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Comments

  • althea
    althea Member Posts: 506
    edited October 2009

    Spring, I'm glad you like Rethink the Pink.  Of course, now, the pink swirl with brown letters going down a drain doesn't make sense.  lol  back to the drawing board.  And yes, the t and the i are forming a yoga pose that probably doesn't exist. 

    My project last week was to get caught up on my paperwork.  I started doodling on the backs of envelopes instead.  I love the idea of dedicating the site to FlaLady Deb.  She and anom are my heroes.  They have such talent for consuming and understanding the jargon of studies.  My eyes glaze over when I try reading that stuff.  

    I was just reading about ghee in Waking the Warrior Goddess by Dr Christine Horner.  I've peeked ahead in the book and she concludes it with a list of 30 things any person can do for better health.  Vivre, maybe she'd let you use her list in your site?  

  • seaotter
    seaotter Member Posts: 642
    edited October 2009

    Thanks all for the butter / margarine ideas. Now if there was a Whole Foods store across the street that would be great. One is a hour drive for me. I go about once a month and I'm about due.

    I have another problem. My breast have been sore and tingling lately. They are starting to freak me out. Would you ladies have any idea what it could be. I'm post men so why oh why the soreness???

    Patty

  • Yazmin
    Yazmin Member Posts: 218
    edited October 2009

    Seaotter: At some point, my breasts were sore as well, then it suddently went away. Today, I am feeling better than ever. 

    Perhaps yours will go away, to, but just to be on the safe side, you may want to double check .

  • anondenet
    anondenet Member Posts: 261
    edited October 2009

    Patty, if you are taking Iodoral iodine, it someetimes makes the breasts tender as they get detoxed. From what they say on the Yahoo Iodine Group, the tenderness always goes away in a couple of months.

    anom

  • vivre
    vivre Member Posts: 881
    edited October 2009

    Seaotter-ditto what anom said. I had a lot of soreness when I was detoxing. It started when I really cleaned up my diet and felt I needed to get all the rad effects out, but it took a while. It wasn't until I started the iodine that I finally got the gunk out. Now they are soft, no more lumps and no more pains. I can't wait to see my next therm because I just know it is going to look so much better, with no red areas where I had the rads.

  • seaotter
    seaotter Member Posts: 642
    edited October 2009

    Ok, thanks! I have been on iodoral for seven months now. How long does it take to detox? Should I be giving my body a break from the iodoral? I have been feeling better than I ever have in my life the last few months then today I am dizzy, my boobs are sore, and I'm hot one second then cold the next. Of course I'm thinking (not dwelling) that I'm riddled with cancer. Heck it is probably just a bug (hopefully). Thanks so much ladies and goodnight.

    Patty

  • vivre
    vivre Member Posts: 881
    edited October 2009

    Seaotter-Did you have a little too much sugar today. I know it sounds crazy but my breasts get sore when I cheat.

  • Merilee
    Merilee Member Posts: 734
    edited October 2009

    Is anyone using DHEA? And if so what dose?

  • deni63
    deni63 Member Posts: 372
    edited October 2009

    Anom - I love your new avatar! It fits you. The eye, the window of your soul - knowing and wise.

  • deni63
    deni63 Member Posts: 372
    edited October 2009

    Does anyone have any experience with breast hematoma after surgery? After my last lumpectomy re-excision at the end of June (three surgeries in all for clear margins), I developed a rock hard hematoma the size of a tennis ball. It took weeks before I couldn't feel it anymore. Last week I had a PET scan and it picked up something at the site of my lumpectomy. I tend to think that it is residual from the hematoma and surgeries, but of course I am a bit nervous about it. I see my onc on Monday and will probably do an MRI, ultrasound and if necessary a biopsy to check it out. Just wondering if anyone else had an experience like this with a hematoma.

  • PS73
    PS73 Member Posts: 171
    edited October 2009

    Deni, you had a pet scan?  Is this your second or first?  I want me one of those - I had one six months ago and wouldn't mind another one.  How often do you follow up with scans? ..I had several hematomas, they were uncomfortable and took a while to go away.  I massaged hem a little bit each day.  Good that you will get it checked out

    L - thanks for the helpful convo regarding the cholesterol and my latest freakout, you are a true gem to talk me off the roof - yet again :)  I owe ya one. 

    How often do you all follow up with scans/tests?  I have a right mammo sched for november (suregery was in May) and Im trying to get a MRI scheduled as well but for both breasts, not just the right. My surgeon is MIA - called 2x.  Is it possible to do a mammo in a breast if there is a port present? 

    Patty, Im not on iodine and my breasts are very achy, several jolts of pain thru both and the right side kept me up last night.  Hang in there.

  • deni63
    deni63 Member Posts: 372
    edited October 2009

    PS - This was actually my first PET scan. I just wanted to be sure that nothing was lurking elsewhere in my body - especially since my husband was just diagnosed with kidney cancer. And, I have heard of cases where they never do a scan and suddenly there is a distant metastisis that to me sounds like it could have been there all along. So, I just wanted to check.

  • vivre
    vivre Member Posts: 881
    edited October 2009

    Merililee-My hormone doc put me on a very low dose of DHEA because my test showed my level to be very low and it affects methylation or something. I can't remember. I take less than 10 mg. I am going to do another hormone test in Nov to see if anything has changed.

    Deni-I had hard knots around the site of my surgery and rads too. My therms showed that it was going down, so it is not a worry. I also had my pt massage it an use ultrasound, which broke up the scarring significantly. But the iodine has really caused it to soften and my scar is almost gone. I think this stuff is a miracle. I am getting another therm in Dec. and I can't wait because I just know it is going to show so much improvement from all the damage of rads. It is crazy how long this stuff stays in our systems. I think that is why the first couple of years are the most dangerous and why it is so important that we do all we can after treatments to really detox from it all.

  • Springtime
    Springtime Member Posts: 3,372
    edited October 2009

    Merilee, I had my DHEA tested and the Osteopath said it was "wonderful" - so not supplementing. I understand it is like  'base" hormone (my word) b/c it can impact progesterone, testosterone, etc.

  • PS73
    PS73 Member Posts: 171
    edited October 2009

    ..I have to say something that is bothering me about what was stated some time ago and Ive recently been reminded of it regarding big cosmetic companies and their contributions or lack thereof along with statements that they put toxic chemicals into their products.  There is so much to say and I don't really know where to start.  Avon is a huge company and has many brands, and just like Lauder, has market driven inexpensive brands (which unfortunately may contain some synthetic ingredients).  Most think Aveda is it's own company when it's just a brand under Lauder but Avon does not have the same luxury and gets judged as an entire entity. Did you know that Avon removed all of the parabens from their lines, and not because the FDA told them to, but because it was brought to their attention that these are bad.  Note that these aren't the only chemicals removed. Know that all of these companies ingredients that are put into cosmetics are approved by the FDA and are GRAS (generally recognize as safe) and in most cases, ingestible.  Really.

    I would suggest that if everyone is angry at the lack of knowledge that all of these cosmetic companies have for ingredients that are hazardous and/or metabolize into carcinogens, please speak up to the companies because some (obv not all) will respond with better and more natural brands.  ... but don't be surprised if the cheap ones are still in their lines because people, namely women, are buying them for their smell and could care less of their ingredients as long as they are cheap.  We've all been accused of purchasing cheap items, especially in this market.  The only way to have total control of what you put in your mouth or on your body is to pick it from your garden and make it in your kitchen.

    Regarding money that is being used for awareness, I would think that most companies are responding to the need presented by the masses.  Why is Avon bad?  Why is Revlon bad? Before we attack these companies, lets really re-think this strategy.  I would also guess that big companies that support research, awareness and prevention to cancer driven disease have a trained medical staff in their back pocket.  Highly doubtful that they have an ND on board .  ..But that would be great, wouldn't it?  Two intelligent worlds working together, united for a cause. I don't think that a company like Avon would contribute millions of dollars to make some CEO of a pharma company live more comfortably.  These companies believe in what they are doing. These companies are actually helping some women who have no money for proper screening.  Sorry if you feel it is wrong or the money isn't being used properly.  Maybe if you ask nicely something will change.  Maybe I'm delusional? It would be a great movement if all of that money earned from walks, runs, marches, pink paraphernalia and donations would get compiled and put towards natural clinical studies.  Why couldn't the money be used for this?  Why wouldn't the funding go towards natural forms of therapy w/ clinical studies and natural ingredients?  How much does it really cost? Also, what about the natural suppliers? Why are they left sitting fat, where is their contribution to the need? There is so much free advertising of vitamins and natural ingredients on this forum. Wouldn't it be a beautiful thing if a natural supplier teamed up with a oncology hospital using awareness money to do a clinical trial. Why does it always have to be pharmaceutical companies that control the trials?  Drug companies pay a lot of money to validate their drugs but vitamins and natural food supplements are already validated.  I don't think this is all that farfetched.

    We are millions of women. We are tall, short, fat, skinny, big boobs, little boobs and no boobs at all.  We all have different forms of breast cancer but what we do have in common is a voice a brain and a position to the needs.   Lets be wise when we choose our words.. 

  • mandy1313
    mandy1313 Member Posts: 978
    edited October 2009

    The convention sounds like a great idea.   And it is true that "sink the pink" is a great slogan that would catch attention.  But it may make us be seen as simply antagonists, rather than those seeking canswers.  As well, we may ultimately want to form an alliance  with (get funding from)  some of those big corporations who are supporting the breast cancer awareness movement.

  • deni63
    deni63 Member Posts: 372
    edited October 2009

    I went for my IV C drip this morning and saw my ND while I was there. It gave me an opportunity to talk with him about the PET scan. He said he knew I would be "upset" by the wording on the report but that it was nothing to worry about. It is normal "radiology lingo". He said everything is fine with the PET scan and I should go home and have a nice weekend! This is what the wording is that made me nervous in case anyone else experiences something similar:

    "Focal uptake in the left anterior chest wall at site of prior lumpectomy. Recurrent neoplasm in this location is not excluded."

    My ND said that they are seeing something exactly where they should be seeing something and that is basically what they are saying!

    Time to relax again! I see my onc on Monday who will hopefully concur! Boy I can't wait until this is all behind us and we can stop walking on eggshells. But, knowledge is power and the more I learn about all of this, the less I will worry moving forward, right?

  • seaotter
    seaotter Member Posts: 642
    edited October 2009

    deni, great news for you, yea!!!! Knowledge is power for sure!!!

    PS73: The sound of reason. Well said.You forgot to mention winking boobs. Mine look like one is winking because with my lumpectomy my lump went as well as my nipple. My scar is all across my boob.I call it my winker. So lets include winkers from now on, lol Wink I love to flash my dh and say "they are winking at you"

    I had "hemp" shakes the last two mornings. Maybe I was high and didn't know it, hence the dizzy. It was very nasty stuff Yell. Maybe that is what made my girls sore!

    vivre, I have been meaning to ask you about the infrared thing you mentioned. Do you have any info on it? I saw a chiro advertise it in our paper. Looks very interesting.

    Patty

  • dlb823
    dlb823 Member Posts: 2,701
    edited October 2009

    Great article!

    http://www.huffingtonpost.com/helen-cordes/rethink-pink-now-sane-sol_b_329489.html

    And here's an annoying one.  Too bad more people will probably read it:

    http://www.forbes.com/2009/10/23/allen-adamson-pink-cmo-network-adamson.html

  • deni63
    deni63 Member Posts: 372
    edited October 2009

    Great article Deanna - but they used Rethink the Pink!!! That was our line.

  • deni63
    deni63 Member Posts: 372
    edited October 2009

    Very well said PS!

  • fairy49
    fairy49 Member Posts: 536
    edited October 2009

    The first article was so awesome! The other article made me sick. I am going to email the first one to as many people as I can!!

    L

    ox

  • mandy1313
    mandy1313 Member Posts: 978
    edited October 2009

    Deanna,

    thanks for the links to the articles.  I went a little further and read the links after the first article--there was an interesting article on the use of vitamin D. 

    Mandy

  • husband11
    husband11 Member Posts: 1,287
    edited October 2009

    Calypso, everything I am reading says the most beneficial tocotrienols are palm oil derived.  Those are the one's the most research has gone into.

  • seaotter
    seaotter Member Posts: 642
    edited October 2009

    Mandy, I did that too. d3 is amazing stuff,

    I just finished reading this: www.uzzireissmd.com/genomic.html

    Should we bc girls be taking dim and indole 3 carbinol? In this article he talks about a lot of other stuff. Would love your input. Just when I think I have it (nutritionally) something else comes up!! I guess that is how it is going be!

    Patty

  • Merilee
    Merilee Member Posts: 734
    edited October 2009

    sea otter

    Interesting that you should ask that question. The more I read and learn the more I am starting to doubt the idea of surpressing homones. Because they are a system that work together, it seems when you surpress estrogen you are going to wack out the rest of them in the system. I have taken a break from the DIM while  I try to process this for myself. I am taking a supplement called Broccolive in the mean time.

  • Springtime
    Springtime Member Posts: 3,372
    edited October 2009

    My Osteopath loves DIM and Lipoic acid, those are her two favorite things. She has me on 400-450 DIM per day, and is having me finish the I3C but then not get more. FYI. 

  • seaotter
    seaotter Member Posts: 642
    edited October 2009

    Did anyone read the article I posted?????

  • vivre
    vivre Member Posts: 881
    edited October 2009

    Seaotter-Dr. Reiss has a book out too. I read it a while ago and it is full of information. He has been treating women successfully with BHRT for decades. He is one of the pioneers of alternative treatments for prevention.

  • Springtime
    Springtime Member Posts: 3,372
    edited October 2009

    Vivre, what is the title of Reiss' book?

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