~* The Waiting Room *~
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Holding your hands girls!!!
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Mom3band1g,
I am SO glad. It's still a longish wait, but sounds so much better than January. Thinking about you a lot. D0 -
well, my MRI is tomorrow. I must admit I am scared. EVen though I know it is most likely nothing of concern I cannot help but be scared. I thought I was doing a good job of "not thining about it' but my body says otherwise. I have been clenching my jaw so hard in my sleep. I can't concentrate today. Thankfully, my dh has planned a 'date' for us today. After the last one leaves for school we are going kayaking! He rented 2 kayaks last night and we'll spend the day on the river. I guess he knew better than I whjat I needed!
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Mom3 I hope the 'date' with your DH take your mind off the MRI. Thinking of you.
Love n hugs. Chrissy
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thanks chrissyb!
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I have had lower back pain for a little over 1-1/2 years. Had a mri 9-2010 that showed arthritic changes. continued to have low grade back pain, but last week had severe lower back pain that kept me up all night. went to emergency got anti-inflammatory injection and pain is back to where it was. had mri last week and there was a lesion suspicious for metastasis in different area from the previous arthritis. scheduled for bone biopsy wednesday and TERRIFIED.!!!!!! HAS ANYONE HAD A SIMILAR SITUATION THAT TURNED OUT NOT TO BE RECURRENCE.
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dnmnly- Hoping all goes well for you wed. Sorry you are in pain and now scared. I'll be thinking of you.
Dumb question - last time when I had the mri we already knew from the biopsy that I had cancer. This time we did the mri first. Will the mri show if this is a recurrrence, show that I need a biopsy, or show that's is definitily nothing (scar tissue)? Waiting for test results is torture.
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Hi girls, sorry you are still in the waiting room.
Dm I haven't had what you do but I just wanted to reassure you that bone mets are very treatable, I know, mine were dx'd two and a half years ago and I am, at the moment, NED ( no evidence of disease).
Mom3, after initial dx it is normal to scan first as it gives a clearer picture so they know what is needed next. Here's hoping its just scar tissue.
Holding both your hands. Love n hugs. Chrissy0 -
I felt a thickening in my mastectomy scar. It's 5 months since the surgery and I'm on chemo.
Went to onco and he said they left breast tissue in there and i have tohave it removed as soon as I'm done with chemo. Has anyone else had this happen? I'm waiting to go for second opinion next week. Why didn't he take a biopsy? An ultrasound? Something? I asked why,if it's breast tissue, it feels hard? He said he didn't know. Anyone else have a thickening in the scar? I'm petrified of a recurrence.
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Hi Timbuktu sorry you are so worried. I have a lot of thickening on my scar but it is only scar tissue build up because of the way surgery was performed originally. It is most unlikely that you will have a progression while still doing chemo that is why your onc is not ordering scans and biopsy right now.
Please take a deep breath and try to relax a little, right now you have enough to contend with with your active treatment.
Love n bugs. Chrissy0 -
Had my biopsy today, a little sore, mostly feels like a pulled muscle...Now comes the real hard part, waiting a week for results...Didn't think effexor alone was going to do the job doctor prescribed xanax.....hate being such a baby. Chrissy b thank you from the bottom of my heart for your response, needed to hear from someone that has been there that this is not a death sentence. Trying to stay upbeat for my 3 sons and my husband. mom 3band1g thank you for your support. I will keep you posted.
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Diagnosed with BC Fall, 2008; Lump removed, followed with 6 rounds of chemo and Mammosite therapy; Been on Femara since; August--mammo on breat that I had surgery on; okay; October--mammo on both--annual exam; come back in 6 months; December--went for 4 month checkup with cancer dr and he wanted me to have a MRI; he called Tuesday and the radiologist wanted me to have a biopsy; waiting on the phone call--suppose to have the biospy within 2 weeks; my husband is trying to assure me that it is scar tissue
To top things off, my surgeon who I adored, retired the end of November!!
Anyone here who has been in a similar situtation?
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dnmnly glad to hear that you are done and not too sore. Try and stay busy although this time of year that's not a hard thing, you will find the week will fly by. Please let me know how you get on.
Linda I haven't been in your exact position but it's always hard to think that the beast might have returned. Take a deep breath and cross that bridge when and if you get to it, right now, you DH could be right, it may just be scar tissue. It doesn't help when you loose a good part of your treatment team..........I sure hope you manage to find someone just as good as a replacement.
Love n hugs. Chrissy
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Well will be a week tomorrow that I had a biopsy of my spine and still have not received that call with the results. Whew this waiting is difficult. I am afraid to call and see if they have results and keep hoping that no news is good news. They said it would be 3-5 business days and that is up tomorrow, so taking a deep breath and praying for great news. Will keep you posted.
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Dnmnly, they sure are taking their sweet time with your results. Hopefully tomorrow will bring you good news.
Love n hugs. Chrissy
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Having my biospy this morning. My new doctor (because my wonderful doctor that I had retired the end of November) is great!!!!!!!!!! Unfortunately, he is going on vacation for a week but I will meet with him on next Thursday for the results!
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Linda so glad you like your new doc, that's very important! Good luck with your biopsy and hope the results are all negative.
Love n hugs. Chrissy
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Chrissyb they are taking along time to give me results. They said 3-5 days and today is day 6 and when I called today they have all gone on vacation except the nurse who from past experience with test results will not give them to me good or bad. They won't be back in the office until tuesday after Christmas and I am going crazy with worry. My mind is telling me that it is bad news and did not want to spoil my Christmas, then I think no news maybe is good news. This is not the first time this has happened, ( left waiting for results), when first diagnosed was made to wait 2 weeks while doctor was out for me to get my petcat scan, which was a good result , but the nurse would not tell me. This is so frustrating for me. Please keep me in prayer that I don't lose my mind before tuesday. Thank You for listening to me vent
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I have gotten the best Christmas present ever, my biopsy of my spine came back benign and I just want to praise God from whom all blessings flow and to be here as encouragement to others that not all lesions on the spine are metastatic and to hold on for those test results before freaking out as I did. Keep the faith. ChrissyB I especially want to thank you for corresponding with me.
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Dnmnly, I am soooo glad that you finally got your results and it's all good.....BENIGN!!!!! Way to go!!!! Now you can really relax and enjoy your Christmas! Joy to you and your family and have safe and happy holidays!
Love n hugs. Chrissy
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TY you so much Chrissyb you are truly a blessing to all us waiters....smile. Yes I can now go in to the holidays without a heavy heart when I watch my children open their gifts and still be able to see a future with my family. You and your family have a Merry Christmas.0
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I was just taking down my Christmas tree and that dreadful thought wouldn't leave my mind..."will I be doing this next year?". I have my MUGA, Liver MRI and PET scheduled for next week, and couldn't handle it anymore, so I called and they actually had an open appt. for tomorrow for my PET scan. I tell everyone, the waiting is the hardest part, as you all know. I have been feeling so great, I'm still getting my Herceptin, my last 2 PETS came back clear, but I am just waiting for the other shoe to drop. I'm so grateful that my Nurse Navigator can get me the results by the end of the afternoon. Praying for another clear scan!
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Hi ladies, I see my onc on the 20th, been having some neck pain but feels like it is muscular, however when I touch the bone it is a little tender. Am trying to get a massage to see if it helps. I am supposed to have reconstruction surgery next month, does anyone know if my onc will want me scanned first? Should I ask for one or is it too soon as I am not even a year out yet.
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Hi thegood5, oh yeah, I get where you are coming from...lol.....I think we all do. Waiting for the other shoe to drop is pretty hard to live with sometimes. I think a good yard stick measure is how you are feeling or so I've been told by my doc but it's also good to get those scans where they see that everything is just fine. It's more than likely thay you will be around for many years yet. Good luck on those scans! Be well, live, love and enjoy!
Hi ckgrayoh I would mention it to your onc but don't be surprised if he just notes it. It has been known that arthritis makes your bones sore as well and it could well be that. Deep breath girl, don't jump the creek when you can walk the bridge.
Love n hugs. Chrissy
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had a 45 min massage yesterday, sigh...felt so good. My neck feels better but I still feely achy, does feel like muscle strain. The massotherapist said the radation causes muscles to tense and one side is compensating for the other, he said I felt very tight. SO....hopefully will get reconstruction with no issues next month. I think I will see if onc will scan me at one year.
I hope everyone has a great day!!
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ckgrayoh, I'm glad the massage made you feel better and relieve your neck pain some what. Just goes to prove that once again our minds take us to where it doesn't need to go. Good luck with your recon and I hope all goes well for you.
Love n hugs. Chrissy
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woot woot! still dancing with NED! Had my scan and it was totally clean! Now I can "relax" for the next 3 months before the next scan!
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yea!! good for you on yoru results!! Modern medicine is so amazing!! ((HUGS))) to you!!
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Hi ladies - OK if I join you in the waiting room? I just had a stereotactic biopsy this morning, after "suspicious calcifications" were found on my mammo. I just finished treatment -- lumpectomy, chemo and rads - only 9 months ago & was totally unprepared for this so soon. My doc said these calcs could be junk left over from radiation.....or DCIS. Now comes the "big wait" -- was told I won't have results until middle of next week. As we all know, waiting sucks! Feeling very down right now. Thanks for listening.
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Hope60~it's all in your name....never give up! Sending prayers and good thoughts for a wonderful result!
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