Eve. Then surgery in January. Well that's not what happened. Before my last treatment I was informed that I will now be having MORE chemo first. They are switching it up. First I was on Taxotere & Herceptin (12 treatments in 12 weeks). Now I'll be on Cytoxan, 5-FU, Epirubicin & Herceptin (3 treatments 3 weeks apart). This pushes surgery back until April sometime.Then radiation and 1 year Herceptin. I'm glad it's all workin, but I hate all these last minute changes. I know they're doing whats best for me, but I only get so much time off work. I also have to go in for another EKG just to make sure my heart can handle the new chemo, so there goes my last day off work. Thank God when we start back in on the 4th, I'll be getting my new vacation time, sounds like I'll be needing it. Okay done bitching....thanks for listening....Leisa
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Leisa- Hugs hon.
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Leisa - As well you should bitch. Cancer sucks - and its such an ugly word.
Here is to a better, healthy new year.
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Thank you all very much....and CANCER SUCKS!!!!!!!
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Oh Leisa -- that does suck!! Just when you think you're done something else happens. Blech!
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A big heartfelt *that sucks* to all who need it. PT for the back does nothing and just makes it hurt more. Dreck, it's going to be a long 6 weeks.....
Hugs to all.
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rock - Thank you. However, you must know I was inspired by giddily chorusing your ‘sucky-sucky-suck-suck-suck-suck-suck.'
KAK, rock and I will look for a backup band.
Connie07, hooray! Yes! B9!!! Waiting for any test results over Christmas is not in the spirit of the season, say I. Give me good news or tell me what you know. Say something! Always prayers for the ladies on the boards. Are there any men that you have encountered with bc posting here? I've never looked for male boards.
KAK, I am not sure what that kitty is doing. Either it is appraising the pet goldfish's unfinished burial at sea, wondering who took its toilet top litter box (see Litter Kwitter http://www.petco.com/product/109888/Litter-Kwitter.aspx ), or it sees an animated Scrubbing Bubble left floating in there. Ah. I'm not sure. I've decided to call it "Cat at the Super Bowl." Thank you.
Traci- I'm sorry. {{{{{HUGS}}}}}}} Men shave their heads and many of them look better or sexier. Unless a woman starts wearing academy award style make-up, the exotic look isn't the same. Also, fashion is always throwing long tresses in our face. We look at the big picture because we have to with bc.
navygirl - Oh! The cat is saying ‘flush the year?'
EWB- YEAH! Beautiful scan reports! I could swear that kitty is showing her "good side" in the photo with happy dh.
leisaparis - that does indeed suck. Don't change the plan while I'm executing it! Grrrrrr. {{{{{{{{HUGS}}}}}}} Yes, the EKG or MUGA Scan. (http://heartdisease.about.com/cs/otherriskfactors/l/blmuga.htm ) They cycled me in four and three week intervals. I would have been besides myself with weekly or daily infusions. I just learned to sit there and read magazines while glancing at my IV bags. Well, that and Sudoku puzzles. Then, I transferred to the City of Hope, where you get your own personal small TV. You can bring earphones.
Hey, y'all, scar tissue SUXS. They can't find a good place in my forearm because the chemo injections went there and my small veins moved away to their winter home. I get stuck in my upper forearm when I can't convince them that "Shakira's hips don't lie, but my veins do. Your best bet is below the wrist." So, I just apologize for my rolling, collapsible, small veins and ask them to use a butterfly (needle #24).
I know, if I had let them put in the blood drawing device, it would be much easier. That port a cath was too alien an idea for my mind. I didn't wear low cut blouses before the mastectomy, now, I have to be careful about anything that hints cleavage that I no longer have. I figured that the port a cath would lesson my selection of tops even more.
2010. Wow. Onward.
Your sessna1
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Because a port a cath is off to the side, selection of tops do not change. This is my second port, I have a small scar from the first one (off to the other side).
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Thank you, dream. I am told by very credible sources, as you are to me, that it makes things much easier. I don't think that many things literally "terrify me," but the idea of having something access an artery that close to my heart bothered me terribly. The City of Hope does so many of the procedures every day and year, that it seems to be rout and routine for them.
I think that I could reconsider the procedure if I could meet "my" doctor first. Even with my emergency liver surgery (auto accident), the surgeon came and introduced himself. If the surgery isn't an emergency, I want to meet the physician and make sure he knows the particulars of my body.
Hmmm. It could be that I now have so many particulars about my body that I don't want anyone going in there anymore unless they have to.
I remember confessing to my current oncologist that once I had taken a pill by mistake, and her reaction was basically, "How can anybody DO that?"
So, we know that she has never had an assortment of medications to take that affected her alertness, mood, fatigue level, and energy. If she had, she would know that it's not impossible to think you are reaching for one bottle and you grab another.
I really don't need the cute lil' show "Are you smarter than a 5th Grader?" I need the "Are you smarter than a medical patient?" with each season informing me about the possibilities of an illness.
I know - no one wants to know much about an illness unless they have to deal with it themselves. It's scary.
I guess the best I ever got was the Newborn Channel in the hospital and a cable show where two single teen girls were giving birth. So, sometimes your delivery is quick - but a lot of times, it can be hours of face reddening, cheek puffing, sweating, nurse instructed labor.
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Traci - I haven't been on this thread in forever. I was thinking about you a couple of weeks ago and then, poof, the holidays took me off into another direction. A HUGE THAT SUCKS for your sister. When is enough, enough??? Hugs to you...
Linda
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Hello ladies...I'm just checking in on you all. I've missed my friends
Traci - how is your sister making out? Was that her on your christmas tree video? If so, she's hilarious
I'm surfing around trying to get caught up with everyone's news. Watson in hospice, Faith with a reocurrance, (f spell check anyway) what the heck happened to a quite year? Did we blow it already? Geeze. I for one, do not plan to spend 2010 saying good bye to friends or hello to doctors! I'm gonna have a talk with the goddess/man upstairs/man behind the curtain - what ever you believe...that's who I'm talkin too!!! We need some time off from crapiness!
Hugs to you all, I hope everyone stays IOS free for a while. Love you guys!
XOXOXO
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Okay, help....I've seen this a couple of times.......What does IOS stand for........chemo brain.......I just can't think of what it could stand for. I've looked over the abbreviation page...it's not on there....help.......thanks........Leisa
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I keep forgetting and just did a search:
IOS=incidence of suckage SOI=suckage occurrence inverted (i.e., avoided)
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Elizabeth - how's your magic port feeling this evening?
Bonnie - what happened with your dear heart? What was the conclusion?
Traci - if you find time, bring us up to date on your dear sister. Is the referenced video on your FB page?
xxxooo
Lisa
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I've taken some tylenol and am sipping some wine so I feel pretty good -- thanks for asking Lisa. It feels like I got something stuck on my chest, which sounds about right. And somewhat like a duffus since nothing's exploded, no green ooze, and I'm alive. So far...
I have a feeling I won't be falling asleep on my tummy for a while -- my preferred position for reading in bed and launching into dreamland...
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Sessna - I just had my port removed after having it for 15 months. It was a lifesaver because I have "hard to find" veins. Of course the nurse had a hard time getting the IV put in for the surgery to remove the port!
As for the "pill by mistake", I can totally relate. I take so many supplements that when I ran out of my heart medication (for CHF), I didn't notice because I fill up a 2 week pill box. Within a week I was in the ER because I couldn't walk around without being out of breath. All the tests said it was NOT my heart, so they gave up and sent me home mystified. Two weeks later (and not breathing any better), I noticed I was missing my heart meds. DUH! I kept tellimg my doctor it was my heart, but they believed the tests, not me.
hugs
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Oh ladies...I need to lay a fear down here and I hope you all don't mind. I don't have any place to put it and I can't bring myself to talk about it with my partner or my family/friends because I'm just not ready to face it or have them reply with anything I don't want to hear (which could be anything at all really)
Some of you may remember a little over a year ago my oldest 4 legged baby - Bailey - was very sick. She had to have surgery to have cancer removed from her leg. They told us if it grew back quickly then it was aggressive and she would only have a few months at best. If it didn't grow back quickly then it was most likely non-aggressive and she could potentially end up with a normal life span (she was 8 at the time). I've noticed this past week that she has lost a lot of weight -fast. It's just out of nowhere become very visible and I'm just heart broken to think her cancer has come back. She has also been uncharacteristically needy of my attention, especially at night when she wants to sleep up next to me -which she has never been fond of doing. She'll do it if I make her, but the second I start to drift of she abandons me for her own -much more comfortable chair
I know if it's back, there is nothing I can do about it. As much as I'd like to say I'd pay anything to get her medical care, I can't afford chemotherapy for her and I don't think I'd put her through it anyway. It just breaks my heart to think that this could be what's going on and I'm torn between calling the vet next week to have her seen...and not calling because I don't want to know for sure.
I'm sorry, I didn't even say that SUCKS to those who need it...I was just sitting her looking at her all curled up next to me on the couch and I realized that it's not my imagination, she has lost weight. THAT SUCKS to anyone else who needs it
Lisa...thanks for asking...I wish I had a definitive answer on my heart, but I don't yet. I had a bunch of labs done last week. They know I have borderline damage and a flow murmur (a benign thing) but they found nothing in the structure that was severe enough to cause my problems so right now they are looking at Adrenal Gland function. I did a 24 hour urine test (an experience everyone should have!) and the tested my Sed Rate/RH factors/ Lupus panel.I have some other things that I was already going to Rheumatology for that led them to believe I have an auto immune disease. They were working on diagnosing it when this hit. This latest flare up appears to have the characteristics of an auto immune issue too. Apparently a sudden increase in BP and HR can be cause by the Adrenal Glands or Pituitary Gland. We'll see. I'd just like to have a NAME and WHAT TO DO!
In the mean time they put me on beta blockers and it has done wonders for me. I didn't realize just how much trouble I was having - even before I got to the point where I felt like I had pneumonia - until they put me on these and I started getting better. I can walk up the stairs fast and not get out of breath...that hasn't happened in months! I can't believe how bad I was without even realizing it. Do we really compensate unconsciously?
Ok...long enough post...thanks for listening
Say a prayer for Bailey girl...I can't even imagine not having her on the couch next to me. And I'm pretty sure my chemo puppy (Charlie) would miss her too, they've become best buddies.0 -
My beloved cocker spaniel had lymphoma. I did put him through chemo by recommendation of the veterinarian, and if I could go back in time, I would not do it again. It was very hard on him. Finally, he stopped eating much or begging for treats. His breathing was labored. I knew the lymphoma had returned. I miss him and my little poodle (1st dog). I felt what you are feeling. They weren't "pets," they were my friends. I told my cocker that I had to give him back to God and I'd do my dardest to follow him up there. Taking him to be put to sleep was the hardest thing I have ever done in my life. I told myself that I couldn't do less for a guy who had been so loyal to me - I had no right to make him suffer. I can still tear up pretty fast when I talk about him. He was a real sweetheart. Prayers for Baily girl and Charlie. {{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}
sessna1
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Sessna...thanks so much for telling me that. I was feeling guilty that I don't even have to funds for it to be an option..but I also know it would be incredibly hard on her and I wouldn't even be able to explain why she had to do it! No matter when her time comes, it will be the hardest thing in the world. I'm so sorry you had to go through it too. It's so not fair
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Losing a "pet" is like losing a child. Tell me about this...
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