Hair Hair Hair - Another question
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I am hearing a lot of people saying my hair seems to be growing fast. Even I was surprised to see the differnce when i looked at the pictures from three weeks ago. I am wondering if it has anything to do with the fact that I just started working out again every day about 2 weeks ago.
Can't hurt to try and see.
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Thanks Lago! The 3rd pic was taken just the other day. As you can see i tried to color it and it didn't take very well. It looks like i frosted it now. In a month or so i will have it done professionally and trimmed. I'm just glad i have some hair. It is very thick and curley and grey. I straightened it for years, so i don't know what to do with all these curls, in fact i burnt my ear trying to flat iron it
I'm sure i will figure it out. Have a great day everyone! The sun has come out in Seattle! It's about time, YAY!!!Pam
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i'm only 29 and it looks like my hair is coming in GREY!!! ( it looks that way anyway)
maybe my body has been through so much it is spitting out grey hairs!
thank goodness for hair color, and at only 8 weeks PFC i have alot of hair!
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hdangelbaby...Dont panic, mine came in grey (wasnt worried cause I am 52) but after it really got going I noticed the grey ones fell out and the new stuff came in very dark, closer to my own color, still a few greys mixed in. I think they can be old hairs loaded with chemo.
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thanks carberry!!
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Pumela115 -
I didn't realize you were in Seattle too. Isn't it a glorious day?!!!
I have been doing my work sitting on a lawn chair outside my house; we have to take full advantage of these days when we have them.
Maybe we can meet up sometime if you're open to it. I live up in Lynnwood.
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It's been a little over two years since I lost my hair the lst time....now it is happening all over again with this new chemo. It's been two weeks now and just tonight I started noticing hair coming out. I at least know what to expect, but am not really thinking it is going to be any easier. I swore I would never wear a wig again, but guess I will cross that bridge when I come to it. It's the eyelashes that upset me the most....some of mine grew back funky, inward scratching my cornea, so I have to go to the opahalmalogist and have them plucked out every month or so. I was going to have a surgery done to elevate the lid and have some of those eyelashes permanantly removed when I found out I was starting a chemo where I would lose my hair all over again. Losing my hair the last time made it easy to make the transition to gray..this time I will just be thankful if it comes back at all.
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I'm curious...Were any of you who visit this topic, aware that you could save your hair using cold cap therapy?
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I have heard of that, but also have heard it doesn't always work.
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They work. At least the Penguin cold caps do. There is another forum topic 'Cold Cap Users past and Present' discussing this. I was just wondering if your oncologists shared this information with any of you.
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Aimee, Yes this week is going to be so nice and it's about time. I live in West Seattle and i would love to meet you sometime. I work evenings but i am off on Sat, Sun and Mon. that would be fun. If your interested there is a thread on here called Crazy Sexy Cancer in Seattle, i think thats what it's called and we all went out to dinner once and it was really fun. We were suppose to do it again this month, but i don't know what's going on now. If your interested i will keep you posted, if not we could meet sometime.
Marybe I'm so sorry you have to go through this again. Nobody should have to do it more than once. I hope the new chemo kicks some cancers butt!! You will be in my thoughts and prayers. Best of Luck!!!
Lago, Thanks again for posting my pics. You are my computer hero!!
OK now i have to get some sleep. G'night everyone!
Pam
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Marybe~CRAP! so sorry to hear you are going thru it again...we are here for you
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Makingway, I used the Penguin cold caps and they did not work for me. I know I am in the minority, but, please understand there is a percentage of failures like myself. It's all good as my hair is starting to grow back and chemo worked for me, so losing my hair is hard but I now know I handled it. GOOD LUCK
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Marybe so sorry this is happenening X2. This journey is never over for any of us. Hope it is easier this time, keep up the fight. Our hair does not define who we are, we are all beautiful
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Actually I will not be upset about the hair IF this one works. My last two chemos were gentle so far as SEs, but also did not work soooo we shall see. I read all about those penguin cold caps and you know, to me having to wear something three hrs after treatment even though I guess that is not a lot of time looking at the big picture, well, it just would not be worth it.
I am going to a Look Good, Feel Better class on Monday and am looking forward to that....everyone who has gone says you get a ton of nice makeup for free, and tips on how to draw in eyebrows, how to do things with scarves and headgear. I have my old wig from last time and a lot of people didn't even know it was a wig, but that was before I went gray and I just cannot imagine going out and buying a gray wig for some reason....just doesn't seem right. So I think I am just going to skip it.....however, platimum blonde might be something that would make everyone stop and think Geeze, she's gone off the deep end!! Have a good day, ladies.
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makingway I knew about the cold caps. No my onc didn't tell me about them. I decided to pass because it sounded very uncomfortable, very expensive, PITA to deal with and most importantly for me I was concerned that not enough study was done in terms of scalp mets. I figure if I'm doing chemo I should let it beat up cancer every where in my body.
Marybe I went to the Looks Good Feel Better class twice. Granted the 2nd time was because this gal I met was going again and she wanted to see me. Both times I learned something. We had a great gal presenting. If the one you go to isn't any good there might be some others in your area to try. They will only give you the bag of makeup once though. Have you checked out the beauty guide on the site? Lots of great info there too: http://lookgoodfeelbetter.org/beauty-guide
I hope if your eyelashes fall out the grow in properly this time. Hey you never know.
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Randi-You are the minority. But, aren't we all when diagnosed with cancer... Unfortunately we weren't in the minority of those who've won the lottery.
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Makingway... I also knew about it but my oncologist wanted the chemo to get to my scalp and I agreed... it would suck to go thru all this and end up with scalp mets... all fine... my hair is coming in
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I also went to the look good feel good class, and it was so much fun! They had to kick us out of the room because we went way over the time and they needed the room for something else. They gave us a big bag full of really good make up and i'm still using it a year later. I have to admit it wasn't so much about the make up as meeting lots of people going through the same things that i was going through. They also had wigs for anyone who wanted one, i had bought 3 that i donated and one lady loved one of the ones i brought, so it made me feel good that i could help her. I hope you have a great time! Also learned alot of tips about scarfs and they showed us how to use a tee shirt to use on your head, it was very cool.
Pam
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I go back through the threads and I can not or am not finding the info on Nioxin and that we should use it even while in chemo. Is it Nioxin shampoo or scalp tx? Just wondering. Already on the I - want- my - f-ing - hair -back train. Yep. I sure am.
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cyborg i did not use the nioxin until 3 weeks after my last infusion i figured why bother. I used a very gentle shampoo on my head during chemo called Brian Josephs. I did use the nioxin after that until it ran out and then I had pretty good coverage so I did not bother to buy more. I ran out of jsut the leave in scalp treatment i actually still have and am using the shampoo and conditioner and it's been 20 weeks using it.0
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Carrol.. did you use the lash gel from brian joseph? I have been using it since I started chemo.. still have all my lashes and some of my brows (where I also use the gel)
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I liked the Looks Good Feels Better class also. Mine didn't have a lot of wigs to try on, but got the whole bag of free makeup and met a nice women who lives in the next town.
Is Nioxin otc, can you buy it at a regular drugstore, like Rite Aid or Walgreens? (Obviously haven't looked for it yet...). Should I even bother if I'm already 17 weeks PFC and scalp is covered? Thanks
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Fun story. I do get lots of compliments on my "hair do" but today was pretty good.
I'm waiting for the elevator in my building and this guy we know says "Wow I almost didn't recognize you. Love the new haircut." So we're riding up the elevator and I finally say to him "This wasn't by choice. You do remember me wearing scarves this winter." He was like "oh yeah that's right… so how are you doing."
He totally forgot. I must look pretty damn good if people don't even remember I was wearing scarves, what last month. 0 -
Where do you get the Brian Joseph lash gell? Is it ok to use during chemo or just afterwards?
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I ordered it online at www.brianjoseph.com or something like that... might be www.brianjosephs.com
I used it from day 3 of first chemo EVERY single day thru chemo and am supposed to continue for another 6 weeks post chemo.
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bdavis- There is NO evidence in the studies indicating that the caps diminish the effectiveness of the chemo or cause any increase in scalp metastasis. Your doctor can (and should) do a simple PubMed search and will quickly find many papers in European Oncological journals (where caps have been used for a couple of decades, and are part of the regular chemo regime, with the cap switches done by the nurses). Some of the larger studies are actually done with late-stage cancer patients (stage III, IV).
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makingway, I'm not sure that this is the right forum to extol the virtues of the cold caps. Most, if not all, of the people on this board have been through, or are currently going through chemo, and are dealing with all the issues that come with chemo induced baldness and the frustrations of waiting for their hair to grow back. By posting these messages I think that you might be making some people second guess their treatment decisions, and there really is no point after the fact. Just saying.0
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My onc did not recommend the cold caps and the nurses in the cancer centre had never seen one that was successful. Sounded too uncomfortable to me and losing my hair wasn't that bad although I'm sure happy it's on its way back!!
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Makingway... I have to agree with Dutchgirl.. You asked if people knew about them... and I replied I did and it was recommended by my MO not to use them... and then you criticize me (or my MO)... This thread is about supporting each other who HAS INDEED LOST THEIR hair, not about the merits of how we could have saved our hair even if our MO disagrees with you. I think my MO has some very valid points and I chose to listen to him... and that ship has sailed as I am now bald... but also hopefully safe from scalp mets.
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