Im bitchy, I moan, I groan.....anyway.
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Nicki, I'm happy to hear that you are trying to put this mess out of your head, and are going to enjoy the weekend. We all know there's nothing worse than the waiting game. Take it easy and keep sucking on those Xanax. LOL
Hey, Harley. I'm still here. No, no grandkids. DD is having work done on her house. I can't go there and she can't come here. If they could come here, I don't have the energy to clean! I feel so worthless. My head refuses to stop giving me a fit (or whatever is causing the head stuff)!
Hope your weekend went well.
Shirley
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A big hello and IOC to everyone. My only complaint today is that it is hot hot hot outside. Will either be in the pool or in my house as I have no tolerance for heat anymore.
Harley: Yep one of the tests is a CA15-3. They are not very reliable. I have asked my onc over and over again, why he draws them as it causes more stress then what its worth. He believes its an early predictor for mets, and has actually had to write my insurance company to get approval. Predictable or not - makes me wonder why mine is always on the high side and now that Im going through all this crap that it is elevated a tad. This whole bc journey sucks.
Shirley: Haha - I already went through all the grape flavored lollipops. I am now working on the chocolate flavored ones.
Big hello and that sucks to everyone that needs one. Im gonna go take a walk to the quickie mart and get a Sunday paper.
Nicki
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NIcki
I was thinking of the CA-125, but I think all those tests are unreliable! I also have no tolerance for HEAT anymore.
Shirley
I'm so sorry you are still having those head issues! I get some of these nasty weird headaches sometimes, which I think are from hormones or lack of them, and my right eye feels sore and weird but I have never been able to find out what is causing any of these symptoms, so I can understand how worried this would make you. I thought that my headaches were hormonal type, but they stopped last year, when I got the bc dx. Now they have returned, with a vengence and I don't know what to do about it, either.
Hope everyone has a good Sunday!!
Harley0 -
Hi everyone and thanks for the i HATE DOCS, made me feel better. Went to see my back Dr. she's the one who actually did something about my lump after trying for a long time to get the other Docs to believe me. Well we went through my file as she wants me to get a second opinion from anther hospital and guess what they didn't send her the supplementary report either I have to take it to her tomorrow. And she' got me on antidepressants, not sleeping and so angry all the time had to try something. It's really bad when you can't trust your Drs. anymore and that hwo I feel. I woe you all a good post, just give me a day or two to read this thread over and I will write you all. Have to have a lay down, so tired.
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HArley - If any Doc ever patted me on the head they would draw back a bloody stump!!! You are WAY more patient than I would be...
Hugs
Deb C
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Deb,
Yes, he sort of patted me on the head, and ran his hand through my hair, and touched my earring. "nice earring", he said. The more I thought about all this, the MADDER I got! Then the woman called from the hospital to see how my appt. went... they send out surveys and stuff to check on how they are doing... I bet they were sorry they called me, because they got an earful!
Snowy,
I am so sorry you are going through so much crap! Hope you are feeling better soon!
Hope EVERYONE is feeling great!!Harley
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WOW, HARLEY! "He affectionately patted me on my head. He ran his fingers softly through my hair. While caressing my face, he playfully touched my earring and smiled, saying, "I couldn't help myself. Touching your earring gave me an excuse to run my hands gently over your face."
And THEN....., I slapped the $&@+ out of him! How dare you touch me! Don't you know I HATE DOCTORS! Darn, Harley, you shouldn't have done that! Think about ALL the earrings he coulda bought you! Doctors ONLY flirt with cute, young "girls." I never get treated that well! Besides, if a doc patted me on the head he'd feel all the stiff hairspray I spray all over my hair (and clothes).
And, as far as those stupid head issues, they've been with me since I was somewhere around 37 years old. I finally gave up looking for a reason other than YOU ARE CRAZY! SEE A SHRINK!Hmmm..you might want to think twice about having lunch with me since I was declared nuts sooooo many years ago.
Doctors can be the most frustrating characters around. You are so right. Half the time they DO NOT listen. How can they hear what we are saying when they so busy writing? At least my gyn sits and listens to what I have to say, and after we're all done he tapes whatever on his little recorder in his office. And he has that "look" of concern, which I think is disingenuous. LOL
Nicki, save me some of those chocolate "ones."
Snowy, I hate feeling so fatigued. Take your time. I hope you had a nice nap or two.
Shirley
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Hanna, first of all you were not supposed to give away my secret. I may be kicked off of here for my political views. My favorite saying...DON'T GET ME STARTED! LOL
I wouldn't take a job in Congress if I were qualified. Come to think of it I'm probably MORE qualified than some of those idiots! If I were on the Hill, I'd go postal! Then my mug would be all over the news. You guys would have to break me out of prison! Don't forget, I'M CRAZY!
The head thing..no it's not a headache like most headaches..Make sense? Anyway, it's a "pressure" feeling. I've had an MRI for another reason...detached vitreous. Onc wanted to make sure it was nothing more severe..as in..you now what. Hate the word.
When I was in my 30s it started. Short story...I thought I had a brain tumor. I tried to ignore it. Act like nothing was wrong for months. I HATE GOING TO DOCTORS! Anyway, finally I couldn't ignore it anymore...big anxiety issues which lead to depression. So, I did go nuts! However, now one could come up with an answer WHY? Not long ago I was looking on the internet and came across a fella that had similar symptoms. His was something to do with facets in the neck. His wife reported that he had gotten relief from some neurology place in Michigan. He had gone through this a couple of years before finding these people. He was not able to work, had anxiety and depression issues...all the good stuff. It's a very hard symptom to describe, so I just "live" with it the best I can. Poor me!
Kids and college...One of my dds who is now an attorney worked for the domestic violence shelter as a court advocate after she graduated from college. She made next to nothing...one of those jobs that you don't know whether it'll be around or not. she lived with us for eight years before FINALLY deciding to go to law school. You are so correct, Hanna, that kids sometimes come home AFTER college. LOL I love my children DEARLY, but it was nice when she moved out. And, no, I'm not a bad mom. I'm just telling the truth. And, I can assure you she was just as happy to move out. And she would never want to have to come back. And, I don't want her to. LOL I also had my middle dd live here after she graduated from college. She moved to Charlotte which was the BEST thing she could have done for herself. It was so hard because she's such a "home body." She loves coming home, and she is the one who has given us our two grandchildren. So, of course, she says she's my favorite daughter.
As usual, Hanna, I get a kick out of reading your posts. And, don't fuss at anyone else around here about having all kinds of energy. Seems to me I remember you doing the pole dance..and that's hard! Also, seems to me I remember you cleaning not long after your gallbladder surgery. Is my recollection correct or what?
Well, I need to do something. I guess I'll watch TV. LOL Isn't Sunday supposed to be a day of rest..no work?
Shirley
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Hanna,
Thanks... I decided to do just that... I'll make a list of stuff that needs to be done, and it's not only a matter of my insurance paying for it, but I have to find a dr. who will do it... the hysterectomy that is. If the biopsy results are all ok, and I am praying that it will, then I will need to find someone who WILL do a prophylactic hysterectomy, and I am really so sick of going to the drs., I just want to be finished with them ALL... especially gyns who are ALL a bunch of A**Holes!That is very interesting, about the different causes of headaches. I have many different types of headaches, but I never thought about the dry eye causing it. I also have VERY DRY EYES, and my eye dr. said I should not wear contacts anymore, since they are so dry... so now I am using OTC eye drops, because I read the patient information about Restasis, and it can cause lymphatic cancer, so I figured that I'll just use the eye drops. I also get these 'hormonal' headaches, from too little estrogen, or too much, I forget which...
Shirley,
Well, that is not exactly how it happened!! LOL No, the nurse (who was also in the room the entire time the dr. was examining me, so no funny business!) mentioned that I had asked about Xanax, or something to help with anxiety. I said 'yes, I am so nervous...' or something like that... then he just patted me on the head and said "you don't need anything", in a real patronizing manner. Then, he slid his hand down over my ear and said that he liked my earring. You made it sound MUCH more like a romance novel! LOL This dr. is older, he looks kind of like the Dr. on The Golden Girls.... Harry Weston was his name, I think. He was a pediatrician.
You are right. Doctors DO NOT LISTEN to us!! I read that they only listen to you for the first 18 seconds you are there, and speaking... EIGHTEEN SECONDS!! That is not very long!! I think this post takes longer than 18 seconds to read! They lose interest, and get bored very easily!
I wish you could get rid of that feeling in your head. You are NOT crazy!! I am convinced that when the drs. can't figure something out, then they decide that it's 'all in our heads', and we are crazy. They especially do this to women. MEN, on the other hand, are checked out very carefully if they go to the drs. with the VERY SAME SYMPTOMS that we women have. It is not fair, I tell you!
Well, I still have that headache that I've been getting on and off, so I think I'll go use some eye drops, and take something for my headache, and then I'll go to bed... I'll see if this works, Hannah and I'll get back to you in the morning... If it doesnt' work, I'll expect another Rx for something that WILL work, Dr. Hannah!!
Harley
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Darn, Harley, I liked my version of the story better. And old doctors are very attracted to young purtty things.
Several years ago one of our well known doctors who happened to have been an oncologist (and a good one from what I understand) was SHOT because he was messing around with another man's wife. He no longer is in practice with the group. In fact, I believe he may be on his own. And, guess what else! I don't know if he still is, but he used to rotate with MY pcp after hours. One night we were at a Legion Christmas party and I started having my goold ole tachycardia. I finally decided enough is enough soooooo, I called my pcp's answering service. The other doctor called me back. That's how I found out. I think he now does internal medicine instead of oncology. Oh, and he used to be a good looking guy. Of course now he's several years older LIKE ME! LOLNah, I'm not nuts (well, just a little). I know what I feel. Most of the time when I first wake up in the morning it's gone. Then after being up a little while IT'S BACK! Oh well, $h@t happens!
Hope Dr. Hanna can give you some more ideas if the other ones don't work.
See ya later!
Shirley
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I'm so addicted to this board that I had to check in before I went to bed and it's 2:20 now! Hope your all comfy and in bed, Hanna.
To answer your questions: Yep, you got that right. The doc is still doing just fine. And, the night I had tachy I was NOT drinking. I can't drink. Remember, I'm already nuts. I certainly do not need to be any loopier than I already am. I called the [adulter] doc to see if I could take more of my Toprol..didn't want to overdose! The other answser to your question...no, I don't feel crazy when I wake up in the morning. My head feels better. Besides, I feel crazy ALL THE TIME, so BEWARE! LOL
Now, another reason one can have headaches is one's Atlas can be out. The Atlas is the first vertebra in the neck. If one's Atlas it "out" it can cause all kinds of problems. One can be cranky, not able to sleep well, yada yada. How do I know? Cuz that's what Chiropractors say. I believe the test to find out if your Atlas is "out" the Chiro sees if your legs are the same length. If not, they'll take your head with their finger (or something) on your Atlas and crack your neck. LOL Now do I know so much? Cuz I'm smart. Actually, when all this began I started seeing our friend, the Chiro, who used to live next to us. I went almost everyday to see him. No relief. I didn't want to see a REAL doc..not that they aren't real. I didn't want DRUGS. Now I BEG for them like Harley..LOL
It's too late tonight, but MAYBE tomorrow I will refine my information and guide you to a better place of understanding of the spine. Geez, I'm tared! Going to bed!
Shirley
PS If I were a Political Science teacher I'd be making some money and wouldn't be in the poor house! Besides, I'd be kicked out of the teaching role FOR my political beliefs. They're not politically correct!
Good night.
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Deb,
I was always taught that we were supposed to act a certain way at the drs., so I usually just put up with horrid behavior while I am there, and then I never go back to see them, if they behave like monsters!
Dr. Hannah
AHA! So Bill Clinton wasn't REALLY cheating on Hillary, he just HAD to have SEX, or else he would get these TERRIBLE HEADACHES!! Do you think that excuses him??
About the headaches... I also 'seem' to feel better in the morning, but later in the day, they start and once they start, I usually can't get rid of them. Besides hormones, changes in the barometric pressure also sets them off. My pillows are not very good, so that could also be the problem. Years ago, I saw a OTO dr. (that's ear nose and throat ) who didn't EVEN examine me, but as soon as I walked in the room, he said that I grind my teeth at night, and THAT is my problem with headaches.AND I was mis diagnosed, with a pituitary tumor, too. For years, I thought I had this pituitary tumor that might be pressing on my optic nerve, and I had several visual fields tests, and a barrage of hormone tests, to make sure that the 'tumor' wasn't secreting any hormones, causing even MORE problems!! I went to the top medical centers in the DC area, Walter Reed and Bethesda National Naval Hospital, and Walter Reed is where they kept saying I had this tumor. BUT, I decided to go to Bethesda with my original films and they did MRI of their own, and they said I don't have a pit. tumor, and I NEVER DID!! I never got an explanation for this, either. After my bc dx, I told me surgeon about the 'pituitary tumor', and he ordered another MRI, and there IS no tumor.
See Shirley, I went to all these drs., and almost drove myself crazy trying to find out what was wrong with me. NOW, I am just fed up with all these stupid drs. who really don't care and they really don't try to help us... cause if they don't know what it causing our problem, then ... IT IS IN OUR HEADS, and we are CRAZY!!
If I could, I would just stop going to ALL drs., but now that I have had bc, I am so afraid of getting a recurrence, or even some other kind of cancer, that I am going ALL the time to these idiots, and the more I go, the more I am finding out that they really don't know anything.
This gyn onc, I think he wasn't worried that this could be endometrial cancer, but... I can't help thinking that he wasn't worried about it because...
1. it isn't his own health problem, or someone he loves
2. he was in a big hurry to go on vacation for 2 weeks!
Oh, too funny, about ME asking for MORE DRUGS!! I also don't like to take drugs, but I was feeling so twisted up, worrying about how I might have YET ANOTHER cancer, that I was driving my dh crazy, so even he insisted I do something!! Now I have the Xanax, but I haven't taken ONE pill yet. I may need one to relax me on the day of my biopsy, and if I get bad news, I know I'll need them. Although, you told me that you know this is going to turn out fine, so I won't worry.
And I STILL need to take drugs whenever I get these headaches.
Hope everyone has a non-sucky day!!
Harley
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When my sinuses were bad, my head AND my teeth were hurting - so badly that I went to the dentist begging him to go ahead and yank my daggone wisdom teeth. He said there was a nerve that ran under the sinus cavity/above the gum line that can cause pain if anything near it is inflamed. So I guess almost anything awry up there can cause problems; it's all connected...
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Hi All,
A big "That Sucks" to all those who have to deal with Dr's. Whoops, that's all of us. Sh*T. I just got back from seeing a new Gyno. Nice Man but I had to wait 1 hour to have a 15 min Pap. Turns out he knows my husband really well and went on and on about him so I hated to let him have it about the waiting.
My bitch is that I got into the baking mode this weekend. I picked 3 lbs of blueberries and a basket of peaches. So....I made a peach and blueberry cobbler, a peach cobbler, 24 blueberry muffins and 2 loaves of bread (white for dh and rye for me). I had told my husband I would be baking and what does he do but come home with store bought Blueberry turnovers! So I gained 2 lbs when I went to the doc today!
It's hot here and we don't have a pool, Nikki....I am so jealous. I am just staying inside except to go pick tomatoes. I have put up 17 qts of tomatoes and will probably do that much more before the season is over. What was I thinking buying 16 tomato plants?
Let's not talk about sex and the most I have had in a while was my tryst with the speculum this morning.
Traci, thank you so much. I am doing better. Staying on drugs. I go Wednesday for another fill. He is wanting to just to 50cc from now on, but I don't want to stretch this out any longer. I want these MF suckers out now. So I am going to grit my teeth and take 100cc and stay drugged so I can get them out the second week of September. My PS better not plan a vacation that week. As long as I take the meds, I can do most anything. I still get some really bad "nipple" pain but if I press on it, it makes it feel better. I love you,gal. Thanks for this thread and all your support.
Debbie
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I thought I was going to catch up here ~ but I got as far as a post from Shirley that read like a porn script! Now, obviously I need to back up more and see what the heck I missed...until I can do that, a big "That SUCKS" for everyone who needs it!!!!!!!
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Oh boy! Im a bad IOC friend. To work early, home late. The is called marking my spot!
A big that sucks to all that need it.
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Harley, too funny! Yeah, that's it. Billy got headaches cuz ole Hill wouldn't give him ANY! And, he didn't know the meaning of "is" was/is. No wonder he didn't know what the meaning of S-E-X was/is.
Felicia, I remember all the pain you were in. You ARE better, right?
Debbie, you are one smart cookie. I love home grown tomatoes. And you canned them too? I don't know how to can stuff. That would be nice though..none of those pesky pesticides on the tomatoes. We had about four plants that dh planted in a big pot. We had just enough tomatoes. Only gave away a few, and they were soooo good! I want to come to your house and get some goodies to eat. PLEASE!
My last six months check up with my doc...I gained five pounds! I was holding "my own" and still needed to lose before I gained those five. Can't blame it on anyone but myself. DARN ITA!Bonnie, I can't write stories very well. But, I get if you asked Hanna or Diane they'd be able to come up with some good stories.
Hey Nicki. Love your dog up there. I think I'll grab him and bring him home with me. I just noticed that my smilies way up there turned into something else. I should fix it, but I'm too lazy. Hope you're feeling better. When are you getting your MRI?
Okay, haven't had a shower. I think I'll jump in there real quick...PEEEWWWWW!
Shirley
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Let's not talk about sex and the most I have had in a while was my tryst with the speculum this morning.
OMG, Debbie, that was hysterical!
I'm all better stuffiness and pain-wise in the nasal area, Shirley (and what a sweetie you are for asking, btw). Still have the nasal polyps and my sense of smell has gone again (probably shouldn't have cancelled that last visit to the ENT), but at least I can breathe through my nose. I know, I know! I'm rescheduling the visit tomorrow...
Nicki, how are you doing?
Bonnie, are you in/around Philly?!? I am a Temple U alum...
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NAsal Polyps? My goodness girl, how young are you? I thought little kids had those! Do adults get them? Geepers! What are they caused from? Goodness, like you need anything to be happening! Yes, get it there and get it taken care of, so you don't have to worry about it sweetie!
Love you pup, CS! Too cute! Had to swipe that one for someone very special!
Hope everyone's doing relatively okay tonight? {{{hugs}}} that aren't and are too!
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I came running here this morning - just trying to say hello and a big thats sucks for everyone. Can you hear me huffing and a puffin?
Debbie: Im laughing about your tomatoes. I have 3 measly plants. And they are in containers instead of being in the ground. What surprised me is how many tomatoes will grow on one plant. My mom used to can tomatoes every fall - maybe thats why her tomato sauce was so good on our Sunday dinners.
Shirley: I dont know what is happening, but I am losing alot of the pictures I post. And usually too tired to change them. Im feeling alot better emotionally. Sorta have my head screwed back on if ya know what I mean. The MRI is on Thursday. Will also get CXR and finially after 5-6 weeks of walking on a sore ankle - will get that x-rayed. Of course now its feeling alot better. When I was a little girl I would crack my ankles like some people crack their knuckles when they get upset. So my husband said something I didnt agree with and without even knowing it, I cracked my left ankle. That hurt and I wont be doing that for a while.
Felicia: Umm! Read my above post to Shirley regarding how Im feeling lol. Im glad you can breath again, but hate the thought of not being able to smell. That sucks! Without smell you cant taste anything and who could go without tasting chocolate?
Wish: Yep, I cracked up when I found that picture. It said it all in one short little note.
OK - so Im just gonna try and start from here. Im so lost with everyones IOS's but know that Im thinking about ya. Time to hit the showers.
Nicki
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Hey, I don't know about you ladies, but chocolate was good all throughout the chemo trip!
I did make sure NOT to eat the first 2 days, as I didn't want to end up hating it! The smell thing though. I truly wish mine had gone away. I couldn't stand dh (his deodorant stunk) for about 3 weeks after the 2nd or 3rd tx. I couldn't stand to be near him even at night! He had to take showers when he got home, or I'd get a headache. That's what happens when I go into the dept stores that have makeup/perfume when you first walk in. I learnd to hold my breath till I got way past all that or I'd get horrendous headaches from the smells. My smeller worked overtime on chemo. NO one could cook hamburg or beef while I was on it at all!
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Nicki, glad your head is back on, lol. Bet people looked at you funny with the "Excercist" thing happening over there...
Wish, I never even heard of nasal polyps until the doc told me I had them. From what I've read, they can be pretty common in adults and kids. The doc was quick to tell me they are not bc related, though (funny thing was I hadn't even thought of that until he mentioned it). I also have a deviated septum that I'm pretty sure I got from HITTING MYSELF (duh!) in the nose early in my karate training (I now wear a plastic sheild over my face when sparring to prevent that from ever happening again). Not sure which is causing the smell thing to malfunction, but the doc says we can surgically remove them (ummm...no) but they may grow back eventually (wth?!? seems like bc isn't the only thing that keeps on giving)...
Things don't really taste too weird, oddly enough, but I probably won't notice how weird stuff is until my smell comes back. And chocolate tastes just dandy, btw - just like always
Howdy to Hanna, Harley, Shirley, Sue, Bonnie, Traci, Rock, Alaska Deb, Miss S, Debbie, Pearl, Otter and any other regular posters with IOS that I may have forgotten...
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Man....I'm sorry about those dang polyps and that they might grow back,
Do they know what causes them? I mean, some women get them in their uterus, I know I had them in my Gall Bladder (which the US reader said stones!) Ha! I had polyps for goodness sakes. THen again, they said the left ovary was cystic and it wasn't. The Right had the 7cm cysts on it! Stupid readers. I wonder if they too were beginners at that! Can't seem to keep the GOOD docs in the smaller hospitals Glad the chocolate is being good to you!
I just found out keebler has those little cookies like the girl scouts used to sell. You know the peanut butter, cookie and chocolate covering! Mmmmmmmmmmmmmmm! That's and chocolate moose tracks ice cream and I don't need real food or anythign else in my life! 0 -
Hey guys,
A big that sucks to all that need it, to those who need it and don't even know it yet, and to those who may need it soon!!
I am at work, so just popping in....my crap is just fatigue. The expression I have coined for this is just dog. ass. tired. Nicki--can you find me a graphic for that? Felicia--I am sorry, but it is a little funny that you have a deviated septum from hitting yourself in karate, and that you are willing to admit it!
Sorry your sense of smell is gone. I used to smoke, and once I quit (New Year's Eve, 1999), I say I began to smell "in color"--just very acute sense of smell--and it has never gone away. It is a double-edged sword, though, I have to cover my nose when I walk through the perfume aisle at the stores...Hope everyone has a great rest of the day with no suckiness.
Love,
Sue
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bumping
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Another marking my spot day.
Sue: This is the best I could do!
Nicki
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How can anyone NOT laugh at that! 0
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Hello all of you wonderful ladies!
I have not been on in soooo long! I miss all of you! I have the 5 kids home and not much time for any computers or tv's or anything! Plus I got the great news that I have c.diff from having too many antibiotics and now I am on more antibiotics!!! LOL!
They say it is serious and I am on vancomiocin (sp) orally 250mg x4 a day. did two weeks now they added another week! I had to cancel my fipple surgery! I am very bummed about that, I guess I can not sing "All I want for Christmas is my two front nipples" anymore!
Just wanted to check in with all of you. I have read some of the recent posts and my heart goes out to all of you ladies! Keep on fighting though! Kick those Dr's asses! Is that spelled right? Asses?????
Love ya
dani
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