~* The Waiting Room *~
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I called my doctor at 2:30, not able to wait anymore. He'd already gone for the day, so I asked if anybody else could tell me the results? They said they would have a PA do it.
A few minutes later they called back - the final results aren't in but it doesn't appear to be mets. Whew!!!
I don't know what it was though, hopefully I'll find out. I don't see him until the end of February, after my arthrogram MRI
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Coolbreeze...I just got really mad when I read your posting. I am so happy it isn't mets but shame on a doctor for leaving for the day and not letting you know this. I have had those weekend waits and I think every doctor should experience one so they know what it is like. We pay good money for their services and they should not have us calling them to get the results. PS...my husband is a professional and he tries very hard to follow up. Often we have notes on the kitchen counter of people he needs to call in the evening or on the weekend.
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here i am again, too. been having some aches and pains in my joints and my back so onc ordered a PET and bone scan. PET came back with a 6x6x7 cm 'mass' in my left ovary area. they've referred me to follow up with my gyn. i asked the onc nurse directly 'does this look like cancer?' she said they didn't know and that the gyn would be more familiar with this then they would be. wtf? had the bone scan done today. not even worried about that as now i have to bring yet another doctor on board and look at more testing and if they are going to want to remove this 'mass' or leave it or what. i'm still doing herceptin for two or three more treatments, i think. when i was first dx'd i had a ct and mri done and none of those picked up any 'mass'. i'm not taking any anti-hormonals. so this thing could have just grown during treatment? :: sigh ::
i need a reset button for my life. gah.
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PiscesMoon, I want that reset button, too. Since 12/16/10 I have had a mammogram, sonogram, two biopsies, MRI, have an MRI biopsy scheduled, had a CT and bone scan and now find out two areas, my left hip and right shoulder, need looked at further, so am scheduled next Wed. for a PET scan.
At age 52, I thought I was a healthy, happy, active woman. It is frustrating that my BC Dx was Jan 6 but still no treatment for that Dx, just more problems.
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Mammo came back fine, yay!.... but pain in my rib on my bc side is worse also tenderness in neck... lymph nodes?
Last Herceptin Feb. 8th. Will insist on CT, PET or MRI for the pain in rib and neck. Waiting.... again.
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Hey Divine~ Surprised they haven't begun SOMETHING on you yet. But I was surprised when my docs told me I had 6 months of chemo before surgery but at least they started chemo right away.
Maybe they need to be sure about your treatment options based on all scans. If you don't get action soon get a 2nd, 3rd, 4th, opinion.
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hi everyone may I join you please??? Boy, I'm telling you, this waiting causes cancer, I swear!!!! I finished 4 TC on sept. 15, and now waiting for biopsy results again. I had what I thought was a simple seroma and when the results came back from the lab on the fluid sample they said it was suspicious for malignancy... WTH??? So thursday, I had a biopsy and they said it would take 1 1/2 to 2 weeks for the results.... geeeezzzzzzus. I will call Monday or will have my GP call for results. It only takes a couple of minutes to look at cells. Please pass me a magazine, thanks.
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Wishing the best results to all here in the waiting room, I was here last year with suspicious pain for mets but thankfully it was nothing and hope you ladies have the same good results!!!
Tricia xx
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thank you Tricia, I got my chest xray results today and it was neg. so one big sigh of relief. Just waiting for biopsy results. WAITING SUCKS!!!
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Yesterday I received a Dx of bone mets. What a roller coaster ride this is, because at one point I was told I was stage 2, now it is stage 4. My MRI biopsy on a different part of my breast came back negative. Gee, at one point I was worried about losing my breast. I do plan to kick this you-know-what in the you-know-where, tho. Just so you know.
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Divine, OMG, I am so, so heartbroken that the PET scan was positive. The first post I read from you was on the ILC board as I was diagnosed with ILC too. Since the first post, I have read your profile every day keeping up with you. I had sooooo hoped the PET scan would be negative. To be honest, I can't imagine what you are going through right now. Being diagnosed at Stage 2B was pretty devastating to me in the beginning. I know you are reeling with emotion going from Stage 2B to Stage IV in less than a month. I see in your posts that you have a strong faith and trust in the Lord. I hope he wraps his arms around you and gives you comfort right now.
Our ages are close. I was 44 last year at diagnosis. I just wanted to reach out to you and tell you that I will be praying for you each and every day and I will follow your profile. I so wish we could cure this beast and no woman would ever have to face this diagnosis again. I know in my heart that we both have many moutains left to climb, many sunsets to enjoy and we will be here for our children and grandchildren for years and years and years to come. Even though I only know you through your writing, I love you and you are my sister in this endeavor!
Susan
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Hope -- I know the waiting is torture -- hope you get good news tomorrow!!!
I get to join the crew here...chest x-ray for sudden onset cough + SOB for about a month and 1/2. The onc never told me what the results were, but he scheduled me for a chest CT tomorrow (of course, on a Fri., so I get to play the weekend "waiting game!!!"
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I'm pulling up a chair and some magazines, and joining the waiting room.
I've been having headache and pressure in my head for almost a week now, and will be getting an MRI sometime next week. I am treating it as a sinus infection with a neti pot, saline spray, and Zyrtec (which isn't doing much). I'm hoping it clears up soon, the neti pot seems to help the most.
Mmm, can't forget the tea and chocolate while I'm here!0 -
Hi Ladies
I had my PET/CT Scan this morning. I have some questions if you dont mind.
As you all know, TRYING to read these scans can be so confusing. On the PET if something is found would it show up as a "BrightLight" or black spot? Does it depend if I am looking at the scan in black and white and color? On my upper left side it said Current Value 5.51
When I click on "Dark Black Spots" the SUV goes higher in some areas. On my Lower Left abdomen it said Current Value..34.09?? this was on CT Scan.."Bright LIght Spots"
on the Fusion CT/PT "Bright Light Spot" near kidney (If I read it right lol) 12.93?
I read that if it shows up as cancer it would be BLACK (on black and white) and Bright spots, yellow,orange on color disk.. So very confusing. I didnt get the report yet, that will be ready in a day or two
Why would SUV be high in some areas and very low in other areas, below 2.0 and as high as 34? Maybe I am just reading it wrong? Just dont know HOW to read or what to look for
Thank you so much ladies
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((Everyone Here))
I have come for my first visit. I am waiting to find out about getting the ok to have a PET Scan for the first time.. Lumpectomy 5/10 BMX 6/10... Axillary mass b9 6/11....Truncal Lymphedema 9/11...I keep getting knocked over and trying to get back up.
I was learning Manual Lymphatic Decongestion, and the first time I massaged my supraclavicular areas I felt a lymphnode.
US shows 2 large lymphnodes in my neck.
I have no idea if this is nothing or I have gone from Stage0 to Stage iv....
So ARRRGGGGGAAAHHHHHHHH!
It is soo hard living in the not knowing, and knowing that this whole ride is a crap shooot.
Thanks for reading.
Sleep tight
Blessings
brazos
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Hi Brazos, I understand your anxiety with living in the not knowing. I am one month short of 2 yrs since diagnosis and got the news last week at my routine follow-up mammo (late because I'm always "too busy" trying to just forget it ever happened). I guess I'm not destined to just forget....calcifications have appeared this round (not there in last mammo) and my BS recommends biopsy. So I'm scheduled for tomorrow morning for a stereotactic biopsy 11 am. Not looking forward to it as I recall it wasn't much fun last time. Looking back at my path reports, I recall that margins were less than optimal but it was suggested to not re-excise and let the radiation catch the rest of the DCIS if any. Maybe that wasn't such a good idea? Then again, what would have been the alternative back then? So biopsy tomorrow then the wait. Deja vu all over again just 23 months (to the day) since last biopsy. Here we go........
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Sofie305 ... Sanity vibes comming your way. Our journeys are only 4 months apart. Mine all started with the calcifications and I know the whole drill you are about to go thru. Prayers and strength comming your way. Steriotactic biopesys are NOT FUN. Hope it brings more clarification and b9 results... and to think we reduced our recur rates to 1-2%....arrrgggaaahhhhh!
thank you for writing sofie....
Blessings
brazos
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Brazos, thanks for the good vibes...they must've worked because the biopsy wasn's nearly as bad as I feared..better than last time. It all went very smoothly and quickly, done in an hour from initial consult to final consult. 6 samples taken...and they told me results may not be ready until Monday or Tuesday. Perhaps that's their way of managing expectations? I really thought I'd hear by end-of-day Friday. 1-2% recurrence huh...? h'mphhhh...this shouldn't be happening. dammit dammit dammit. I'm going to take a nap now and not think about it. Thanks for writing, brazos.
Blessings to you.
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I'm worried!!!
Nearly 3 and a half years from dx but have been having problems with my shoulder for the past few months. I thought it was a frozen shoulder ( I suffered with the other side a few years ago) but recently the pain has extended down my arm. It throbs all the time.
I know you'll think I'm crazy but I'm 60 in March and have booked a once-in-a-lifetime holiday for us in February to celebrate. Being from the UK, that's a cruise round central America, Panama and the Bahamas. I keep thinking that if it's more than a frozen shoulder then my cruise will be............................ history.
I have a checkup at the hospital next week and had originally decided that I wouldn't mention it but it now so troublesome that I must.
I'm scared stiff!!!!
Mal
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Sophie... hang tight waiting for results... why not call the office b/f friday so you are not hanging the weekend?... All 3 of my EVIL scares the past 11 months I ended up being ok... I send that out to you.
Maltomlin....you are NOT CRAZY at all doing the cruise thing, that Rocks! good you are getting checked, and hopefully its just a pinched nerve in your neck or bursitis. It is SO HARD with everything that hurts or goes wrong we always think the worst,,,, keep yer chin up and work on that packing list. Prayers comming your way.
Sanity/ Strength to all of you Waiting
hugs
brazos
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Ok, not sure if I belong here. i have an appt with bs Nov 29th. I am almost 2 yrs from diagnosis and last month found another lump in my cancer side. I had a mast and rads with recon. What could this lump be? It's driving me to distraction. I know I won't get any anwers until my appt but it's so hard to wait. I waffle daily between "it's nothing" to "it's cancer again". It doesn't help that my rib pain (I've had that since original surgery) is getting worse. I think my head is playing with me!
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Mom3band1g
I had my diagnosis and surgery same year as you did. Yep You belong here...waiting....I have had nodules/ mass's and lymph nodes pop up since....and all was good news. I wish that for you. Its sooooo hard waiting, even more so after the initial diagnosis of breast cancer. Sending you Sanity and Strength. Happy Thanksgiving too.
hugs
Brazos
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tomorrow is my appt. I am a nervous wreck. I just want it to get here so they can go ahead and tell me it's scar tissue. This is worse than waiting for my original appt. I've given myself a 3 day migraine. Ridiculous.
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Glad you ladies are here. I haven't been on the boards for a while because all was well, I went back to work, got remarried, travelled, etc. Life has been wonderful. Haven't been feeling terrific for the last three months or so. Issues that didint' seem serious or seemed related to my Celiac disease. Had an abdominal ultrasound and pelvic ultrasound as the symptoms could have been Gallbladder ( I know I have gallstones from a previous CAT scan), ovarian cancer, or cancer of the small intestine. Got those results back and ovarian and intestinal cancer are out. However, there is something on my right kidney which is the side my original cancer was on. More tests tomorrow and I'm very anxious. My gut has me preparing for the fight again.
I know my cancer was very agressive. I was sneaky or foolish enough to read my onc's report. Scared me and made me treasure every moment. I feel fortunate to wake up every morning. I'm hoping that I will be strong enough to do this again if I need to.
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mom2band1g hope everything went well gor you today and you get your results quickly.
Hi Janincanada like all of us, you will do what ever you need to do when you need to do it. We are all stronger than we think. Hopefully that thing on your kidney is just a fatty deposit......good luck!
Love n hugs. Chrissy
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well, I'm back to waiting again. I had to have a mammogram (on an implant -ouch) and an ultrasound. The radiologist could feel the lump but couldn't get it to show on imaging. Huge deja vu for me (same thing happened the first time). I am now waiting for an MRI. Oh joy, more waiting.
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thoughts? I heard the Dr to say to schedule the MRI in a week or 2. The scheduler said within 2 months and gave me a date of Jan 5. I wish I had insisted she double check with the Dr as it's impossable to get them on the phone. I think I'll have an ulcer by Jan 5th. I did call their office to ask that they double check but doubt they will call me back. I love my surgeon but Hate her practice.
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I have been thinking about you today and just found you here. I am so sorry you are going through this stress again. I cannot believe they are making you wait a month for the MRI. Is there anyone you can yell at to get it quicker? This just seems wrong to do to someone who has already had a previous diagnosis.
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Hi dsj,
Thank you! I called them again and there had been an error in scheduling! I wasn't crazy! I am now scheduled for Dec 13! Still waiting but it's better than Jan!
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Waiting too! Had surgery on the 29/11 to remove a recurrence. Scans on the 30/11 and meeting with the Oncologist on the 5/12 to see outcome. Very anxious!
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