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  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited February 2012

    Topic to topic

    ROOT CANALS and AMALGAMS - bacteria yes, and there are the toxic mercury but even more for the later generations is copper.  I had 17K worth of dental work done by a Huggins trained dentist a few yrs ago and he really screwed it up.  We won't even go there here and now and not all Huggins dentists are... whatever he was....  BUT I did lose a porcelain crown and tooth 1 yr later, flossed right off at the gum and out of my head, his fault. Had it extracted.  Developed a bubble on gum same time as found mass.  Am getting the dental issue checked out by a dentist I was referred to by my Integrative med dr.  Next Tuesday.  Finally, because these dentists come few and far between, I have had three appts since surgery and cancelled them due to lack of confidence in the dentist's understanding.  I will be on high dose antibiotics for 3 days, sister was in hospital several days from dental bacteria when a tooth was extracted.  Will visit that dental thread soon!

    MAMMOS  My mammo last time was somewhat forced on me, I was sent by BS and GP for the US and the rad would not do that until he  had films, so I thought, well peace of mind for me, so went through 4 and then he wanted2 more which scared me to think something was wrong, so had total 6 then US and nothing was wrong.  Why no more MRI Maud?

    THERMOGRAPHY   This is what I will find and pay for from now on.  Committed to this, will do one each year, and it does the entire body, even shows the route of a bacterial source to the mass.

    THYROID   VIVRE   I am pm-ing you, my thyroid test, done last week showed I need higher dose of what my GP will prescribe as Synthroid, now on 125 mg, and Integrative Med Dr will prescribe as Armor (sp)  but I am looking to take control with natural.  Very disappointed that GP had not been updating original test that showed my thyroid so bad, thought she had every 4 months, but it was a different test.  And that the IMD said my basal temp of 9.1 - 9.7 showed I was on the right Syn dose.  But during the day, I never get over 9.7 either even w low fever.   So what do you know, lady, I understand a lot.

    See everyone later, dog wants fed and out for walk.  Skunks want fed and out to play.  

  • vivre
    vivre Member Posts: 881
    edited February 2012

    Essa-what part of Indy are you in? I have a great biological dentist in Northern IL. She was written up in O magazine and is coming out with a book soon. She is not cheap, but  I really trust her. She took out one of my bad metal crowns and replaced it with composite in under and hour. My therm doctor is also nearby. I love this woman! Again, I did a lot of trial and error before I found her.I will NEVER have another mammo. It is great to know that I can monitor my breasts safely and painlessly. One of the goals for my non profit is going to use proceeds to help women get therms. They are not covered by insurance, thanks to intense lobbying by the mammo industry (your Komen bucks at work). We need to spead the word about this extremely reliable method of detection and demand it.

    Maud-Good for you for speaking out. The more of us who do, the more likely they will stop the anti thermography propaganda.

    Althea-I have all the info about dental links archived on my website, as well as some videos. It will be easier than reading  a long thread and dealing with the controversies. Check it out.

    Send me your email if you want me to send you some files about iodine. I have some long docs.

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited February 2012

    Kaara, that sounds like a good plan, although I'd trade the mammogram for an ultrasound any day

    Bucky, I don't know that particular product. Most ER pos sisters would not touch soy with a 10-foot pole especially as a supplement.  From what I gather, flax is controversial, some sisters do it, some don't, I don't because I was highly pos.  If you want to add green to your diet, wheatgrass (in the frozen section at your health food store, or you can grow it yourself) is pretty potent stuff 

    Essa, I always feel that mammos are forced on me Lol.  I went in for the MRI thinking it was benign, it is not !!!  We get injected this "contrast" or whatever the whole time, must have lasted at least one hour.  And because I was in so much pain, I had to do it face down.  Oh my god, what a nightmare it turned out to be.  MRIs are really toxic, another group offers info on how to protect and detox from MRIs, if anyone is interested, I'm gathering info because I have to go for 4 MRIs in the near future, but no more breast MRIs for this chick

    Vivre, you mention you have a website, I'd like to visit some time

    Blessings 

  • Kaara
    Kaara Member Posts: 2,101
    edited February 2012

    Maud:  The only reason I'm leery of US is that when I had my suspicious area show up on mammo, they couldn't find it on US, and they tried twice.  The BS finally did a stereotactic biopsy and it was bc.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited February 2012

    Vivre, NW IN near Notre Dame but countrified.  My dentist is in Ft. Wayne and will take my ins. The integrative medical dr recommended him, Dr. D is all about no amalgams, no root canals, taking out the ligamment with extraction.... so I trust this will be a good fit w new dentist.  Going over to the message center now to pm you.  Thanks.

    Been searching out products and info for hours, seem I am absolutely no where.  I really want the results of my hormone tests and not GP will not be back in office until MONDAY so am waiting almot two weeks now.  Darn it.  Hurry up and friggin wait, don't they get it, I feel frantic because no one is in a hurry to anything. i'm ok

  • Luna5
    Luna5 Member Posts: 532
    edited February 2012

    bump

  • curedrn
    curedrn Member Posts: 2
    edited February 2012

    Have been taking Arimedex since 2004-Doctor suggested I check out Myomin and wean myself off the Arimedex.  Has anyone done this before?

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited February 2012

    Kaara, that's why I'll only have an ultrasound if my BS is holding the instrument and checking the monitor, otherwise not !

    Curednd: sounds good to me, will add to my protocol

     http://www.chi-health.co.uk/p_myomin.htm

  • althea
    althea Member Posts: 506
    edited March 2012
    The makers of the documentary film Food Matters have a new film coming out -- Hungry for Change.  It will be available for free viewing later this month.  http://www.hungryforchange.tv
  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    Thank you Althea ! have registered, what a bonus, now gotta mark my calendar, otherwise, pouf !

  • vivre
    vivre Member Posts: 881
    edited March 2012

    I have tried to use DIM several times. I know it lowers estrogen because I saw it my bloodwork but each time I had vision issues. I have terrible vision as it is, and the lack of estrogen seems to make it worse. The DIM would make my eyes dry and a bit blurry. So I have resorted to other things. Remember it is not estrogen that is problem. It is only the inbalance. And I have found that the iodine protocol has done more for me than hormone therapy so that is what I am sticking to.

  • barbiecorn
    barbiecorn Member Posts: 86
    edited March 2012

    How do you all stay strong in your commitment to alternative treatment only.  I am going to the oncologist on Monday just to pick her brain but am going to holistic dr. on Friday to do something regarding my hormones, vitamins, I have been very diligent with my diet since I was diagnosed but how much slack do you receive from people who know you are not doing it the conventional way.  I find myself just avoiding the questions as much as possible.  I just got my BMX on 2/1 and was diagnosed the day after xmas.  It is good to have this thread....I don't feel so alone!!  (((hugs)))

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    barbiecorn:  If you are strong and confident in your convictions, you can take the tough questions from those who do not understand anything but conventional treatments.  You do your research so that you can become educated in the best treatment options, then select the ones that you are most comfortable with.  I have one friend who just gave up on me.  She doesn't even call me anymore since I didn't follow her advice and do radiation, but then I have other friends who support me 100%.  My family is behind me 100% so that is what's important at this stage.

    I'm taking tamoxifen as a compromise with my doctors, but if it becomes intolerable, I will give that up as well.  My diet and supplement plan and my weekly infusions from my naturopath are going to work for me.

    Actually it's probably good that I didn't do the conventional treatments, because my macular degeneration is advancing and I don't think radiation would have been a benefit to that at all. 

  • AnniN
    AnniN Member Posts: 7
    edited March 2012

    I stay strong to my naturopathic path as I have good results with it. I also find the naturopathic team to truly care about and for me. No one in my support circle criticizes me for it.



    In my instance I combine the naturopathic and conventional routes.



    Barbiecorn, this is your body and your life and only you know what is right for you! Therefore it is entirely up to you how you manage your journey!

  • onvacation
    onvacation Member Posts: 521
    edited March 2012

    Hi!  Recently diagnosed with bc, meeting with my oncologist on Tuesday.  I firmly believes nutrition is key, but I am afraid I will have trouble finding a doctor that will be open to combining tradional treatments with natural/nutritional ones.  How do you find a good Naturopath?  I tried to google them for the Houston area, but none of them deal with cancer.  Is there a specific google search I should try?

     I love juicing and have been juicing for over a year now and plan on continuing it during my treatment. 

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    onvacation:  Suzanne Sommers book "Breakout" has a list of naturopathic doctors in the back that specialize in breast cancer treatment.  That is where I found the doctor I am seeing in Florida.

  • onvacation
    onvacation Member Posts: 521
    edited March 2012

    Thank you Kaara - I will check it out!

  • bettyblue5015
    bettyblue5015 Member Posts: 1
    edited March 2012

    Amberyba- I have decided I am not going to take Tamoxifan either. I am taking DIM in addition to Flaxseeds to help reduce my estrogen. I think it is sad that the conventional medical community does not advise its cancer patients what they should be eating or ask if they are exersising on a regular basis or which suppliments they should be taking. My insurance doesn't cover any kind of natropathic/alternative treatments, I have had to find out these things completely on my own. I thought I had a healthy diet until I started doing research on diet and the roll it plays in breast cancer. Did everyone have radiation and or chemo? I have yet to decide it I am going that route.

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    bettyblue:  I did not need chemo due to low oncotype score, and I passed on rads because I couldn't get one that was tailored to my low grade low stage bc.  I am giving tamoxifen a try but a lower dose, and I am doing diet and supplement programs that are geared to lower the risk of bc recurrence.

    I'm 71 years old...how much estrogen could I still have in my body since I'm no longer on any BHRT. 

  • FLwarrior
    FLwarrior Member Posts: 614
    edited March 2012

    Bettyblue50, I had chemo (3x FEC, 3x taxotere) then UMX. I had clear margins with no node involvement and passed on rads.  I couldn't tolerate tamoxifen, so I am taking DIM.  Do your research, it is all so personal to our individual situations. You will find the right path that works for you!  Best of luck!

  • dlb823
    dlb823 Member Posts: 2,701
    edited March 2012

    onvacation, you might also check this website:

    http://www.integrativeonc.org/   

    Also here:  http://www.oncanp.org/

    And here:  www.naturopathic.org/

    My naturopathic doc belongs to both the latter ones, and when I asked her how someone in another area can find someone really qualified, she suggested finding one with both of those affiliations.     Deanna

  • onvacation
    onvacation Member Posts: 521
    edited March 2012

    Thank you dlb823!

  • vivre
    vivre Member Posts: 881
    edited March 2012

    I just ran across this website for a doc in Texas who seems to follow the iodine protocol:

    http://www.thyroid-weight-loss.com/

     For those of you who have not seen the iodine discussion, we have a long thread. Most of us with breast cancer have thyroid issues which start with the lack of iodine. Adding the iodine protocol to my health regime has improved my health in more ways than I can tell. There is growing evidence that it is the underlying cause of breast cancer, which makes sense because one cannot balance our hormones if the thyroid is out of whack. If you live in Texas, and visit this doc, let us know how it goes on the iodine thread.

    Also, if you are always cold, consider getting a far infrared sauna. You might be able to insurance reimbursement. This is the best purchase I have made. I have a portable one that you sit in with your head out, which I like because you do not beathe in any fumes. Some of the wooden ones can still "off gas", and since I have breathing issues because of rads, I need the fresh air. Sweating everynight in my sauna is magical. I can feel any stress melting away and since cancer cells die off when heated, I feel like I am killing cancer cells every time I am in it. Plus I sleep so well afterwards. Here is the one I have: http://www.momentum98.com/relaxsauna.html

  • althea
    althea Member Posts: 506
    edited March 2012

    Thanks for that link vivre.  Sugarland is about 4 hours from where I live.  Just up the road by Texas standards. 

    Here's another link.  Health coaching, my new line of work, is the topic of this Wall Street Journal article.  If anyone reading who is curious and doesn't yet know what health coaching is, this article gives a good description.  

    http://online.wsj.com/article/SB10001424052970203358704577237184016187486.html

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    althea:  We need more health coaches.  Most people don't have a clue when it comes to sorting out what is good to eat and what is not.  Our friends just amaze us sometimes with what they think is healthy.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited March 2012

    Hi - am posting a link for video with mega info on tests and treatment, within 7 minutes of your time to watch, please pass it forward.

    http://www.youtube.com/watch?v=1PLoCsztK1g&context=C31625edADOEgsToPDskJPmVdEkD8in7mfMcA9GDzh 

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    Hello Essa, thanks !  What a nice woman on the video and great tips, am gonna have to ask my BS a few questions when I see him later this month

  • Sherryc
    Sherryc Member Posts: 4,503
    edited March 2012

    Althea great article

    Essa thanks for posting that link, it was very informative

  • vivre
    vivre Member Posts: 881
    edited March 2012

    Health coaches are so important because doctors do not have time to talk with patients, and really get to the bottom of the issues anymore. Perhaps more doctors should put these coaches on staff, and then be there for the when the patient needs the doctoring part. We need to have doctors centers that include all kinds of doctors, working as a team, with a monthly fee per patient instead of all this hourly billing crap that gets out of hand. Then we would see people actually getting healthy. Immagine having access to an MD, a chiro, ND, etc, who all respect each others forte and work together.

    I know that would be something akin to a miracle. It would mean putting patients before ego.

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    In my holistic doctor's office there is  an accupuncturist, a chiropractor, and thermography equipment, as well as someone who does biofeedback.  It is a nice setting and everyone is always helpful and smiling.  Of course it isn't covered by insurance, or at least not by my medicare.  I guess the problem is that if I got healthy, I might live too long and the "system" wouldn't benefit.

      I'll gladly pay out of pocket not to have to go through the aggravation that I did the other day when I waited an hour and a half to see a new MO and finally got so frustrated I walked out!  I don't need that kind of stress at this time in my life.  This was a well known clinic that has good doctors, just poor administration.  I'm writing a letter to the CEO!