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~* The Waiting Room *~

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Comments

  • QueenSansaStark
    QueenSansaStark Member Posts: 27
    edited June 2010

    Glad to hear it, RSben! That's two "whew" posts. Praying for everyone else waiting!

  • candie1971
    candie1971 Member Posts: 2,467
    edited July 2010

    Crystal Cat and Rsben, so glad good news has been heard!

    I am still waiting for results of chest xray..but surgery is scheduled for july 12

  • kittycat
    kittycat Member Posts: 1,155
    edited July 2010

    I am happy for everyone that's had good news!!!  Congrats!!!  :)

  • kathimdgd
    kathimdgd Member Posts: 84
    edited July 2010

    Good news here also,my bone scans were clear,Alleuia!!!  Now i have to have a ct of the chest and more blood work next tuesday,before i see the oncologist on the 15th for my 1 year from surgery check up.I do get check ups every 3 mos,but this time i have to have the ct of the chest,and a bone density test.Guess there's always something we'e waiting for when dealing with this beast,isn't there????

    Good luck and mega prayers for all those who are waiting,and congrats to all that have had B9 results.

    Candie,hope all goes well with your surgery.Keeping you all in good thoughts and prayers,hang in there!!!! We'll get through this.At least we have each other to commiserate with.

    Kathi

  • candie1971
    candie1971 Member Posts: 2,467
    edited July 2010

    Congrats Kathi..always like to hear good news!!

    So glad we have each other.

    hugs and prayers

  • TriciaK
    TriciaK Member Posts: 124
    edited July 2010

    Hi Ladies, sorry I've been missing a few days but just catching up and sending huge congrats to all with clear results:)

     Good wishes to all still waiting as I know its not easy, I'm awaiting yearly mammo results which I'll get on Wed, if clear it'll be five years!!! :)

     Love to all

    Tricia xx

  • jfsnh
    jfsnh Member Posts: 4
    edited July 2010

    Thanks for being here!

    I have been suffering from fatigue for a year, no one can find a reason except that I had sx, chemo, rads, went to nursing school, got a divorce--and never took a break.  So YESTERDAY I agreed to take 4 weeks off to rest and see how that goes.  In the meantime I have had knee pain from all the exercise I have been doing (that is supposed to help with fatigue), so I had an MRI today which is "worrisome" for mets to the femur.  I already talked to my onc, but it IS the 4 th of July, so I will have a PET scan and biopsy on Wed (hopefully) and then a bone scan if needed. I am definately in the waiting room and this is not how anyone planned my 30 days of R&R.  Say some prayers.  Thanks, Jody

  • weety
    weety Member Posts: 378
    edited July 2010

    Done.  Prayers are being sent your way.  What a yucky way to be spending your rest time. 

  • TriciaK
    TriciaK Member Posts: 124
    edited July 2010

    Jody - prayers with you that this is nothing serious, we're all waiting here for one result or another and know the anxiety it creates! :)

     Candie, still hoping for good news re your results and a sucessful surgery:)

    Kathi, I'm hoping the good news you've already had continues with the rest of your tests!

    Congrats again too to Crystal cat and RSBEN, and hope all here continue to have those B9 results:)

    Love

    Tricia x

  • Gitane
    Gitane Member Posts: 58
    edited July 2010

    Jody,  This is so hard.  I am holding you in my thoughts. Being in the medical field you know how our minds work once there is a hint that it could be this or that.  I hope you can overcome some of the worry and rest.  Let us know how it goes on Wednesday and what you find out.  (((HUGS)))

  • winstonfargo
    winstonfargo Member Posts: 5
    edited July 2010

    I'm just trying to get a post any post.

  • winstonfargo
    winstonfargo Member Posts: 5
    edited July 2010

    Okay. Waiting. I've waited a lot with my cancer experience, it builds character. But let me tell you that every thing is harder when you are a man with it. Gee, sounds like a name for new TV show Men With Breast Cancer.

  • winstonfargo
    winstonfargo Member Posts: 5
    edited July 2010

    Oh, so sure. Waiting. Part of the process. Waiting in waiting rooms. Then when my name is called I was getting wise cracks. Yo, you are a man, dude. I mean like I go for my first PET and my insurance company doesn't want to pay: reason-the sex of the patient does not match the disaese, to which I weant to say, Oh Yeah!

  • winstonfargo
    winstonfargo Member Posts: 5
    edited July 2010

    Then when my wife would go with me to keep me from biting my nails, they would expect her to answer the call? Then when I told thom it was me with the BC, I would always hear the same response, "Oh, yeah, I've heard that men can get BC." I could never come across a good quip in return so I practiced that dumb smile like the girls competing for Miss America.

  • winstonfargo
    winstonfargo Member Posts: 5
    edited July 2010

    I'm really sorry to dump on you The Waiting Room, but if I don't get this off my chest, no pun please, I'm going to explode.

  • debbie6122
    debbie6122 Member Posts: 2,935
    edited July 2010

    Hello winstonfargo- Sorry you have to be here, but welcome, I see from your profile it says you were dx in 05?   So im a litlle confused. is this a new dx with breast cancer for you or the same one that you are still dealing with?  Did you have a masectomy? and chemo? Can you tell us what you have been thru so we can help you more. There are several men here that have breast cancer too. I will see if i can find out who they are and maybe they can get in touch with you and help you deal with being a man with bc. I can imagine how hard this for you being a man and dealing with this, although it is rare it does happen. You are welcome here anytime, there is lots of  people here to give you support. Just to let you know. You are only allowed 5 posts a day untill you get to a certain amount- but feel free to pm any one if you have any new concerns we can help you with. ((((((((hugs)))))))))

  • jfsnh
    jfsnh Member Posts: 4
    edited July 2010

    Gitane, thanks for your thoughts.  Yes, being an oncology nurse on an inpatient unit, I see only the people who are NOT doing well.  I need to keep reminding myself that the ones who are living their life and have been able to put this behind them (to some extent--I don't think it is ever completely "behind" you) are not on my unit--they are out living a full life.  I also know way too much about tests, treatments, signs and symptoms--so I wish I were a little ignorant right now!  This knowledge helps me to advocate for my patients and now for myself, but it is not reassuring when "worrisome for mets" is in an MRI report, and even I can see the "worrisome" areas.

     Called my onc--they are waiting for insurance to approve the PET scan. Uggggg.  I need the approval today because my hospital ONLY does PETs on Wed, and by having it done there they will absorb the copay--which last time was $800.  So I need to get this done tomorrow or wait another week--YIKES--can't even think about it!

  • jfsnh
    jfsnh Member Posts: 4
    edited July 2010

    just an update, My PET is Monday, results by Tuesday night, On a 1-10 scale my onc said her conern would be a 6.  If the PET is positive, then a biopsy.  If it is negative, a bone scan.  Scared.

  • debbie6122
    debbie6122 Member Posts: 2,935
    edited July 2010

    Jtsnh~ thats great news that they ok'd the pet with your insurance- but not so great news you have to wait even longer now, the waiting sucks- Im keeping you in my thoughts and prayers for NO mets- Keep us posted (((((((( hugs))))))))

    Debbie

  • TriciaK
    TriciaK Member Posts: 124
    edited July 2010

    Winstonfargo,

     I'm so sorry, please feel free to vent here anytime!!!   I know this disease is tough but so much tougher when you're a male:(

    I hope your pet will be fine, please let us know???  xx

     Jtsnh, everything crossed for your pet scan!!!:)  Mine was clear but as the mri and bone scan showed something or were inconclusive I had to wait to two months to repeat until it was big enough to biopsy.   Thankfully the spot had gone by this time, holding good thoughts for you too!!!:)  xx

    Tricia x

  • lottie
    lottie Member Posts: 160
    edited July 2010

    I've been away from online for a few days and wanted to check in and wish everyone well. Finally pathology confirmed that the mass in my left breast was a lipoma. I was so afraid of spending this summer, fall and winter, like I did just a year ago. Thank you all for your support and kind words. My best wishes to everyone!

    Lottie

  • TriciaK
    TriciaK Member Posts: 124
    edited July 2010

    So happy to share your good news Lottie:)  xx

    Tricia 

  • kathimdgd
    kathimdgd Member Posts: 84
    edited July 2010

    Hi Ladies,

    Good news,had my appt with my oncologist yesterday and all my test came back with good results,Thank Goodness.The only problems i'm having is from the meds(femera) and he put me on Neurotin to see if that helps.We had tried lyrica b4 and that gave me too many problems in 3 weeks time so i stopped it.We'll have to wait and see what if anything this neurotin does.In the meantime i can relax,knowing all my tests were negative.

    Thanks for all your prayers and good wishes.

    Kathi

  • TriciaK
    TriciaK Member Posts: 124
    edited July 2010

    Great news Kath, hope the new med helps and thanks for the update!!!!:)

    Tricia x

  • Gitane
    Gitane Member Posts: 58
    edited July 2010

    jfsnh,

    Just thinking of you.  Let us know.  G. 

  • debbie6122
    debbie6122 Member Posts: 2,935
    edited July 2010

    Lottie, great news on the b9 results

    Jfnsh~You havnt posted since july 8th, worried about you, hope you are ok, i know you were having tests done on your knee to see if there was mets, please let us know how you are doing, you are in my prayers

    Warm hugs,

    Debbie

  • jfsnh
    jfsnh Member Posts: 4
    edited July 2010

    Sorry it took so long to post.  My onc had 2 radiologists read my PET and they both said there is no cancer and no need for more tests!  I have basically just stayed in bed, exhausted from all the anxiety, for the past few says.  What this takes out of you!  I am already anxious (a gift of BC) depressed and exhausted, but at least I don't have cancer! 

    Thank you all for you good thoughts.  I will see my onc 8/3 and get some answers maybe to what is/was there on the MRI.  I will see the doc about my knee Monday, and be glad it is "only" an orthopedic problem.  These boards are the best.  Jody

  • debbie6122
    debbie6122 Member Posts: 2,935
    edited July 2010

    Jody, congrats on the good news on NED- yay!!! Yes it has been tough for you glad you got some rest. take care and keep us posted on the mri results as welll

    hugs,

    Debbie

  • TriciaK
    TriciaK Member Posts: 124
    edited August 2010

    Thought I'd bump this up for anyone waiting and worried:)

    Tricia x

  • CAtharsis
    CAtharsis Member Posts: 6
    edited October 2010

    I feel alone in the waiting room but here is my situation:

    Diagnosis: September 2, 2009/Chemo: October 1, 2009 @ January 14, 2010/Partial mm: February 11, 2010/Radiotherapy: April 26, @ June 7, 2010

    Three weeks ago, I had a strep B infection (cellulitis) covering my back on the surgery side... Everybody got "crazy" about it. Moreover, besides my scar, I felt the lumpy "thing" (that has always been there but not suspicious according to the calmness of the rad-onc, the onc, the surgeon about it) got harder... I talked to my surgeon about this; to make sure it is not infectious, he suggested an ultrasound.

    The fun begins: the radiologist, an expert in bone scan (!), got nervous about the "thing" and indicated in his report that it could be scar tissue, it could be infectious, it could be anything... but still, it could be the big "C" and he wants a biopsy done... I  met the surgeon(again); he is confident that it feels like scar tissue but he wants to get that off our mind... !?!!! reassuring? not too sure about it.

    One thing leading to another, I have a mammo tomorrow and an ultrasound and u/s guided biopsy scheduled for next Tuesday. And then, how much longer to wait for the results???

    It feels good to have somewhere to vent... :)

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