Im bitchy, I moan, I groan.....anyway.
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Navy, you're so cool.
My bitch of the day is that all the Halloween stuff is setting in and I'm really bummed about not having a kid to dress up.
I know, stoopid.
My sister got her nips and she's 'happy' with her final results. Hard to believe it's been just under a year.
Hugs everybody.
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Traci...I'm bummed for the same reason, well -that and the fact that my partner doesn'tI want me to bleach my hair blonde and dress as billy idol for the trick or treaters
Fire - that sucks, I'm sorry you've got that on top of everything else. I can't answer the question about the Arimidex - but I sure hope it doesn't keep you from being able to get things fixed.
I need suggestions for joint issues on Femara; my joints are getting pretty bad and all the glucosamine, vitamin D, stretching, blah blah blah is not helping enough to make it better. It might be worse without it, but it's still not fun. Since I don't have any other choices for AI's I have to keep going but good word I gotta find something to help with the joint issues. Even my fingers and toes hurt
Connie...where are you? How are you? I've been thinking of you and hoping things were quiet at your house and your dd and gd were doing ok as well!
XOXO ladies...
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Fire, I just read your post re Arimidex and major dental work. There is no problem with this drug and dental work, the problem is, if you are on a bisphosphinate ie, Bonefos, Fosamax and Zometa as well. These three drugs are the problem causing ones. Hope this helps.
Love n hugs. chrissyb
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Will I ever really snap out of it?
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Navy - I have been on Femara for about 4 yrs... I feel your pain (
). I have not found anything that makes it totally better. I finally asked onc for pain meds. walking, stretching, avoiding caffiene, trying to keep the joints from getting cold (lt weight long sleeves, fingerless gloves), hoit tubs or warm baths or heating pads also have helped. I also find that compress helps - like mild compression socks, gloves etc that you can find at CVS or food stores etc. Not getting too tired is also big.very gentle hugs!!
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Navy, get some Vitamin D3 (liquid form) into you ASAP!!! Someone reminded ME about it and my pain is down 25%. I'm thrilled!!!
Edited to add: I take 5,000 units a day. I figure it doesn't all stick....
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Thanks for those suggestions ladies...Barbe, I take 5000 iu a day too but you're right, it can't all stick. I meant to go to the vitamin store and look into the liquid kind because I know my last test showed I'm only at 19, and that was WITH a deliberate attempt to add cheese/yougurt and milk to my diet. I took a long hot epsom salts bath on Saturday and that seem to take it down a few decibles as well. I'm going to talk to my onc about putting me back on the darvocet for those special occassions when I'm having a hard time. I probably didn't realize when I was taking it for my ankle, how much it was helping me joints overall. I don't want to get back to it on a daily basis, but it sure would be nice to have on those very bad days.
I'm off to do some surfing and then on to do homework...hugs to all!
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Hello to all! Thank you all for support and advice!
Vit D3 and Omega - 3 helps with joints, also - Active On ( menthol) you can buy it at the Walgreens. With time Active On working less.
Now I'm taking vit d 1000/day, my vit d is 30. I thing it is still very low. I can't stand this pain, walk at home with cane, but outside walking without.
Sometimes I make cold, sometimes hot compress.
Swimming don't help, unfortunately.
I need to take Arimidex for almost 2 more year.
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It has to be LIQUID D3 apparently to make a difference. Even the dropper shows how much to take and it's more than my five drops! So good luck!!!
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because of this particular conversation, when i went to onco last wk, i insisted she do a vit. d ck. her nurse practitioner has been refusing to do it. this time i INSISTED to see the onc..she said of course, and ripped n. pract. who went to file, and read all the things i've asked for, and she refused. onc said call and leave message for me from now on. wOW that ade me feel better!and having vit d level come back at a 19; and a phone call saying "start this asap" i hope, will help the pain... im seeing what they rx; but am going to whole foods to get the liquid, as soon as i see how much they think i need. as usual, its' HERE the best advise comes from..whats' WRONG with our health teams?? i know they can google, too..
i actually said that when i ended up with MRSA the last time. said to the PS; couldn't you just google MS? you would have seen how at risk i am for infection.. blank look on his part..then he wouldn't face me ever again after i got MRSA. he knew i'd warned him.. ER same thing. i told DH if i ever think its' bad again, im bringing laptop in , and google it for them..
even then, they probably not listen, they think they're GODS!! sigh.....
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My healthy husband lately complaining on legs cramps, pain, back pain, he is always tired. I asked doctor to check his vit d- she was not happy, but I was asking and she agreed, just to make me to leave her alone. OK, my husband's vit is 19! - and she asked me - what I think she has to do - give him 1000 /day or 50000/week for 8 weeks? Is this has to be my decision?
How come I have to decide?
Anyway - I told her to give him 50000/week.
All my diagnosis I have found by my self on internet and breastcancer.org.
My breast cancer I have found by my self- , what I should have- lumpectomy or mastectomy, my neorophaty, vit d , ets...
How can I tryst doctors?
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HAPPY THANKSGIVING EVERYONE.......
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Happy Thanksgiving.
I love my housekeeper.... she cleans, she chats and she is sooooo cheerful all the time.
And I dont have to clean anything. The most I do is put my laundry in the basket... along with the tea towels, towels, bath mats, grandsons clothing... all my personal laundry.. snicker snicker..
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Hey mind if I stop by?
I am still trying to find my mind post op BMX's. Why didn't anyone tell me I would loose things, be forgetfull, and have major brain farts?
Here is your Thanksgiving Eve tale ...... Bad LUCK IS BAD LUCK! Just like Cosmo said in Moonstruck....
I kid you not our mattress almost caught on fire while DH was ass-leep with his beany foot warmer and I am reading and coughing alot..... I smell smoke... nope cant find its source.... he says " Why don't you take a cough drop???" Them my eyes are burning.... I jumped out of bed, smelled our mattress and JFK! The mattress had a hole, the the sheets are scorched as well as the comforter. Our bed almost went up in flames.
I know it is only one week after this tale. But I am really thankful I was home...even if I am 1/2 deaf.... and I am really grateful I was not ass-sleep as well.
Thankful for all of you here and BCO. You Rock Ladies...
Happy Thanksgiving
(( Blessings))
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Unfortunatly it's called chemo brain......and it may never go away. So was the almost fire caused by the foot beany? I ask cuz I have one of those myself. My girlfriend is always using hers in bed. Thank God everything and everyone is ok. Happy Thanksgiving to you as well.
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Leisa...
I did not have chemo..... and sometimes I think someone did not tell me about the brain farting to come! Even having a core bx/ wire loc with lumpectomy and BMX....with OF COURSE complications that don't exist and are not even on your operative consent.... <spit> I would like to think I will get my memory back some.... SIGH! But then again I am going thru Mentalpause the regular way....
Yes the almost FIRE was caused by the Foot Beanie ....the kind you nuke in the microwave. This one was almost a year old. I think they dry out..... GET RID OF EM I say. fwiw...
Nite
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Sorry to have been away so long. I am a sitting duck luck wise. I fell off my scooter and it took 4 healthy people to get me back upright. Got a sprained wrist just as I start radiation. MOOOOOOAAAANNNNN. There I got it all outta my system. Thanks friends.
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dreamwriter, sorry to be out of touch.. family death, or a friend that was like family.. are you better from your fall? hope all is well....3jays0
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My bitch for this week is that on Wed I had a stroke... it has especially affected my speech and I have difficulty saying the right word or to think of the right word,,,it is awful and I have so much to do and so many responsibilities. I have to have speech therapy 2x per week, see the neurologist on Wed, plus see my regular medical doctor. I don't know where this is going to end up and never knowing if it will strike again and where........suzie
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I couldn't remember which freaking forum our thread was in!!!!!!! I've been checking the active ones but didn't see it!!! I'm sohappy I found it but...................
(((((Dream))))) ((((((Suzie))))))) Serious suckage going on gals. I'm so sorry.
Once again, after filling my head full of my crap, I come on here and get a nice dosage of reality.
:(I can't remember what other posts I read, probably from the shock of y'alls suckage, and I'm too drowsy from sleeping pills to write stuff down. I wish you could go back a page without losing what you've written.
Please keep us updated.....
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Suzie how scary!!!! What are they doing to follow-up and make sure it doesn't happen again??
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Barbe, they put me on Plavix and Lipitor and I really don't think there is a guarantee that it won't happen again...MMMOOOAAANNN. It is all too scary and I am not sure where I go from here.
I see the neurologist on Wed and will have speech therapy twice a week to try to get my words out better.
I can't believe how tired I am.
Thanks for your concern....~suzie
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((Suzie))
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Sounds like artery issues based on the drugs they have you on. Build-up of cholesterol, perhaps clogging. Let me know what they say about it all. You are in my prayer pile. It's getting crowded, but I can handle it.
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(((Suzie)))
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suzie, i had to jump in here. i have MS( im not suggesting that could be you) the point is, i was having strokes semi- reg, they put me on plavix, and although i have some minor TIA's again MS based, i've knock wood, not had the kind of stroke you've experienced... hang in there, do your therapy.. it does work. watch out for any and ALL headaches. they just became imp to your world. for me, i have a blood pooling problem in the brain, it just doesn't circulate correctly.
from what ive exp., and seen over the years; if you're treated correctly in beg., and it sounds like you've been, so far.. you have a really good chance of avoiding anymore. r they cking your blood pressure? also imp you don't let it get high.. ive done p.t. twice heavy duty..slurring my words, not walking properly. one side of my face hung for awhile.. i'll try to remember what pg. to go on, you can see my pic. NONE of it was permanent. the word searching may be around for awhile.. too much. im gonna pm you. so sorry, but don't be scared..easy for me to say, huh? oh! are you on tamoxifen w/ is notorious for strokes? let neuro know asap if you r...3jays
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I really appreciate the hugs! Thank you so much.
3jays, I am on arimidex and I really do think that is the cause of this, along with so many other weird side-effects I've had.
I am not on blood pressure med but I think my pmd was going to put me on something this month when I saw her.
Just laying low today and will go into work for a short stint tomorrow.
all take care ~ suzie
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suzie - be careful and take good care of yourself! Gentle hugs and prayers are with you.
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(((dream, brazos, suzie))) I hope you are all doing better today!
I've not had much computer time -well, board time actually - I spend lots of time on the computer but it's always for school. It's hard going back to school at this point in my life, much harder than I anticipated because of my chemo brain. I find that no matter how much I study, I still draw a blank for tests or when I'm put on the spot to answer questions. So far I've managed to compensate and I think my grades are good, but it sure isn't as easy as it was when I was younger
But, considering after my dx I realized that my only regret in life was not finishing school, I'm determined to do it and do it as best as I can. Some of you may remember that my god-daughter was pregnant and there was a genetic disorder they found the baby to have. She gave birth on November 4th, and the baby passed away a few minutes after birth. Her name was Maci and she was just beautiful. It broke our hearts to have to say hello and good bye on the same day.
Otherwise, life has been quite. My onc. has agreed to give me a mild pain med to deal with my joint issues - I can't take it during the ay but at least I'll have something for relief at night and I'm so looking forward to that.
Peace and Hugs for all you wonderful ladies; the news says Elisabeth Edwards isn't doing well so I'll be sending up special prayers for her and her family. God how I hate this disease.
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Navy, so sorry about your little Maci, it just seem so unfair, you and her family are in my prayers and with hugs. So glad you have something for pain now. Keep going at it for school...you will get there if that is your ultimate goal.
I heard about Elisabeth Edward and I have a lot of respect for her and all that she has been through.
Thank you all for all your concerns and hugs....~suzie
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