Im bitchy, I moan, I groan.....anyway.

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Comments

  • navygirl
    navygirl Member Posts: 369
    edited June 2010

    OMG Connie, that is way too funny! I don't think I'd have been able to contain myself either...I hope things have settled down for you, you've had a go of it lately but hopefully your UTI is winding down and you can look forward to not having to give yourself your own antibiotics. My thoughts are with you always :)

    It was a wonderfully relaxing weekend here...yesterday was one of those days that I just turned on the air and picked up the remote. :)

    Today the housework, exercise and laundry got done. Good enough for me. It's nice to be able to take a day if I need it, but by the same token, it's nice to be able to move about and do what I need to. So far, the femara has caused nothing more than the return of the hot flashes - for this I am very grateful.

    I'm counting down the days to my vacation, a real vacation -no medical tests, appointments or surgeries. I can't wait...we plan a short visit to the beach and then some play time while we have our bathroom remodeled. It will be so nice to have time off without having any cancer or ankle related things going one. Yippee!!

    Hugs to you all, I hope things are going as well for the ladies here as they are in my neck of the woods...

  • AussieSheila
    AussieSheila Member Posts: 439
    edited June 2010

    I guess today was one of those days............

    I had to be at X-ray clinic for bone scan dye injection at 9 am.  Tick that.

    Had to go back at 11:30 am for scan.  Tick that.

    Wouldn't you know it, but DH rings plumber to come at 12:30pm to exchange toilet suite over.  Mind you, this was because we couldn't fix/replace the plastic button on top of lid.  Don't ask about the weeks spent putting ones hand into the water cistern and manually operating the damned things' internals. EERK! I am not a frustrated plumber/doctor of any sort!    Cross that.

    I guess I'm pretty normal in that I suffer from scanxiety for a period before, during and after the actual event.   Yep, tick that too!

    You all know how that goes!  You lie on the plank in the straight jacket thing with toes sort of tied together, trying to relax.

    I have this idea in my head that if the scan takes its shot while I am actively breathing, it will show up fuzzy on the film.  So, I try to get my breathing down to a fairly low rhythm.  Of course, my deep and meaningful reasoning about this also tells me that the whole thing will be over faster this way, too.  Question mark that.

    So, today, I lie there trying to get my breathing rhythm into sync with the machine and keep finding myself breathing faster and so rigid I am almost shaking.  

    Why? I ask myself.  And then I have to tell myself it is not my fault.  

    It is not my fault my DH is sitting out there, tapping his foot, while watching the clock on the wall.

    It is not my fault that the operator/tech/radiographer called me in at 12:00 and then left me sitting there for 15 mins.

    It is not my fault if DH doesn't run home (three blocks) to see the Plumber in and get him started.

    NUP, it is NOT my fault.

    So why can't I lie quietly and relax to almost sleeping mode as I have almost managed to do before?

    Because this time I am suffering from bl00dy Plumberxiety, which is not my fault!

    Once outside, DH just sat there listening to great '60's music, waiting for me the whole time.

    .............................................................................................................................................................

    12:50pm we walk in the door at home and no plumber! Yet!  Hubby can't undo and remove the old loo in case this plumber doesn't turn up today (or ever.)

     An hour later I am about to settle on couch to watch favourite afternoon show (which I mostly sleep through) when Plumber arrives.  

     DH immediately tells me to rush to bank to withdraw our retirement funds for the plumber.  Plumber quoted 1hr for job, hubby says to get 3 hrs money.

    On the way back, I stop into supermarket to pick up a 'few' things.  While roaming around in there, I remember that I left my phone sitting on charger at home, so rush to check-outs.  Just as I get there, they shut half of them. Yep, one check-out open, with three full carts in front of me.

    Eventually, I get through and take shortest/fastest route home.  Arrive there just as the plumber and his side-kick are carrying their tools out to their truck. I didn't even get a glimmer of plumbers crack out of this event. 

    DH rushes up and asks if I thought he was serious when he said that the plumber might take three hours to do the job.

    As you do, I replied, " Of course I did." 

    Sometimes, ya just feel better when ya let the b!tch out.

    Sheila.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2010

    Great retort Sheila!!! That'll teach 'im...

  • navygirl
    navygirl Member Posts: 369
    edited June 2010

    Love it sheila!!!

  • AussieSheila
    AussieSheila Member Posts: 439
    edited June 2010

    You know what I can't believe?

    I actually went to 2, that's two, places where money can be spent and I was back home within an hour!

    So, an update.

    DH flies out to work on Thursday, so I have to get scan results before he goes in case I need to go to the hospital in the big smoke.  I accepted long ago that I don't much like driving in cities anymore.

    I txt my Cancer Care Co-ordinator in big city hospital re scan results, wait an hour.  DH says he has to let boss know by 12 noon whether he stays or goes.  Almost time up and phone rings, my CCC, Michael, says my Onc has my scan report and will call me sometime this afternoon.  I say we have to know a.s.a.p, but he says if she doesn't ring by 3:30pm, I should ring him again! DOH!

    About this time, hubby tells me that he isn't leaving on Thursday, no.o.o.o.o!  He's leaving on Wednesday,how come I wasn't told this important little detail? 

    Oh, sorry, I was! Don't I remember?

    How can I remember something that I am absitively possolute, I was not told!

    Onc rang about an hour later to tell me that I'm not much worse than I was last Dec.  Some bone mets have progressed, some have shrunk a bit.  Tumour on T12 a bit worse, if pain gets really bad, I must let her know and I should keep taking prescribed meds.

    So, DH tries to ring boss, but now the phone is not working.  After checking all the cables, cords etc,. and telling the dog off in case he knocked something out of its socket (and farting while I talked to him) we used our cell phone to ring phone company to be told all land phones (you know, the ones we used before cells were invented?) were down until maybe 7pm.  After mad hunt for phone number of boss, call is made and normality returns.

    Did I say 'normality'? I suppose you could call walking around in a fog, with simple things becoming  major dramas, normal.  It certainly is this week.

    Let's see if we can get to the airport in the next town, early tomorrow, and back home, without some sort of muck up which can be laid at my forgetful feet.

    The b!tch is ready for anything.

     Sheila.

  • navygirl
    navygirl Member Posts: 369
    edited June 2010

    Sheila, you should be doing stand up telling these stories ~ you'd be rich AND famous!

    I had to share the good news....about the insurance claim denials; my doctors filed the appeals on my behalf, I got the letters in the mail yesterday saying they had over turned the decision and would process the claims for payment! Woo Hoo!!! It was so nice to call the hospital today and tell them this - of course, they already knew too and had refiled the claims, telling me to disregard the $13,782.00 bill.

    I can't tell you what a relief it is. Thank you Jesus, it's nice when a bill goes your way for a change!

    be back later....XOXO

  • Connie07
    Connie07 Member Posts: 446
    edited June 2010

    WOW AND WOW... Sheila, you absotively cracked me up and I needed a good cracking. OMG, do I get it, and IT WAS NOT YOUR FAULT.

    Navy, aww, thanks. I wonder where you are going to the beach? and assume it's way north of here and therefore the water will be much colder than ours. HAVE A GREAT TRIP, forget all the medical stuff..... oh, for a beach visit, sigh. Our beach has rumors of booked up hotels all summer, not just hotels, but lots and lots of private homes and cottages are booked. People are guessing that its due to the uncertainty of the gulf coast beaches... and they are so beautiful, were. I get so sad just thinking about the human error in the gulf that is so devastating

    BUT WOW AGAIN on the insurance paying off, good. GREAT. OMG what a relief to not have that hanging over your head... ok... you and hubby on vacation should get the beverage of your choice and make a toast, To health, wealth and happiness. I KNOW that feeling of relief. That's just wonderful news.

    I have an imaging therapy for leaving work behind, that I used very effectively for years. We lived south of town and I had been working, commuting for 3 or 4 years when one day, i passed a major intersection and imagined dropping a huge garage door down behind me as I crossed that street. By the time I was on "the other side" I was relaxing and looking forward to the evening ahead, on weekends it was even better. I worked that job for another 15 years, dropping that door every time I needed to and it shut out the rest of that part of my world until Monday.

    Oh Yeah, medical update... am I getting so accustomed to people in white coats sticking things in me and making pictures of my body parts that I am ACCEPTING this as the way of life??? Oh, Jeeze I hope not. I cried in the Infectious Diseases doctors office when he told me he wanted to go another 7 days of the IV antibiotic. Then the nurse came in and said Well, I'm NOT going to take the PICC line out after all and I started boo-hooing more. damn, damn. thought I could wait til I got to the car, but no. cry baby... suck it up and just DO IT.

    DAMN Sheila, WHERE'S THAT BITCH WHEN I NEED HER??

    Then there's mother... nother topic, nother night. HAH another bitch in the pack!!

    ~Connie 

  • bookart
    bookart Member Posts: 210
    edited June 2010

    Neither of my teenage sons have a summer job YET and are spending their time playing some horrible zombie game with blood and gore and extreme noise.  Just FYI - THIS SUCKS!  Yell  I come home from work hoping to have a little quiet time.  HA!  Thought I would throw that out there. 

    My summer class didn't make, so my budget just went from OK to oh sh**t, and I'm still working on the medical bills.  My partner and I aren't desperate yet, but it's time to tighten the belt a bit.  Glad we got our vacation in before I found out! 

    I'm happy to hear that Navy's insurance reconsidered - yay!  And Sheila - we have a bucket under our kitchen sink to deal with the leak there - no money for a plumber and I'm not up to crawling under a sink yet - partner has no skills - teenagers are useless.  I do actually have a friend that has offered to come over on any weeknight, and I've had to work late for the past two nights!  Pooey.

     Connie - how is the UTI?  Any better?

  • AussieSheila
    AussieSheila Member Posts: 439
    edited June 2010

    Connie, Have you ever considered going to a witch doctor? Couldn't be much worse than what you're getting, especially when you consider what you have to pay your drs over there.

    Bookart,  I'm with you on the teenage boys and their games.  I had three at home once upon a time, and only one original Nintendo.  Sheesh . . . the arguments and the inane noise that those things make!  

    I still can't believe that a 50 cent piece of plastic cost us nearly $1000 because they discontinued a line of bathroom ware that was only nine years old.

     But wait . . . . there's more . . . 

    We got to the airport this morning, hubby goes to check-in counter, daughter and I go to seats in waiting area.  Eventually, DH turns up and says, "Whew, you're not going to believe this." 

    I knew as soon as I heard those words that I would.

    Well, it turns out that DH had booked his flight for Thursday morning! Yell

    I'm so glad that he distrusts my brain pharts so much that he did this to himself.  Ooooh yeah . .  .tick that.  Innocent

    Yayyyyy.. .  . it was not MY fault.

    Anyway, they had a spare seat and brought his booking forward one day.  He was so lucky because it takes 24 hrs travel and waiting time for connecting flights, to get to where he works.  The firm charters some flights for the crew change-over and if he missed one he would have to pay his own fares.

    He swears that it wasn't his mistake, too, somebody got it wrong online when he booked!  Foot in mouth

    How quickly he forgets about the train booking a couple of months ago when we discovered, on our way out the door to the station, he had booked his ticket for the next day.   The station is about ten miles out of town and we had to rush into town to the rail office and hope he could get a seat.  We just made it to the station on time after making the change, which is quite rare, as we usually book at least 10 days ahead in order to get a seat.

    I bet he now insists that I do all his bookings from now on.  Like I need the stress of it all.

    I can feel that b!tch rising again.

    Sheila.

      

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2010
    Navy that"s wonderful about the insurance! Now all you and your sweetie have to do on your vacation is compare tan lines <wink< wink

    Bookart your sons DO have a summer job cleaning up around the house! I"m sure they will find find a paying job really quickly if you can find enough chores to fill their summer!

    Sheila ain"t karma sweet!
  • AussieSheila
    AussieSheila Member Posts: 439
    edited June 2010

    Yeah, Barbe, it is!

    I've been trying to teach my kids this for years, don't go for the knock-out and get yourself in trouble, sit back and wait and time will do it for you.  (Deliver the knock-out, I mean, sheesh!)

    Sheila.

  • 3jaysmom
    3jaysmom Member Posts: 2,604
    edited June 2010

    just wanted you ladies know that ive been lurking, reading all ur posts and have been laffin my arse off! the rug story cracked me up, i just cleaned my carpets, and kept cking 2 see it was dog hair, not carpeet fiber!  light and love, 3jaysmom

  • navygirl
    navygirl Member Posts: 369
    edited June 2010

    LOL@ Barbe...yeah, now that we  know we can take a vacation ;)

    3jays....thanks for coming out of the shadows, we always welcome newcomers - it makes for more fun!

    off to work kids...ok, technically I'm not off TO work since I'm teleworking today! But still... 

  • bookart
    bookart Member Posts: 210
    edited June 2010

    Hee!  We'll be laying down new ground rules here at home, and the teenagers may decide that a job will be easier.  My DP has finally come around and agreed to stricter rules.  Yay!  We may have some peace around here (after the "family meeting" argument is over).

    BTW, before DX, we bought a house with brand new carpet.  Two months later, our elderly dog got acute pancreatitis and had the runs and threw up all over the house.  We have never gotten the stains out!  She is also the dog who throws hair like a porcupine.  We're always having to tweezer them out of DPs heels.  Brushing or petting produces enough hair to coat another dog - where the heck does it all come from - she's just a little terrier!  Vacuuming is an adventure in hair, hair, hair.

    Sheila - I love it that DH booked it wrong himself!  LOL!

  • AussieSheila
    AussieSheila Member Posts: 439
    edited June 2010

    Me too, Book.

    Last night he rang me in a panic because he couldn't find his earphone/speaker for his cell phone.

    I learnt long ago to let him pack his own bags to avoid being blamed for the things left behind.  He thinks he does it better . . . . hehe . . .  Innocent

    After I searched the house, high and low, and not finding his gadget, he decided he had left it somewhere on his travels.  I knew he had it because he had it laid out on the table with all his other technical stuff the night before leaving and it wasn't here.

    An hour later he rings back to inform me that he had found it in the container for some other hi-tech computer gadget.  DOH!

    It wouldn't be so bad if he had left it here somewhere, but why should I be under a cloud when I can't tell him where he left or packed it?  MEN!

    I keep forgetting that we women are the guardians of all the minutia of their lives. 

    Re pet hair:  Since our cat passed, I don't have to vacuum as often and I don't have to pick hairs off all our clothes every time I fold/iron the washing.  Our staffy foster-dog doesn't shed too badly, although, he has his own mat on the carpet to stop him from leaving his black hairs everywhere else.

    Sheila.

  • 3jaysmom
    3jaysmom Member Posts: 2,604
    edited June 2010

    ok, so here goes! im so angry, upset, life isnt fair to me today, i feel like my head is going to rocket off me! it started yesterday with my 3rd fitting for my le gloves..the last visit i had 2 walk out, the owner, not even a fitter, was in my face SCREAMING at me. people who know me were lined up 2 pay the bail they "knew" i would need.. i walked out, let DH (MISNOMER WARNING) DEALwe all agreed we'd let le therapist email him with her eval...she did. fingers too long, too wide just like i said.  so, yesterday, were doing our 3rd change, and the fitter starts jamming into my fingers AGAIN. i said if you continue to hurt me, im not staying AGAIN..his thing is, so many changes, he'll never get $ from my insurance..he tells me if i dont stop complaining, he's not going to fit me... so i ask him, if a guy had his fake leg on, and it rubbed HIM raw, would you speak 2 him like that?  he says..no, HE would have a REAL problem, as aoppossed to you! so, isay, well, if you keep fitting this wrtong, then accerbating it, IM going to lose a finger or two..he says, aw, come on....its not like your diebetic, or anything... (I AM a brittle diebetic} so, i ask him, did you read ANY of my health history?  i am diabetic, a bad one, so this IS serious...he finally shut up, when i told him, ok you dont fit me, and ill find someone else..i will just tell my ins. carrier to not PAY you a dime... we ended up with him measuring in silence, and me cryi ng which i hate 2 do, in silence. well see next wk. if its right..it all just sucks! THEN, sorry, have 2 vent, went, spent too much money (acco9rding to HIMS face on 3 bathing suits which im sewing pockets i 2 save $...i spent $20.00 4 3 suits, and not $70.00 i saw in stoor for 1..it was kinda a quiet night. came home, hubby HIM went 2 bed at 4, and woke up 11:30 this AM  ,i left, got dinner, etc. he never even knew, or cared ..remember when u were a kid and u got "the silent treatment from your mother?  EXACTIMANTE !!!so, today, im trying to get garden ready, IM building a gazebo over our little garden patio, my plants r burning almost 98* this wkend.. so, i had a colonoscopy& endoscopy monday, a bunch of nerves, waiting on paths on polops she didnt like... HE tells me yesterday was so tense, his back hurts 2 day, and he needs 2 lay down w/ heat on it., so i get to move big pots, etc...a long time ago, i went to alanon about my alchoholic dad, they have a saying 2... if you are the one who wants it done, your respomn. to do it, not someone else. otherwise, you have to wait for them, for as long as they want..its your project..the other one i use is, if you want it done right...u know the rest...then, like when my kids were teenagers, he comes out and says i was going to do it!! you just cant wait, this is like 1 1/2 hrs. after ive done it!!now, we've had dinner, he warmed up leftovers, and was too tired toclean up..(if u want, etc.>>) so, i just spent an hr. cleaning up, putting dishes away..i could just spit! nce again, something i've read on this site saves me..in the older ladies thread, there is a ladie from the UK whose DH touches ANYTHING and it falls apart..im sorry i cant remember her name..i thought of what she goes thru, and could sit back and laugh...i am so grateful to u guys, im sure this is all or mostly, feeling like i have to fight every step of the way here, with every side effect there is, then , im waiting to here is cancer back?throw ina good dose of feeling sorry for myself, and there u have it.IT ALL JUST SUX !!  I JUST HOPE HE'LL LEAVE ME ALONE WITH MY GARDEN 2MORO, NOT SIT AROUND WATCHING ME WORK THATS THE WORST..NO, THE WORST IS, FEELING LIKE A COMPLETE BITCH, AND NOT BEING ABLE TO HELP MYSELF... THANKS FOR LISTENING   3JAYSMOM sorry about capitals i screwed up AGAIN

  • bookart
    bookart Member Posts: 210
    edited June 2010

    Oh, the caps are fine - sounds like you needed to yell.  That sounds horrible and you have the right to be upset.  You're not being a bitch - the folks around you are being a**holes.  I can't believe the fitter - what a stupid jerk thing to say!  Let him get a hand that swells up until you can't even close it and see if he thinks it's not important to have a good fit.  Even if you weren't a diabetic, LE is SERIOUS!  I know that sometimes it's just not worth finding someone else to do the work, but if it doesn't fit this time I would try. 

    And "D"H, sounds like my partner; sometimes it seems like we're competing as to who feels worse and has more problems!  I get this statement - "So and so needs fixing" and when I explain why I can't fix it she says "I wasn't saying YOU had to fix it" and goes off on this real defensive bent.  But the truth is, that no one else in the house is going to fix it, and none of us have the money to hire someone else.  So IT IS me who has to fix it, and if I can't get to it or don't have the strength right now, it does just have to wait.  See my earlier post about the kitchen sink, which still isn't fixed.  We use the "whoever it bugs the most gets to do it", but I do have skills that no one else has.  And the teenagers are worthless.  At least they've been spending time at their dads', so we haven't had their mess and noise to contend with this past week.  I just wish they would stay there this whole month - I need the break.  Even their mom is finally getting fed up with them - my patience wore out several months ago. 

    I also relate to the "but I was going to do that" after you've already done it.  I was struggling to get ready for our vacation, and I had told the boys NO TV until we were ready.  I walk into the LR and there they are, settling down to watch TV.  I turned that off and was really mad, and they got all defensive - "just tell us what to do and we'll do it", like I hadn't already told them 5 things they needed to do.  AAARRGGH!  Then they had to sulk because I got mad.  It's like they're 2 again.  I know the male brain doesn't mature until mid-20s, but they can't live here until they do!  I'll be dead or they will, one or the other.

  • 3jaysmom
    3jaysmom Member Posts: 2,604
    edited June 2010

    thanks bookart.. its really inncredible, your dP sounds very much like my DH.. i try to concede 2 him, ure sicker, but... i really do get scared he is sicker. they have been testing, and testing and just low t count. i know it can account for alot, but so cant cancer, and chemo, and als, and menepause and.........sometimes im not sure if anyone "hears" me. thankn you so much for acknowleging and responding 2 me. i do feell better..!!light and love, 3jaysmom

  • navygirl
    navygirl Member Posts: 369
    edited June 2010

    Holy COW 3jays...I'm surprised we don't have to bail you out!! If that was me, you all sure would be bailing me out!! The fitter, I'd have thumped him on the head 3 times, once for doing it wrong, once for insinuating that I was being a whiner because he had to redo it, and the last one would have been for ASS-UMING that I wasn't diabetic and therefore it wasn't as "important" for my glove to fit right. Jack-A**. 

    An no offense, really, but I'd be thumping DH too. In his sleep of course, but I'd thump him none the less! Sometimes I can't believe all you ladies have to go through, it makes me appreciate my DP all the more. I hope you do not let the silent treatment get to you but, rather, enjoy the peace and quiet while you are getting it. Sooner or later, he'll need something and start speaking again :)

    Connie...I thought of you today! As I was steam cleaning my carpets ..hahaha! But my, they do look nice. Now, if only the dog could understand that just because they are clean, it DOES NOT mean she has to throw up on them. Ugh....why does it always happen that way??

    A big hello to everyone...I hope you all are finding creative ways to stay cool as our summer heats up. It looks like we're in for a hot one, we've all ready got the A/C on and we didn't use it until well into July last year.

    XOXOXO

    Bonnie 

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2010
    that"s cause you"re hot stuff navy!!!
    i thought you were on holiday>>>>?
  • navygirl
    navygirl Member Posts: 369
    edited June 2010

    LOL Barbe...in more ways than one Laughing

    I was due to go the week of July 4th...but I may have to change plans. Grrr. I hate that! But the main purpose was to see my first "baby" who is now engaged and having a baby of her own (her mom was my best friend in the Navy). And she can't come until the following week...except the DP and I had plans to have work done in the house the same week since the pets would be in storage...I mean, boarded! Who knows how it's going to work out now...we'll see, either way I'm fine. I'm happy to be off in the fall as well! Especially if it's right after the end of the fiscal year...

    Lunch is just about over...off I go!

  • Sessna1
    Sessna1 Member Posts: 200
    edited June 2010

    Has anyone heard from sessna1?  Some friend she turned out to be.

    THAT SUCKS, ER SUXS NEWSFLASH   -  ER ADMISSION

    On May 2, 2010, sessna1 passed out in her kitchen and fractured her leg in two places.

    On May 3, 2010, she was admitted to one ER to be stabilized and then transferred to the ER of her choice.

    On May 6, 2010, she was fitted with a high on the thigh cast.

    On May 6, 2010, she was transferred to a skilled nursing facility.

    On JUNE 25, she was released to come home.

    Diagnosis?  http://www.medicinenet.com/orthostatic_hypotension/article.htm 

    That is all for now.  I still can't stand up (with my walker) for more than 20 minutes without getting light headed.

    For those who  have continued to pray for me... see how badly I need it?

    sessna1

  • LiniWD
    LiniWD Member Posts: 9
    edited June 2010

    Aww Sessna -

    Sounds like you had a horrible May & June - hope each day gets better for you.  And I missed you.  Nobody has really been posting on this thread since the 15th - so either everybody is on vacation and enjoying themselves, or nobody wants to bitch. 

    I never post on this thread - but  love reading it.  Have had lots of suckiness this last 2 weeks culminating in a brain MRI with yicky results - get to see the neurosurgeon on Monday and made the mistake of looking things up on Google.  Bad move. After more than 5 years as Stage IV, I should know better.  Sigh.

    Let's hope the doctor visit isn't as negative as Dr. Google. 

    Lynn from Tampa 

  • Sessna1
    Sessna1 Member Posts: 200
    edited June 2010

    Dearest Lynn from Tampa,

    Bless your heart.  I have, as most of us, learned to wait and dread those <expletive deleted> MRI results.  I began getting dizzy in December 2009, and my oncologist gave me a brain MRI.  I was semi-terrified.  It came back clean, and the dizziness got worse.  As stated before, on May 2, I passed out and fell to the floor at 10 p.m. at night.  ER, here I come ... again... frequent flier.

    Dr. Google.  That is great!  "Yeah, my HMO turned me down, but Dr. Google said to come on in and she'd take a look at it."

    This has been a great thread, I hope the heyday isn't totally over.  I hope that our posting sisters didn't have a rash of ER episodes.  I really needed my support group (here), and I couldn't get to a PC.  I was non-ambulatory.  More and more, identity theft and stealing data from the airwaves is happening.  It doesn't pay not to stay with your own virus protected, Internet securitied PC.  Watch that wifi, and people, why do you want to broadcast yourself on 'My Face?'  What happened to privacy and watching out for strangers?  How my 'friends' do you need?  Come on...  Think about it.

    That was a public service announcement there.

    NO ONE should have to go through this garbage alone.  It's too scary.  We're not heroes, we're people who want to live, produce, love our families, and move forward.  We want a darn cure.  We want the government to stop approving additives, hormones, and other genetic crap that tweaks our systems as people younger and younger get illness earlier.  They get it from their parents' genes and the environment: poisoned earth.  Who wants to live a long life on dozens of drugs, testing, and pain?

    I think I started life Stage IV, long before my oncologist told me the cancer was in my lymph nodes.  Nothing has ever been guaranteed, I believe in God, I learn, I study, I try to do my best and get better.  ... I'm more careful about what I eat... I meant it about the food additives.  We weren't supposed to ingest that garbage:  garbage in, garbage out.

    Keep me in your prayers, Lynn.  I'll keep you in mine.  Praying for each other makes a difference.  Eight daily medications and counting...  God ain't done with my life yet.

    sessna1

  • flash
    flash Member Posts: 129
    edited June 2010

    Sessna- that's a definited big IOS.  Hugs to you and hope it heals quickly and without complications

    A big "THAT SUCKS"   to all who need it.  Hugs to you all.

  • leisaparis
    leisaparis Member Posts: 326
    edited June 2010

    Hello ladies, I don't write much either, but I do read daily. I do have a bitch for the day. Finally finished with radiation...Thank God. It has been so much harder on me that all the chemo I went through. They had to use a bolus(sp) on me everyday. It's to keep the radiation to the top of the skin. I now have 3rd degree burns, everywhere I had radiation. I can't go swimming, be in the sun much ( without 45spf sunblocker ), or do any fun activities without hurting. These places on me have been trying to dry ( can only use sylvadine cream (sp) ) and they crack and bleed. I just Thank God that I still have no feeling under my right arm or that spot would really, really hurt. It's a big open wound. Now that I'm done with radiation maybe I'll start healing up. I took pic's. Thought about posting one but don't want to scare anyone. It looks bad. Anyway, that's my bitch for the day. Hope everyone has a better one than me.

  • lvtwoqlt
    lvtwoqlt Member Posts: 765
    edited June 2010

    Sessna My dad has been having problems with dizziness when he stands up. The cardiologist is testing him to see if he is taking too much BP medicine since he has lost about 50 lbs. this week they did a tilt-table test where they take his bp multiple times while raising him from horizontal to vertical. I don't know the results from that test yet. Glad you are doing better.

  • LiniWD
    LiniWD Member Posts: 9
    edited June 2010

    Thanks, Sessna.

    I think we all have to pull for each other (my way of saying pray).  I hate ER visits and hope to avoid them as much as I can. I also get crazed with unscheduled, have to have them now, doctor visits.  My doctors are really great and I should be more greatful that they react quickly.  I just don't like getting scared and I don't "behave" well when stressed (is that just me or all of us?).

    You feel better and bring that blood pressure up!!!

    Lynn from Tampa 

  • 3jaysmom
    3jaysmom Member Posts: 2,604
    edited June 2010

    i have so much to say "it sux" about, but just havent got the energy to waste right now.will be praying for you sessna.. take care of that leg.. things just dont heal like theyre supposse to, on all these drugs.. im trying to be careful watching what im eatingGI says bloat will never go away, all from chemo. will still try 2 lose wait, as im not doing als, flunked them all. i am so sympathetic to u also being in a cast, as if you didnt have ENUFF to deal with. stay stong, ladies..light and love,  3jaysmom

  • Jane_M
    Jane_M Member Posts: 932
    edited June 2010

    Leisa- If I ever have a reoccurrence, I will NEVER do radiation again.  That was worse than the chemo.

    Sessna1- You poor thing.  How horrible.  I hope you heal fast and get out of that cast!

    My IOS - When I was doing my radiation, I met another woman who was there at the same time who had pancreatic cancer.  I have kept in touch with her since we both finished and she told me that she just found out hers is back.  Little Jacob, a 7-year old in my SS class has had a reoccurence of his neuroblastoma.  He started radiation to his femur last week and will begin 6 weeks of chemo (5 days on, 2 days off) on July 9.

    THIS DISEASE SUX!!! ENOUGH ALREADY!!!