Im bitchy, I moan, I groan.....anyway.
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Hey Wish
Right now they are saying that if next heart scan doesn't show improvement - they cut back on Neurontin and told me it was OK to take Hydracodone (which they didn't prescribe) for pain - then I will have to stop treatment period. I asked what that meant for my prognosis and got - duh, I dunno... never had to do that before....
A friend of mine an RN said well did they at least recommend that you see a cardiologist - again duh.. NO. *$#$%@#$@ GRRRRRRR
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And my hair that is growing back in for the second time now has a cowlick right down the middle! from back to front... friend said was it like that last time it grew back? I don't remember seeing that.. well... no last time it didn't get a chance to get this long b4 it fell out she says is that normal for your hair? I said dunno haven't watched my hair grow back in like this b4 LOL
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Oh sweetie! YES! Get a referral to a cardio and now! At the least he can tell you if this is a permanent thing with the chf or something that can be reversed. I have NO idea whether it can or not, so dont' get your hopes up, but at the least, you'll need to be followed by a cardio for this. Man, this sucks big time! I hate DOCS!
Darn it! I'm so sorry you are going through this! And the hair! HA! Mine has a couple cowlicks! I hate them too!
THey actually hurt when it came out and now on arimidex still hurt! 0 -
Hi, ladies. I've been away from the computer all day. Had a few withdrawals. I made the mac and cheese and chocolate cake to take to dh's brothers. Wish, I didn't sample the cake (wasn't you that said your mom did that?). I made this sheet cake. ONLY three pieces were eaten. I hate one, one bil ate one, and one sil ate one. DH and other bil and sil didn't eat any. Then the sil that ate one kept a lot (thank goodness) to give to her son. And then I took several pieces to a friend. So, that only leaves us a couple of pieces. It's an easy cake to make. You leave it in the pan..don't even have to ice it purtty. Ya make the icing and pour it on top of the cake while it's still hot. My friend who I gave several pieces to said she heard it was called a "Texas Chocolate Sheet Cake." Who cares what it's called. It's good. If anyone wants the recipe I'll be glad to post it. The icing is delish!
Flash, I had shingles after chemo. Perhaps a year later. Scared me though. I thought, IS THIS SKIN METS! I went to the dermatologist and she said it was shingles. She also took a picture of it. She said it was the classic case. Boy, was I itching. They gave me the viral drug. I doubt it helped. She said to get Sarna (I think that's what it's called....I'd have to look in my medicine cabinet). It's pricey, but relieves the itching a little bit. It's sort of medicated. Plus, I used something else that she gave me. I had no pain, just itching. I was very lucky! Hope yours isn't too bad.
Sue, that's just what you need...A PEE TEST...showing positive for MJ. What do you think about the high school graduates being recruited for air traffic control. I thought, what's the big deal. Perhaps I'm naive. However, when my dh was in the Air Force his best friend was an air traffic controller. Granted, I'm sure it wasn't as difficult as doing what you have to do...more air planes. I suppose it's kinda iffy, and in some cases might take a lot of experience to handle a crisis.
Nicki, the tropical storm was NOTHING! We had some heavy rain at times, but we desperately need rain. I thought, WHERE'S THE STORM? It didn't even get windy,
Harley, I really was a pretty, sunny day. It was humid! Did you get more tan. I'm jealous. I can't even use the self-tanning lotions cuz all the other spots just get darker and look like crap. Only a real tan would work, and I'm not a beach goer. My dd told me a long time ago that old people can be white. I consider myself to be old now, AND I'm white. LOL
Geez, CMH, I'm really sorry to hear about your CHF. I would definitely do what others have suggested and see a cardio. Sometimes we just need a break from all this crap. When does the worrying stop!? Oh, and you should have ask one of the "suggestORS" who suggests massaging your expanders...would YOU like to give it a try. That'd shut'em up!
Wish and CMH, I have what I call cowlicks too. It's like there's a bald spot and I have to cover it up...sort of a part. Hmmm...wonder if it's a bald spot. LOL
If I've missed anybody, HI!
Well, I think I've gotten caught up with everyone. No real suckiness here except to say I was in the kitchen for at least three hours this morning cooking that stuff and cleaning the stuff up. It's not good for my aching back! Hope everyone has a great night. After all, it's only almost 11:30 PM here. Not much night left.
Shirley
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Or how about the guy at work who asked me if my husband had "put his order in" on my reconstruction--I said, "yes, he'd like me to still be here."
Sorry about your heart.
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Guess Im repetitive with my IOC's when it comes to Mondays. Yes back to work and no computer time. I will be seeing my onc later today to find out why I keep falling and breaking bones. For some reason Im not freaked out about it, so Im thinking it will all be good.
Anyways, I have so little time during the week - hoping I can keep up with all of you.
CmHarris: I have heart damage after 12 rounds of Herceptin. I dont know much about how the neurontin comes into play, but once the herceptin was stopped my EF went back to normal. Never did get the whole year of herceptin though. We stopped it after 3 months.
A big hello to everyone else. Need to hit the showers. Hope your day isnt too sucky.
Nicki
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That sucks! Now listen to my crap:
So sucks that Traci is a (gasp!!) COWBOYS fan. I'm all lightheaded and woosie from the thought! I'm a Giants fan (and truly, truly love the lowly Jets as well), so how will we ever get through football season?!?
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LMAO....Felicia....that was funny!...Hold on now girl...
you have to know that my brother (also diehard Cowboys fan) married a Giants family so while the playoff game was BRUTAL, we totally were pulling for the Giants after y'all kicked our ass. So, now that we are BC sisters....we gotta pull for each other when we are not...... playing each other. k? pretty please?I'm totally stoked cuz I got tickets to their pre-season game against the Texans. I got them on Craig's List. 45 yard line, ROW 3!!!!!!!!!!!!!!!!!!!!!!!!!!! (yea, I said row THREE) behind the Cowboys bench. I am so excited. I'm going to clear my camera card and take three sets of batteries. I've been a fan since I was a little girl and my bros used to make me watch football with them.
My office is ALL Cowboys, I've got CB floor mats in my car, hitch cover, license plate holder thingy, check book, screensaver on my computer and my cell phone, trash can, and two authentic jerseys one #22 and on #9 that are in glass picture frames! I've got Emmitt's first players card and an autographed whatchamacallit.
I drove by the new stadium which is 15 minutes from my new home but I am finding out that you have to be wealthy to get seats. I put my name on the waiting list just in case I'm wealthy when it opens!!!!
"I'll catch up to everybody tonight after work!!!!! Hugs!!!
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Traci...with all your CB stuff, you know there is a fine line between obsession and madness. You just might be close! lol.Have fun at the game. I am glad you got the great tickets. You deserve them. We are in Titans country but I don't follow football. Neither does my husband!
I am still scratching from the chiggers. But they are healing. The good news is that it feels sooooo good when you scratch them. I get my shower brush and just go AAAHHHHHH!
My IOS today is that I have been having a tooth hurt. I had an abcess after my first chemo and had to wait until my blood values went up to get it fixed (root canal). Anyway, I have been ignoring it since I had so much going on. Well, last night it went crazy. Aleve did nothing. I ended up taking 2 benedryl to knock me out. I have an appt at 11:20 this morning. My dentist is 40 miles away and it is just another expense at time when we are spending so much money. I owe my PS $2500 but they are still trying to get more money from the insurance company so they told me not to pay yet. Works for me.
Deb, so sorry about your nose bleeds. That really sucks. Wierd SE??? I do remember how that was when I was a kid. I could soak a bath towel with blood. I finally had surgery to correct the problem but I don't remember what the problem was. Maybe a deviated septum. Once I had a nose bleed and somehow it congealed in my nostril. After about 2 days I was finally able to blow it out! It was huge! Another gross factor. The real bummer was that it stopped me from going with my high school band to Disney World where we to march in the parade.
And my left expander shifted and is up around my neck! The PS said it was not a problem but it looks really ridiculous now. Even with high cut blouses you can see the mound peeking out. It is right below my collarbone. 2 more fills and then 1 month and these suckers will be out.
Well into the shower and off to the dentist. I will visit my mom since she lives in the same town.
Debbie
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Bears Fan here
Nicki
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Just checking in after being gone all weekend. A big that sucks to all who need it on this Monday afternoon.
Heart problems, nausea, black spots on the hoohaa (and now a big dent), shingles, nose bleeds, too much cooking and cleaning, and unexplained spotting all suck big time.
It's been raining here most of the day which has worked out to give me a day of much needed rest. My weekend consisted of way too much food, Barcardi Limon and cornhole! But it was too much fun!
Take care all
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Sheila: That was a mouthful of big sucks.
My IOS is I havent been to my oncs office in 6 months. I walk into the cancer center and get an immediate sickening feeling. Im looking all around the patients in the waiting room and trying to guess what kind of cancer they have! Sick isnt it. I watched some patients being called through that door, ya know - the chemo door.
Ive known my onc since he started his practice in the late 70's. Worked with him in a hospital atmosphere, and its sort of cool that we like the same music. Rolling Stones and Paul McCartney. We always talk about their concerts.
Anyways, he peaks his head in my door and says he is 2 hours behind - Courtney will see you. Courtney? Who the fudge is Courtney? So now Im sitting there slowly letting my blood pressure rise. His nurse walks in and I ask "whos courtney?" Oh thats his new PA. She walks out and Im sitting there in a huff and puff. Arms crossed - thinking Im not here to see a PA for petes sake. I waited 15 mintues and decided if this crazy lady doesnt come here in 5 minutes, Im walking out and rescheduling.
So in the middle of my anger, I gulped down 3 chocolate mint life savers. Just what I need when I find out I havent lost 10 pounds. Nooooooo Ive gained weight! Guess those canolis and cream puff were a no no.
She walks in, and its my chemo nurse - who went back to school to be my oncs assistant. She was the kindest person I have ever met. OK I can deal with this because I like her alot.
She does a better exam than my onc ever did. Of course now I have tests scheduled for Wednesday, husband is flipping out, and Im crying.
Surprize! Onc comes in. Of course I immediately go this cant be good. He just told me he wouldnt see me this time.
Yep - it was a great big sucky day. If ya want to know what the onc said, take a peak at Time to Circle the Wagons thread. I dont have the energy to write it all again.
Gonna go take a xanax and hit the bed.
Nicki
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Nicki,
Thanks for the wishes on the Circle the Wagons thread. I know you're okay. But you are right, it was a sucky Monday.
Love,
Sue
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cm, I am so sorry about your sunburn! Owie!
I am much sorrier to hear that you're in CHF, probably from Herceptin and could not get your treatment. I am in CHF, LVEF is 35-40%. I got three months of Herceptin before we found out how badly my heart had crashed. Unfortunately, I'm not able to get anymore. Hopefully, your heart will bounce back and you'll be happily infused in no time. :-)
Getting permanent heart damage from cancer treatment SUCKS.
Miss s
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{{Nicki}}! Keeping you in thoughts and prayers dear lady! What a bite it all is, but we'll keep only the best of hopes for the results of your tests. Perhaps it's just a rebound from treatment and you'll be good to go soon! {{hugs}} sweetie!
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Nicki, I'm so sorry to hear you have to go through the dreaded tests. Dang, why do we always have to "wonder?" I HATE tests! I hate that we had to have this freaking disease that we can never completely erase from our minds.
I'll be thinking about you and praying for you. Keep your chin up. Xanax is a really great friend to have around. Hope you have a great night's sleep. Shirley
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Nicki - Oh, big {{{{hugs}}}} to you!! I will be thinking about you and thanks for thinking about me and drawing the circle around. Waiting for tests and test results suck big-o!! I'm doing a lot better today, by the way.
A reeeaaaallllyy big THAT SUCKS to everyone who needs it tonight!!
Now that I'm feeling better, it's back to work, so off to bed for me.
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Nicki -- I am not the huggy-type normally but ((((((((HUGS))))))))) are in order. Thinking of you and wish I could take some of the worrying off you.
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Nicki ~ so sorry gf....that really sucks! and a big heartfelft miss you and sorry about your suckiness to all...been hiding lately..even cymbalta is not helping since I got the news about my pup...just can't shake the blahs..I'll be back when I can...til then you are all in my thoughts...
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flyrzfan,
I've been thinking about you and your pup every day. Hope you can enjoy the moments. It's okay to be here with the blahs, although I understand feeling like a hermit because of them. Just know I am thinking of you.
Nicki-I said it yesterday, I'll say it again today. It sucks. But I still think you are okay. Sorry you are having to go through this, and wish I could make it better.
Not much suckiness so far this morning. Walked the dogs, actually feel energetic--this is the day between nausea and mouth symptoms where I usually feel pretty good. Organic fruit run and retail therapy today, and maybe the movie tavern tonight (Bad food. Great chairs.) Youngest son leaving home in less than three days. Mom fine, Dad away on airline pilot trip. He'll be home today, and said something about bringing seafood from Seattle!
Hope everyone's Tuesday is NON sucky!!!
Sue
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Nicki, I am so sorry you are having to go through more tests. That sucks....the worrying....the fear....somedays it's just not fair. Good for you for dressing up and staying positive in the face of all of this.
Sue, I am glad to see you got some energy back. Those days are truly wonderful. We can almost feel normal. Whatever the heck normal is now. Ooohhh...seafood. How lucky. I grew up on the coast and miss fresh off the boats seafood.
Got to the dentist yesterday and no abcess! It was some exposed bone which he sealed and filled so hopefully it will work and I won't have to shell out more money.
As for seeing PA's. Yes, they do seem to be more thorough than the oncs but I think we ought to get a price break. I hate making an appt to see the doc and it's a PA! My onc has a new PA and when I saw her last week, I asked if I was not going to see Dr. Lamar. She said I would see her, she just takes my hx. Then Dr. Lamar comes in and hugs me. She is a good doctor but very blunt and not prone to hugging. So that was really nice.
Well, I have to make an appt to see a new OB/GYN to get a pap. Then I need to see about scheduling a colonoscopy. I just turned 50. But I keep putting it off because I just don't want ANY MORE tests.
Hope all of you have a good day or least a non sucky day.
Debbie
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Nicki
I am SO sorry you are going through this crap!! IT SUCKS!! But, I also think that you are going to be just fine!! Sending HUGS to you!!
Sorry, I don't have time to catch up with all ya'lls suckiness, so for now, I'll just send out a HUGE THAT SUCKS to all ya'll!!
I have to get ready to go see yet another specialist... this time the gyn onc... just that title alone sends shivers to my very bones! I will be checked for endometrial/uterine cancer, since my endometrial lining is THICK!, thanks to Tamoxifen. I am getting a short break from Tamoxifen, and will ask when I need to start back up, because I am nervous not being on SOME sort of hormone treatment, either the Tamoxifen, or an AI. Since I've been getting these trans vaginal us every year, and have had nothing to be concerned about except that annoying uterine fibroid, and on the last us, it was hiding behind a bunch of 'bowel gas' (WTF?) I guess I'll see if this gyn onc will agree to just do the hysterectomy, so I won't have to worry about any of these parts turning on me.
Harley
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oh Nikki,
So sorry to hear that you are going thru the horror of waiting and wondering. We are with you all the way!!!
Misshapen,
Thanks for the sympathy about the sunburn. It doesn't hurt near as bad as the anxiety over the docs getting mad at me for being out in the sun. LOL My MUGA results were at 40% and they are not sure I can continue the herceptin. I have been on it for 6 months. It really does SUCK to get heart damage, neuropathy, blown veins,mutilated bodies, lung damage, and whatever else we get from the crap treatment!
MY IOS of the day is that I had an appointment with the dentist today. It was to be all day since I haven't been in over a year. I had a crown come loose and last month sheared off the side of a tooth vertically just trying to floss! (Onc said oh thats not from chemo; but I always had good teeth b4 chemo!!!!) Anyway, dentist says it must be from chemo and fixes crown; then says "oh let's reschedule - I am not putting you through this today". I was getting nauseous laying with my head lower than my feet and my feet and legs were cramping up from being still too long!
Gotta love the CURE! Did I tell ya I hate PINK!!!!
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oh and dhettish -
I will turn 50 in March. I am sick of tests and I think after I get through this course of treatment - no more tests! No pap smears, no mammos, no nothing, it is too stressful.
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So sucks, Nicki! Thinking about you and sending hugs your way...
Traci, my entire family is one big Dallas Coyboys bandwagon. They used to make me watch football. too (my mom's love for the game is what really got me into it - sane Jet fan that she was, we watched Superbowl III during my 2nd b'day party, lol - and I absolutely remember it) - but I ALWAYS cheered for the team playing against Dallas - just for argument's sake! Loved Tuna when he was the Giants and Jets coach, but not really feeling him as a CB coach because of the whole Terrell Owens thing. Cannot believe they actually signed the guy (still shocked, I tell ya!). But without Terrell, I will happily cheer for the 'Boys unless they are trying to beat up on Big Blue...
Debbie, get that colonoscopy! I know it is another test, but still...
Bonnie, so sorry about your pup. Hope you are feeling at least a little better every day...
cm, sorry to hear about your heart issues. So sucks! And I hate pink, too...
Cristine and Sue, glad you are feeling better
Hi Shirley, Wish and MissS
And a hearty "That sucks!" to anyone who needs it...
BTW, anyone heard from Dani lately?
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Felicia - Thanks. Nausea seems almost gone now, but to quote Sue, I was dog ass tired after work (I told you, I just like writing it!).
Nicki - Been thinking about you today and hope you're doing o.k.
cm - Going to the dentist sucks all by itself. But...going to the dentist AND being nauseous?! Huge suckage!! Hope your sunburn is better...
Debbie - Glad your dentist stuff wan't too bad. Is it dentist week? Did I miss the memo??
Harley - I hope your appt. with the gyn onc goes o.k. You're right - that title is not very comforting...hopefully, the doc is better than the title.
My only suckiness was staying at work waaaayy too long today. Now I am really, super tired. Thank goodness the little dd decided to spend the night at Grandma's (she still sleeps with me every night) and maybe I can get a solid one in. Maybe...
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thanks ladies...Sue ~ and Felicia ~ and Traci...Cowboys? It just never occurred to me I could be associating with those kinds of people. <<< kidding
Since I am originally from Philadelphia and transplanted to DC I really don't have room to tease anyone about their team, you know ~ since BOTH of mine suk....I have nothing to report...just popping in at lunch to check on you all...trying to rejoin the world - I did have a WTF moment today if that counts? Went to the restroom at work, someone obviously was in there before me having a not so fun time...had to ignore it cuz when you gotta p you gotta p....finish my biz, drying my hands before I leave and of COURSE someone else has to walk in ~ she takes one smell and gives ME a dirty look!! WTF?? For all the times chemo got me the one time I have nothing to do with it and I get the blame....Oh, well. I blamed it on chemo, what's she going to say ?
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Flyrzfan, I'm sitting here laughing out loud at you. Dont'cha just hate it when something like that happens!? I'm STILL laughing. Thanks! I was never so embarrassed when I was the one "was not having a not so fun time" in the bathroom at a bridal gown boutique. My dd was trying on gowns. To make a long story short..I had to GOOOO! BAD! And, guess what! Right there in almost the same room (the bathroom door was shut) were bridesmaid dresses, and Mom's dresses...I had to walk out in front of people and if anyone walked in that bathroom right behind me they'd KNOW! There was no deodorizers..nothing. I was looking in my purse for ANYTHING..matches...ANYTHING! I flushed that toilet at least four times! That was one of the most embarrassing times in my life. My other dd went in not long after me..she said she could tell I'd BEEN THERE! And I didn't have chemo to blame it on! Correctol was the blame!
Shirley
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Hi Ladies: Need to bitch then to sleep, Went to the dentist had another fractured tooth pulled today, ouch again. But what I'm really pissed about is my onc lied to me again. Went yesterday because I'm now her2 damn, and have to start herceptin. My EF is 61 so she said I'm good to go. But I asked her what the protocol would have been for me if they had read the supplementary path report that said I was her2, she said " oh it would have been the very same." Well I checked and it's not. I should have done TCH and I'm sick of being lied to reall sick of it. Okay that's my bitch, I hate liers. Goodnight.
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(((SNOWY)))
I hate liars, too! I am so sorry that you got a different tx than you should have. That sucks! Sending you HUGS!
HARLEY0
