natural girls
Comments
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Sea, that article was great. I have to ask my Osteopath about that "Snips" info!!!
Another aspect of this second testing group looks for SNPs in Catechol-O-methyl transferase (COMT), an enzyme that breaks down and deactivates 4 Hydroxy Estrone, the metabolite that increases breast cancer. It is important to confirm that your COMT is functioning well, as women rely on this enzyme for overall breast cancer prevention. Up to 25% of the female population has a SNP defect in COMT. Women with COMT defects have a significantly increased risk of developing breast cancer - a 70% increase if this defect was passed down from only one parent, and a 220% increase if the defect was passed down by both.
Women who are the highest risk for SNPs defects are those who are overweight and menopausal. Reference Nos. 21 & 22. If, in addition to your COMP defect, you are also Folic Acid deficient, you are at a greater risk for developing breast cancer. Reference No. 23.
SNPs testing must always be done in conjunction with your physician. If your physician is not familiar with SNPs, how to test for it, or what how to address this condition, the lab that provides the SNPs test gladly will arm your doctor with educational materials upon request.0 -
SeaOtther: The article was great. Thanks.
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Patty I have a winker too.after it was done I told a medical assistant it was from a shark attack. Was a spontaneous comment. Are you doing recon? How long are you waiting? I was told to wait as long as patiently possible so I'm thinking in the early spring.
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Shark attack LOL I love that, I'm going to use it
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dogsaver, shark attack lol. I'm not doing recon because my lump was so small it didn't change the size of my boob very much just the looks and I could care less what it looks like! My flashing days have been over for a long time now (except for dh) lol. I'm with you on the Jimmy Buffet quote. How do you save dogs?
Merilee, In Dr. Reiss' article he does talk about the seeds of broccoli and lots of other vegetable seeds. Broccolive is from the seeds. I have checked it out and sounds like a great product! Correct me it I'm wrong doesn't dim just take care of the bad estrogen and not suppress any??? Are you post men? Are you doing the progesterone?
Patty
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Thank you for that page in Uzzi, Patty.
I had a little trouble navigating around the site so I'm glad to sent us that specific page.
I want to print it up. I liked seeing that bioidenticals changed to the right kind of estrogen. Need to reed more. I don't remember reading that in his book. That is huge news and i think I would have remembered it.
xo
anom
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Hello Sisters
. I have just finished reading this site from start to finish word for word and looked up most of the sites that were posted (Started 4 days ago). I ABSOLUTELY LOVE IT. I have been eating Organic and taking "some" supplements for about 5 years, but still got breast CA, but, after reading here, I realized that I should have been doing more and stopping some of the things that I am currently doing. A BIG Thank you to all and I would love to join the club if allowed!. I also wanted to send my sympathy and prayers to FLALADY and her family. I always loved reading her blogs and I have always gained much knowledge from them. I am going to truley miss her
. I know that she is pain free and in a better place, that is what keeps me going. Thank you all soooo much and I really look forward to sharing ideas with you as well as meeting Ms Vivre and the rest of the Natural Girls in February! I am doing everything I can to make sure that I get this to happen. Love ya'll. Oh, a little hx: I am Trip -. had a bilat mastectomy. 4 rounds of TC prior to surgery (my tumor was 9.5cm) shrunk down to 3.0 priro to suregery that took place on Sept. 9th. Right side had the tumor, had left side removed for prophl reasons. No mets 1/10 ndoes involved, clease margins. I am now on my 5th of the 6th and last dose of TC. IWILL NOT be doinf rads (Yes, my Onc thinks that I am a "lonney"), But it just doiesnt feel right. I have no more tumor, did 6 rounds of chemo, clear margins.....What exactly are they radiating???? XoXo Jenny.
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Their pocketbooks LOL
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Welcome Jenny!!!! so sorry you are here but glad you are here!!!!!! Where are you from?
Merilee, lmao
good one!!!!!!!!Patty
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Thank you Patty. I am from Austin, Texas. 0
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welcome jenny! it will be great to share experiences with you. as you have already seen, there is a wealth of info to be learned from these ladies. this site is life-changing, really! i am er/pr-, her2+. i think most of the ladies here are er+.
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Thank you Ms. Deni. I have found a lot of comfort being on this site. I have a great family support system, but I know you ladies UNDERSTAND. Merilee was that comment their pocketbooks for me? If so, you are soooooo right XOXoXOXO. May God bless us 0
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yeah the shark attack thing is a way for me to ease up and have some humor when showing the boob, mine didnt lose its shape just the nipple, so ill either do the graft thing or 3D tattoo, hubby says whatever i want or leave it as a barbie boob. luckily this is the one decision i have time and have to wait for anyways. . as for the dogs, we foster for local rescues who get them from pounds or owner surrenders and get them taken care of medically and nutritionally and emotionally and rehome, being with the animals is so therapeutic! hope everyone is having a mild weekend
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Welcome Jenny, Just want you all to know I will not be posting much the next 2 weeks. My students are in town and I am really busy showing them the Windy (rainy) city. Hope I can at least read, because I know how much I will miss.
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we'll miss you viv! enjoy your students.
deni
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Thank you Vivre, be careful and enjoy your students. Talk with you when you get back
Jenny.
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Some of you may have already read or heard this on the morning news, but in case you haven't:
http://www.emaxhealth.com/1357/94/34236/fda-not-following-unproven-drugs.html#
Welcome, Jennyi1! While I am and always have been totally on-board with nutritional therapies, homeopathic meds, and natural healing, with Triple - bc, and especially given the original size of your tumor, I'm not sure I would dismiss radiation quite so quickly. JMHO, and happy to elaborate here or via PM. Merilee's comment was extremely cute and witty -- but you and she are not dealing with the same bc. I will support what any of us chooses to do, but I will also raise questions and play devils' advocate when a decision strikes me as concerning, and in this instance, I feel I need to do that. Deanna
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Hi I have only 4 more radiations to go and my next stop will be here (I hope) or the tamoxifen site. I want to do natural stuff and unfortunately I don't have a month to sit and read all the 104 pages so I was hoping you can give me a little 'do that' don't do that' or do this instead' little talk about the supplements I'm taking.
I take chinese mushrooms (capsule form - 3 capsules), 1/3 betaglycan, 5000 IU Vitamin D3. and a good multivitamin.
I plan to add back my mycellized (liquid) antioxidants and I will be using Vitamin c powder (5000). I will also try the flaxseed freshly ground on my cereal (I do believe that phytoestrogens are not bad for you).
I walk daily but I will up that to walk longer and I plan to join curves. I have added ALOT of fruits to my life, cut out soda and I do have a juicer but have not used it (wanna buy a juicer?). I just don't want to do tamoxifen....a side note, I am a chiropractor but my college emphasized the musculoskeletal aspects of chiropractic and the adjustments and I am just now learning about nutrition (don't hate me...I'm a GREAT adjuster!!). I also plan to see an integrative MD regarding supplements.
But do you guys recommend anything else or recommend I not take what I am taking or plan to add?
thanks
Becky
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Hi Deanna and than you. I have actually thought long and hard about This and I really didn't want to finish up the last 2 rounds of chemo. I mean after the first 4, I felt REALLY horrible and my joints started stiffening up, the hair loss, etc. etc. but, my DH told me that if I do not do rads, then he would at least feel better about my decision if I went ahead with the last 2 rounds of chemo. I actually started feeling really good after the surgery and it was sooooo hard to go back down that chemo road again. I am afraid of LE as well and my skin getting burned. I have VERY light skin. I did agree to talk with the Rad Onco in the next 3 weeks to see what she has to say, but we'll see. Again, thank you so much for your concern. You girls are AWESOME! 0
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Does anyone know anything about rice therapy????
Patty
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Jenny... don't want to sway you one way or the other, BUT I am extremely light as well... some might say pale. I did have some skin effects from my rads, BUT the SEs were a walk in the park compared to chemo. I'll be you could almost ask anyone who had chemo and then rads, and they would same the same thing. BTW... you beat my tumor size. Mine was 5 cm.
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Hi Mom-of-boys. So you didn't burn that bad? That's a good sign. What were your SE's? Yea, mine was pretty big, but after the second round of chemo, it actually downsized to about half and then after the 4th round, just before surgery it was 3.0cm (not bad
). Where about in Texas are you?Jenny.
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Jenny, I also had a largish tumor (6.7 that shrunk to 3.5 with chemo) and no positive nodes. They recommended Rads for me (any tumor starting off over 4 cm they say) and I also had vascular invasion. I hated rads, but I did it. I am not sure what I would do if I had to do it again. They are radiating the localized area, your armpit and clavicle in case there are trace amounts of cancer.
It sounds like you are at peace with your decision. Sometimes you need to go with your gut. No conventional doctor will understand your decision.
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Hi Spring,
Did you have any SE's? DId you burn at all? How are you feeling now? I really am at peace with not doing them. I know that my tumor was big, but after my surgery, I knew that I did not want rads. I am doing the last 2 rounds to make my DH happy and have a peace of mind as well.
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Interesting article, dlb.
I wonder which drugs they're talking about.....
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Jenny ~ I also did RT much against my initial instinct, and only after I talked to two rad oncs and multiple other docs -- and even insisted that my rad onc @ UCLA take my case to the chairman of the department for his personal opinion -- that's how desperate I was to find someone (besides my DH) who would tell me maybe I didn't need them. But after I got all my questions about the risk of potential heart/lung damage and lymphedema answered to my satisfaction (found out I wasn't a likely candidate for either), I was and am really happy I did them. And compared to chemo, they were a walk in the park. The other thing I rationalized is that I could quit them at any time if I decided to.
One thing that opened my eyes to doing RT was something someone on another thread here explained to me -- that chemo works in the blood, but when we've had breast surgery, the blood supply to that area has been severely compromised, so chemo may not be getting to the precise area where we actually had bc and there could possibly be cells left behind. That was really food for thought for me.
I'm sorry you're having such a difficult time with chemo. I did, too, so I can totally empathize!
Deanna
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Jenny...
Again, rads, like all treatments, are definitely a personal decision! My breast surgeon always recommends rads after a lumpectomy, regardless of size. Unfortunately, since mine was large, I was not a candidate for the mammosite. In my case, and in the case of the women I talked to who had been thru chemo, we felt the rad SEs were not too terribly bad. As in chemo, I worked full-time thru rads. My energy probably waned somewhat. I had a bit of "sunburn", but I've had much, much worse living here in Texas (north of the D/FW) area.
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Hi Deanna and Mom_of_boys,
I honestly just want all of this over with. I am going to talk with the Rad Onc. within the next three weeks and see what she has to say so who knows
. You guys have some great points, especially regarding the Texas sunburn and that is true, I can quit at any time, hmmmm. I will keep ya posted after I talk with her. Mom_of_Boys, My Sister and Mother live in the D/FW area . May God bless us all.Jenny.
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Hey Jenny I am another fair skinned person and with 7 of 30 treatments to go I have not burned at alll. I'm taking lots of supplements and using a Vitamin E cream, and it has worked well. That said, I think whether skin burns or not depends in part on whether the radiation beam is or is not targeting the skin. IN my case it isn't. So you might want to ask the radiation onco where the beam would be targetted in your case, if burning is a concern for you.
I asked why I needed radiation when I had done 6 months of chemo. The onco said that for reasons they don't fully understand chemo, while great at targetting cells that have moved on through the blood stream, is less good at removing any remaining cancer cells in the breast tissue. Sounds like Deanna was told this too.
Brookside have you considered I3C or DIM? I am also taking curcumin (tumeric) and iodine. I'm refusing Tamoxifen because I don't think the benefits in my particular case justify it.
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Deanna: Thanks for the link. It does make you wonder...which are the drugs that don't work and still on the market....Mandy
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