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Comments

  • althea
    althea Member Posts: 506
    edited March 2012

    Well said vivre.  I'd like to suggest something right here right now that all of us can do to protect our choices at the grocery. 

    Genetically engineered salmon is on the verge of reaching our grocery stores without being labeled as such.  We have until March 27, 2012, to make our voices heard.  Sign the petition at http://justlabelit.org  We should have the right to know what's in our food. I value my right to avoid GMO products. Hopefully everyone on this thread will agree.  If you don't know why it would make any difference, please become aware.  Hundreds of thousands of people have already signed. Please join me and say NO to GMO. It takes less than 2 minutes.

  • dlb823
    dlb823 Member Posts: 2,701
    edited March 2012

    No doubt TNBC can be extremely aggressive.  However, the fact that Mary didn't have insurance certainly didn't help with a timely diagnosis and tx of her recurrence.  I can't stop thinking about that. It just isn't right.  

    If you haven't heard them, here's a link to some of her recordings her husband posted on FB. http://www.maryjahn.com/    So hauntingly beautiful...      Deanna

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    Thank you Deanna, I hope she did not suffer too much 

  • my560sel
    my560sel Member Posts: 399
    edited March 2012

     Dr OZ yesterday mentioned 7- keto and Forskolin for fat burning and losing weight. I've gained 20 lbs since being in menopause and have tried to no avail to lose the weight Has anyone heard of these and/or is anyone taking them? Does anyone know if these supplements can be taken when you've had BC?

    Terri

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited March 2012

    Thank you Althea for the GM link, I signed.  Did you know that zuccini is the most GMOed food there is, I read, I could not believe it.

    The photoluminescent therapy I had is knows as UBI, UVBI therapy, ultraviolet therapy,and while they are now  studying the possibility of this therapy being effective on cancer, I am opting to be treated, not waiting.  I paid $90, will do this again in a week or so, depends on the kinesiology test.  I did go to an integrative clinic, they make no promises of course, but it is effective for bacterial, virusees etc.  More info here.

     http://www.medical-library.net/photoluminescence_therapy.html

  • Hindsfeet
    Hindsfeet Member Posts: 675
    edited March 2012

    I too miss Mary, MBJ... my heart dropped when I heard she died. I had no idea that she passed until I came on here today. She  was an encouragement to all of us, and as already said, she was always so positive, and sweet.

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012
    Thanks Essa, do they do this through IV ? I imagined a dialysis machine, but it's not that complicated hein ?  Did not know zuchinis were the most GMOs, I love them Frown
  • Didapper
    Didapper Member Posts: 2
    edited March 2012

    Hello, It amazes me that so many organizations are still funding for the next big thing. How is everyone doing today!

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    my560, 7Keto = DHEA (hormone) - I've seen the following warning: 

    "Women who have been diagnosed with an estrogen-dependent cancer should consult their physicians before beginning the DHEA restoration process".

    Hello Didapper, welcome !

  • Didapper
    Didapper Member Posts: 2
    edited March 2012

    Thanks Maud. 

  • vivre
    vivre Member Posts: 881
    edited March 2012

    Teri-have you been able to get your thyroid working? That was the key for me with losing weight. I know you had trouble with iodine, but the iodine finally helped me to get all the toxins out and lose the weight. I lost 40 pounds. But I also gave up all the white stuff and committed to daily exercise. I also use my sauna almost everyday, which sweats out the toxins, since I can no longer get a sweat going with exercise, thanks to rads.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited March 2012

    Went to a neurologist with DH yesterday and it was so refreshing to hear a MD say that the problem with drug studies is Big Pharma and the way they conduct their studies.

  • truebff
    truebff Member Posts: 322
    edited March 2012
    Okay I am VERY excited because tonight on the nightly news, BIG NEWS: ASPIRIN could prevent cancer and recurrence! Does anyone know how much to take?
  • Sherryc
    Sherryc Member Posts: 4,503
    edited March 2012

    My MO put me on a baby asprin but I think it is more to do with the fact that my father died at 49 of a heart attack and taking tamoxifen.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited March 2012

    Yes, Maud, it is an IV with a bigger than usual catheters.  Had to use my good vein on the surgery side w LE since the other veins were collapsing from it.  But once in, was a breeze. I go again Thurssday for either this or hydrogen peroxide infusion.

  • dlb823
    dlb823 Member Posts: 2,701
    edited March 2012

    truebff, I'm pretty sure I recently read that the recommended dose of aspirin for bc prevention is .81 mg. 3x to 4x/week -- no more.  I'll try to remember where I read that and come back and post the source if I do.     Deanna

  • truebff
    truebff Member Posts: 322
    edited March 2012

    Thanks Deanna. I'd be very interested in knowing the recommended dosage. I always liked aspirin.

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    I would love to take the asprin..such an easy fix...but I read that it could cause me to have a retinal bleed because of my wet macular degeneration in my left eye, so that or any other blood thinner is out for me.

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited March 2012

    I have been taking 81mg of aspirin daily for about a year now. So we shall see. 

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    Hi Truebff, thanks ! do you remember where you saw this ?  Aspirin's properties have been touted for a long time, maybe they found new ones ?  Will start taking my baby aspirin again, I kinda let it slip Tongue out

    Essa, Good luck on Thursday  

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    Has anyone ever heard of this or use them ? 

    http://www.life-enthusiast.com/w/prills/ 

  • momoschki
    momoschki Member Posts: 218
    edited March 2012

    My onc rx'ed aspirin for me, too, as a preventive measure, but I am concerned about the link with macular degeneration, particularly because my father has this, so there is a family link.  So far, the onc says the benefit outweighs the risk, my ND, whom I consult with on occasional issues, says the opposite.  Still waiting for my opthamologist to weigh in.  I would really like to continue the aspirin, but definitely don't want to go blind!

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    Momo, maybe the regular 320 something mg is too harsh; hopefully, a few baby aspirins a week would  be ok for you.  That is all I am taking coz meds wreak havoc on our livers.  I might just settle on White Willow Bark 

    http://healingtools.tripod.com/wtwillbk.html 

  • vivre
    vivre Member Posts: 881
    edited March 2012

    I read the article at med page about the aspirin. I am not providing the link because I noticed the author is affiliated with the makers of aspirin. These are the kinds of press releases that I am always supicious of. We see these stories daily and we have to do our homework. Don't just read the headline, or look at the news clips on TV. Look up the studies and see who is doing them. There are reports refuting aspirin as well.

    Call me a cynic, but I find it hard to believe anything these days. All I know is what has worked for me. So i guess we all need to be our own guinea pigs and through trial and errro, come up with something that makes us feel better and shows up in our blood and urine tests. 

    I think the truth is usually somewhere in the middle. It seems logical that some aspirin may be helpful, but like anything else, there is a point where it could be too much. Since we are all different sizes, with differences in our blood and metabolism, there is no one size fits all. 

    That is why I do not believe doctors have all they answers either. No one knows US the way we know ourselves. We need to peel our own onion and listen to our bodies.

  • luv_gardening
    luv_gardening Member Posts: 362
    edited March 2012

    I've been taking aspirin, 100mg a day.  I didn't realise there was any link with macular degeneration.  My much younger brother has the wet variety, the same as you Kaara.  I have no idea what treatments he gets as he's the other side of the world, in England, but I was following your recent treatment with great interest.  I guess for a 40% reduced chance of mets, aspirin is worth the risk, but if I already had MD then I'd think hard about it.

  • dlb823
    dlb823 Member Posts: 2,701
    edited March 2012

    Where's this 40% reduced risk figure coming from?  Like everything else quoted by pharmaceutical manufacturers, I'm pretty certain that's an absolute (net) figure.  It would be interesting to find the actual research to see what that 40% is in real (relative) numbers.  Not saying aspirin may not have some value to some of us, but understanding relative vs. absolute risks can make a huge difference in how you view any drugs' benefit, including aspirin, especially when you weigh absolute risk against the absolute risks of SE (like bleeding), which can be even greater.    Deanna

  • dlb823
    dlb823 Member Posts: 2,701
    edited March 2012

    Funny, but I've tried to post the following twice already, and it keeps poofing into thin air --

    What I wanted to share was a very interesting article I came across while trying to figure out the recommended dosage for aspirin, because it seems as though there's some new info (all dated within the past 24 hrs), now upping the recommended dose to a daily one, which just seemed odd to me, since the other info' isn't that old.  

    Anyway, I came across this very interesting article which points out not only some of Dr. Rothwell's drug co. affiliations, as vivre pointed out, but also notes a possible reversal or NET benefit, which is what I was trying to suggest above:  

    http://crabsalloverhealth.blogspot.com/2011/06/mark-nelson-risk-of-bleeding-with.html

  • truebff
    truebff Member Posts: 322
    edited March 2012

    It was in the NBC and other national news on Tuesday. But all very general.

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited March 2012

    Love that link Dlb, crabsalloverhealth !  Lol

    Thanks Truebff Smile

  • Kaara
    Kaara Member Posts: 2,101
    edited March 2012

    momoschki:  If MD runs in your family, you should be checked yearly by a retina specialist to make sure it isn't developing.  As long as it isn't active, I don't think it would be harmful to take asprin, but that is a question for your doctor.