Im bitchy, I moan, I groan.....anyway.
Comments
-
My bitch - I was on tamoxifen for 3 years (supposed to help with bones) and one week before switching to arimidex, my first ever DEXA scan shows moderate osteopenia. I'm 47 and post menopausal (surgically for the past year). I really don't want to do the bone building drugs - they scare me even more than the AIs! And for the past 9 months, I have the symptons of rheumatoid arthritis in my hands (tested negative, but found out 20% will test negative) Will make sure my PCP retests if it continues.
Enough of my crap tonight - not much in the sceme of things - but it pisses me off that I thought I was healthy until bc entered my life 4 years ago.
Trish
0 -
Barbe- I'm with Harley on this one. Have your doctor pull some weight to get that bone scan done, or you can come to Dallas and I will do it for you. I go back to work on 4/4, and being the Nuc Tech at our hospital I am sure that I could work you in.
0 -
Trish - Chemo gave me osteoporosis (at the age of 50), so I can never take an AI. I get the once a year Reclast infusion. It causes flu-like symptoms for a day or 2. I hope it is helping. I have had 2 so far, and think I can have 3 more. My onc didn't even check my bone density after chemo. I found out at a street fair. WTH?
Juli
0 -
Barbe God bless you, I know you have to do what you have to do in order to have the medical system you have. No system is without it's drawbacks, but I'd be a wee bit more stressed about having to wait that long. I know it's going to be what it's going to be, but something in my psyche makes me want to know NOW so I know what I'm dealing with.
harley, prayrv and juli - it does suck to have this crap so early! My grandmother didn't have to deal with this until she was in her 80's. WTF. Of course, she didn't have to deal with BC either
Back to work...happy friday!!!
XOXOXOXO
0 -
Navy, did you get the boot off???
0 -
Navy,
I appreciate the sentiment!! (If you were a millionaire you would save my decrepit house)....If I were a millionaire I would turn it into a sort of pioneer museum...I would hire young people to dress in period dress and sit around and sew, and garden, and work the land...
I have taken on a new thing in my life since retirement--Children's Ministry! I love it, it turns on all my lights....what happened was, I directed a Christmas play this past year at church. I have done that about seven times before (and it turns out I am REALLY good at it), but I always had one of my own children in it, and thus had constant pressure inside myself to not play favorites, what did other people think of my kids' behavior, etc....well I discovered that without all that pressure, the experience was a COMPLETE joy. We had a wonderful time preparing and a beautiful well-executed Christmas play. The church leadership came back to me a couple of weeks ago and asked me to LEAD a program that will meet every Wednesday night (our church makes dinner every Wednesday and then there are classes). I am not trying to be preachy or put my beliefs on anyone else but I would be pleased and proud if those of you who are willing would commit to pray for me and pray for Mission Possible Kids at Lifepoint Church! I have always completed single tasks before in a leadership role-this is totally new territory for me and I want to do a seriously good job!! THANKS!!
I saw my ps yesterday. I had some wound healing issues last summer and my right nipple is still scarred on one side from it. I have had three revision surgeries, and coming up on two years since the original surgery (bilat DIEP flap). He wants to do one more revision, fix the right nipple and do some lipo under both arms. I am okay with this. My husband is concerned we will have wound issues again, and the ps can't guarantee we won't. Somehow I am still okay with it. I am getting some "advice", unsolicited, from a niece and now a sister about how they want me to be done and I get the feeling they have been discussing me in the vein of "gosh she has had a lot of surgery I think she is a perfectionist or getting addicted to plastic surgery..." and even the IDEA that they have been discussing me like this ENRAGES me! They can't ever understand why I am willing to risk the wound issues again...how it feels to lose your breasts, that I think my ps is the best in the world and I need to get this stuff done while I have the ONE oppportunity to get the reconstruction as right as we can while we are doing this, that once it's over I am left with what I am left with and that will be the way it is from now on....is any of this making sense? Do you guys think I am foolish for going ahead with this?
Thanks for listening!
Sue
0 -
"I think my ps is the best in the world and I need to get this stuff done while I have the ONE oppportunity to get the reconstruction as right as we can while we are doing this"... Sue, you said it right there. Don't back down and don't let them bother you. They have no idea what you've been through. THey're discussing you because they just don't understand. They probably don't know how that hurts you, so turn a blind eye...their intentions are not to judge altho it feels that way. It makes perfect sense to US and until they've gone through it, they will not understand. Another one of the fun parts of BC...0
-
oh sorry...THAT SUCKS !!!!!!!!!!!!!! (wrong thread for supportive words, hahaha)
0 -
Ruth,
Thanks for both!
Sue
0 -
I did call the oncology centre and left a message that I would like my bone scan earlier if possible as I am about to change jobs and my new work is 3 hours away from the centre. (It is!) I'll see what happens.
0 -
Barbe hope you get your bone scan earlier than June. That is just ridiculous and SUCKS.
It's an early-ish Saturday morning and I have a little bit of cleaning to do...then I will take my dogs to the dog park. They love it! And a little 7-year-old boy from church is going with me today, he adores me! It makes me feel so good, and he so reminds me of my youngest son when he was that age, makes my heart smile. I am helping his older sisters make Easter dresses this year so he has been a bit left out and this is his reward.
It is GOOD to be retired.
Have a great weekend!
Sue
0 -
Oh Sue!!! How precious that such a young lad would enjoy the company of a mature lady!! You must be like a grandmother to him. I just love seeing when kids link up with someone.
It occured to me that it might have been my ONC that requested the bone scan before I see her in July (so that we'd have the results). If that's the case, I'm a lot calmer as she'll be ordering blood work too and I know it is just for follow up. I feel much better now!!
0 -
super - I know what you mean about the affection of the little ones. DH and I have always seemed to gather kids around us and many still keep in touch, a couple of them even named offspring after us. I think that with us part of our attraction to them that made them so special to us is that we couldn't have any of our own.
My good friend often brings her 6 year old grandson to the Senior Center. I can be sitting in a full dining room at lunch and when he comes in he stops in the door and looks around until he sees me. Then runs to me for a big hug and whispers "love you" in my ear. I melt every time.
0 -
What a gift of love Sandee!!
0 -
HI FRIENDS, LADIES, GIRLS, BI0TC#3S TOO!!! I've been away far far too long. Missed you. There was a crisis with a good friend who is hospitalized now for se s from chemo, SUX. I've had a lot to, again, of course. too much to type today, but I will catch up soon.
Hey, Barbe, Navy, Ruth, Sue, Harley, Chabba, Trish, Traci.... and everyone I missed, you know you all make me smile
and I've missed all the moaning and groaning. We did have St. Patty's Day and if you have never been in Savannah for the March 17th annual superduper outdoor parrrtttyy drunken irish fest all weekend long, with live bands playing all over town and pipe and drum corps, sailors, marines, army, fire depts from NY, NJ, Dublin, Ireland.The Clydesdales were loving it, it was 74 and gorgeous. There must have been 3-400,000 people here and my family and friends and old, old friends meet up and party. This year my sister and me went downtown at 6 am to secure our annual space in a city square where we set up like an all day tailgate and have to use the port-a-potties and hide our beer in green cups. If someone has the guts to teach me how to post pics in here, I'd love to show you some. otherwise you can visit the city news site and look for st. pats and see lots of idocy in my little town. They say we are the St/ Pat's Day CAPITAL of the WORLD!!!!!!!!! seriously, it's a lot of fun and totally exhausting, but in a good way.
Also, I've sold some art, was asked to create a special kind of beaded pin and after months of drawing and failed attempts, one day I woke up and knew exactly what I needed to do and made 6 pins for this lady who paid me $20. a piece. I was so thrilled I forgot to take pics of most of them, but I've made two more and have them documented. It's such a good feeling to have someone pay cash money for a piece I created out of random parts. YAY for ME.! I make earrings mostly and bracelets, used to do graphic design and sometimes illustration and some painting but I like the beads and silver the best.
I'll be back again soon. Thanks for missing me!!!!!!!!! There's no other thread on any other forum I like better than ya'll.
~Connie
0 -
Good to have you back Connie!!! And catching us up on your fun !!! Yea on the jewelry!!! How wonderful to be creative. Will chat soon.
0 -
A great positive post Connie! You can do better than that!
0 -
barbe1958,
I hope you are right and it is your ONC who requested the bone scan... IF she isn't too concerned about having you wait til JUNE for the test, then it isn't anything too critical. Maybe you should call her, just to be sure....
Hugs
Harley
0 -
Great to see you again, Connie!!
I make beaded jewelry...
Harley
0 -
Soooo, since March 26th, everyone has been Happy ??????????? Right. My bitch? I can't seem to get rid of the poisonous effects of the chemo. I am going to yet another doctor tomorrow with yet another set of symptoms. Maybe its in my head. Of course I'll have to go thru MORE tests to come to that conclusion! When will I ever feel good again ??????????? F you Cancer! 0
-
Ruth - it can take up to a year to get rid of chemo effects. When will be your one year mark?
Juli
0 -
tnbcRuth~~ Heck NO I'm not happy!! I am so sick of cancer!! I have had one of those horrid days where all I feel like doing is laying in bed. You know the kind... pukey, icky, and just feeling like blah. So earlier this evening, I started to feel a little more energetic... yeah! Got a little frisky and decided to do some grocery shopping with my husband. But even getting dressed and ready already exhausted me. Drawing on my eyebrows had already physically drained me! haha!! I was ready to take a nap. But I persevered and went shopping. I felt ok as I sashayed down the first few aisles, but then the fatigue hit and it was all I could do to lean on the grocery cart and just point at the items for my husband to get off the shelves. He was just grinning ear to ear as he is just happy whenever I am feeling like getting out of the house with him. God love him!! So I get home and am DONE!! Have a backache, hip and joint pain and am now lazily propped up in the bed. I will be sooo glad to be able to do more than go to the darn store! I am thankful for my treatments and that the chemo is destroying my cancer, but at times, I also just feel destroyed! So YES! I can still bitch and moan with the best and rest of them! Sometimes I don't even need an invitation! haha!!0
-
I have a bitch. I just started a really bad Fibromyalgia FLARE!!! The pain is debilitating and there is no energy at all. Coming down stairs to have my tea is something I actually have to consider if I can do. There is nothing that can make me feel better. I just try to ride it out. I am sitting here trying to decide if I can even make it in to work today. If I do make it in, will I even be able to be civil to anyone? I made it for 3 /12 hours yesterday. I have to drive a half hour to get there. Do I or don't I go in today.....
0 -
Barb- if work takes your mind off the dicomfort (understated for sure) then go...if you are having to fight to cope, its not worth the additional strain on your body.
You could stay home and IM with me all day, lol!
Edited to add: my last chemo was in October 2010.
0 -
I did decide to stay home. I have tomorrow off too, so I'll get two days of downtime. I have SUCH a hard time bending to get in and out of the car, that's the worst. Once I'm in my office I'm okay, but the printer is outside my office, not too far, but that means I have to get up and down. It just aint worth it today! I'd make a stupid mistake or be snarky and piss someone off or break into tears (me, not them) so I'm down for the count.
If ANYONE says I should exercise, I'll put a bullet through MY brain!!!
0 -
I have a bitch for the day. Have been having back & shoulder & chest pains.
On the Neratinib trial so don't know if it's related or something else going on. Scheduled tests for Thursday. Gotta drink yucky Barium stuff Wed. p.m. & Thur. a.m. Kinda scared it's back. I've been having the pains for a few weeks now but chalked it up to work,. It's been getting a little worse each day. Turned into shooting knife stabbing kinda pain. Don't know what Mets feels like so hoping it's not that. If so, I'll deal, just not ready for that. Well that was nice to get off my chest. Thanks guys, Love ya all, Leisa 0 -
Well, let's hope it gets all sorted out then!
0 -
Hope everyone is doing good. My bitch is that I am SO TIRED... I think my thyroid is off again... so I went to see my primary care doctor last week... he just wrote me a script for a slight increase in thyroid hormone. I sure hope it helps... I am SICK of feeling TIRED!
Harley
0 -
i had my mid-year job evaluation on my birthday. this was the day DH & DD were going with me to see the surgeon for the results of my core needle biopsy (which even with a trank & holding my DD's hand, was pure he!!). that day i tried entering a new batch of checks we had just started processing - i was to enter the business # in the remarks section - i entered 7 before i realized there were 4 different #'s on the forms & of course i'd picked the wrong one. so i had 7 voids. i was gigged for the # of voids i had & it was also mentioned that i was getting slower.... since a previous evaluation, i have been keeping a daily log - after reviewing it, i couldn't see any reduction in transactions i had entered but by that time i was too disheartened to defend myself. having to fight cancer & fight for my job is almost more than i can stand but since i really love the work, i'm hanging in there. thanks for listening to me vent - you know how much it helps!! 0
-
Better today Barb?
0
