natural girls
Comments
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Kaara: yes, my ophthalmologist checks me every six months. I am waiting to speak to him about the aspirin issue, but I suspect he has thousands of patients and it is a little like trying to speak directly to the Wizard of Oz. Quite the dilemma...
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Deanna, that was a great link. It's dated 2011. Here's a more recent link to the same blog dated yesterday. Again all about Aspirin and very interesting reading.
http://crabsalloverhealth.blogspot.com.au/2012/03/effect-of-daily-aspirin-on-risk-of.html
then click on the word ASPIRIN on the right to get all his blogs on aspirin.
I'm not drawing any conclusions till I've read more. If only these studies could be more conclusive.
Also I need to look into the chances of MD being genetic. I'm not aware of anyone else in my family having it so I'm assuming my brother is a one off case.
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Just don't miss those eye exams every year...it's important to make sure you stay on top of it now that they have something to stop progression.
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Thanks Kaara, if your experiences with MD saves one person's sight you will have done a wonderful job in raising awareness. Since there's a link with fatty deposits similar to Alzheimer's and atherosclerosis, this is one more reason to keep to the good fats. I wonder if coconut oils are good for MD?
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Yes, coconut oil is supposed to be.
I just found Bill henderson's book Cancer-Free on my shelf. Do not know where it came from, always intended to get this book and did not think I did. If I had read it, it would have paperclips nd highlighting all over, but this is llike new. Manifested? LOL Will read it on way to integrative mds tomorrow. To BED!
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I have that jar of coconut oil on our bathroom counter. We have used it for dedorant and moisturizer, but to eat? Well, why not...what's the best way to ingest it? Boyfriend could use it too for his MS, which attacks the myilen sheath of the nerves.
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You can cook with coconut oil as it can take the high heat without spoiling. That seems to be the easiest way to disguise the taste. I've tried it on toast with marmalade to cover the taste and it wasn't too bad. But I want to give up bread again and go back to low carb for a while so I'm not sure how else to use it. I couldn't find anything on the net showing it's good for MD. I saw Zinc was recommended though.
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Maud and Vivre: I knew 7 keto was too good to be true
. Thanks for your response.I am taking synthroid and my #'s are within the range but I don't feel 100%. I have an app't today with my endochrinologist and I'm going to try to make him understand that the #'s mean nothing if the symptoms persist. If he doesn't up my dose then I'm going back to the ND who prescribed natural thyroid for me a couple of years ago. My Dr's made me get off it because my TSH was way high for over 8 months but I was feeling great. I made the mistake of letting them scare me off it and back onto Synthroid. We'll see what happens today. I have been exercising at least 3 x/week for the last 4 months and have lost exactly 1.5 lbs to date. The weight is not budging. Also, when I got tested for iodine, Dr Fletchas said I wasn't metabolizing the iodine and I was basically peeing it out. He put me on ATP Cofactors but I haven't been tested since. Seems I've been fightingmy weight ever since I can remember. If I knew then what I know now, I wouldn't have thought myself fat that 25 lbs ago!
Terri
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Terri, there's a huge and very active yahoo group re thyroid which this site will lead you to http://www.stopthethyroidmadness.com/talk-to-others/
Unfortunately, looks like many of us are scared into some form of treatment or other
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my560sel: I was having the same problem as you and my ND tested me and added cytomel to my synthroid, so now I take two pills in the morning, the synthroid and a cytomel, which stimulates the thyroid to work. He said that my thyroid was not getting the stimulation it needed and therefore the synthroid was not able to do it's job. I felt much better shortly after that. For some reason my endo never thought of doing that. Go figure!
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Teri
It is very common for those who are toxic to have high TSH when they go on the iodine. This is because the thyroid is starving for it, and just sucks in up (in very unscientific terms). Have you tried detoxing the liver first? This will help to open up the pathways. I think this is why I did not have too bad of a reaction to iodine at first,because I did liver detoxing with diet and a liver detox product first. Once the liver is clean, it can help to filter out the toxins that iodine releases. The other thing is sweating. My far infrared sauna was worth every penny. I still use it every night because I just love how I feel it is killing any free radicals I have accumulated each day.
I wish doctors would stop just looking at test scores and take symptoms more seriously. Here is a good blog by Dr. B:
http://drdavidbrownstein.blogspot.com/2012/01/new-illness-strikes-media-iodophobia.html
To add to the coconut discussion-We have talked about this alot, but it is always worth mentioning again. I have added coconut oil and coconut milk to my diet and I use it liberally on my skin. It is one of those healthy fats our cells need. You can put it in smoothies and as Joy said, it is great for cooking because it has a high burn rate. YOu do not want oils to burn. They then become acidic to our system. Since coconut oil revs metabolism, I have even read where people who take at least 3 tbs/day actually lose weight. I make sure I do not put it on my skin before bed, because it does keep me awake I found out.
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Wasn't coconut oil used to pop popcorn at one time and there was such a huge controversy about it that they had to switch to another type of oil? It seems I remember that, and how much better the popcorn tasted when popped in the coconut oil. Everything comes full circle..now it's good for us:)
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Kaara & Joylieswithin ~ I have found the taste of coconut oil to be delicious...maybe just me? I buy the virgin coconut oil (as opposed to "refined") and it does have a luscious but mild coconut flavor that I find to be very tasty on toast! Also love it on sweet potatoes. Very comforting and satisfying to me. If you just don't like the taste coconut at all, the refined coconut oil does not smell like coconut, and so might be flavorless, if that is preferable to you.
Also great for baking cookies! You use 20% less than whatever butter is called for, so automatically somewhat lower in fat. Be warned, though, it makes your cookies quite a bit crispier than butter (which in my estimation is wonderful)
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Been lurking for a while, but HELLO! I have autoimmune thyroid issues (Hashimoto's), and have been aggressively pursuing a natural course for that treatment, and now am working on the BC angle as well. Strangely, a lot of the same recommendations work for both. I just started the iodine protocol about 7-10 days ago. OMG - I am a new person. Seriously. So much energy, better mood, better sleep, less cravings. My integrative med doc suggested it. I have had problems with high antibodies since I was diagnosed with autoimmune.
I just "fired" tamoxifen about a month ago as I was getting seriously depressed, not to mention the weight gain. I don't see my MO again until April, so she doesn't know yet. I have started DIM with I3C, plus the iodine, and have been on multiple other supplements. Am I crazy? Maybe, but I think it might be the right choice for me. I am 49, premeno, with HIGH estrogen levels.
Actually, I love coconut oil! I started using it as a thyroid/metabolism aid before BC. And Suzanne - it is seriously good on sweet potatoes with sea salt. Wow - that could be dessert.
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madpeacock, welcome to the thread and congrats on venturing into the iodine protocol with good results. I'm in the same boat as terri, unfortunately, as a poor absorber of iodine.
suzanne, thanks for the coconut oil baking tip. I love to bake. There's a palm oil shortening that I've tried with good baking results. I also tried a brand of 'buttery sticks' a long while back. Taste wise, it was an awesome butter substitute, but ingredient wise, it was a highly refined soy product. Butter and yogurt are my last bastions of using dairy, so I look forward to trying the coconut oil for baking.
terri, I hope you can get back on natural thyroid and off the synthroid. Let us know how things turn out.
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I went to Wikipedia to find out the difference between refined coconut oil and virgin. It put me off ever using refined!
"The copra is pressed or dissolved with solvents, producing the coconut oil and a high-protein, high-fiber mash. The mash is of poor quality for human consumption and is instead fed to ruminants; there is no process to extract protein from the mash. The preparation and storage of copra often occurs in unhygienic conditions, yielding poor quality oil that requires refining. A portion of the oil extracted from copra is lost to spoilage, to insects or rodents, and to the process of extraction."
I've never been able to bear the taste or smell of coconut in any form. I guess it's my taste buds, we all have our own preferences.
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madpeacock: Welcome! I have thyroid issues as well, same as you. I take synthroid and cytomel and have added iodine since my bc dx. I've thought about switching the synthroid to armour, but wanted to get through all the other SE's of taking tamoxifen and such before I do that. One thing at a time, so I know where the Se's are coming from.
My coconut is virgin...I checked the jar. I have actually been using it to moisturize inside my nose at night because it gets so dry and crusty. That has completely disappeared, and my nose is less stuffy when I wake up. Now I just have to think about taking it internally..maybe I'll cook with it to see how it does.
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madpeacock, welcome! Can you explain the iodine protocol for me?
Also, would love to know more about the coconut oil as a thyroid/metabolism aid. How do you use that?
What does it change and/or how does it affect you?
I am currently soooo tired since rads 3 months ago. I seriously don't know if my thyroid is wacked or what.
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Kaara, be careful about putting a lot of any kind of oil deep inside the nose. You want the tiniest amount, so light that you will not inhale much of it into the lungs. By default you will inhale the oil because all oils vaporize, so you want to use it very lightly. Or, use a saline gel and or saline rinse which may help too. Oils of any kind do not belong deep inside the lungs. Not the end of the world since coconut oil has great anti-viral and anti fungal properties; it's not as problematic as using petrolatum, which some people use. Just go very lightly.
The same is true for the eyes. Many people use mineral oil or other oils to remove eye makeup, but it can actually build up behind the eye....not a good thing at all.
All my best,
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Kaara, has your boyfriend had his Vitamin D levels checked? My neighbor, who was dx with MS 15 years ago was suffering more and more severe symptoms of her MS--her eyesight was going downhill too. She is supping with D3 and has done very well as a result. She did conventional infusions which helped too. MS does relent sometimes, but she feels the D3 was the biggest help.
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I love and adore Dr Oz but sometimes he doesn't vet his recommendations. For example, he was promoting raspberry ketones for weight loss a few weeks ago. They had a "trainer" and her client on and were pumping the concept because the client had appeared to have lost so much weight. But it may not be quite what it appears to be: What he didn't mention was that high levels of those ketones over time can lead to osteoporosis and muscle involution/changes which is why some people show weight loss in the first place. The jury is still out.
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I have been in shock all week upon learning of Mary's (MJB) passing. I just can't believe it. Here was someone who was such a great advocate for herself. So bright. She was involved in her treatment and looked to all the options available. She did chemo, she did it brilliantly, using methods that optimized the effects but minimized the damage. She was such a wonderful advocate of not delegating our choices to the system, but in taking the best from both allopathic and alternative schools. Truly a hero of mine.
Her original dx was tnbc. Then during this recurrence she had a very rare flip to ER 80% positive. It was not just ER positive, it was virulent. Very rare. I can't help but wonder how, what and why.
I will miss her and her wonderful mind. She was giving, supportive to any and all, and so very full of life.0 -
I've been juicing for a month now...all fresh veggies and fruits. Not sure what is happening, but I haven't lost any weight and my cholesterol has gone thru the roof. I'm on arimedix and wonder if that is the problem. What else that's natural can I do?
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Maud, yes you make a good point about MRI's with contrast. They make it sound like you just pee out the Gadolinium and all is well. Not quite. Gadolinium is a heavy metal with toxicity. It is "safe" to use as a contrast because they bind it to other molecules which keep it from entering the cells. BUT, if it is not efficiently removed through the kidneys within a set time (hours/days), it "uncouples" from it's carrier, and does it's damage. It causes fibrosis by stimulating the fibroblasts. Breasts are sensitive to this, and so are people with renal insufficiency. I had a metals screening and three months after my MRI, the gado in my urine was still off the scale. A kidney ultrasound showed very robust kidney function, yet the gado had not been sufficiently purged for some reason. It gave me pause because my onc wanted me to have a breast MRI every six months optimally, yearly if not. I will obviously be spacing these out to much longer intervals.
One of my radiologists is slightly troubled by the push marketing of breast MRI's as an easy and safe scan. Of course, MRI's have their place, and contribute very much to early detection of bc and many conditions, but I wonder if they are being "oversold" in some cases.
Three years ago, they were developing a water assisted ultrasound breast screening that was as detailed as an MRI. It was being done in Chicago. For some reason, the project and the work has been quelled or at least unsupported. I hope that it gets off the ground sooner than later.0 -
Kaara - sorry, I don't have much time to dig out my book, but I know I read in there about MD and coconut oil because my FIL has it and hubby could get it too, we have him on watch. Hubby takes some coconut oil each day, he really needs 3 tablespoons. Here is a quick link to many pages with great info on some organizaations though.
I was first told to just melt in in your tea or warm drink. I use it to pop corn, on pasta and rice,on toast isgood. TThere are different flavors, find one that is unrefined, organic, the best you can buy for ingestion, but make sure you find one that you like the taste. We mademistake of buying a huge jar of the best eveer and the taastte is beyond pleasant to us... so we are not making little coconut oil candies to pop.... one way it to use Agave nectar (15 glycemic) and a drop of almond flavor, even a crunchy organic almond on top, you can also place this on a dollop of >75% dark cocoa that has been melted with coconut oil and some Agave, like an organic good for you Almont Joy. All you need is 1 T per serving, pop three a day maybe. Also nutritionist said she does her recipes - one with mint flavoring, one with orrange flavor. I think she sweetenes with Stevia the herb. If you get a neutral flavor, you can melt in soup, make mac and cheesse w it (you andI are on same page, the mac and cheese is organic, good for you grains, etc) and I also used coconut oil w neutral flavor to make gourmet french fries, yummy! We just have to figure out how to get through this jar and find one we like and trust in the neutral flavor because Hubby hates this stuff, and I hate it more- kind of like oily coconut soap.
Never used refined coconut oil, aas MadPeacock ppoint out with info above....
We were told not to use coconut oil because we weere told not to heat oils, I think, but now we are told not to ever ever heat olive oil or other oils and to heat coconut oil as it is the only one that does not oxidize. Always a turn.
JoyLiesWithin - Thanks for the info on coconut oil and cookies.
Terri - I know the feeling. I am peeing orange, what you said reminded me it could be the iodine. (EDITED NEXT DAY::: to add that yesterday I tested this by not taking my Liver Support which contains artichoke and sassafraass or sassparilla and no orange, so that seems to be it, relief, I love my iodine addition, thank you Vivre for being so adamant that womenneed to understand what it means to our balance).
MadPeacock - Welcome to this thread, love it here. I am trying to gett my protocol to evolve so that I will be off synthroid or natural thyroid, so have started using iodine, something Detoxamine, and D3 and CoQ10 plus adrenal support, thyrotain caps and who knows what elsse. My basal temp is higher than has eveeer been, was 96.3 - 97 nw 97.5 or so and has only been a few weeks on this added investment. Am hopeful.
ABOUT ME - Yesterday I had a second UBV therapy, ultraviolet light through blood treatment. Afterward, was quite perky (sorry the pun) but then the vehicle fuel pump went out andI got exposed to weird March sun aaat 80 degree temp at noonish, and covered with lumps on every inch of exposed skin as of last night, better today and not itching. Have always been photossenssitive so don't know which was the actual cause but intereesting. Have to runn, daughter has arrivedto take me to get vehicle from repaair shop.
Vivre - good tip on further liver detox, one we can never really stop doing anyyway.
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MsBliss, I've also been feeling very down this week, which I know is due to the shock of MBJ's sudden and unexpected passing. And I think your post touches on something I hadn't considered about why this loss has been an especially rough one -- not only the fact that it sounds like possibly being uninsured that she slipped through the cracks of the medical system (which infuriates me!!) -- but as you pointed out, that she was an educated, creative-thinking patient who researched and took an active role in her tx. In fact, she'd even gone as far as relocating from CA to KY to reduce the stress in her life! It's really just been difficult to wrap my mind around all of this.
Another regular poster here made a thought provoking point in a PM about how we interact with each other here, yet we often know very little about each other's real lives. That's also been weighing on my mind -- that as appropriate as it is to be somewhat anonymous here, it's sad to realize how much wider and deeper some of our friendships might be if we really knew each other.
Sorry... just some ramblings as I try to sort out my grief about MBJ... Deanna
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I can't shake the sadness about MBJ either and Ms Bliss makes an excellent point about her being so proactive in her treatment. I went back to read some of her posts and one of them said "The doctors missed"
She must have been horrified when she discovered that her cancer was so advanced without her knowing I believe she would be ecstatic to know that this thread is coming alive again. I read the whole thing before becoming a member and remember reading that many months ago, all the natural girls left BCO, let us all keep this thread alive in her memory !
Ms Bliss, MRIs are not as dependable as some would have us believe. Thanks for your post, I will ask for a kidney function test after next week.
While googling last night, I discovered that the minimal detectable size of a breast tumor on MRI is 5 mm. This is an extensive study, lots of shortcomings for MRIs
"Overall, tumor size by MRI matched exactly same histological size in only 3%, underestimated 27%, and overestimated 70% of cases. By MRI analysis, T stage was altered 24% of time, 6% into higher and 18% into lower T-stage
MRI as an imaging modality and gross pathology both have significant limitations in measuring tumor size particularly in cases of invasive breast carcinoma"
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2836507/
Here's one very scary thought:
"The question of whether the opening of the blood-brain barrier constitutes a health hazard demands further investigation"
http://onlinelibrary.wiley.com/doi/10.1002/jemt.1070270608/abstract
We can inquire as to which contrast is being used, but I doubt they would accommodate us.....
"The European Medicines Agency has published a report in which they concluded that contrast agents that have a linear molecular structure pose the greatest risk of NSF, while those that have a cyclic molecular structure pose the least. The types of contrast agents that they included in the report were:
Linear
OmniscanOptiMARK
Magnevist
MultiHance
Primovist
VasovistCyclic
ProHance
Gadovist
Dotarem
Finally, this was repealed...
"European Directive on radiation exposure will ban MRI scans"
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MsBliss: I only use a little of the oil to moisten the inside of my nose...don't put it deep in. I did use vaseline which I now know is a no no. My boyfriend with MS takes 8,000 IU's of vitamin D daily to keep his levels up. He is on the same strict diet as me. He is holding his own.
Essa: Thanks for the links...I will check them out.
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Hello Madpeacock !
Clw, I would only encourage you to continue juicing and eating healthy. Most of us complain about weight; it could possibly be due to treatment. Losing weight too fast is not good; I've lost over 10 pounds in the last few months and I'm really worried it's actually muscle mass, because I still sport my fat belly...
Kaara, about coconut oil, check out these smoothies recipes !
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If anyone wants some files I have collected on the iodine protocol, pm me an email and I will send them.I willl bump the iodine thread for those who want more information. No sense in going over it again here.
I have been getting my coconut oil from Tropical Traditions. It is cold pressed, not heated and they have some great recipes on their website too.
MsBliss-I have a friend with MS who has been able to get her life back after going on high doses of Vit D, and others. She also did a lot of detoxing. Does your boyfriend have any amalgams or exposure to heavy metals.
CLW-don't expect overnight changes. You will need to keep eating well and detoxing. I did not really see a difference for a few months after treatments, and then when I got on the iodine protocol, I finally started to lose weight.
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